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Thank you all for everything
Hi all I am based in Ireland and have been lurking on this site without posting since my tonsil cancer diagnosis back in 2021 aged 48. It was so useful in the dark old days of treatment when eating was such a struggle and my mouth was such a mess (God, you just forget, don't you?), and even since, from time to time as new…
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Any survivors of signent ring cell colorectal cancer
Hi my name is cheri my husband is 26 was diagnosed with signent ring cell colorectal cancer stage 4 in june 2012. He had surgery then to remove a foot of his colon when he was diagnosed along with several lymphnoids, the margins were clear so he started radiation in july along with chemo pills. One eek after starting that…
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Essential thrombocytosis
Hi there. I am looking for anyone else who has this disease/cancer (depending on who you talk to). It is very rare. Any fellow ET'iers out there? It would be nice to compare notes… :]
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Q: Cancers in senior citizens from thymus radiation as babies?
It's well known that those of us who misguidedly had their thymus glands irradiated as babies developed thyroid cancer in early adulthood. Now that I'm 69, I'd like to consider how many of us have developed other cancers in the area of the neck, chest, mouth, etc., as senior citizens. I've seen a few people, in this forum,…
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Recurrence Anxiety
Hello. My name is Jeff and I was diagnosed with Rhabdomyosarcomo at age 9. I underwent a little over a year of chemo and a short stint of radiation therapy. I've been cancer free ever since. I am now a husband and a father to 3 beautiful little kids. When I think about how well my treatment went and how trivial the long…
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What Else Can We Do For The Pain?
My 81 year Father was recently diagnosed with metastasis prostate cancer. It was shocking news and such a blow to us all. He completed a few radiation sessions and continues to take all his medications well. We are awaiting the start of his hormone therapy in a few weeks. Although he has prescription meds for his pain,…
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PTSD?
hello I’m new here today and the reason for me joining was wanting to know how people have dealt with their PTSD when it comes to your scans and bloodwork coming back normal for the last year and a half after stage three colon cancer six months of chemo every time I get a bump or don’t feel right I have my mind just goes…
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Sore throat return after 8 months?
anyone have a “sore when swallowing” throat appear many months after recovery from radiation and oral surgery? It coincided with a cold sore on my lip; 1st the flooor of my mouth was sore (or the sides of my tongue) as it was hard to tell. Then it moved to when swallowing only. Not sure if it’s tongue or throat. I’m two…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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2 year update after salvage surgery
I am blessed to say that after having radiation therapy initially even though I had a bad feeling about it and having be used as a guinea pig only to find out that cribiform is radiation resistant which it is, and I will never let anyone tell me otherwise. I was fortunate enough to keep an eye on it have that damn cancer…
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Check in
Hey REB72 how you coming along with your prostate cancer. We were diagnosed around the same time and was just curious how things are going for you.
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Olfactory neuroblastoma
I was diagnosed with olfactory neuroblastoma and had my tumor removed in November of 2025..since then I have headaches at least 3 times a week..my next post surgical follow up is next week and I plan on discussing the headache issue…I am getting nervous…should I be or am I still recovering and these headaches are just par…
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Osteoporosis
I am a Hodgkins lymphoma survivor having undergone chemotherapy (MOPP) and cobalt radiation 47 years ago. I a DEXA scan every three years to monitor my bone density. The last one I had was three years ago, I don’t recall what my score was, but I was still in the osteopenia stage. My current scan showed a 20% decrease in my…
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Who You Gonna Call
You just get a death sentence. It's never been worse. I've had my challenges, but death - nothing like this before. I never asked anyone questions about death. Now I have tons of them and no one seems to want to talk about how long I've got! So who can you call? I have been able to turn my poems, about my cancer journey,…
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Post surgery supplies and planning events after surgery
I’m a 68 year old newcomer to this group. I am scheduled to have my prostate removed via robot assisted surgery on March 12. What urinary incontinence supplies would the group suggest I have on hand for the early part of my post-surgery recovery period? While I want to be optimistic about incontinence issues after my…
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The Email from CSN
Hi ladies - I am truly remiss in visiting more often here, but when I got the email today that this board was being discontinued soon, it made me panic - where will we go? How will I find you and know you're ok? If this has already been discussed and figured out, will someone include me in the "oldtimers" group? I pray…
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So Much Data and Questions
Felt like a fire hose was opened into my mouth. So much I did not know yet wanted to know. Cancer - other people get that not me. So I had never thought much more about it. Then when they told me I had lung cancer, stage 3, I realized quickly that I knew nothing, nothing at all. And I wanted to know everything, NOW. Later…
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I would like to chat with other Laryngectomy's ....... * not many of us out there *
Most times I feel so alone and have no one to talk to about being a total Laryngectomy .It would be nice to meet someone with same .I had vocalcord cancer and this June 9 will be my 1 yr surgery date .I have alot of anxiety attaches , which keep me homebound .I am single and use to be fairly active ...So if your out there…
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Extrapulmonary small cell carcinoma localized in lymph nodes
Hi, I'm new here and hope to find friends and opportunities for mutual support. I'm a youthful 60 and intend to outlive my mom, who made it to a youthful 98! I was diagnosed in Sept. 2014 with Extrapulmonary small cell carcinoma localized in my left axillary (armpit) lymph nodes. The only study I could find…
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Our friend, NewHere, has passed away.
