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Vulva and sarcoma cancer
I recently have been diagnosed with Vulva and sarcoma cancer. I have lichens schlerosis and haven't gone to gyn for over ten years, mistake! I had one week of bleeding so finally went to gyn. He wanted me to get biopsy of 3 mm mass. That's when two cancers showed up on scan. At the same time, had gallbladder removed…
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Cervical cancer
I’m just wondering how many others are out there that had normal paps only to find cervical cancer later. I had Pap test every year that came back negative but after having a hysterectomy it was found I had Stage 1B2 cervical cancer and now undergoing radiation. Looking back I had symptoms such as post menopausal bleeding…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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Injury recovery time
on evening of July 4th, I misstepped in the dark on front porch steps and took a rumple (no alcohol involved) sprained left ankle (swelled up some) and jammed left big toe (swelled up to foot joint) Had it looked at by doc. Not too concerned 5 weeks later, ankle is better but still swells up if I’m on it a lot and big toe…
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PTSD?
hello I’m new here today and the reason for me joining was wanting to know how people have dealt with their PTSD when it comes to your scans and bloodwork coming back normal for the last year and a half after stage three colon cancer six months of chemo every time I get a bump or don’t feel right I have my mind just goes…
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mucous discharge
I am 9 months post treatment for anal canal cancer. Can anyone tell me when and if the anal mucous discharge ends? I am sooo tired of having to wear a pad 24/7
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Hello
Hi all. Just popping in to say hello. 12 years NED. I never adapted to the new format so I don't come on much. It used to he user friendly. It's really hard to follow on my phone. I have a lot of post cancer issues, deal with a lot of pain from the botched surgery but I bet a lot of us can sat that. I just keep on trucking…
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My Latest MRI and Back Story
Figured I'd share the journey… Just had my first MRI while on Active Surveillance. My history is had rising PSA in Fall 2021 (from 4 in 2020 to over 5 in 2021), had an MRI then which identified a PIRADS 4 lesion, had a biopsy with 12 samples on a grid and 3 in the lesion. The 12 on a grid were normal, the lesion samples…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
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Post Treatment Results
Had good news last week. My PSA was less than detectable However, they did another CT scan to look at an anomaly from my first one. Seems there was a dark spot on my third left rib Have Not heard from doctor yet. So, hopefully it wasn’t anything Headed to San Antonio in a few weeks to celebrate my oldest sons 50th 🎉🎉🎉 Hope…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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Switching from Paclitaxel to Docetaxel
Anyone have any experience with Docetaxel? I had a bad allergic reaction to Paclitaxel so now going to try something different.
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2016
Hi all my "Class of 2016" siblings. I hope you are all doing well. Tomorrow I have ultrasound, then I check in Tuesady with my surgeon/oncologist/urologist. Not anticipating any issues , but I'll be glad to get through the other side. Take care ~
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13 Years NED from stage 3b Signet Cell Colon Cancer
I have not posted in years, sorry for that. I am at 13 years NED and I just had my annual colonoscopy - all clear. I had 12 rounds of 5fu and oxciliplatin along with the right side colon removed. Sending all the best to everyone no matter where you are on this journey!
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Our dear CSN member, Danker, has passed away.
For those of you who have been here many years, I wanted to let you know that dear, sweet friend, Danker, passed away in January. AND, he passed away at a grand age, and not from Cancer. I have kept in touch with him, all these years, and when his recent birthday card was returned, I knew that he had gone to be with his…
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Late relapse of DLBCL Facing R-ICE and ASCT
After a long absence, and without invitation, it is back. Late in 2012, I felt something on my neck that kept growing. It was diagnosed as DLBCL and in early 2013, I went through R-CHOP followed by radiation. All was clear until early June, 2020 when I felt a similar lump on the other side of my neck. After 2 months of…
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Non detectable to detectable PSA
I believe I'm experiencing a slight rise in PSA? I finished 40 IMRT treatments 3 months ago and have been on ADT for almost six months. My PSA 3 months ago was considered undetectable at <.04. Just got my current PSA result now at .04 without the less than sign. Might this be a concern?
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Diagnosed with Stage 3 Rectal Cancer – Beginning TNT
Hi Everyone, My wife was recently diagnosed with Stage 3 rectal cancer at 10 cm. The surgeon has recommended TNT and a “watch and wait” approach. We are very worried and want to get started with TNT as soon as possible. We have appointments with the medical oncologist and radiation oncologist this coming Tuesday. As we…
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Has Anyone Explored Ivermectin for Cancer?
Hi everyone, I’ve been reading about off-label drugs like ivermectin in cancer research. I came across a few small studies and survivor stories. Has anyone here explored or heard about this? Curious to learn from others.
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Eating
I am about 8 weeks post surgery. Does eating get easier?
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Need to Make a Decision
New to the community. 53 years old and intermediate favorable. Gleason 3 + 4. Need to make a decision but going through the same struggle as everyone else. Three main comments/questions that I would appreciate any insight or commiseration. Everyone says do your research. I am finding all that does is lead to a circular…
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Fiancé left me due to the pressure and the future
Hi, I am new here. My name is STUART and I just had surgery to remove my prostate cancer on July 16. Since then, my recovery is going well, but 2 days ago my fiancé has decided it was too much for her to handle and left me. I don’t know where to reach out to or who else to speak to about the constant depression and feeling…
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New incontinence boxer briefs being advertised as better that pads or full coverage depends, etc.
Has anyone tried these. I keep seeing ads pop up claiming they’ll save a lot of money over buying pads, etc. to use once and throw away. At $50 for one or $99 for three, it seems to me that the money you save over Depends with be “washed” away in the laundry. But I a, curious. .. are they worth a try?
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Caregiver
I am trying to find out how to be my little sisters caregiver she was diagnosed with stage four melanoma brain cancer metastatic a week after her 48 bday in November 2024 and since then she can’t work drive or be alone so I have had to quit my job and she now lives with me in my camper, and I have been told be several…
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Vulvar Cancer
Are there others in this community who are living with vulvar cancer?
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After Anal Cancer Treatment and Anal Sex
As a gay man that just finished chemo/radiation treatment for anal cancer. I am scared of having anal sex. Any other gay men that have gone through anal cancer treatment successfully but scared to have anal sex? I know it will be painful but will it be painful the whole time during sex? Will anal sex be pleasurable again?…
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POST RADIATION PROBLEMS HIP AND PELVIC BONE DAMAGE
Is anyone dealing with this? I was diagnosed in April 2011 and had my treatments (chemo and radiation) through May and June. I was stage III so I had pretty intense radiation, including pinpoint to specific lymph nodes that were affected. I have extreme low back pain, spasms (he says probably related to muscles trying to…
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When to Override Parent?
My mom, 74, was very unexpectedly diagnosed with stage-4 lung cancer in October 2024. The cancer is in her lungs, liver, bones, brain, and a few other fun spots. The bone and brain lesions scare her the most. Anyway, she's been on Tagrisso and responded really well, but her most recent PET scan and MRI (last week) show…
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Stage 4 Signet Ring cell adenocarcinoma
Hi good night, I know this is a late post but I am petrified for my mom. She has been diagnosed with stage 4 signet ring cell adenocarcinoma since April of this year. She was completely healthy until she complained about pain in her stomach and not being able to eat much. Is there anyone with this prognosis out there? I am…
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Smoldering multiple myeloma