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Chemo/Radiation Long Term Side Effects
I am now about 10 years post treatments. After looking through several discussions it looks like most of us have alot of the same side effects. My first side effect started about 4 1/2 years after treatments ended and while I was on vacation. I never had a issue until that day. We ate lunch and was walking around seeing…
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In-bore MRI Biopsy vs Fusion Biopsy
I need a prostate biopsy for a Pi-Rads 4 lesion. UT Southwestern can schedule an in-bore MRI biopsy only in 2 months; a fusion biopsy can be done sooner. Is it worth waiting?
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Pain when urinating
I am 10 months post cyberknife treatment and continue to get what I think are side effects of the radiation treatment. The latest one is pain while urinating. It seems to be worse earlier in the day. I have restarted taking Flo max, which seems to help and Tylenol appears to take the edge off it. Does anyone else have this…
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Why is pancreatic cancer considered one of the deadliest and most insidious cancers?
Pancreatic cancer is particularly lethal due to two key factors: Its "stealth" nature & aggressive spread. 1. Silent Progression: In its early stages, pancreatic cancer typically causes no noticeable symptoms, such as pain or discomfort. This silent progression allows the disease to grow undetected for a long time. 2.…
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Post vaginal brachytherapy side effects
Diagnosed with stage 1a after total hysterectomy and will meet with radiologist next week. I was told it is up to me if I want to do further treatment as my pathology was very clean. I would be interested in any potential side effects that you may have experienced with this therapy. The limiting factor is my age (68);…
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Is colostomy necessary?
I was diagnosed with anal cancer in March of this year and underwent 6 weeks of chemo radiation treatment ending in May 2024. I handled treatment fairly well. In September I was pretty much pain free but bm was still radical. Pain started returning in October. Visit to my colorectal surgeon showed an ulcer in the area of…
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Lost for words
Hello - I just learned my 83 mother has cancer in her lungs and lymph nodes. She has a PET scan on 16 Dec to see if it has spread in other places. We are praying it hasn’t. On top of this news she also had a heart attack in Feb 2024 and has been struggling to recover. She is weak and with this treatment I know she will…
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Stage 4 chemo & surgery
Hello everyone. I got diagnosed with stage 4 upper rectal carcinoma with multiple bilobar mets (nearly 15). I had 13 cycles of chemo mainly folfox + cetuximab. My baseline cea was 295. Now it is 1.9 with regression of the tumor into a flat redness in rectoscopy. Liver mets also regressed. Only 4-5 visible scar like lesions…
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Ultrasound and PetScan
I am feeling defeated today. Friday I had a pelvic ultrasound and the radiologist reported the wrong information on my report. I had a pelvic ultrasound and they reported about my breast. Now, I have asked my oncologist to do another order to an outside company to do another ultrasound and he will not do it. He wants me to…
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Not sure what to expect...anyone else been through similar?
Hi! Wondering if anyone had similar ultrasound findings and what the results were? I had a biopsy done a few days ago and now waiting on results. I'm 3 months into taking tamoxifen because I was diagnosed with breast cancer in April of this year, but that would be very quick for these changes to happen. Horrified at the…
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Question on endometrial cancer stage 1A Figo grade 2 nuclear grade2 endometrioid adenocarcinoma
I just had a hysterectomy on 11/11 with large fibroids. I was unexpectedly diagnosed with endometrial cancer stage 1A FIGO grade 2 nuclear grade 2 endometrioid adenocarcinoma. I met with my gynecology oncologist today, and he said he wants the radiology oncologist to determine if radiation is needed. Since this was not an…
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Bronchoalveolar carcinoma - mucinous adenocarcinoma with BAC
Two weeks ago my wife was diagnosed with mucinous adenocarcinoma with BAC features. As the biopsy surgery wounds failed to heal and air kept leaking surgery was done Friday after MRI of the brain, CT scans of all other, and the bone scan were negative. The BAC appeared to be confined to the left lower lobe. Prior to the…
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Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
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Should an Endocrinologist be part of our team?
The Endocrine system is incredibly complex. ADT affects one, but that cascades to other hormone levels. If one's adrenaline or insulin were too high, we'd address it right away. And yet those hormone levels ARE affected by ADT and are responsible for many of our side effects. I'm not criticizing ADT. It has saved many…
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Welcome long-term survivors!
