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TNBC Survivors Who Skipped Chemo
Hi! I’m 47, diagnosed with small (5 mm), grade III, node-negative, LVI-negative TNBC. I am choosing not to have chemo and am looking to connect with others who have had similar experiences. I had lumpectomy and will be doing radiation. Would love to hear about your journey, follow-up, and how you navigated life after…
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Having a good day!
Good morning! My last AC infusion knocked me on my ****, but this one I'm doing ok. I made my child breakfast, had some coffee, and even got to my 9am doctor appointment early enough to post here. I think today's going to be a good day. Happy Thursday everyone!
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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Recently diagnosed glioblastoma
Hi I was just recently diagnosed with glioblastoma after having a craniotomy to remove a mass that was life threatening on my occipital lobe and spent 8 days in icu. I have two other masses, one on my frontal lobe and one midbrain. I am getting ready to see the radiation oncologist on wed (dec 16) and as soon as my chemo…
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Side effects of radiation and chemo for treatment of NECK cancer.
Hey all. I am new to this forum, but I have questions. I am 7 weeks post radiation and chemo treatments for HVP small cell squama's carcinoma. I knew most of the side effects going into my treatment plan. They all sucked but I knew. I lost my taste after week 2. Needed a feeding PEG tube after week 5. The horror show had…
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uterine carcinosarcoma
Hi ladies, I had breast cancer did lumpectomy, chemo and radiation removed 11 lymph nodes. Then it came back 3 yrs later so i did double mastectomy this September. Come November this yr mri of the pelvis showed abdominal mass and when they went i.n to do surgery they found mass spread on my omentum. They came out and got a…
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Survivors where are you
I want to know how long everyone is surviving. I was formally diagnosed at 37, luckily with stage 1a. I had no symptoms and they found my cancer by mistake. I am now in remission for one year and I'm having these thoughts of how long will I live after this? I know there's no guarantee. But I'm curious of how long people…
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bladder cancer and neobladder
I was diagnosed with bladder cancer in february 2007. After chemo on July 5, 2007 my canceros bladder was replaced with a neobladder. The surgery was performed at USC LA by the best doctors Dr. Scinner and Dr. Stain. I am able to urinate normally during daytime. At nite i have to wake up using a time clack two three times.…
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Post op PSA rise
I would like to know if anyone has experience with this. I go to the same provider for lab results to analytical method the same. (quest). My Radical Prostatectomy was in May of 2024. Gleason Score 4+3 = 7. 3 lymph nodes negative and no indication it escaped capsule. Post op PSA was < 0.04 then 0.05 or 0.04 for duration…
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Brachytherapy dilator use
I've just finished my 6 rounds of chemo and am now scheduled for brachytherapy radiation (they had found stage 1A carcinosarcoma (MMMT) and UPSC). I'm now scheduled for 3 brachytherapy sessions. I'm finding that I'm rather anxious particularly about the long term dilator use. I found that research on the effectiveness…
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17 Years Ago
Hello everyone. It's been awhile since I've been on, but I hope that you all had a very Happy Thanksgiving. My back story for those of you newer members that don't know me. I went in for my first colonoscopy the day before Thanksgiving in 2008 because of finding blood in my stool. My doctor thought it was hemorrhoids but…
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New and scared
I was diagnosed with endometrial cancer stage one today. I am being referred to a specialist (my gyno doesn't treat cancer). It feels like standing on the edge of a high, high rooftop and looking down. Any suggestions on managing the anxiety and feelings of being overwhelmed? Thanks for reading
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Tips for managing side of effects Oxycaliplatin infusion
Hi, I stage 3 colon cancer and the tumor was removed by surgery. I am now undergoing CAPEOX treatmetnt. I am posting this question in hope that you might share insight on managing side effects. I have read all the patient education information about the cold sensity after oxaliplatin infusion, but I believe those of you…
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Reversing treatment resistance in prostate cancer: Study solves longstanding puzzle in tumor biology
My son sent me this article, and I found it to be interesting. So, I'm sharing it. https://medicalxpress.com/news/2025-12-reversing-treatment-resistance-prostate-cancer.html
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Post RALP PSA
So, on a whim, I got a PSA test ahead of yearly scheduled due in Feb. Normally at labcorp, my results were < 0.1. I did this one out of pocket at Quest and got 0.09. So, its still < 0.1 and I'm not sure if Quest normally reports value or < #? Guess my question would be how long to wait for a retest? I'm thinking a month…
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Choices with AML
I was diagnosed in 12/23 with AML I am 102 days out from my stem cell transplant at UVA. I am about to go on maintenance chemo for 1 to 2 years to help avoid a relapse. Wondering if there is anyone that has been down this road and would love to hear how they are doing with it. My schedule will be every 8 weeks 5 days of…
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SBRT with ADT or no ADT
Hello, I have been diagnosed with localized prostate cancer this past summer . PSA 7.2 Gleason 3+4 .decipher 0.49 My Father died of Prostate cancer 2007 at 72 . I am 66 . I have decided on SBRT rather than Radical Prostatectomy . The oncologist suggested ADT ( Androgen Deprevity Treatmant ) or I can decline at this time .…
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AML and IDH1 and Tibsovo
Hello, My wife was diagnosed with AML possibly caused by a mutation in the IDH1 gene (it may not be the only one, EZH2 as well?). Prescribed Tibsovo which works great for now. I have questions to members that may be using this drug: How long have you been using it with or w\o side effects? Any advise on reducing the dose…
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Perineural Spread?
