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Serous Endometrial Carcinoma ("high-grade"), now metastasized to lungs
Hello - Introducing myself here. The topic title summarizes it. I was diagnosed in December 2022 and January 2023, had to wait 6 weeks for a 'radical' hysterectomy while in pain and bleeding profusely (because of health insurance!), then spent 2023 in chemotherapy and radiation, and recovering from their side effects. Last…
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Chat GPT
Many will have heard the name, but know little about this great learning resource. I was diagnosed with a stage 1b adenocarcenoma over 2 years ago and declined the default treatment of esophagectomy, opting instead for 3 then 6 month follow up endoscopy visits. I was declared cancer free at one point but then another…
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OFSET Study
New here. Anyone decided to do the OFSET Study? Diagnosed 1/14/2025. Had DMX. Found lymph involvement, I of 2. Oncotype 16. Her2-. I'm simply terrified of chemo, Ac-T. My gut is to run far away from it. With that said, the Study offers possibility of another option- hormone therapy only. Anyone decided to do the Study,…
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Metformin
I've seen Metformin mentioned here as an important tool to strengthening our bodies' fight against cancer. I looked up the studies, and the research is so promising, I'm surprised we haven't heard more about it! I am on the verge of getting lung biopsies for what appears to be metastasis of serous endometrial cancer. I…
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Suggestions for sleep positions after lumpectomy
I'll be having a lumpectomy in 2 weeks, left side. I usually sleep on my stomach or left side. That's not going to work! Will I need to sleep on my back? Maybe sleep on a recliner? Any suggestions?
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Tonsillar cancer scanning
I was treated for Tonsillar cancer stage 1 the fall of 2023 now recently I was diagnosed with stage 4 cancer that was metastatic from tonsil to lungs and bones. I had a scan 3 months after my tonsil cancer treatment and it was clear, my doctor elected to scan me once a year after my first 3 month scan. 10 months in I had…
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Do I have to take steroids after doxil
S teroids
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Sinonasal Adenocarcinoma
Hey Alll, I have recently completed treatment at MSK for high grade sinonasal adenocarcinoma (non-intestinal type). Looking to connect with others who have this rare cancer, specifically women, but also all. I was 38 at the time of diagnosis, so looking to connect with young adult survivors as well. Any info would be…
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Scar tissue 6 years NED
Yes, It hurts and is scary. My colon Doctor put me on Metamuscil in the morning and Miralax in the evening. It has helped me stay soft enough to pass normal size stool then goes to shoestring size. However, the scar tissue in on my sphincter and that's where to stool passes through. It gets inflamed and hurts now and then.…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
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Has anyone had colo-anal anastomosis surgery and a colostomy reversal?
I needed a colostomy for my anal cancer because of a fistula between my vagina and rectum. Now that my treatments are over and the cancer is gone, my colorectal surgeon believes she can reverse the colostomy. I will get a temporary ileostomy and she will do a colo-anal anastomosis at the same time, then after 2 months, she…
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Questions about IMRT and Urinary Urgency
I'm currently into my 14th of 40 IMRTs today. In the last few days I've been struggling to hold my bladder while on the machine. Had two incidences of having to stop the treatment for me to get off and pee. I barely made it to the restroom both times. They're very understanding and after I drink some more water and wait a…
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Fever possibly delaying resumption of chemo?
My mother in law is a sixty-six-year-old woman who was diagnosed with a grade 4 glioblastoma last November. More than 95% of it was removed via surgery, the tumor is methylated, and she tolerated her initial treatment (six weeks of simultaneous radiation and temodar) well. Two weeks ago, she started her new cycle of…
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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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Sbrt question about how low psa dropped
Finished up my 5 doses end of Dec. I was wondering how low did your psa drop to? I was psa 8.5 Gleason 4+3 initially. Went on orgovyx 6 weeks prior to radiation, 4 months total. At last treatment session, psa was 3.8. Next blood work beginning of May. Was hoping for some real life statistics. Thanks in advance guys.
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Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
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is it wrong of me?
in a few days i go back to my doctor and get the results of my recent pet scan what i want to know is , is it wrong of me to kinda hope to have cancer again? cause i feel like its all i know at this moment and i guess i just feel lost as to how to go on or what to even do. i feel like a monster for hoping it to happen.
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2 time cancer survivor!
HELLO EVERYONE!!! I’m so happy I found this site and am excited to share my story and get others opinions! so this all started about 10 years ago, my OB/GYN felt my neck and discovered numerous lumps on my thyroid after scans and biopsies. I was found to have papillary thyroid carcinoma. When they remove my thyroid, they…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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New here, stage 1a upsc
Hello to all of you amazing ladies, My mom at 63, was diagnosed with upsc stage 1a. She had post menopausal bleeding and with an ultrasound a polyp was found. After D&C and hysterectomy, she was surgically staged at 1a, no lymph node involvement, no myometrial involvement, just in the polyp and some in the top layer. She…
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An update and a question on treatment plan
I first posted last month when I was initially diagnosed with prostate cancer. The comments from everyone were very helpful. I finally saw the oncologist this past Friday (3/21/2025). I wanted to give an update on where I stand and ask what you all think of my oncologist's proposed treatment plan (knowing that you are not…
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Transperineal Biopsy and ED
I'm a 55 year old male scheduled for a TPB next week for MRI findings of two PIRADS 4 lesions 7 mm each on the right side, but I also have a trip scheduled the week after with a new girlfriend. Anyone have any experiences with side effects after, specifically erectile dysfunction and how long it lasts? Thanks!
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Week 5 of SRT
Greetings all Radical robotic Prostectomy 12/8/23. Subsequent PSA’s went from 0 to .42 over next 12 months. Doubling every 3 months So, I just finished week 5 of my SRT treatment. No issues first week. Lots of bathroom visits end of 2nd week at one point I was positive that my anus had blown off and I would see it floating…
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Has anyone heard from CMB?
I have not heard from CMB in a very long time. I hope she is okay.
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New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
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Insight on Permanent colostomy
Hello, I was looking to see if some folks here could provide me some information on living life with a permanent Colostomy. I was diagnosed back in 2020 with Rectal Cancer. Since having treatment and an Ileostomy + reversal I have struggled with rectal incontinence. Not having a rectum and the area where my tumor was…
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Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
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UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
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Do you tell people?
I’ve never been one to share a lot about my personal life with friends or family. I’m the one that asks questions and get others to talk about themselves. I have only known for a week that I have stage 3 colon cancer. I’ve told my husband, my mother, my mother-in-law, and a good friend. I’m guessing that at some point I…
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New here
I was diagnosed with stage 1b adenocarcinoma of the upper right lung. Tumor was 1.3 cm, poorly differentiated with visceral pleural invasion, no nodes involved. I had a segmendectomy 2 weeks ago. I was told by my surgeon I will need to have chemo and or immunotherapy, haven’t seen the oncologist yet. In my research for…