Still have neuropathy from Folfox/Oxy chemo

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Robert2015
Robert2015 CSN Member Posts: 5
in Colorectal Cancer #1

Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently.  I had many of challenges others have experienced and detailed here on the forum. I still have to manage my BMs with diet and OTC Immodium. I also have quit a bit of neuropathy in my feet...both have the feeling of numbness, similar to how your mouth would feel after visiting the dentist. Anyone else have any neuropathy from Oxy treatmen?

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  • abrub
    abrub CSN Member Posts: 2,174 Member
    #2
    Yes.

    I was told that it could take up to 2 years for neuropathy to subside IF IT WAS GOING TO DO SO.  After 2 years, it's likely permanent. I still have some neuropathy in my feet 9 years later. It isn't debilitating; acupressure insoles help tremendously.  I also have lost some of my fine motor skills.

  • Trubrit
    Trubrit CSN Member Posts: 5,805 Member
    #3
    Yes for me, also

    I had treatment back in 2013 and still suffer from neuropathy in my lower legs, feet and fingertips. Its an odd feeling, and is not something that I am used to, even now. I can live with it though, as it does not hurt, and I am able to hike around with minimal problems. 

    Welcome to the forum.  I hope you will recieve some comfort knowing that others here suffer as you do,

    TRU

  • Tunadog
    Tunadog CSN Member Posts: 235 Member
    #4
    After my Oxaliplatin x Xeloda...

    After my Oxaliplatin x Xeloda I got Neuropathy in my hands and feet, that was July 2016.

    The Neuropathy in my hands is almost gone, my feet are lagging behind.

    I can feel things getting better everyday.

    Best of luck to you 

  • danker
    danker CSN Member Posts: 1,276 Member
    edited April 2017 #5
    Immodium

    You may find LOMOTIL  more effective and easier to take than immodium.  Get a dx for it and give it a try.  Good Luck!!

  • JanJan63
    JanJan63 CSN Member Posts: 2,478 Member
    edited April 2017 #6
    It's been over two years

    It's been over two years since I had the oxy and I still have neuropathy in my feet. Just the bottoms. It feels like walkig on a roguh surface. Mostly I don't even notice it anymore and it has improved over the past two years. It used to feel like they were asleep. Then I wnt through a period where they felt kind of prickly. I'm pretty much used to it now and it doesn't bother me.

    Jan

  • Robert2015
    Robert2015 CSN Member Posts: 5
    #7
    Thanks!

    to all of you who responded...glad I found this site!

  • MRSYBM
    MRSYBM CSN Member Posts: 1
    #8

    Has anyone tried alpha lipoic acid? My doctor told me to try it because I didn't want to take Gabapentin due to all the side affects. It's been a year and 4 months since my last treatment and my feet hurt terribly. I've found a gadget on Amazon that keeps my sheets & blanket off my feet in the bed so sleeping is better but I'm still in pain especially in the evening.

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