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Questions about IMRT and Urinary Urgency
I'm currently into my 14th of 40 IMRTs today. In the last few days I've been struggling to hold my bladder while on the machine. Had two incidences of having to stop the treatment for me to get off and pee. I barely made it to the restroom both times. They're very understanding and after I drink some more water and wait a…
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Fever possibly delaying resumption of chemo?
My mother in law is a sixty-six-year-old woman who was diagnosed with a grade 4 glioblastoma last November. More than 95% of it was removed via surgery, the tumor is methylated, and she tolerated her initial treatment (six weeks of simultaneous radiation and temodar) well. Two weeks ago, she started her new cycle of…
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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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Sbrt question about how low psa dropped
Finished up my 5 doses end of Dec. I was wondering how low did your psa drop to? I was psa 8.5 Gleason 4+3 initially. Went on orgovyx 6 weeks prior to radiation, 4 months total. At last treatment session, psa was 3.8. Next blood work beginning of May. Was hoping for some real life statistics. Thanks in advance guys.
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Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
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is it wrong of me?
in a few days i go back to my doctor and get the results of my recent pet scan what i want to know is , is it wrong of me to kinda hope to have cancer again? cause i feel like its all i know at this moment and i guess i just feel lost as to how to go on or what to even do. i feel like a monster for hoping it to happen.
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2 time cancer survivor!
HELLO EVERYONE!!! I’m so happy I found this site and am excited to share my story and get others opinions! so this all started about 10 years ago, my OB/GYN felt my neck and discovered numerous lumps on my thyroid after scans and biopsies. I was found to have papillary thyroid carcinoma. When they remove my thyroid, they…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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New here, stage 1a upsc
Hello to all of you amazing ladies, My mom at 63, was diagnosed with upsc stage 1a. She had post menopausal bleeding and with an ultrasound a polyp was found. After D&C and hysterectomy, she was surgically staged at 1a, no lymph node involvement, no myometrial involvement, just in the polyp and some in the top layer. She…
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An update and a question on treatment plan
I first posted last month when I was initially diagnosed with prostate cancer. The comments from everyone were very helpful. I finally saw the oncologist this past Friday (3/21/2025). I wanted to give an update on where I stand and ask what you all think of my oncologist's proposed treatment plan (knowing that you are not…
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Transperineal Biopsy and ED
I'm a 55 year old male scheduled for a TPB next week for MRI findings of two PIRADS 4 lesions 7 mm each on the right side, but I also have a trip scheduled the week after with a new girlfriend. Anyone have any experiences with side effects after, specifically erectile dysfunction and how long it lasts? Thanks!
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Week 5 of SRT
Greetings all Radical robotic Prostectomy 12/8/23. Subsequent PSA’s went from 0 to .42 over next 12 months. Doubling every 3 months So, I just finished week 5 of my SRT treatment. No issues first week. Lots of bathroom visits end of 2nd week at one point I was positive that my anus had blown off and I would see it floating…
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Has anyone heard from CMB?
I have not heard from CMB in a very long time. I hope she is okay.
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New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
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Insight on Permanent colostomy
Hello, I was looking to see if some folks here could provide me some information on living life with a permanent Colostomy. I was diagnosed back in 2020 with Rectal Cancer. Since having treatment and an Ileostomy + reversal I have struggled with rectal incontinence. Not having a rectum and the area where my tumor was…
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Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
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UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
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Do you tell people?
I’ve never been one to share a lot about my personal life with friends or family. I’m the one that asks questions and get others to talk about themselves. I have only known for a week that I have stage 3 colon cancer. I’ve told my husband, my mother, my mother-in-law, and a good friend. I’m guessing that at some point I…
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New here
I was diagnosed with stage 1b adenocarcinoma of the upper right lung. Tumor was 1.3 cm, poorly differentiated with visceral pleural invasion, no nodes involved. I had a segmendectomy 2 weeks ago. I was told by my surgeon I will need to have chemo and or immunotherapy, haven’t seen the oncologist yet. In my research for…
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Lung cancer survivor
Diagnosed with NSLC in 2019, staged 3d . After oral chemotherapy, Alecensa to shrink cancer spread, followed by radiotherapy , chemotherapy and immunotherapy I have been cancer free for 6 years now. Stay positive and hopeful.
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New PSA level was only a 0.54 as of yesterday;
Greetings all; I was officially diagnosed with an enlarged prostate, and approximately 3 mths later, prostate cancer. My PSA level went up to over 400 points (yikes), but I absolutely felt 100% normal as if nothing was wrong. Immediately, I was enrolled in Cancer Treatment, with only meds, which was to follow up with chemo…
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My partner may have Cancer because of me.
I didn’t know I had HPV when I was intimate with my partner. After I got the diagnosis, I was in tears. I got my HPV vaccination in my adolescent years. I was scared to let my partner know he might have it as well because of me. After telling him, he said nothing was going to change between us and everything will be ok.…
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anyone decline hormone therapy after surgery and radiation?
I had a lumpectomy in November for stage 1 (.8cm) ILC with sentinel node biopsy (no spread). That was followed by 21 sessions of whole breast and targeted radiation. My Onc score was a 6 so no chemo needed. My tumor was HR+, HER-. My oncologist told me my chance of recurrence with the hormone therapy is 3% and doubles to…
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Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
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Hormone therapy for ILC
stage 1, Grade 1 ILC discovered during a preventative mastectomy. Did not spread. It is estrogen receptive, so hormone therapy is recommended. I started anastrozole 5 days ago. I developed hives. Is there a hormone therapy out there with less side effects? I m 62.
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HPV positive
My husband had throat cancer due to HPV 16 stage 4 in 2014 he survived it but recently is having throat and sinus issues as well his taste buds seem to be going again:( … at the time we were told by the doctors that he would be unlikely have a recurrence of the same strain we also had asked if I should be tested and were…
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Time for some support
Long time member of CSN, but have been absent several years. 10 years ago husband diagnosed with stage 4 nasopharyngeal tumor. Treatment was successful in eliminating the cancer but radiation effects over the last 10 years have piled up. Hearing loss, no longer able to swallow so PEG tube feeding, tracheostomy, balance…
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LONG TERM THRIVER HERE!
Hi everyone! Most of you are not going to know me as I haven't been active on these boards for about 12+ years. For some reason I felt compelled to come on here today and check in and see if there were any names I remember from back in the days of our Colonpaloozas and such. I was dx'ed Stage 3 adenocarcinoma of the…
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long term survivors
Are there any other long term childhood cancer survivors out there ? Does anyone need to talk to a long term survivor.
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Update on 2010 diagnosis and treatment
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years. Five years after…