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11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
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There are several types of KIDNEY cancers and several types of kidney cancer cells. What kind do yo
There are several types of kidney cancer: * Renal cell carcinoma * Urothelial carcinoma (also called transitional cell carcinoma) <---- what my husband had * Sarcoma * Wilms tumor * Lymphoma Types of kidney cancer cells: * Clear cell * Papillary <---- what my husband had * Sarcomatoid features * Angiomyolipoma *…
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Survivor's Anxiety
I am "cancer-free" now, but mentally I feel worse than during all the treatments! Has anyone else experienced this? I have tremendous anxiety over any possible situation and I wake up every morning in a panic attack. I am looking into therapy but does anyone else have any ideas for me? Thank you.
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HPV throat cancer - website for treatment and recovery. "My Throat Cancer Story - 2015"
Hello Everyone, I just finished my HPV throat cancer treatment 8 months ago and recently created a website that discusses all the things that I did to help with treatment and recovery. "My Throat Cancer Story - 2015". DryMouthThroat.com I will be adding more to this website over the next few months. Robert
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Advice/experience for a friend
My dear friend had a total collecting and rectal pouch created as a result of ulcerative colitis when she was young. She received news earlier this year that she had developed adenocarcinoma of her rectal pouch. She was initially told the plan was for radiation chemo then surgery that would leave her with a permanent…
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Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
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Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.
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Seeking help
my wife was diagnosed with an aggressive form of ovarian cancer on June 21st 2025. She had a 20 cm mass removed, full hysterectomy and bowel resection done on July 20th. Her first round of chemo was this past Wednesday and needless to say this weekend was awful. What I really need is caregiver support. I’m looking for an…
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VIN Partial Vulvectomy Aftercare
hello ladies… I had a partial vulvectomy March of this year. It was VERY painful, stitches did burst, but I made it….. now months later I am still not where I want to be in nowhere near as comfortable as I thought I would be. Other areas are itchy, and the surgery site has also began to itch. I’ve gone back to my…
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Major post-LAR gains after switching anti-depressant
Here's an FYI that I hope can help others. Stage 3 rectal cancer, had LAR eight weeks and on temp ileostomy, severely suffering, unable to stand up and walk for the last 3 weeks due to tenesmus, pain and incontinence. It turns out the anti-depressant given by my family doc was a stimulant and it neither helped me mentally…
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CRC lung nodule..... chances can be Mets?
I was diagnosed (40yo female) 3c rectal tumor July 2024, did chemo and radiation august 2024 through Feb 2025, LAR in April, iliostomy reversal this past June. My CEA in May 3.8, July: 38. Just had CT scans done yesterday and found a 1.4x1.5cm spot on lower left lung. (A spot was noted in June 2024 petCT 3mm lower left…
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I'm trying to cope.
After a car accident in September of 2024, scans revealed brain swelling from a 3.4cm tumor in my right frontal lobe. Further scans revealed a 5.3cm tumor in my lung. The lung tumor was identified as small cell neuroendocrine cancer. I had a craniotomy in October of 2024 to remove the brain tumor. Following a brief…
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Burning Burn Tongue After Radiation Please Help
I am 4-1/2 months post chemo and radiation for tongue cancer. I had the cancer excised from the left side of my tongue 16 months ago. T1N3 The problem that I have is a burning and painful tongue. The burning feeling extends from the point of excision on the left, all the way around to the right side of my tongue along the…
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grade 4 glioblastoma
i ha ve just had 80% of my tumour removed last week i am told my cancer is treatable but uncurable about to begin 4-6 weeks radiation and chemo i gues my question is is how worse or dibilitating is this likely to make me i have already lost use of right arm and leg slowly coming back but i really dont want to trade what i…
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Anybody familiar with Dr. Dattoli's center in Sarasota, FL ??