Anyone who has followed NewHere, these many years, will know that his fight was long and hard, but he gave it his all and then some. What a blessing it was to be a part of his world, albeit online. He was a strength and motivation for me, as I continue to survive. I survive to honour NewHere, and all who have gone the way…
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HER2+ time b/t surgery and chemo
I have HER2+breast cancer and I’m having surgery on April 7 followed by chemo and radiation. 8 years ago had a double mastectomy r/t triple neg cancer. i was told that I need to wait 4-6 weeks after surgery (they have to switch out implants along w lumpectomy) before starting chemo. Does that amount of time sound…
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Hello and Goodbye
I have been following since 2019. My husband was diagnosed with Stage 4 Colerectal Cancer. Just want to say thanks to all contributors over the years. You gave me hope. I didn't post as was not sure if my husband was also looking online. Just want to say to those of you recently diagnosed that although it is tough, stay…
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Sad To Hear These Forums Are Being Shuttered On May 28, 2026
Just received an email about this. I have not been active myself recently as I am hitting my 5-years this August and all is well as of now. But this group was invaluable 4-5 years ago. I wonder if there are any FB groups anyone belongs to that can be recommended or another safe space to keep this going. If you know of any,…
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Cancer shock
I’ve had a heck of a few weeks. I’m 49 years old and had an infection develop in my right toe. Being a diabetic I went to get it checked out. The infection was spreading rapidly and amputation was the only option. While preparing for the surgery, a CT scan was performed. A mass in my kidney was found, an incidental finding…
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CSN will be discontinued as of MAY2026
Hello and happy Easter! I just received an e-mail from CSN admins that it will be discountinued as of 26MAY2026. Well… I am not here as much as before, and it is the same for many survivors and caregivers. I guess it is a good sign - we all move on and cancer is not on our minds 24/7. And, hopefully, newly diagnosed ones…
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3-month Update
Today is three months since I and my prostate decided to go our separate ways, and coincidentally, my first post-op PSA check. Incontinence is still an issue, but I’ve seen some improvement, mostly overnight. I can sleep around 3-1/2 hours before first getting woken up with the feeling of a full bladder, and I’m getting up…
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Miracles Happen
Hi to All. So sorry to see this going away. I'm 5-1/2 years out, stage 4 lung cancer with a side of tumor on the brain - removed 1 year ago. Very early on in a support group far away a participant offered that he wrote poems and it got his brain occupied on something 'other than' his cancer. I thought I might try that too.…
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Losing my stomach changed my life in ways I didn’t expect
Hi everyone, I wanted to share a bit of my experience. Around two years ago, I went through a major health situation that completely changed my life. Losing my stomach wasn’t just a physical change — it affected how I saw myself, my energy, and my daily life. For a long time, I felt lost and disconnected from who I used to…
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⭐️⭐️⭐️ A forum option for those making the journey
Regrettably but understandably, this forum is being discontinued. This is an unfortunate trend as social media takes over. However, forums are more confidential and pose far less risk as compared with social media, since we disclose only that which we want the world to know. There is an option left for those along the…
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Thank you CSN
I don't know the CSN team in person but what you did by keeping this site active all these years was wonderful. It gave hope and strength to people during their dark times. Heartfelt thanks and gratitude from a stage 3 crc survivor. The same goes for users who have helped others. Thank you all! 🙏