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What do I do?
My mom was diagnosed with stage four pancreatic cancer early last year. She had one tumor in her pancreas and four or five in her liver. She was on 5 different chemo treatments and the one that was actually shrinking her tumors started giving her an allergic reaction so they changed her to a different one after pausing for…
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Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
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Technology tips for memory
I have had brain cancer in 2010 and with that I have memory loss. I wanted to share a couple tips I use to help that using technology. These were done using an iPhone SE. I make a calendar date and remind myself to check my calendar every morning. https://us.v-cdn.net/6035652/uploads/6WJ0OFW77FFT/adding-a-reminder.pdf…
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Bosniak 3 cyst and a lung nodule
Hello everyone! This is a group I never ever thought I would be posting in, but here I am. I was diagnosed with a Bosniak 3 cyst, highly suspicious of renal cell carcinoma at the end of December. I have seen 1 specialist who really dismissed a lot of my worries but said I did need surgery. I agree. I’m waiting for a second…
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My Anal Cancer Experience
Hello fellow anal cancer patients! When I was first diagnosed I visited this forum many times. Although I never posted anything, I gained much knowledge and felt a great deal of support. Now I want to relate my experience with the hope that someone else who is facing the same thing will benefit as I did. (As a point of…
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NRI compensation places I called
I called RECA they told me I am not eligible due to the state Maine where I had surgery at 8 yr old I reside in FL but that also was not RECA eligible! Does it sound ridiculous to all you NRI survivors it does to me as it should not matter what state you had this or state you live it about JUSTICE!! I contacted National…
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Newly diagnosed and looking for support!
Hello everyone, I have been lurking for a few days and have finally decided to post. My name is Kirstin.. I am 47, diagnosed with stage 3b (T3N1M0) CRC on 1/19/23. The week prior, I had been experiencing sudden bloody diarrhea and unusual colicky pain (which was minimized by my PCP and GI for over a week until I insisted…
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I’m a bladder cancer survivor, i am sharing my journey to help others
Hello everyone, I wanted to share my journey as a bladder cancer survivor in the hope that it might encourage or help someone who is going through a similar phase. My journey began when I noticed symptoms that I couldn’t ignore anymore. Like many people, I didn’t initially think it could be cancer, but after proper tests…
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"Invisible" tumor causing pleural effusion
Hi everyone, I am new to this forum. I am the caregiver to my dear 64 year old mom who has stage IV colorectal cancer. In July 2016 she suffered pleural effusion. Adenocarcinoma cells were found in the fluid but there was no visible tumor in her lungs even under PET scan. She then underwent pleurodesis and then 6 rounds of…
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Melanoma
I am a 33 year survivor of melanoma. I was 23 years old. From the beginning, I refused to be defeated by cancer. I have done research, been treated by homeopathic remedies, herbs, and diet. I believe I have survived because I rebuked cancer from my mind and body. I attribute my healing to God, healing scriptures prayed…
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CSN Feedback
Ive been around the organization a bit. I am from a healing community so its a neat fit. I think with respect to brain and lung cancer CSN is doing a disservice. Performs more like a social club than actually getting things done. At best I'd say upkeep is around 2023 and that is like with anticpated donations on par or at…
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Need help with multiple basal cell carcinomas
Hello, A few years ago I had two BCC's removed using the MOHS procedure. But since April 2016 I have had more than 30 spots that my dermatologist has burned off and five that have been biopsied and came back positive for BCC. These five have been treated with the MOHS procedure. Friday I received the results of my sixth…
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Buccal mucosal squamous cell carcinoma
Hello there! I am a 51 year old woman who was recently diagnosed with squamous cell carcinoma right buccal mucosa. Started with what I thought was a cheek bite in Decemeber. It would not heal properly, and in January at my normal dentist appointment he was concerned and sent me on for a biopsy. Got the call Feb 6th that…
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Anal Cancer - no one to talk to - does anyone survive this disease and come out with reasonable norm
I am a 43 year old female. I watched the Farrah Fawcett documentary regarding her experience with anal cancer and had never heard of it prior to that. I was shocked when only 3 weeks later I was diagnosed with the same thing - especially because I am the picture of health, other than this disease. I was diagnosed with…
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pain in hips after radiation
five year cancer surviver!!!! But i believe radiation in my hip area has caused me to have pain in my hips ,i cant hardly put on my socks or sit indian style i get charlie horses in that area when in my exersize class.doctors say they dont think it was radiation that caused that but i disagree has anyone else had this…
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Breast cancer metastasized to liver, anyone have experience with this?
