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Website that helps to choose best suited clinical trials for you
I just read a post on the Inspire support group about a wonderful site that helps people with selecting the best clinical trial for their cancer. https://www.cancercommons.org/home. Cancer Commons is a non-profit network of patients, physicians, and scientists from many disciplines. They identify the knowledge needed to…
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Nose Sores
Now I have learned I never do anything normal. I now have one killer sore in my nose. I wasn't paying any attention just thought since the hair was gone it was sensitive. Well now it is a true ooowie, swollen and painful. I tried Vicks and it soothed for a while I just put heating cloth on my nose and put some neosoprin in…
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Update regarding postmenopausal bleeding + increased pain
Hello, just wanted to update that a surgery date has been set for next week on the 8th of September. I don't have access to speak with the surgeon until either the pre-anesthetic consult on Monday the 5th so will see what she says about the morcellator. I left a message with her nurse saying I just wanted to have the…
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Hair and a few thoughts
Once again, I have hair and enough of it that I am going without a hat. It kind of wants to stand in a mohawk. I am also getting hair "everywhere " else. I am going to have to get used to buying shampoo again.. Today I had an check up with my Gyno-Onc/ surgeon, a doctor that I have had since the beginning of this journey.…
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Port Pain...
I just had a Powerport put in last Tuesday, followed by three rounds of chemo and it worked fabulous, however, I continue to have pain where the cathedar was inserted. It feels like a burn or pulling when I stretch my neck and sometimes when I turn my head, but it's not every time and there is no pain at all where the…
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Papillary serous sarcoma patients
I am newly diagnosed with papillary serous carcinoma and needing some help preparing for the surgery and treatment to follow. Does anyone have some good articles or practical advice? My husband has multiple myeloma and there is a lot of useful info through MMRF and IMF. Is there anything for my type of cancer? Thank you!…
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Genetic tests reveals 2 therapies
Hi all, I'm wondering if we can continue the discussion about targeted therapies. Last night, at 10:30 pm no less, my saint of a doctor emailed me the results of the OmniSeq testing I had done on Aug 12th from her phone - she had just gotten it in her email. It revealed 2 therapies. The first, and the one she thinks is…
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Herbs and supplements during chemo
Can you please advise what herbs and supplements you took during chemo to help with recovery and reducing the side effects? Thank you..
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Daylady...Update....
So...good news (I think...). Met with my gyn-surgeon, who is incredible (amazing!) and has kept me in her practice so she is also now my ob-gyn as well as my surgeon. I completely LOVE this woman. She knew immediately I was shaken by the most recent CT/PET Scans, and told me that while I could go ahead and try Topotecan…
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So nervous!
Mum's chemo starts this friday. Onco has said very little chance of it working. Her breathing airways are quite a bit blocked with tumours. High dose of steroids and continous oxygen is just keeping her going. It has been a tough 18 month journey but we never lost sight of hope. But now i dont know where hope has gone…
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a camp for kids with parents who have cancer
Hey last night while searching the web for some support for my kids i found this website. I was so excited to find it. It looks like they have a free week long camp for kids who has a parent that has cancer, who is a survivor of cancer, or who has lost their battle with cancer. Its looks like this camp is in alot of areas…
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abnormal vaginal discharge
Hi, sorry for the odd posting - I am using an old mobile phone at times and it doesn't work well with the site. The discharge is sometimes black and also during times of postmenopausal bleeding. I am thinking it may be some very old blood maybe?
