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I want to quit treatments
I am struggling! I am teetering on if I should quit my treatments and get the only kidney I have removed and go on dialysis. The treatments seem to be killing me faster than the cancer. I can’t eat because my mouth is very sore. I have no appetite and when I do have an urge to eat, I’m in pain. I struggle with getting…
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How much did your doctors get you ready for post-surgery life
Hi All, I'm an 8-year post esophagectomy squamous cell survivor. I am very grateful for being a survivor but also very frustrated by what doctors did NOT tell me life would be like after surgery. So I am wondering if this was just my experience or if others have had similar experiences and what they did not tell you about.…
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Brain stem glioblastoma
Good day everyone, I am writing here to get help in treating brain stem glioblastoma for my partner (26). My boyfriend of 26 years has been diagnosed with brain stem glioblastoma and this is a brief summary about him: Diagnosis: brain stem glioblastoma diagnosed towards the end of 2024. Current treatment: includes temodar…
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Glioblastoma Stage IV Brain Cancer
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Brain stem glioblastoma in young adults
My partner (26 M) has been diagnosed with brain stem glioblastoma and I am searching about how everyone are dealing with it and navigating through it. Any pointers would be of great help.
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Brainstem Glioma
My 26 yr old son was just told he has a brainstem glioma. Not commom for his age and we are serching for treatment and getting many different opinions, Anyone been there?
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Elevated CEA can it be Cysts in Pancreas?
in August 2025 my gastroenterologist discovered cysts in my pancreas. I have had elevated Liver Enzymes for over 4 years with no explanations. Then over 2 years ago I had to start taking Creon because my bloodwork showed the pancreas was not doing its job. Okay, finding the cysts sounds like the problem. The Pancreas…
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Are there any other MMMT survivors out there?
I am a 34 yr old woman who was diagnosed with stage 4B uterine MMMT. Mine had metastasized to my omentum, colon, appendix and most of my pelvic and abdominal lymph nodes. I am 3.5 years in remission. I would love to hear from other survivors. I know this is a very uncommon cancer in relation to most uterine cancers. I've…
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Surgery with Gleason 6 and PSA 2.5?
First post here……I'm 50 years old and recently diagnosed. Half of the biopsy samples came back as a Gleason 6 and it's bilateral. I've had my PSA checked for the last 6-7 years and it was always around 1.5. At the last physical it jumped to 2.5. I decided to meet with a urologist and now here we are. The kicker for all of…
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Rituxan Hycela: Rituximab via injection
Hi - I have never posted before, but thought my recent experience might be of interest to anyone receiving Rituxan therapy. I was diagnosed July 2016 with SMZL - splenic marginal zone lymphoma. My bone marrow, spleen and blood are all involved and my blood numbers were such that my cancer was categorized as stage four…
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11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
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MALE CAREGIVER GROUP FOR HUSBANDS CARING FOR WIVES WITH BREAST CANCER
I am looking for a caregiver group of males only, who are husbands with wives with breast cancer, to talk openly about issues with loss of intimacy, loss of female self-image, constant pain, etc. I have been looking for such a group for years and have not been able to find one. Does anyone know of such a group, please?
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Stage lllB T4pn1
Hello! I was diagnosed with Stage 3b CC- 1 lymph node affected, 1.9 cm tumor removed with all clean margins. I have completed 6 cycles of Folfox and I can no longer deal w/the side effects. Up until yesterday docs have reduced dosage and removed 3 medications leaving me with only 5 FU. To me this doesn’t make a bit of…
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My 35-year-old husband has cancer, and I don't look at him the same way anymore
My 35-year-old husband of 10 years was diagnosed with leukemia five months ago. We have been together since we were teenagers and have had a borderline perfect marriage up until his diagnosis. I have always loved him deeply, and he is a great man. The first few months were extremely traumatic for me, and I had to bear the…
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Starting pelvic floor PT
7 weeks out from having my catheter removed post-surgery, I’m still totally incontinent, so I had my first pelvic floor PT session yesterday. I’m told pelvic floor therapists are few and far between (at least in my area), so I was happy to find one just 40 minutes away, and she specializes in treating male incontinence.…
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New here and don't really know what to do.
