-
Post Chemo issues,,, severe foot neuropathy
under construction
-
Endometriod Adenocarcinoma Recurrance to the liver
Hi everyone. It’s been a good long while since posting here. I was diagnosed with endometriod adinocarcinoma Stage 1 Grade 1A eight years ago in 2017. That May, I had a complete, Davinci robot assisted, hysterectomy. I remained NED for 6 years. It wasn’t until we went 1 year in between checkups that it was discovered that…
-
My 35-year-old husband has cancer, and I don't look at him the same way anymore
My 35-year-old husband of 10 years was diagnosed with leukemia five months ago. We have been together since we were teenagers and have had a borderline perfect marriage up until his diagnosis. I have always loved him deeply, and he is a great man. The first few months were extremely traumatic for me, and I had to bear the…
-
Immunotherapy for Squamous Cell Carcinoma, base of tongue
Brief recap: 2007, SCC left tonsil/lymph gland, minor surgery, 35 rads, 7 Cisplatin Chemo, still all clear last PET 3/2025. 2022, SCC right tonsil, TORS for tumor, RND of the neck. No chemo, 30 rads. PET 2025 shows reoccurrence near base of tongue. Surgery and radiation not an option. Waiting on appt to discuss…
-
Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
-
Post Radiation/Chemo - Pre surgery consideration? / Post severe foot neuropathy
I was diagnosed with stage 3 colorectal cancer in Feb-2024 with the cancer extending into a few lymph nodes. Did five weeks (25 sessions) of radiation & oral chemo then 16 weeks of chemo (6 hours in the chair and 2 days connected to at home pump infusions). The tumor shrank 98+%, no longer in the lymph nodes, had a…
-
7 year follow up
Last week I went up to Cleveland Clinic for my 7 year follow up. I met with 2 different NPs (3, if you count the one that was shadowing). It was pretty routine - lots of questions, say ahhh, scope through my nose and down to the original BOT site, say other syllables, etc. Everything looked good and I once again proved to…
-
Synchronous primary tumors
Hello! I’m writing about my husband. His story—he had a partial nephrectomy at MD Anderson in February 2024 for Stage 1 kidney cancer. At that time he had a CT scan that showed a thickening of the ascending colon wall at 4.9. This March, he had another scan that showed the thickening had increased and there were suspicious…
-
My survival journey through anal cancer
I was diagnosed with stage 3b anal cancer in Sept 2022 and while I consider myself a survivor, my experience was difficult, I'm sorry to say. In Aug 22, I started noticing that I was passing blood in my bowels movements. I was 59 at the time and I've certainly had plenty of hemorrhoids where there was bright red blood, but…
-
Journey and what next
Hi there, I'm 41 years old and in October 2024 I'm diagnosed stage 4 anal cancer and liver and anterior lower abdomen wall metastesis. At first, I almost got chemoradiation but after found out that it has spread so the treatment has changed. I got 6 chemo (Paclitaxel/ Carboplatin) and testing PET scan soon (now 4 weeks…
-
Coping Tips forTaste Destroyed
Hi. I'm on Entrectinib and it is reaking havoc with my taste of food. It has made many things taste terrible. It might be those things that are sweet or have sugar in them. Not totally sure yet. This morning eggs tasted 'almost' normal. And white toast w/spray non butter stuff tasted okay. Any thoughts/suggestions. Any…
-
Work - Blacklisted
I'm was diagnosed in June 2024. Completed first round of Chemo. I'm a Private Equity Lawyer (20 yrs) - M&A and Securities. Now, I can't find a position at any law firm. I don't offer why I took such a long hiatus from practicing, but also can't lie when pressed. My career has been a huge part of my life and now I am…
-
anyone decline hormone therapy after surgery and radiation?
I had a lumpectomy in November for stage 1 (.8cm) ILC with sentinel node biopsy (no spread). That was followed by 21 sessions of whole breast and targeted radiation. My Onc score was a 6 so no chemo needed. My tumor was HR+, HER-. My oncologist told me my chance of recurrence with the hormone therapy is 3% and doubles to…
-
NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
-
Muscle spasms due to Neulasta?
