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Radiation or no radiation
I just had my third surgery since May 2017. First surgery was to remove a liason on the floor of my mouth under my tongue. 2nd surgery (June 2018) was to remove my right neck lymph nodes. 3rd surgery (August 2018) was to remove my left neck lymph nodes. CT scan results were the reason for the right removal. Of 27 nodes…
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Entrectinib now for about 1 month...
In late 2020 they found stage 3 lung cancer. Did chemo, radiation and followed up with immunotheraphy. On March 27th this year I had surgery to remove a tumor pushing against my brain. Has anyone else been prescribed entrectinib. Just wondering about side effects. Thanks.
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Hi All!
It's been a long time since I've visited, and I find myself very nostalgic and missing you ladies who kept me company on this journey. I'd love to hear from my beautiful "old-timers" who are still here on the boards, and hear news about those who aren't. I also want to encourage y'all that miracles really do happen. I…
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NRI tonsil adenoids in 1960’s I was shocked Radiation oncologist I have respect was not aware
I was flabbergasted the a highly skilled emphatic radiation oncologist was not aware of NRI being performed on children in 1940-1970’s!! I called to see if he could determine if what I am experiencing today is related to NRI late effects ! One month later his nurse called me “ Dr A was shocked this was being used he…
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Seeking Opinions on UCLA & USC surgeons for Colorectal LAR Surgery
Hello Everyone, I'm preparing for Lower Anterior Resection surgery in the Los Angeles area. I'm interested to know if anyone has opinions about surgeons. I hear the the colorectal surgeons at UCLA and USC are quite good. If you have any personal experience with UCLA or USC surgeons, especially if you've had surgery…
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Secondary Cancer
I have been anemic for 2+ years now and there are multiple lymph nodes under my jaw that have been swollen for 6+ months. Labs have shown low RBC, low Hemoglobin, and low Hematocrit every CBC lab for almost 3 years now - my WBC is currently low, but hovers around normal (never above low normal). My iron panels have all…
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RECENTLY DIAGNOSED WITH PAPILLARY THYROID CANCER. THYROIDECTOMY?
Hello everyone, I am a 44 year old female and was diagnosed with papillary thyroid cancer on January 17th of this year. Is a total thyroidectomy the best option for me?! Hoping you can help! Here's my story - In the fall of 2023 I woke up with "frozen shoulder" (adhesive capsulitis is the medical term), in my left…
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18 month post surgery update
I just wanted to share about good post Radical Prostatectomy surgical results. We often hear about the unfortunate post side effects and not enough when everything just goes well. I am doing terrific. I see my Doctor next month on a follow up. My PSA has been unmeasurable. I turn 73 this year. I have no incontinence and…
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Cervical cancer
I am curious if any woman were diagnosed with both anal and cervical. Did you have either one of them first and discovered you had the other cervical or anal, one right after the other?
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Family members/friends that just don't seem to care.
I haven't got alot of energy back yet but noticed that this topic seemed to be coming up a fair amount lately and since that is what I am dealing with, in spades right now, thought I would throw my 3 cents into the pool. Abandonment. It sucks doesn't it? Well take heart, if you can in something like that, in that you are…
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Choroidal Melanoma Survivors
I was diagnosed with a large choroidal melanoma on January 23, 2009. It was discovered during an eye exam. I had visual disturbance which prompted my dr visit. It felt like something was in my line of vision but no matter how many times I wiped my eye or blinked it never moved or disappeared. I had 3 different eye drs look…
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Choroidal Melanoma
Hello everyone, I was writing to find anyone else who may have this cancer. I was just diagnosed with this cancer after going to my eye doctor. I woke up one morning and noticed an increased amount of floaters in my vision. I blew it off for months and also because I didn't have insurance or money to pay for an eye visit.…
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54 y/o post menopausal for 2 years and started spotting
Hi. I am on Climara estrogen patch and 200mg of progesterone, which I've been on for several months. I was on 100mg of progesterone, but my doctor upped it for me about 6 weeks ago. About a month ago I noticed very, very light pink, almost hard to see, spotting when I wiped. Within the next few days it remained the same…
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Signs of Life
Nearly 16 weeks since RARP and last night out of nowhere there was “a sign of life” as far as the ED is concerned. How or why I don’t know but suddenly had the closest thing to an erection since before surgery and there was pretty good sensation with it. Taking this as a good sign. Incontinence is greatly improving and…
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LONG TERM SARCOMA SURVIVORS WANTED
I'd like to hear the stories of some long term survivors. Please tell me your story. I'd like to be able to see that this isn't only a dismal disease. Thanks.
