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LadyMox – Possible Update
Like others, I've been worried that we hadn't heard from LadyMox for some time, even though she had logged onto the board in February, So I did a search this evening and sadly learned that a young woman name Tammy Mink (Tammy was LadyMox's first name) just passed away last week. From the location (Buffalo), her age (42)…
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I have not told family I have Prostate Cancer.
I'll be 67 this December and was diagnosed with prostate cancer 2+ years ago. I was on active surveillance for the past two years. About 7 months ago my PSA went up to 4.8 and I received my second biopsy. It showed the cancer was growing and I was started on Lupron. I'm a fat guy and need to lose another 10 lbs before the…
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Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
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Hi everyone
Idk where to start. But I will start with please pray for my family. My 31 yr old boyfriend was diagnosed with 3 different cancers almost 3 yrs ago its in his brain lung an bones. He has stage 4. He had full brain radiation about a yr ago. He struggles with remember anything . He thinks he can still do everything like…
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Testicular AND Prostate Cancer???
Hello: I'm new here. I wonder if anyone else has heard of this: my daughter's father had testicular cancer (was also in all in lymph nodes) 13 yrs ago; operated & chemo/etc, cancer free all these yrs, til now. He was just diagnosed with Prostate cancer. He told my dtr something about having "12 biopsies", or something like…
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Advice for after orchiectomy
Hi everyone, Well, it has been 2 weeks since my surgery to remove my left testicle. I had a CT a couple days ago and it showed that there was no "metastatic disease" anywhere in the area. Basically that means that I was clear of anything that might have spread around. The only thing that did show up was in my lungs. There…
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How to battle late effects
Hello, I’m new. It’s been validating to know I’m not alone even if the posts are old. Sadly I can relate to so many of them. I’m a survivor of leukemia over 5 years dealing with a ton of late effects of treatment. I’ve gone through chemo, radiation, and a BMT. And I vaguely remember a 3 page list, front and back, of oral…
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struggling with survivorship
Diagnosed fall 2024. Had sucessful surgery. Started what was supposed to be 12 rounds of cleanup chemo in November 2024. Unfortunately two adverse reactions and a very conservative oncologist =treatment halt. Struggling with the emotional side of survivorship ever since. In therapy.
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long term survivors
Are there any other long term childhood cancer survivors out there ? Does anyone need to talk to a long term survivor.
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Sharing Hope: 11 Years After Kidney Cancer
Hi everyone, I wanted to share my experience in hopes of bringing some encouragement. It’s been 11 years since I was treated for kidney cancer. My cancer was in my right kidney, and I had a radical nephrectomy, including removal of my kidney and adrenal gland. The tumor was 10 cm in size, confined to the kidney, stage 2,…
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What do you do to prevent recurrence?
Hello, I’m looking into what can I do to minimize recurrence risks other than eating healthy etc. and found this article suggesting that one should attack these specific types of cancer cells to ensure non-recurrence. Anyone care to comment? Do you know about this topic or do you follow a preventive regime that you can…
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Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
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Hoping this sneaky uterine serous/clear cell is not back, after almost 7 years
I had surgery, chemo, and radiation (IMRT to pelvic lymph node area) in 2018-2019. My Ca125 had been 36 at diagnosis, went down as low as 10 eventually after treatment, mostly ran in the low teens. Was 10 last time I checked it, which was about 20 months ago. Meanwhile, I realized that I've been losing weight over the…
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Duodenal cancer
Hi! Anyone out there with doudenal cancer? My husband was diagnosed with duodenal cancer (adenocarcinoma) in august 2018. When he was diagnosed he was already a stage IIIV, and the cancer had spread to his liver and skeleton. He recived chemo therapy, but had no effect of oxaliplatine. Last year he ha 8 rounds of FLIRI…
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Hello all, would you please help me with your pros and cons of IV versus Venous Port
Hello all, first of all, I want to thank those of you who have helped me so far on this frightening experience of endometrial cancer. It is very very comforting and extremely helpful hearing other's stories regarding their experiences. You all have showed great courage faced with this disease. I begin my 6x Chemo sessions…
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First chemotherapy treatment today
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Pump
I’m looking for some feedback on using the pump I am at the 24 month point and since summer I only use it once a week and have noticed a decrease in length of about 1/2” sound right? Haven’t had an erection since before the surgery, so I guess that’s it for me. Still taking the 5mg tadafill Any thoughts?
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My dad was just diagnosed with prostate cancer
Hi everyone, I have been so thankful to find this forum. It has brought me a lot of hope during one of the hardest moments in my adult life. I wanted to share my dad's story for some guidance on what to expect next: My dad- very healthy 69 year old male. Had all normal PSAs through his 50's; last one checked was 1.3 at age…
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Depression and anxiety
anyone experiencing depression and anxiety after double mastectomy, and after chemotherapy is over. I should be happy but I am more depressed and anxious now than I was at the earlier treatments. Anyone feeling like me??
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aromasin (exemestane) and aches
Hi, after being taken off tamoxifen I've been on aromasin for about 2 months. Every morning my wrist, hands and fingers ache. Has anyone else having aches and pains while on aromasin? Thanks Linny
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Waldenstrom's
My name is Charles and Ihave been diagnosed with Waldenstrom's. Am interested in any persons or family memebers who are dealing with or who have delt with this type of disease. About to have Rituxan.
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Radiation as a Child for Enlarged Thymus
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
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Radiation in 1951 on Thyroid as a Baby
Has anyone heard of babies being radiated in the 1950s for enlargedd thymus glands. I recieved a letter years ago from the hospital where I was born about having radiation treatent as a baby and told to follow up with my doctor. My family doctor was not concerned, neiher was the endocrinologist. Now some years later my…
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Need Help Reading PET Scan
I received my mothers PET Scan results and I need it explained in terms that a non-doctor can understand...My mother had a 7lb sarcoma tumor taken out of her intensinal area on April 1, 2018 and it burst in her system...They did not take any procaution after the surgery just in case it came back. She was not feeling well a…
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Merkel Cell Carcinoma
Hello, My name is Audi and I was diagnosed with Merkel Cell Carcinoma 4 years ago. At the time of diagnosis I was considered a stage III and the progrnosis looked rather bleak. I am just wondering if there are any members here with the same Cancer. Merkel Cell is also referred to as neuroendocrin carcinoma, arises from…
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Parotid gland cancer
I’m 54 year old male. First diagnosed in 2024 Had the tumor removed, decided no radiation. It can back this year, had surgery in September. A full parotidectomy and 6 lymph nodes that it spread too. My doctor said i need radiation this time. Can someone please tell me how the radiation is, the side effects are a lot.
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Cancer X2
I was 37 years old when I was first diagnosed with stage 2 Breast cancer. ER/PR+/ Her2-. Now, 8 years later, I've just been diagnosed with bone mets, ER/PR -, HER2+. My cancer cells completely changed characteristics this time around but is still considered to originate from my BC. We also had genetic testing done for this…
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does it get worse?
Hi i am sure this has been talked about before but i just want to ask. i have just started my oral chemo at home today. so no side effects yet but i know they are coming, but what i want to know is will these side effects get worse during each cycle? I am doing 8 cycles of 2 weeks on and 1 week off the meds. i want to…
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Advice about treatment options for a Mixed Adenoneuroendocrine Carcinoma (MiNEN)
Hello everyone, My cousin (37 years old) has been diagnosed with a Mixed Adenoneuroendocrine Carcinoma (MiNEN) located in the tail of the pancreas, measuring about 13x15 cm. The tumor is attached to the spleen, the ribs, and possibly some nearby areas. The pathology report mentions a neuroendocrine component, and there…