I was just rediagnosisEd with breast cancer which has metastasized to the liver. Right now ct/pet scans are just showing one spot, which is about 5 cm. I am considering having surgery to remove the part of the liver where the spot is and I am wondering if anyone else has been through this and can tell me what to expect…
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I need some advice please
I have started developing many medical issues since my cancer treatment. I have neuropathy everywhere. I have cranial pressure and now I have cardiovascular disease. I looked at all the tests that they gave me before during and after cancer treatment and my heart was perfect. I started having issues about two years ago. I…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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Ascitis
Hi everyone, My mother has stage IV breast cancer that has metastasized to the bones and liver. She has been treated for it and recently she has started having ascitis in the abdomen. The doctor said no need to drain it currently because the fluid is no much, but i am a bit concerned about it and wanted to ask you guys if…
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New here
Just diagnosed with Eye Cancer. Currently using Chemotherapy eye drops. Anyone else have experience like this?
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Revision surgery after Total Gastrectomy
Helo everyone, Has anyone had any expeience with revision surgery after your TG. My fiance had TG (Bilroth2 Braun procedure) and because a severe case of acid/bile reflux, we have been advised to perform a second (revision) surgery to Roux en Y. Thank You.
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Getting help after 30yrs of radiation treatment
Hello everyone, I am new to this site. This has been a crazy time for me because I am a 30-year cancer survivor. The radiation treatment that I have received during my treatment is kicking my butt. Six months after receiving radiation treatment, My small intestants became fused together. surgery was performed. Since then,…
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35 year old husband just received diagnosis
I'm beyond devastated. It was only 2 weeks ago we were living the most full, happy, loving life. We've been married for only 9 months now and never anticipated he'd be diagnosed with Stage IV stomach cancer. The horrific prognosis we've seen all over the internet are making our worst fears feel more realistic. I feel like…
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Stomach Cancer survivor
In 2014 I underwent surgery to remove 85% of stomach. For ten years still cancer free. Since COVID I find myself with constipation more frequently even though I don't eat a lot of food. I eat smaller meals and try to eat every two hours however the constipation tend to prevent my food intake. Any suggestion or…
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in need of support
hello everyone, i am 18 years old and almost died of stomach cancer. I was wrongly diagnosed and no one knew i had cancer until i was on my deathbed. I had a partial gastrectomy and am struggling with my recovery. I don’t know anyone my age that has had or has cancer. It is very difficult.
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The next "Step" after robotic prostatectomy
Good Day. I'm 64, and had a robotic Prostatectomy in Oct 2022. The Dr was confident all cancer was encased in the gland, but the 3 month PSA check was .29. Next PSA check 3 months later was up to .65 so a PETScan was scheduled. A tiny hotspot was on the Prostate bed, and Dr. is recommending radiation treatment. I am…
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New to The Group
Hello, I am 48, diagnosed with Esophageal/ Stomach cancer in March of 2024. Went through radio and chemotherapy. Then had major surgery in August. I was then told I was “Cancer” Free and called a Survivor. I am currently doing immunotherapy and also getting esophagus dilations almost every 1-2 weeks. I am still battling…
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New to group
Hello, I was diagnosed with stomach cancer of April of 2024, 6 months after I had my 1st heart attack. Stage 2 in May of 2024 they removed 80% of my stomach . Currently going thru chemotherapy, sometimes I feel like giving up. The symptoms seem to get worse and last longer with each treatment. I really don't have any…
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Orgovyx stomach pain side effect
For those of you taking ADT med ORGOVYX.. I began taking Orgovyx about 2 1/2 weeks ago as a replacement for FIRMAGON which I initially took for 2 months with only minor side effects. Now on Orgovyx I have developed upper stomach cramping in upper abdomen just under rib cage. I have some history with diverticulitis but it…
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Trapped Gases
After being diagnosed with adeno carcinoma in the stomach and part of the esophegus I had my total gastrectomy surgery in March 2025. Did anyboy had experience with post surgery painful trapped gases after meals. I get a lot of pain and sometimes I can't sleep. I tried smaller meals didn't work. Any advice from your…