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How much did your doctors get you ready for post-surgery life
Hi All, I'm an 8-year post esophagectomy squamous cell survivor. I am very grateful for being a survivor but also very frustrated by what doctors did NOT tell me life would be like after surgery. So I am wondering if this was just my experience or if others have had similar experiences and what they did not tell you about.…
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Bladder Cancer T1G3. (TURBT+Chemo) or (Cystectomy)?
I am 51 year old male and was recently diagnosed with Bladder Cancer. After TURBT, pathologyindicates Superficially invasive urothelial carcinoma with extensive background high-grade papillaryurothelial carcinoma. Tumor superficially invades lamina propria. Muscularis propria is present without tumor involvement in sampled…
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Sometimes good news is as hard to process as bad news
So I met with the new surgeon yesterday to discuss my APR. It's been a month since I finished six weeks of chemoradiation. I feel great with no lasting side effects I am having almost perfect bowel movements and my blood counts are stabalizing for the first time in nine months. The surgeon did a physical exam of the area…
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7 year remission from Undifferentiated pleomorphic sarcoma
I had a tumor in just below my waist line, very aggressive. Had chemo six 21 day cycles 7 days in hospital for infusion. Then radiation and finally surgery at MD Anderson, Houston. I thank a praise God for the doctors and medical staff.
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Peritoneal Carcinoma - Ovarian cancer Stage IV .. How to tackle symptoms of disease after Chemo
I have been diagnosed with Peritoneal Carcinoma - Stage IV Ovarian Cancer. The diagnosis followed a hysterectomy in May 2024, and investigations in November 2024 confirmed the condition. I started my first cycle of chemotherapy (FOLFOX) in January 2025. Afterward, I experienced partial bowel obstruction, which led to an…
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Hard
Hello, I will try writing on here again... I try holding everything in. But I still have not heard some one got cancer in there feet or leg now they talking lungs. How do keep being strong when you keep going threw something I'm only 43 and it's hard.
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Any 'older' neuroblastoma survivors out there?
Hi all-- I'm a 51 year old survivor from neuroblastoma, discovered when I was 8 weeks old in 1958. Is there anyone else out there who has survived a neuroblastoma from the '50s or 60's? I'm wondering if anyone has had problem with ganglioneuromas? Anyway, I'd be interested in talking with others who have survived this…
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Wills tumor 38yr old surviving
My name is Christy Light I am 43 years as a child at three months old developed a Wilm tumor. It was on my left kidney. Well I went to UK University of Kentucky for all of my care and in 1982 they removed my left kidney and said the size of the tumor was about equivalent to the size of a grapefruit, so that’s pretty big on…
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PSA Results
Well, just got my PSA results. .05ng/ml. I am 7.5 years post RALP. Generally speaking, I guess that means I am disease free and still in remission. Early birthday present as far as I am concerned. Smile, I am.
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Prostate Cancer after Biopsy-want to do HoLep
Hi. So last year I got diagnosed with Prostate Cancer 11 cores negative, 1 with 5%. My PSA has held steady at 4.9 for several months. My new urologist is suggesting a HoLep to shrink prostate so I can pee easier. However, I had an MRI and he'd like to do an MRI first. If the cancer as grown, his idea is to remove it and…
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New on this site
Hello everyone someone give me this site said that it helps me what I go threw. So let me tell you just a little bit about my self in 2022 I had can for the first time in the Right foot which the doctor said it's rare. I never knew you could get cancer there had radiation and 2 surgery they wanted to cut my feet off but I…
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Secondary Cancer
I have been anemic for 2+ years now and there are multiple lymph nodes under my jaw that have been swollen for 6+ months. Labs have shown low RBC, low Hemoglobin, and low Hematocrit every CBC lab for almost 3 years now - my WBC is currently low, but hovers around normal (never above low normal). My iron panels have all…
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Social groups for brain cancer survivors
Hi all, new member and caregiver here, My sister is a brain cancer survivor of 10 years, she had a medulla blastoma "grade 4" and the base of her brain and went through chemo/radiation. She wasn't able to return to work due to her balance issues and short-term memory loss. As the years have gone on, her side effects have…
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Long Term Radiation Side Effects
Hi, I'm new to this forum and wanted to reach out and see if others are experiencing similar side effects that my mom is experiencing. My mom was diagnosed with a left frontal lobe grade 3 anaplastic astrocytoma back in 98'. She had a craniotomy to remove the bulk of the tumor and then had targeted radiation therapy and…
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Disability protection for cancer survivors
My brother had a brain tumor in 2018. He had chemotherapy and ultimately a stem cell transplant. All his MRIs since then have been clear but he has slight lingering memory issues. He lives with me (his sister) since 2019. He holds down a full time retail job but lately his managers have been indicating he cannot do his job…
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New incontinence boxer briefs being advertised as better that pads or full coverage depends, etc.
