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CA 125 going up
Hi, My CA 125 numbers have been going up. 8.9.9.13.17.30. I am 18 months NED with MMMT uterine cancer. The Dr. said I have to wait a month to repeat the blood test and if it keeps going up another Cat scan to see if I might be having a recurrence. I feel great except for my RA. They said that because it almost doubled they…
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feeling depression
feeling a bit of depression this morning. i had something I needed to do today and it was just to much. I called my mom and told her she is going to help me do it today. Im glad for that. I had to go get a shot yesterday. Its something I have to do the day after each chemo appointment. Its to keep my blood levels up. The…
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Dancing
with ned, so happy I can't see through the tears.
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starting chemo tomarrow
Wish me luck! Im starting chemo tommarrow. Im hoping for the best.
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Great Free Guided Imagery Audios
Just wanted to share these. I've found them to be very helpful. http://www.mcancer.org/support/managing-emotions/complementary-therapies/guided-imagery/audio-library
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Appointment to Discuss Pathology Report & Questions I should ask.
Hi wonderful warrior ladies. I have my appointment with my oncologist this Thursday the 9th. Can you please provide me with questions I should ask. I had the radical robotic hysterectomy three weeks ago. I know he said that regardless if it spread or not, due to the type of cancer I have, chemo will be started four weeks…
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Checking in
Hi all...I haven't been on in awhile and thought I'd check in. Hard to believe it was last June this cancer journey started and almost 4 months since I finished treatment. I'm doing ok except I remain in pain with Neuropathy. I had several weeks of PT/massage therapy which seemed to help, but had to take a break as it was…
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Fissures
Hi all. I am a newbie. Stage 3b Uterine Clear Cell Metastatic Cancer. Currently experiencing back pain and fissures after chemo ended 3/1. Anyone have fissures and a secret to getting rid of them? Tried 2 rounds of suppositories already with little relief. Have call in to doctor about back pain. Also wondering when I will…
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Moilmoli updating
Hello to all you wonderful and compassionate people that the creator brought into my life,thanks for your soul boosting posts and private messages ,that's the pills I needed today, oh ,my surgery was massive and oh so painful ,I am constantly in discomfort ,didn't get bowel movement Until today, cannot sit up any longer…
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radiation pain
I have a question. Until now all is well. I have aches/pains but I am alive and everyone does. Anyway, Friday I finished by 18th external radiation. I have had some tenderness "down there" but this morning it is more than tender it hurts like the devil. I have some blisters. I have been taking cool sitz baths, leaving a…
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First scan after frontline shows NED!
The results for my first post-treatment scan are in and I am relieved to say that they showed NED! I was pretty confident that that would be the result since my treatments were very aggressive and it's only been two weeks since my last chemo but I never said it outloud because I didn't want to jinx it! So, now, I have…
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Hi some advice would be nice...should i go to the Er?
Hi guys, First of all I would like to say thank you all for your encouraging stories. I have not yet been diagnosed with cancer but I am VERY concerned. Here is what's been going on. For the last year to year and a half my periods have been very off. I have had everything from 40 days with no period to 3 months straight of…
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That time again!
Since I've been back, I have been missing some faces. Time for another "Roll Call"! This time for everyone on all the "Below the Belt Cancers" and anyone just trolling the posts. I am "here" and know of one "oldtimer " who is quite well...about 6 years now. I am 5 1/2 years out of chemo and still NED, thank God! If you…
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more support
This is all so crazy. Yesterday i went and saw my gynocoligist just for a follow up on my hysterectomy. while I was there I talked to her and told her i was starting chemo treatments. After I told her that she wanted to know why i needed chemo and she decided to call the doctor who decided this and the other doctor who was…
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Question about the progression of UPSC
My Mother was diagnosed with stage 4b on May 18th...she is now receiving hospice services at home....does anyone know the course of this disease? I am concerned about the amount of blood she is losing and the large clots she is passing...I spoke to the hospice nurse and she said it was typical...anyone going through this…
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Food and juice you enjoyed
Im going shopping tommarrow so I dont have to worry about going shopping after chemo treatment. I would like some recomendations of what to get and how much. For my surgery I bought a bunch of food to have right buy my bed. I would like to do that again. Hopefully Im not in bed alot but still want stuff by where I sit…
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Mammograms and Ports
Just wondering... So, I'm coming due for my mammogram in a couple of months and I'm wondering about how that all works with the port. I can't tell whether it is in the way or not. I have small breasts and it is not uncommon for my chest and ribs to get almost bruised when they smash everything down. Anybody got experience…
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chemo side efffects?
