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Radiation in 1951 on Thyroid as a Baby
Has anyone heard of babies being radiated in the 1950s for enlargedd thymus glands. I recieved a letter years ago from the hospital where I was born about having radiation treatent as a baby and told to follow up with my doctor. My family doctor was not concerned, neiher was the endocrinologist. Now some years later my…
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Need Help Reading PET Scan
I received my mothers PET Scan results and I need it explained in terms that a non-doctor can understand...My mother had a 7lb sarcoma tumor taken out of her intensinal area on April 1, 2018 and it burst in her system...They did not take any procaution after the surgery just in case it came back. She was not feeling well a…
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Merkel Cell Carcinoma
Hello, My name is Audi and I was diagnosed with Merkel Cell Carcinoma 4 years ago. At the time of diagnosis I was considered a stage III and the progrnosis looked rather bleak. I am just wondering if there are any members here with the same Cancer. Merkel Cell is also referred to as neuroendocrin carcinoma, arises from…
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Parotid gland cancer
I’m 54 year old male. First diagnosed in 2024 Had the tumor removed, decided no radiation. It can back this year, had surgery in September. A full parotidectomy and 6 lymph nodes that it spread too. My doctor said i need radiation this time. Can someone please tell me how the radiation is, the side effects are a lot.
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Cancer X2
I was 37 years old when I was first diagnosed with stage 2 Breast cancer. ER/PR+/ Her2-. Now, 8 years later, I've just been diagnosed with bone mets, ER/PR -, HER2+. My cancer cells completely changed characteristics this time around but is still considered to originate from my BC. We also had genetic testing done for this…
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does it get worse?
Hi i am sure this has been talked about before but i just want to ask. i have just started my oral chemo at home today. so no side effects yet but i know they are coming, but what i want to know is will these side effects get worse during each cycle? I am doing 8 cycles of 2 weeks on and 1 week off the meds. i want to…
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Advice about treatment options for a Mixed Adenoneuroendocrine Carcinoma (MiNEN)
Hello everyone, My cousin (37 years old) has been diagnosed with a Mixed Adenoneuroendocrine Carcinoma (MiNEN) located in the tail of the pancreas, measuring about 13x15 cm. The tumor is attached to the spleen, the ribs, and possibly some nearby areas. The pathology report mentions a neuroendocrine component, and there…
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New to breast cancer and acs support
After finding out in July, I was given a lumpectomy on Aug 6, radiation on Aug 19-27th; and started chemo treatment on September 26th, I’m ready to be over it ALL. The chemo put me in hospital 4 days and I’m still not recovered from only one chemo infusion. 2025 has got to Stop snowballing me !!!
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Advice on sleep meds anyone?
I'm in the midst of chemo and wondering how much sleep med. might be too much? I often walk around somewhat exhausted from lack of sleep, rather than take too much, but would love to hear some experiences from others...Am I wrong to think that taking Ambien or Atavan (generic name Lorazepam) more often now, could throw off…
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Chemotherapy Ineffective 97% of The Time
I'm not a doctor and I'm not giving medical advice. I found this article interesting: http://www.collective-evolution.com/2013/04/11/study-shows-chemotherapy-does-not-work-97-of-the-time/ "A study published in August 2003 revealed that of adult cancer in the USA and Australia, the use of chemotherapy, when looking at…
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Cobalt radiation as toddler for tonsillitis-Late rffects
I am an MD and practiced Pediatric Oncology. I have a story of my own to tell In the late 1940s and the 1950s, infants and children and teens were given Cobalt radiation for tonsillitis, acne, thymus gland, feet-for proper shoe fitting. All benign conditions I was 4 years old when I had Colbalt radiation to “shrink” my…
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Alk positive anaplastic lymphoma in brain
Are there any successful treatments for this? And what is the survival rate? My 19 year old was just daignosed. .He receieved first chemo treatment. Now doctors concerned it may be in his brain.
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Guided Missiles Targeting Tumor Cells - Cancer Breakthrough Research - OCT 27, 2025
European research has come up with a promising new cancer-fighting concept that targets a kind of antenna on the surface of the tumor cells. I believe mostly used in breast cancer for now. I believe it is slated to be tried in other cancers also. It seems there are many researchers all around the world working for answers…
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Possible cancer recurrence
I was treated for stage 3 tonsillar cancer in 2014. I had radiation for six weeks and have been cancer-free since. I recently noticed sudden weight loss, so I went to my regular doctor and he scheduled me for 3 CT scans with contrast from head and neck down to the pelvis. I feel confident that if cancer, it would be in the…
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Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.