Has anyone tried these. I keep seeing ads pop up claiming they’ll save a lot of money over buying pads, etc. to use once and throw away. At $50 for one or $99 for three, it seems to me that the money you save over Depends with be “washed” away in the laundry. But I a, curious. .. are they worth a try?
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signet ring cell carcinoma
Has anybody else had this type of cancer and if they did can you please tell me more about it Pat
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No orgasm after radical prostatectomy Davinci Robotic sugery
Hello, I had the radical prostatectomy surgery in August of 2024 so it's been a year since the surgery. I experienced a handful of orgasms which contained regular spasms with the orgasm in the first 6 months that had 40% feeling compared to before surgery. So I was hopeful. Now a year later I don't have only have only…
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How to travel when all I can eat is smoothies
It’s been four years, as of four days ago, that I had my last radiation session for BOT Cancer. I still have problems eating solid foods and even some foods not so solid but grainy textured. It’s not that I can’t swallow, it’s more like dry foods stick to the back of my throat, my gums and teeth, sometimes to the point of…
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The Hidden Price Of Everyday Tasks
Hello everyone. I came across this article on another support forum, and it occurred to me that I should share it here because many of us suffer from multiple treatment leftovers and other things leftover from our cancer treatment. There are also folks on here dealing with heart problems and breathing problems of other…
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Bad mental health after surviving cancer
In July 2024 I noticed a swollen lymph node… within 3 months I was stage 3 with ALK negative ALCL. This is a rare form of High grade, Tcell, non Hodgkin’s lymphoma. The VA has stated that they believe it’s possible I was exposed to something in Iraq while I was active duty Army. May 1st 2025 I had a stem cell transplant.…
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Incredible pain 8 weeks after brachytherapy
Hello - I am a 79 year old male who got diagnosed with prostate cancer in August of 2018. My scores were Gleason 6, Grade group 1. PSA was 6.78. In December 2024 MRI showed a slight increase in lesion on one side. Subsequent biopsy showed Gleason 7 (3+4) Group 2 in two cores and all others remained Gleason 6 Group 1. PSA…
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Immunotherapy for Squamous Cell Carcinoma, base of tongue
Brief recap: 2007, SCC left tonsil/lymph gland, minor surgery, 35 rads, 7 Cisplatin Chemo, still all clear last PET 3/2025. 2022, SCC right tonsil, TORS for tumor, RND of the neck. No chemo, 30 rads. PET 2025 shows reoccurrence near base of tongue. Surgery and radiation not an option. Waiting on appt to discuss…
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Side effects of radiation and chemo for treatment of NECK cancer.
Hey all. I am new to this forum, but I have questions. I am 7 weeks post radiation and chemo treatments for HVP small cell squama's carcinoma. I knew most of the side effects going into my treatment plan. They all sucked but I knew. I lost my taste after week 2. Needed a feeding PEG tube after week 5. The horror show had…
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National Institutes of Health Trial participant HPV16 Tonsil cancer
Without a lot of medical technical details I am a 71 yr old male. Diagnosed with HPV tonsil cancer in May 2025 and received a recommendation to join a trial at the NIH in Maryland designed to change the common treatment protocol - Three rounds of Chemo first 7 weeks apart (June and July 2025) to reduce the tumor of the…
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MOHS Surgery Shock
I am hoping to hear from anyone having had MOHS surgery and is willing to share your recovery and healing process, including products and/or procedures used. I had MOHS surgery two days ago to remove a cancerous spot in the area between my upper lip and my nose. The spot is about the size of a pencil eraser…but I ended up…
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Introducing myself, a spouse caregiver
My husband has HNC that originated in his tongue. He had half his tongue and a lot of lymph nodes removed. 7 weeks of radiation with cisplatin adjunct therapy. 3 month PET was ~clear but areas to watch under his tongue. 6 month PET, plus punch biopsy (that I pushed for) revealed radiation didn't get it all. He has a mass…
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NEW PSA SCORE; WENT FROM OVER 400+ DOWN TO 0.88 IN LESS THAN 1 YEAR!
Greetings; It's been a while since I've vistited this site. I originally was diagnosed with metastatic prostate cancer approximately 1 year ago. My original PSA score went up over 400 points. I immediately started cancer treatment at the VA in Southern Calif and also was treated by a Natural Holsitic Practitoner from West…
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Bronchoscope result
8mm spiculated nodule identified on CT Feb 2025. RLL. Also 4mm fissural nodule LUL. Bronchoscope at Mayo Feb 2025 on 8 mm nodule performed. CT spin technology confirmed needle in left inferior edge of lesion. All path results from procedure showed no evidence of malignancy nor lymphadenopathy. no other source of nodule…
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Brenner Tumor
Can anyone give me some information on a malignant Brenner Tumor? I would like to find someone who has been diagnosed with this type of tumor.