Startinting chemo not to long. Maybe sooner than I really want to. Wondering how the treatments have effected you guys. I will be taking taxol and carboplatin. Do you think I will be able to work?
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Chemo 6 complete!
i had my sixth and possibly final chemo at least for awhile. It went smoothly and as usual I had one or two friends to keep me company. It makes the time go so much quicker. On the down side I am having a Doppler on my legs today to insure that I am not having a blood clot. My left leg feels a little different and since I…
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another question
So my dad called the office of my Gynocological Oncologist today. The nurse called me back and I was able to find out why my gynocalogical oncolist had told me I didnt need to have chemotheropy. The nurse told me that my doctor said that the cancer is not a sarcoma. She said it was the more common kind of of uterine cancer…
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need support
Oh my, I just got a call from the nurse at the doctors office. Im glad she called cause i dont have to wait all day and worry but at the same time i dont like this because now nshe is calling the imaging center to scedule an appointment to get a port a cath put in. she told me she wanted to put the port in and do a chemo…
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I am 5 years Cancer Free! What a Tremendous and Wonderful Feat from UPSC - Stage 1!
Hi Everyone: I just wanted to let everyone know my Tremendous and Wonderful Feat that I am now 5 years cancer free! I was originally diagnosed in February of 2011 with Stage 1 of UPSC and I never had a reoccurrence. I am so thrilled and happy that I made it to my 5 year mark. I plan on going out to dinner in the next few…
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Hey!
I just heard from nempark! She has her hands full taking care of her husband. She is well ,as far as any of us know. Her husbands right arm has had blood clots so he is in P.T. and they are making the rounds with doctors, ect. We all know how that is! She said to tell everyone hello and that she loves us all! Best, Debra
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Got CT Scan Moved Up, Recurrence Scare & Refusal to ever see a Male GYN
Hi! I saw my GP today. I told her about the continued spotting & increased pain. She managed to get my pelvic CT scan moved up to next Friday (the 17th June). She is also referring me to a gynecologist to get checked out & get any blood work done (CA125 & HE4). She didn't have the time to check my old CA125, so I will find…
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chemo side efffects?
Startinting chemo not to long. Maybe sooner than I really want to. Wondering how the treatments have effected you guys. I will be taking taxol and carboplatin. Do you think I will be able to work?
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feeling so tired
I don't know what is normal. I had 2 surgerys brachytherapy and chemo thearpy in the last 3 years. I just can't get my strength back seems like I am always tired. Anyone else like this?
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Brachytherapy
Hi Ladies of the Sisterhood of Kicking Uterine Cancers Arse (LoS KUCA),, Dumb but looking for levity.. I must say I have really really benefited from all of you and your straight forward manner in dealing with the evil one, cancer, your answers based on first had experience and your continue "faith" in yourself and each…
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UPSC Treatment
While I have been reading posts for several weeks, this is my first time on the dicussion board- I have so many questions! I had Robotic Assisted Hysterectomy 4/15/2016 with complete staging revealing a diagnosis of 1a UPSC. I feel very fortunate to have been diagnosed at such an early stage and fully anticipated given…
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So sick and so scared
My names is Sherilyn and I am a 47 year old mother of two beautiful teenage girls. I do not smoke, I enjoy my couple of glasses of wine some evenings while winding down. I play squash regularly, I run on average of 20 km a week. I lift weights and keep my mind and body active. My journey has just started and I am so…
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Where to buy short term health insurance.
My husband's current job ended today, and he doesn't start his new job for 3 weeks. Any advice on where I can buy short term health insurance for just one month? The online sites I've looked at keep saying they are unable insure me (once I answer the question about ever having cancer, which I did last year). Any advice?