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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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Long term childhood survivors
I'm a nearly 40 year childhood cancerous brain tumor survivor. I'm hoping to find someone in a nearly similar situation.
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PSA Anxiety
After ADT, and pelvic IMRT earlier this year another PSA test is coming up at the end of the week. Last two were .04 which is great but I've been really stressing these last few weeks about this upcoming test. I guess the worry of recurrence just goes with the territory. Does this worrying diminish somewhat for those of…
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Zytiga
Diagnosed in 2014 Gleason score 9. PSA off the chart. 44 radiation treatments and Lupron. PSA went down. Fast forward late 2021. PSA 24. Super scan PC spread to lymph glands above and below waist. Started Zytiga in 1/22 with 6 month Lupron. 4x250mg once a day. Reduced to 2x250mg this year. PSA .04 since 2/22. Each month…
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Hormone therapy
I was diagnosed with DCIS stage 0. Had lumpectomy in 2023 and 22 sessions of radiation after surgery. I had been on Anastrozole with horrible join aches then I was changed to Letrozole but I did not tolerate it as well. I am going to give my body 2 to 3 weeks off medication and try Tamoxifen 10mg. Any suggestions? Tips?…
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POT and Cancer.
Hi, Guys and Gals. I am a voice actor, and I was diagnosed with throat cancer in 2023. I have an animated character I created a long time ago, and now he will tell my story of survival. His name is "Cecil Jenkins". I hope you find my video inspiring, informative, and entertaining. [removed by CSN Support Team]
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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To chemo or not to chemo? That is the question
I was recently diagnosed with endometrioid carcinoma, FIGO grade 1 stage 1C. My doctor is recommending chemo because the ovary that the cancer was in was split open when he went in to do surgery. There was a lot of fluid in my abdomen and chest from the rupture of the mass that was on that ovary. The doctor said there was…
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No orgasm after radical prostatectomy Davinci Robotic sugery
Hello, I had the radical prostatectomy surgery in August of 2024 so it's been a year since the surgery. I experienced a handful of orgasms which contained regular spasms with the orgasm in the first 6 months that had 40% feeling compared to before surgery. So I was hopeful. Now a year later I don't have only have only…
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Massive PSA increase!
Hi guys, I'm new to this group. I have been on TRT for the past year, my baseline PSA was .51. I just had my follow up test and today my PSA is 12.93. That is a 2,431% increase in one year. From what I'm reading, that is highly suggestive of cancer! I have seen the results through patient portal and I haven't even talked…
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Surgery with Gleason 6 and PSA 2.5?
First post here……I'm 50 years old and recently diagnosed. Half of the biopsy samples came back as a Gleason 6 and it's bilateral. I've had my PSA checked for the last 6-7 years and it was always around 1.5. At the last physical it jumped to 2.5. I decided to meet with a urologist and now here we are. The kicker for all of…
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Perineural Spread?
Hi all, I am wondering if anyone has had experience with perineural spread? My fiance had two good scans January and April of this year following surgery, radiation, and chemo for SCC base of tongue. Post-surgery and in the radiation planning process there still appeared to be spread along V3 nerve. January MRI and PET/CT…
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1.5 years after salvage surgery
I am sooo blessed ..I just received my PSA results and I am still undetectable ..side effects Are 1-2 pads a day which I don’t think is that big a deal and I can still get an erection radiation and salvage surgery i did lose a little length about an but all in I am very pleased with the outcome. God gave me a second chance…
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progress report...
yesterday, October 14, I had my final radiation treatment so I thought I'd share my experience so far. I'm 67, in good health with elevated risk for colon cancer (it took my Dad and I've had colonoscopies since my early 40s, dozens of benign polyps removed through the years since, I have one of the risky genes.) Taking…
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Incontinences During Radiation Treatment
Hello, I just started (2 treatments) Protron Therepy radiation treatment for my prostate cancer. Part of the process is to fill your bladder before the treatment. I'm having a very difficult time being able to hold a full bladder long enough to get through the treatment completed. As most of you know you are required to…