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update
I know i did the right thing to stay home and take care of myself so dont get me wrong on this post. Its been hard today. Im not used to having my kids gone. being home by myelf was hard real hard. I have said i changed chemo meds this last time and it was making me nausiated more than the other drug i was on. It was way…
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Rising levels
Hi Ladies, Have any of you had rising marker levels due to a hernia. I've had a rise every test since surgery in November, chemo finished in March, the CT was clear at that time. I have a hernia, which appeared in June which is when my levels started to rise to upper limit. Is there any common link? LA
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didnt make it through work
went to work today but told my boss i wasnt feeling well and left after a half an hour. I told her i would try tomarrow. Im feeling depressed and sad and sick. Im feeling angry that i have cancer and i have to do all this stuff. It wasnt my plan to get this. Sorry this is such a downer post. Any encouraging words would…
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Update on my sister
Hello ladies, I dont know if you remember me, but I used to come here and ask questions to you guys in regards to the treatement my sister was going thru. She was diagnosed in April 2015 with stage 1A uternine cancer. She had the surgery in May 2015. It was less than 30 percent thru wall when she had the surgery. Total…
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Results of 23andMe DNA test
Hi everyone, I received the results from my 23andMe DNA test and wanted to share some of them with you. The reports that come directly from 23andMe are rather unimpressive but the data behind those reports is compelling. To get to that data, I paid an additional $5 to a company called Promethease which then linked directly…
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Silly questions to make you laugh
At our recent visit to the oncologist my mum was asked what is her goal from the treatment? I was confused so asked for clarification. The oncologist said is your goal to live longer or quality of life? I was amazed at how stupid the question was. I said why dont you work on a long life with good quality? She didnt ask any…
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Daylady - starting all over
Hi Ladies. I am a bit discouraged. Got the results of a PET Scan back yesterday, that was done folowing a CT scan that showed a small nodule on my liver. We were hoping we could just surgically remove it. The PET scan came back showing lesions on the pelvic wall, down the left side of the mediastinum (thorasic cavity) and…
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Change in chemo meds. Its now toxotere
My oncoligist changed my chemo medicine. I was telling him about how my neropathy was now in the ball of my foot and that it didnt recover like the two times before. He changed the meds from toxal to toxotere ( i think thats how you spell it). I woke up this morning with diarea, which is day 2 of my 4th chemo. I havent…
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What doctor do I talk to?
I am 8 weeks done with chemotherapy. Since around 2 weeks ago, I have been breaking out in hives. They haven't been itchy, until recently, last week they started to itch like crazy. They are all over my body. I think they are related to the chemotherapy. Do I contact my regular doctor, or my oncologist?
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Natural treatments
Hi all, Last year when my mum was diagnosed with stage 4 cancer we were told its not curable. And she did not have long to live. Chemo would be too difficult for her to take and since the tumours were in lungs she could not get radiotherapy. So we were left with hormone therapy only which had very little effect. After 3…
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Need advice on starting chemo
Hi ladies, So many of you have braved chemo. I can only describe it as feeding on poision to stay alive... makes you all stronger than lionesses!! I need some advice. Hoping i can get some pointers. Mum is starting chemo next week. Carboplatin only as she is quite weak. What can she expect? Is first dose really hard? What…
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Carboplatin
Has anyone just used carboplatin for treatment without taxol etc? What were the side effects you felt? Also what sort response did you get? Appreciate any responses on this. Thanks.
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accual work tomarrow
I go to work tommarow. Im not feeling that great. My hysterectomy hasent healed completely and unfortunatly my neuropathy hasnt gotten better like it did the first two treatments. By day 17- 20 my neropathy was almost nothing. It didnt do that this time. In fact it is in my toes now. Even feels like its going into my feet…
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Second doctors appointment after chemo
Well I had my second doctors appointment after chemo. First appointment (doctor and CT scan) was 5-1/2 weeks after chemo (May 4th). That appointment went well with NED at that time. This appointment was just a doctors appointment and after checkup all is well NED again. Makes me very happy to be able to say this. Now next…
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ER doctor said "might be cancer"....
I'm 35, and over the course of several months I have been dealing with constipation, bad menstrual pain, and diarrhea. 6 months ago I got an ultrasound, and they said the ovarian cyst looked normal. Fast forward to the last month. I have bloating that won't go away. And it's not normal looking bloating....it looks like I'm…
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Change in tumour density
Does anyone know what it means if the tumour density has changed? On the CT scan report it says tumours grew significantly but the density is less suggestive of change in narcotic. Got the oncologist appointment in 2 days but keen to know what could this be. Thanks.
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Another post-cancer question...
I am experiencing two things that are concerning me, and I wonder if I should call the doctor regarding it, or just figure it is because my body went through hades: 1. I had a pleural effusion before my cancer diagnosis, and had the fluid removed. In the area where they put the needle I am feeling some pressure. I wouldn't…
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8 weeks post-chemo, first appt went badly
I am 8 weeks post-treatment for ovarian cancer. I feel great. A few little aches and pains, but other than that nothing. I got my ca-125 count and it's still above normal-- 91. the doctor moved up my pet scan. He sounds really confident, but I have cried the entire time since getting the phone call. Has anyone had an…