Some of you who have been living with cancer for a number of years (in or out of treatment) have asked for a board dedicated to the discussion of long-term survivorship issues. I hope it is helpful. Best to all, Greta (Your CSN staff)
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New Member
Hello! I am a New Member and a spouse to my husband who was recently diagnosed with lung cancer. I am here to connect with other caregivers and to hear ways to make his life better as we move forward in this journey. Thanks for taking the time to read this.
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update ... RU newly diagnosed and confused
Just finished my SBRX MSK Precise (5 doses of radiation) yesterday. Been on orgovyx since Nov 1st, so far no side effects. Blood test for PSA, testosterone, etc done also, awaiting results. Next schedule visit and PSA test is May (three months after ADT is finished). A quick note … for anyone undergoing radiation and is…
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I'm so scared and confused
I just found out at the end of October that I have Melanoma Skin Cancer. A few days ago I had surgery to have the spot removed, a week before surgery I was told that it was bigger and deeper than they first thought......how much bigger? I don't even know? But the also removed 3 lymph nodes on the same day as the surgery
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Massive cramping in the incision area
Hello, Last Feb 2023, I had a nephrectomy (right kidney), cholecystectomy, and a colectomy, all in one go... right after the operation, it was excruciating to put weight on my right foot. I thought it was normal since the nephrectomy incision was on the right side. So many months after, I get camps (muscle knotting) on the…
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Stage 4 melanoma
My boyfriend of the past three years has just been diagnosed with ecstatic melanoma. They haven't done the test to see if it has spread but by the depth of the tumor the pathologist is fairly certain. Up until this point he had sorta been in denial. i was hoping he would stay that way. Lately he is getting more and more…
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Question
Will a povidone iodine suppository used a hour or so before a transrectal biopsy, along with the antibiotics they require already, help with mitigating the risk of infection? Would it affect the tests? The radiation center doing the biopsy doesn't mention this option. I read about it somewhere. My GP thought it made sense.
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Advice needed
First off, I'm shocked to be here. My heart goes out to each and every one of you. I'm here for support to my husband and to gather information. A little history: My husband is 52. He had a physical a month ago that showed a PSA of 4.1. The doctor sent him to a local urologist. The only symptom I've noticed is going to the…
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Chemo treatment experience /help
Hi - I am currently diagnosed with colon cancer. I have just had my surgery and now moving on to Chemo treatment. I had a choice of CAPEOX or FOLFOX. I am wondering if anyone can share their experience? I understand that for FOLFOX, a port needs to be implanted for the infusion. For CAPEOX, a port is not needed. But I am…
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Tinnitus due to chemotherapy (cisplatin) and radiation to cure NPC
I had radiation and chemotherapy (Drug:cisplatin) in 2021 to treat my nasopharyngeal carcinoma. My treatment ended in Aug 2021. I had side effects that came with the treatment and had handle them well. However, recently (early Aug 2022), one year after the treatment, i suddenly develop tinnitus and it’s effecting me very…
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New and kind of wondering how worried I should be
Sat here trying to figure out how to start this. Figured I would just throw it all out there. It will probably be too long, I tend to give more details than necessary, just like this sentence. I am 58. Have my health care through the VA. Moved this past summer, out away from any large city, so now have a clinic for primary…
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New to site
I am 30 years old and I just got dignaose with Endometrial Cancer. I have lot of questions and a lot of things I do not understand. I will be going to see a specialist on Oct 1st. To say I am scared is an understament. I found out on Wed since then I have hardley slept and have spent most of the time crying. Family and…
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Great news
I went for my appointment and have some really good news to share all my scans and X-Ray came back clear. Doc said see you next year. Thank you to all those for your response and support. Best wishes to all And a very Happy Holidays
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8 years
Hello again! I had my scans yesterday and everything (kidney-wise) came back clear. Just click on my icon to view my history. They did see a little blip in my small intestine and will follow up with GI. I'm glad to see "Bay", "Donna", "Jazzgirl", "Lobbyist" and others still providing wisdom and support. Sorry, I've been…
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Been awhile
I was diagnose with stage 3 in 2020 here in a couple of months I’ve been clear for five years th only bad news I got and it’s not so bad is I got to have scans for ten years but I’ve been lucky it’s have never come back I kinda just went on with my life didn’t change much but became closer to god he’s watch over me
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Hypoechoic Kidney Lesion
Hi everyone, A little background info about myself, I’m 31 years old. I started having upper and mid right abdominal pain last October so I’ve been seeing a gastro fairly regularly to find a cause to my pain. A month ago, I went for ovary pain and my gyno requested an ultrasound. Lo and behold they found this lesion on my…