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PSA Anxiety
After ADT, and pelvic IMRT earlier this year another PSA test is coming up at the end of the week. Last two were .04 which is great but I've been really stressing these last few weeks about this upcoming test. I guess the worry of recurrence just goes with the territory. Does this worrying diminish somewhat for those of…
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Zytiga
Diagnosed in 2014 Gleason score 9. PSA off the chart. 44 radiation treatments and Lupron. PSA went down. Fast forward late 2021. PSA 24. Super scan PC spread to lymph glands above and below waist. Started Zytiga in 1/22 with 6 month Lupron. 4x250mg once a day. Reduced to 2x250mg this year. PSA .04 since 2/22. Each month…
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Hormone therapy
I was diagnosed with DCIS stage 0. Had lumpectomy in 2023 and 22 sessions of radiation after surgery. I had been on Anastrozole with horrible join aches then I was changed to Letrozole but I did not tolerate it as well. I am going to give my body 2 to 3 weeks off medication and try Tamoxifen 10mg. Any suggestions? Tips?…
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POT and Cancer.
Hi, Guys and Gals. I am a voice actor, and I was diagnosed with throat cancer in 2023. I have an animated character I created a long time ago, and now he will tell my story of survival. His name is "Cecil Jenkins". I hope you find my video inspiring, informative, and entertaining. [removed by CSN Support Team]
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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To chemo or not to chemo? That is the question
I was recently diagnosed with endometrioid carcinoma, FIGO grade 1 stage 1C. My doctor is recommending chemo because the ovary that the cancer was in was split open when he went in to do surgery. There was a lot of fluid in my abdomen and chest from the rupture of the mass that was on that ovary. The doctor said there was…
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No orgasm after radical prostatectomy Davinci Robotic sugery
Hello, I had the radical prostatectomy surgery in August of 2024 so it's been a year since the surgery. I experienced a handful of orgasms which contained regular spasms with the orgasm in the first 6 months that had 40% feeling compared to before surgery. So I was hopeful. Now a year later I don't have only have only…
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Massive PSA increase!
Hi guys, I'm new to this group. I have been on TRT for the past year, my baseline PSA was .51. I just had my follow up test and today my PSA is 12.93. That is a 2,431% increase in one year. From what I'm reading, that is highly suggestive of cancer! I have seen the results through patient portal and I haven't even talked…
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Surgery with Gleason 6 and PSA 2.5?
First post here……I'm 50 years old and recently diagnosed. Half of the biopsy samples came back as a Gleason 6 and it's bilateral. I've had my PSA checked for the last 6-7 years and it was always around 1.5. At the last physical it jumped to 2.5. I decided to meet with a urologist and now here we are. The kicker for all of…
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Perineural Spread?
Hi all, I am wondering if anyone has had experience with perineural spread? My fiance had two good scans January and April of this year following surgery, radiation, and chemo for SCC base of tongue. Post-surgery and in the radiation planning process there still appeared to be spread along V3 nerve. January MRI and PET/CT…
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1.5 years after salvage surgery
I am sooo blessed ..I just received my PSA results and I am still undetectable ..side effects Are 1-2 pads a day which I don’t think is that big a deal and I can still get an erection radiation and salvage surgery i did lose a little length about an but all in I am very pleased with the outcome. God gave me a second chance…
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progress report...
yesterday, October 14, I had my final radiation treatment so I thought I'd share my experience so far. I'm 67, in good health with elevated risk for colon cancer (it took my Dad and I've had colonoscopies since my early 40s, dozens of benign polyps removed through the years since, I have one of the risky genes.) Taking…
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Incontinences During Radiation Treatment
Hello, I just started (2 treatments) Protron Therepy radiation treatment for my prostate cancer. Part of the process is to fill your bladder before the treatment. I'm having a very difficult time being able to hold a full bladder long enough to get through the treatment completed. As most of you know you are required to…
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Anniversaries
Hello, I'm approaching my one year anniversary of my screening mammo which resulted in my diagnosis. I'm interested in hearing how others have dealt with these anniversaries. Were they difficult for you? Did you intentionally do anything distracting on those days? What advice can you give me as I recognize triggers which…
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My survival journey through anal cancer
I was diagnosed with stage 3b anal cancer in Sept 2022 and while I consider myself a survivor, my experience was difficult, I'm sorry to say. In Aug 22, I started noticing that I was passing blood in my bowels movements. I was 59 at the time and I've certainly had plenty of hemorrhoids where there was bright red blood, but…
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Neuroendocrine tumors/cancer