Hi
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In need of ostomy supplies
In need of urostomy supplies if anyone has any that i can get for free send me a email n it would be very appreciated
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Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
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Importance of finding high volume surgeon
Unfortunately, my mother was recently diagnosed with papillary carcinoma of thyroid. She had a nodule 4 years ago (TIRADS 4) which grew vertically this year (TIRADS 5) to size of 1.2 cm. Recent biopsy revealed papillary carcinoma. The endocrinologist noted that a hemithyroidectomy might be possible due to favorable…
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Stopping two of the three adt drugs.
In 2018 had cyber knife treatment for prostrate. PSA was 8.2. Everything fine until last summer when my PSA went from .4 to 3 in a short period. PET scan showed no prostate activity but one spot on lung. Was put on Relugolix by my urologist and also abiraterone and prednisone by another cancer lung doctor. PSA is 0.0. Had…
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mastectomy bras reviews?
Hi Everyone, I'm 10 weeks post mastectomy and am now in the process of searching for mastectomy bras. I'm hoping to find a "sexy" mastectomy bra, but I am finding that to be easier said than done. Everything seems so plain and unattractive. I've searched online for quite a bit but have not found much. Most websites don't…
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liver canser metastasized from colorectal canser
My sister has stage 4 colon cancer that has metastasized to her liver and has been undergoing chemotherapy for about 8 sessions. After 3 sessions, the masses in her liver shrank, but later, according to the CT scan results, the volume of the masses in her liver has not decreased any more, and the chemotherapy has caused…
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Recently diagnosed glioblastoma
Hi I was just recently diagnosed with glioblastoma after having a craniotomy to remove a mass that was life threatening on my occipital lobe and spent 8 days in icu. I have two other masses, one on my frontal lobe and one midbrain. I am getting ready to see the radiation oncologist on wed (dec 16) and as soon as my chemo…
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treatment options
My father's recently been diagnosed with stage 3b/4 NSCLC. He's just completed his first cycle of chemo: gemcitabine + carboplatin, with possibly thalidomide, as part of a clinical trial here in the UK. His oncologist assures us that these drugs are cutting edge, and that there would be no better treatment options in the…
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uterine carcinosarcoma
Hi ladies, I had breast cancer did lumpectomy, chemo and radiation removed 11 lymph nodes. Then it came back 3 yrs later so i did double mastectomy this September. Come November this yr mri of the pelvis showed abdominal mass and when they went i.n to do surgery they found mass spread on my omentum. They came out and got a…
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ovarian cancer - overwhelmed
hi, my wife is presumably to have ovarian cancer. big belly, bloating and loss of appetite started about one month ago. Went to primary doc, then did an Ultrasound about 3 weeks ago, it showed 3cm pancreatic tumor and ascites. Scheduled for a CT scan the following week. Then her bloating/cough got much worse so we checked…
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Cancer and vision loss
I was recently determined to have with colorectal cancer. I even have abnormalities in vision. I went for an eye check yesterday and the specialist prompted me to take the Lasik eye surgery procedure from any nearby facility in Toronto like the Goldberg centre(https://www.goldbergcentre.com/lasik/ ). But I don't know…
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POST RADIATION PROBLEMS HIP AND PELVIC BONE DAMAGE
Is anyone dealing with this? I was diagnosed in April 2011 and had my treatments (chemo and radiation) through May and June. I was stage III so I had pretty intense radiation, including pinpoint to specific lymph nodes that were affected. I have extreme low back pain, spasms (he says probably related to muscles trying to…
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Tamoxifin
DCIS of right breast. Mastectomy 2 weeks ago. Started tamoxifin 5 days ago and woke up feeling like a truck hit me this am. Nurse says not the drug but Google says highly likely to cause fatigue in the beginning. Suggests taking at night. Any suggestions or help?
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Gioblastoma. Surgery or not?
my mom, 83, was just diagnosed with glioblastoma. About the size of a golf ball. We had just moved her in to assisted living after she had been living alone seemingly fine until she suddenly seemed to stop caring for herself. Then discovered the tumor after a CT scan given after a fall. I am struggling making the decision…