Hi all, I am wondering if anyone has had experience with perineural spread? My fiance had two good scans January and April of this year following surgery, radiation, and chemo for SCC base of tongue. Post-surgery and in the radiation planning process there still appeared to be spread along V3 nerve. January MRI and PET/CT…
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Anyone had Artificial Sphincter/Penile Implant at same time?
Over a year later still struggling with incontinence and ED. Saw my Urologist a couple weeks ago for an unrelated issue but brought it up during the visit and he said to give it til February and we’d talk then about one or both procedures. I’ve read it’s beneficial to do both at once since it’s one surgery and one…
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liver canser metastasized from colorectal canser
My sister has stage 4 colon cancer that has metastasized to her liver and has been undergoing chemotherapy for about 8 sessions. After 3 sessions, the masses in her liver shrank, but later, according to the CT scan results, the volume of the masses in her liver has not decreased any more, and the chemotherapy has caused…
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Testosterone
Ladies - I posted asking about HRT after this cancer in uterus is gone - I read it is safe because everything is removed - but I’ve been reading it’s not true - what about testosterone ?
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Awake Trach Procedure - Quite An Experience - Experiencing A New Phase Of H&N
I am writing to give you an update on my health situation. I have been having difficulty breathing on and off now for several months or more. I was usually better as the day went on, and in the evening till I went to bed, I was breathing fine. But in the morning, when I woke up, breathing was difficult. Finally on Monday…
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Total Gastrectomy - Excess Bile Pain Issues and solutions
I would like to share my experience and see if anyone has advice regarding, post stomach cancer Total Gastrectomy w/ Roux-In-Y reconnection, excess bile acid/salts release into the duodenum (gut). I have been living with the somewhat random triggering of excess bile and the acid burning pain, now for almost 12 years ago.…
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AMS 800™ Artificial Urinary Sphincter
has anybody had this done. I’ve heard good things about it. It seems pretty simple but then when I dig deeper, you know it takes six weeks to heal a lot of swelling and needs to be replaced every 7 to 10 need some time and adjustment to get used to but I like to hear it from the horses mouth I mean, I go through a pad or…
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Dental -update
Oncologist gave us a dental surgeon's name to get teeth extrated since they are crumbling. Called insurtance company and said the cover 100 percent and to file under medical. Insurance person at dental surgeon's office said they do not file medical, only dental. I called a regular dentist listed on the insurance network.…
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Abdominal CT Scan without Oral Contrast
Good morning . After being in remission since 2019 , 2 yrs ago some mesentery nodes showed up on my CT scan. Every CT scan I have had since first being diagnosed in 2016 (NH Follicular stage 3B) I have had oral contrast for abdomen and IV contrast for chest. Both at the same time. We have been watching these nodes for…
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CEA level
Has anyone had experience with CEA levels rising exponentially but CT Scans showed no evidence of disease. My oncologist has ordered a PET Scan. What happens if the PET Scan is negative? What are next steps should one take?
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Our friend, NewHere, has passed away.
Anyone who has followed NewHere, these many years, will know that his fight was long and hard, but he gave it his all and then some. What a blessing it was to be a part of his world, albeit online. He was a strength and motivation for me, as I continue to survive. I survive to honour NewHere, and all who have gone the way…
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Stage 3 B/C Colon Cancer
Has anyone here been diagnosed with Stage 3 colon cancer (T4aN1M0 or T4aN2M0) and had a positive outcome? I’d love to hear some success stories or words of hope.