Due to PSA rising after RRP in Dec. 2010, I am looking for the best follow-up radiation. Any info will be appreciated. As well as other recommendations. After checking his website, I'm not sure about the advantages of his different tests including "color flow doppler ultrasound" and "DART (Dynamic Adaptive Radio Therapy)".…
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Survivor Dispatch: “Guinea Pig 3 Over and Out (Still Sane)”
To bear witness to institutional harm, survivor grief, and the cost of being studied without being seen, “When will they see what they’ve done to me—physically, mentally, financially? I am a human being with feelings. I’ve spent most of my life being experimented on, paying for it in pain, confusion, and silence. I got…
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Sexual Health and Life with Cancer
My husband was diagnosed with Stage III Testicular Cancer almost two years ago and underwent four rounds of chemo and an RPLND (among other surgeries like the initial orchiectomy and a lung wedge ressection) over the second half of 2012. 2013 was all about recovering from surgery and he's still in a lot of pain every day…
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On-line ostomy forum
For those with an ostomy because of cancer (like me), you may want to also join meetanostomate.org. I think this site has been mentioned on this site before but its been several years. Like this site, people with ostomies (for any number of reasons) share advise, encouragement. Having recently joined both sites, I have…
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Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
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Ivermectin/fenbendozole
Has anyone seen any discussion on the use of both of these. With cll there is no tumor to attack. Am i wasting my time?
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How long did chemo curls last?
How long did your chemo curls last? I was done with chemo last Aug and thought they would last about 6 months, but they are still here. Trying to decide if I should keep it short or let it grow. Don't want to suffer through the fro, only to have it start coming in straight again, and have to cut off the curls. My hair…
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2nd Lupron shot
I’m 6 months out from last radiation treatment and in 6th month of first lupron shot Still Getting 6-12 hot flashes daily and a few chills a week. Lost at least 10% of my muscle mass and my joints and tendons are always sore I see my urologist in 2 days. Have had 3 blood draws since April. All PSA’s less than detectable…
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Hormone therapy
I was diagnosed with DCIS stage 0. Had lumpectomy in 2023 and 22 sessions of radiation after surgery. I had been on Anastrozole with horrible join aches then I was changed to Letrozole but I did not tolerate it as well. I am going to give my body 2 to 3 weeks off medication and try Tamoxifen 10mg. Any suggestions? Tips?…
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Cancer of the Ear Canal
I was recently diagnosed with invasive squamous cell carcinoma of the ear canal. I had an initial surgery to remove the visible tumor and to biopsy it (which led to my diagnosis). The first pathology report was inconclusive so they sent it on to experts for their interpretation, which resulted in a diagnoses of SCC. They…
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I want to quit treatments
I am struggling! I am teetering on if I should quit my treatments and get the only kidney I have removed and go on dialysis. The treatments seem to be killing me faster than the cancer. I can’t eat because my mouth is very sore. I have no appetite and when I do have an urge to eat, I’m in pain. I struggle with getting…
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Radical Nephrectomy in Oct 2024 - Unsure of Next Steps
Hello, first off, let me start out by saying that I am grateful for this community and the courage you all display. I am hoping for some guidance on my cancer journey to better help me advocate for myself. In October 2024, I went to the emergency room after a month of seeing small traces of urine in my blood. I was…
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4 Years NED
Had my 4 year follow up in June. Wanted to check in because it has been a minute. I was stage 1a and grade 1 clear cell RCC. My tumor was also partially cystic which I have been reading can be predictor for recurrence. Mine is unlikely to return. I like to post so hopefully if people are looking for info and have the same…
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Lower Heart Rate Than Before Surgery
Did anybody experience a lower heart rate after surgery than before it? I am one week post robotic partial nephrectomy and my heart rate is about 15 beats slower than before across the board so my resting heart rate was at low 70 now it’s in the low 60. My sleeping heart rate is a low 50s dipping into the high 40s (was in…
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Started to research kidney transplant
Today I took a huge step in calling the hospitals that do kidney transplants that are within my insurance network. There were only 2. My oncologist is not on board with me looking into a transplant. They aren’t sure yet (it’s been a year) if the nodules on my lung are cancerous. They are too small to biopsy without…
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PSA Results
Well, just got my PSA results. .05ng/ml. I am 7.5 years post RALP. Generally speaking, I guess that means I am disease free and still in remission. Early birthday present as far as I am concerned. Smile, I am.