Hey all. I've had my second chemo & will get #3 on Monday. This time around the overall fatigue & the aches & pains from the Neulasta were quite a bit worse. But the real problem is these very intense muscle spasms that I'm having in my back. I had them the 2nd week after treatment #1, but this time they're much worse. So…
-
Surgery
they have not offered it to my dad either , after total gastrectomy he was cancer free from from December to April now his routine scan shows it spread to peritoneal cancer and they have not offered the surgery or Hipec …. only chemo which they keep delaying because of his health ( weight ) So they cancer is just…
-
Turned down for cytoreductive/HIPEC surgery
My husband was diagnosed in early October 2024 with peritoneal and colon cancer (Stage 4). Tumor was obstructing colon (partial) and he started chemo in late October. Had 7 rounds (48 hours each time) and never got sick from chemo and it made him feel 90percent better after a few treatments. Its almost like I have to…
-
Unilateral breast reconstruction
Hi, I am a breast cancer surviver and I am trying to make my mind about reconstration or not. I had a radical mastectomy 2 years ago and i am 44yo. I am too thin so the only option would be using an expansor and silicone implants. The thing is, i cannot find any restimonials of people wjo are actually happy with unilateral…
-
IDC breast cancer 1B and upcoming colonoscopy
Hi 👋 I’m full of anxiety and fear. Just wondering if anyone else here has had a colonoscopy as during the testing phase of determining how to treat the cancer. Any advice or stories will be greatly appreciated. Thank you in advance!
-
Alcohol Consumption after Cancer Treatment
Hello, I am a cancer survivor, I had a large tumor on the rear of my tongue and 7 weeks of aggressive radiation and chemo. I just passed my 5 year treatment anniversary and thankfully healthy. Has anyone heard anything about the effects of drinking alcohol after treatment? I'm not a big drinker but I can no longer feel the…
-
Leaukimia
Any one tell about lekuma how to survive from this
-
Continuing bachelor's degree after ALL diagnosis.
I was diagnosed with ALL in the 3rd year of my bachelor's degree. On top of that, my treatment was happening abroad, so I could not physically resume my study during my 36 cycle (36 month) chemotherapy plan. Fortunately, in a post-COVID-19 world, my university was able to offer me a distant learning opportunity to continue…
-
Post PSA numbers
My PSA number at 33 days after treatment was .02 (from .42) 🎉🎉🎉 Asked about my hormone shot. It was a 6 month shot (Feb-July). So, sweats and chills to continue 😩 Check PSA again in 90 day 🚜🚜🚜
-
I'm so lost and confused
September 2024 I was diagnosed with melanoma and squamous cell carsanoma. I have mohs surgeries and excisions to remove them. Once the biopsies started taking place and the removal started taking place I began to have severe headaches on the left side of my head along with left ear pain,left jaw pain,and pain in the left…
-
Confused
I was diagnosed with bc 4 months after 2 brain surgeries to correct essential tremors. My feelings are all over the map. One minute I'm still in shock, the next I'm convinced I'm superwoman and can handle anything, the next all I can think is "damn, I've got cancer". Has anyone else experienced this? How long did it last?…
-
Living with stage IV CRC
Very interested in hearing from those who are living with stage 4 CRC as a "chronic condition". My wife is currently in this situation - receiving FOLFOX and Avastin on an ongoing basis, tweaking the Oxaliplatin concentration and sometimes backing it of entirely when the side effects become too severe. She is currently NED…
-
Stage 4 rectal cancer with lung and lymph node involvement - radiation and chemo
I am new to this site. I was diagnosed last week with stage 4 rectal cancer and given one year to live with no treatment or 3 tops with treatment. They say it has spread to my lungs but the nodules are very small right now. The tumor in the rectum is huge. Ironically other than rectal pain that is manageable with Advil I…
-
mucous discharge
I am 9 months post treatment for anal canal cancer. Can anyone tell me when and if the anal mucous discharge ends? I am sooo tired of having to wear a pad 24/7
-
Vaginally stenosis
No one has talked about vaginal stenosis which is scar tissue from the radiation. This made any kind of penetration painful. My radiologist gave me vaginal dilators in different sizes.
-
Fissure after biopsy
Hi! New to this site, please bare w me... I got diagnosed 2022 w squamous cell approx 2" in the anal canal. Finished treatment 12/22. Had port taken out along w final 6 mon biopsy. 2 weeks later, in debilitating pain, had to go back out on disability. I go to all my docs. They went to go back in for botox. They do a…