-
18 years out after Stage 4 Dx
Hello all, This disease is so unfair and unpredictable but I did want to throw a chance of hope out there. It is now 18 years out from the initial diagnosis. Stage 4, mets to liver and lungs. Took long time but I'm still here and doing fine. I know the long term people who I first followed meant a lot. I have no magic…
-
Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
-
Chemo pill vs pump and how to support body for lessening treatment side effects
Aloha! I've been recently diagnosed with stage 3, 2"rectal tumor, 2cm into the wall, 7 lymph nodes inflammed, at the top of the rectum. I'm headed in for my 3rd biopsy tomorrow to get pathology results to give us a proper plan moving forward. I turned 40 in March, First noted symptoms April this year, found tumor early…
-
On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
-
The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
-
So the Real Journey Begins Today
After 3 months of questions and testing and waiting, my husband is scheduled for a modified neck dissection this morning. We have to be at the hospital at 5:45 am; of course it is only 3:30 and I am up and dressed and ready to go. Sleep? Oh no. 😟 It’s not than I am scared, I am beyond that now, just couldn’t sleep. A song…
-
My Journey
I started by donating my lett Kisney to Kidney Cancer in 2002. Naturaly my Uro followed my Prostate each following year. MY psa TOOK A BIG JUMP FROM 2018 TO 2019 and a Biopsy was a Gleeson 8 (9 after surgery.) I saw Dr Patel in Orlando for my robotitic Prostectomy. I have 6 and 1/2 years undetectable PSA. 3 months later I…
-
Radiation Fallout
Long time member of CSN, but have been absent several years. 10 years ago husband diagnosed with stage 4 nasopharyngeal tumor. Treatment was successful in eliminating the cancer but radiation effects over the last 10 years have piled up. Hearing loss, no longer able to swallow so PEG tube feeding, tracheostomy, balance…
-
Seeking Guidance on Supporting a Child with Cancer: Emotional and Practical Tips
Hello everyone, I’m new here and wanted to reach out to the community for some advice. I have a family member who was recently diagnosed with childhood cancer, and as you can imagine, it’s been a tough time for all of us. I’m looking for some guidance on how to best support them during their treatment journey. What have…
-
Looking for others who may be survivors of leiomyoscarcoma of the uterus.
Hi... I was diagnosed with leiomyoscarcoma of the uterus in Sept of 2010. I had a complete hysterectomy, then 28 treatments of radiation to the pelvis. I know it's aggressive and that the statistics for survival is not good. Looking for others in the same situations.
-
Daughters Bone cancer
I am new at this so please bear with me. My daughter now has Stage 4 Bone Cancer. She was diagnosed with a rare uterine cancer in 2008. After years of medication, chemo, and radiation and a few years in remission the cancer has returned as bone cancer. When this was discovered she was already at Stage 3. She is a single…
-
Biopsy Results
My biopsy test results came this morning and I'm undecided whether to open and read them before speaking with my urology office tomorrow morning. Waiting for the results these last few days caused me a lot an anxiety, and I don't know if taking a look might exacerbate my anxiety. Have others had this debate with themselves?
-
Primary Bone Lymphoma, anyone?
Hi all, I have Primary Bone Lymphoma, which is deemed a rather rare occurence of lymphoma. My variety is Follicular (indolent), which is even further off the charts (the "usual" type of PBL is DLBCL (aggressive)). Specific information is hard to come by... So I would love to find other folks with PBL, who would be willing…
-
Acupuncture for breast cancer stage 4 patient
hello, did anyone try acupuncture? And did it help?
-
11.4 mm endometrium and worried
Hi everyone. I'm glad there are platforms like these to sound off on. I hope it's ok to post here although undiagnosed. I've been reading around and found some helpful posts. Ultimately, we just have to get checked the best we can and not take diagnosis online. I understand that. Purpose of this post, is to hear your…
-
Anger
Hello, Just looking for some place to connect with others caring for a dying spouse who is angry, hateful and actually cruel with his words. Been married 45 years, he was a functioning alcoholic and I was the enabler. I am a 10 year Lung cancer survivor who by all means should not be here except by the grace of GOD. He is…
-
Survivor
My name is Linda and I finished treatment with chemo and radiation last October, my problem is I am having difficulty living with the new me and the thought that it will come back
-
How low a PSA? What is the new "normal"?
My PSA is 0.2 after having radiation treatment now just over 2 years ago. Interested also in this metric. Most of my usual body functions are fully changed from "normal" in one way or another after the 27 days of radiation. Almost everything. I am interested in chat with similar men and situations. I am 79. Any men that…
-
ejaculation and semen flow
So concerned very much here. Have those here that have been treated by radiation for Prostate Cancer and had had any related conditions? ED in any way? How? What is your way of dealing? Please let me know. Thank you.
-
Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
-
Feeling lonely and isolated
My husband was recently diagnosed with non Hodgkin’s lymphoma. He is being treated at Gibbs Cancer Center in Pelham, SC. I am his caregiver. The prognosis is good. We lost our daughter to breast cancer 7 years ago. My husband does not want his diagnosis to be public; only a few close friends know. We are new to the area…
-
Week 6 of 7 SRT complete
Week 6 and 7 I’m told they are concentrating on prostate bed. Only difference is about 3 hours after treatment, I run out of gas and need a 1-2 hour nap Still on same boring diet 😩. No diarrhea. Can’t wait for that first pizza a month from now 🎉🎉 hope everyone has a GREAT weekend I still have 3 more acres of grass to cut…
-
CEA rising but no cancer detection
Hello im new to this board and I really hope you can help me. I never had cancer before and my CEA level was consistently below 2 for past 10 years. However suddenly this year my CEA was increased to 11.3. Then two weeks later, it increased to 14.1. We did colonoscopy, PET, and CT but no tumor is detected. I know smoking…
-
First chemotherapy treatment today
-
Lung Mets
Has anyone been diagnosed with lung metastases ? I am stage 3C serous. They only do scans once a year here for some reason. I had some bleeding that they shrugged off and then my next visit they tried to but I basically insisted on a scan. The scan in December showed no issues in abdominial region, but found a new 6mm…
-
UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
-
I'm new here, this is my story
Hello everyone! I have had right flank pain for many years, like 15 or so. every scan and diag test has been normal. I also have a painful inflammatory disease in my bladder called interstitial cystitis for 22 years. In the past few years I have had a few UTIs and more severe right flank pain which has led me to have more…
-
Nine years later recurrance in lung
I had stage 1a grade 1 endometrial cancer 9 years ago. I had a full radical hysterectomy, and the Dr.s felt there was virtually no chance it would return. No chemo or radiation was suggested or offered. Nine years later I started to cough blood and after loads of tests, it has been determined that I have an endometrail…
-
DCIS
I was diagnosed with DCIS January 2. From my first mammogram in November to surgery in March, I have struggled. I hear that DCIS is not cancer because it’s non invasive. I read that it’s pre cancer. Anyone else with DCIS struggle with this? My treatment has been the same, to some extent, as if it was cancer. I even feel…
-
Has anyone heard from CMB?
I have not heard from CMB in a very long time. I hope she is okay.