Hello all! I am curious as to if there is anyone else here fighting neuroendocrine tumors/cancer? I'm 36 years old & was diagnosed at 34 with my primary tumor site being in my small intestine and my appendix with mets to my liver. I'm currently being treated at Henry Ford Hospital in Detroit, Michigan and am receiving PRRT…
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NEED INFORMATION
HI BEAUTIFUL LIVES OUT THERE. ITS SO NICE THAT WE ALL ARE IN SUCH A GOOD HEALTH THAT WE GOT AN OPPORTUNITY TO BE HERE AND DISCUSS ALL THESE THINGS TOGETHER. FIRST OF ALL THUMS UP FOR THEM WHO ARE FIGHTING WITH THIS ILLNESS AND DOUBLE THUMSUP FOR THOSE WHO ARE GIVING CARE TO THEM. SO ITS THREE THUMSUP HERE. LETS ASSUME THAT…
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I need help with early symptoms of pancoast cancer
Hi, I don't know if these are symptoms of a pancoast tumor or just joint pain from everyday activities. My pain is in my right shoulder joint and feels like a rotator cuff injury. It started 3 weeks ago and hasn't gone away. It only hurts when i move my arm around, mainly when i lift my arm straight out to the side. Some…
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Pxa grade 3 anaplastic Tumor .. Rare .. 11 year old boy
My sons been diagnosed with a rare pxa grade 3 Tumor ? Anyone heard of this before ? He has had surgery and are confident they have got it all, will be starting radiation for 6 weeks and chemo for 6-8 months HAs anyone come across this before .. We are devastated thank you
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Grade 3 PXA brain tumor
My step son (14) was diagnosed (6/2025) with a rare malignant PXA grade 3 brain tumor (with BRAF600E mutation) Initial resection went well, surgeon was confident he got most if not all of tumor. We followed this by 6 weeks of radiation, little amount of symptoms but not too terrible. A month later MRI came back with some…
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I Have A Story Of Amazing Saving Grace Though Undeserving Am I
My third Cancer-My Biggest Personal Struggle The Holy Spirit Interceded-God Extended His Grace To Me In September 18 of 2019 I went into Hershey Hospital, PA to be operated on by Karen Choi a surgical oncologist for head and neck cancer. I was to have lymph node cancer surgery on the left side of my neck removed. I had a…
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Long Term Radiation Side Effects
Hi, I'm new to this forum and wanted to reach out and see if others are experiencing similar side effects that my mom is experiencing. My mom was diagnosed with a left frontal lobe grade 3 anaplastic astrocytoma back in 98'. She had a craniotomy to remove the bulk of the tumor and then had targeted radiation therapy and…
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Family in need of support
Idk where to start. But I will start with please pray for my family. My 31 yr old boyfriend was diagnosed with 3 different cancers almost 3 yrs ago its in his brain lung an bones. He has stage 4. He had full brain radiation about a yr ago. He struggles with remember anything . He thinks he can still do everything like…
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Chat GPT
Many will have heard the name, but know little about this great learning resource. I was diagnosed with a stage 1b adenocarcenoma over 2 years ago and declined the default treatment of esophagectomy, opting instead for 3 then 6 month follow up endoscopy visits. I was declared cancer free at one point but then another…
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What a journey!
I was diagnosed 9/11/2018. After two rounds of chemo and one radiation, my cancer has neither grown nor disappeared. I am now again, six years and three months later, seriously considering an esophagectomy. I am fearful, yes. But more than that, I consider such as invasive procedure to be an affront to my body. Does anyone…
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R-CHOP Progressive Side Effects
I was diagnosed with stage 3 two months ago. I have had three of my projected six rounds. The first two after periods were relatively mild nausea, fatigue, constipation, and diarrhea. The third session, however, resulted in much more illness for these first ten days. Can someone tell me what 4, 5 and six are going to be…
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Managing Bone Health Post-Cancer Treatment: Looking for Tips
Hello all, I'm wondering if anyone here has had bone health problems after cancer treatment. I was diagnosed with cancer a few years back, and my treatment went well, but recently I have been experiencing some pain in my bones and joints, particularly in my legs and lower back. I know that chemotherapy and radiation…
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reduced dosage whole brain radiation therapy (rdwbrt)
Has anyone had the rdwbrt for primary central nervous system lymphoma (PCNSL)? My wife was diagnosed in October 2021 with PCNSL and refused the HDMTX treatment. She did a different treatment and it worked very well for 4 years. She recently developed a new tumor on her brain that doubled in size in about 50 days. She is…
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Salivary Duct Carcinoma
Hello, my name is Hannah and I am newly 26. I live in CT and work as a children's outpat clinician. I was recently diagnosed with stage 1 salivary duct carcinom...I start 6 weeks of daily radiation next week and I'm feeling pretty nervous about it...I had my treatment planning session last week and left feeling pretty…
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There are several types of KIDNEY cancers and several types of kidney cancer cells. What kind do yo
There are several types of kidney cancer: * Renal cell carcinoma * Urothelial carcinoma (also called transitional cell carcinoma) <---- what my husband had * Sarcoma * Wilms tumor * Lymphoma Types of kidney cancer cells: * Clear cell * Papillary <---- what my husband had * Sarcomatoid features * Angiomyolipoma *…