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Any survivors of signent ring cell colorectal cancer
Hi my name is cheri my husband is 26 was diagnosed with signent ring cell colorectal cancer stage 4 in june 2012. He had surgery then to remove a foot of his colon when he was diagnosed along with several lymphnoids, the margins were clear so he started radiation in july along with chemo pills. One eek after starting that…
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Synchronous Signet Ring Cell Carcinoma
Hello all, I see there doesn't appear to be any current post regarding SRCC so I thought I would start a new thread. I was diagnosed with Synchronous Signet Ring Cell Carcinoma in January '25 stage III. At that time the MDC at University of Colorado settled on chemo and radiation. FOL FOX and radiation for the rectal…
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Zytiga (Abiraterone) with Prednisone vs. Nubeqa (Darolutimide)
Just thought I'd share that yesterday I had another 3 month checkup with PSA remaining undetectable. 😀 After Pelvic IMRT and having been on Orgovyx (Relugolix) along with Zytiga (Abiraterone) / Prednisone for about a year it's been working as well as can be expected. 😀 I am however experiencing many of the typical symptoms…
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Poly-MVA-----Any experience with this?
Hello All... I am generally not a person that would investigate alternative supplements. I shared with my acupuncturist that my tumors had increased in size and number and she became very concerned. She paused for a moment and decided to tell me about a product by the name of Poly-MVA. She has been researching it and is…
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HAI Pump Floxuridine (FUDR) and Panitumumab (Vectibix) - Anyone?
Hi, I am 58, originally diagnosed a year ago with colorectal cancer with extensive liver mets not operable. After a year of Capox, I shrank all of it massively. I recently was able to have a colon resection. I also had an HAI liver pump implanted to go after the liver mets that are left. I have had only one infusion so far…
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Update
Well. I reported all clear in June but things change in the blink of an eye. On a completely unrelated scan, an enlarged lymph node was discovered. Not the results we were hoping for from my biopsy: Kidney cancer cells (diagnosis and surgery 9 years ago) have resurfaced. I had a CT scan of pelvis/abdomen tomorrow and a…
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Calif. teen takes $100K national science prize
Some really amazing news about technological advancements in cancer treatment. Unfortunately, it could take at least 25 years for practical use though. Calif. teen takes $100K national science prize
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biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
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RCC in my remaining kidney
12 years ago I lost my left kidney. There have been a few scares along the way but now I have RCC in my right kidney. Partial nephrectomy scheduled for next week. Tumor is in the middle of my kidney and doc says there is a chance this laparoscopic robotic procure turns to an open one and 25% chance things go sideways and I…
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Open Partial Nephrectomy Complications
I had a open partial nephrectomy back in May of 2023. Very invasive. Had a rib removed and my kidney had to be reconstructed. I had a rough recuperation but slowly made progress. After 12 weeks I was back to work part time and after 5 months back full time. The problem I am having is that shortly after the 6th month mark I…
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Loss my wife to uterine cancer. (carcinoma sarcoma)
my wife was a 48 year old school teacher in the Orlando Florida area as she passed away after only a 6 month battle that took her from her family and I. We were torn on treatment options but her family and friends convinced her to do the traditional chemo and radiation that only forced the cancer to spread and metastasis.…
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Unusual 4th Stage Stomach Cancer Patient- Amazing actually
I am not really sure if this is the correct forum to post this inquiry. I have a rather unusual, perhaps it is not unusual. I have a dear friend whose Grandmother has 4th Stage Stomach Cancer, which has metastasized to the following regions: 2 mets on both lungs, liver, bile duct, and several clusters of tumors in her…
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Calendula oil, aloe vera and lavender oil
I'm starting my CRT tomorrow and have found that some people use calendula oil, aloe vera and lavender oil, applied one after the other, in order to counter the radiation burns. Is that something that anyone on the forum has experience with?
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Caregiver for husband who is a totally different person now.
My husband has Myelodysplastic syndrome. He has been given 1-3 years. He talks to me so mean now. He never smiles or laughs. He sits in his recliner with the heated blanket and sleeps or stares at the blankly at the tv. I have tried to hold it together and ignore the mean and hateful thinks he says to me but it is really…
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Post RALP PSA
So, on a whim, I got a PSA test ahead of yearly scheduled due in Feb. Normally at labcorp, my results were < 0.1. I did this one out of pocket at Quest and got 0.09. So, its still < 0.1 and I'm not sure if Quest normally reports value or < #? Guess my question would be how long to wait for a retest? I'm thinking a month…