Looking for others with NSCL EGFR mutation

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Julie02
Julie02 CSN Member Posts: 3 Member
in Lung Cancer #1

Hi I am 43 years old stage 4, Korean. I am looking for anyone going through the same situation. I am super lonely. I need friends.
I live in PHX. Please contact me if you know anybody. Thanks advance.


Julie

Comments

  • Julie02
    Julie02 CSN Member Posts: 3 Member
    #2
  • mari65
    mari65 CSN Member Posts: 3 *
    #3

    Hi Julie

    I’m Marie if you don’t mind what is

    NSCL EGFR because I had breast cancer before and Thyroid, and I’ve been suffering so long with my lungs and Breathing I never smoked or did drugs ! I finally got a Dr to give me another pet scan I haven’t had when in many years! And I believe I seen that on my report amongst other stuff I’m trying so hard to figure it out ? I’m sorry you’re lonely I feel like you .
    sincerely your new friend

    Marie

  • Julie02
    Julie02 CSN Member Posts: 3 Member
    #4

    Hi its Non Small Cell Lung cancer. EGFR is my mutation type. I hope you have no pain, and peaceful days my friend ❤️

  • cmpattberg
    cmpattberg CSN Member Posts: 10 Member
    #5

    Hi.

    I am Craig. NSCL. Dx'd in 2020. Recently metastasized to the brain area. Had brain surgery and now on a new oral med. It's kicking my butt with side effects.

    Early on someone said they wrote as a diversion to get their mind off what they were going through. I took that to heart and wrote poems during my early treatments. The poems are all about my journey. Some a funny, some are sad, and some are from frustration.

    DM me if you would like a copy of them.

    And hang in their, my oral meds were approved for use in 2019. So there is always 'hope'.

  • mari65
    mari65 CSN Member Posts: 3 *
    #6
    https://csn.cancer.org/discussion/comment/1723393#Comment_1723393

    Thank you Julie

    God Bless you I hope you’re feeling well, 💝 today I should say this morning. I can’t sleep well too much on my mind these days no one ever understands Uhg but us .
    im going to my other daughter tomorrow for her birthday with this daughter I lived with for like 24 years because I helped her raise her children even while I had CA she had gotten addicted to pain meds when she hurt her back and the dumb drs never listened to me she had so many Overdoses and thank God I saved her life so many times the last one was 3 years ago and it was the worse she’s clean 3 yrs . And now I’m in bad shape and her 2 boys were on the spectrum it was so hard . But there ok now 1 is just a little bit more worse he gets his moods but nothing like when he was little I mean we had bruises !
    he’s big now 5’ 10 and like 208 lbs so that be awful. I’m weak now so is she it’s like going through war.
    but now she wants me to get my own place it hurts me because I raised the kids basically there big 2 are out mainly. With there lives but Bella is 13 and Tony’s 21 but not in his head he’s like 12 , so I have to figure out what to do because I’m on disability since all my illnesses and only get Medicaid and 964 a month that’s peanuts . Oh well tty tomorrow CA buddy you be wellYour not alone you have ME 😃
    night nights God Bless you

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