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No news = good news, right??? X-posted
I posted in Ovarian cancer, but there's not a lot of traffic... Long story short-- I had/have stage IV ovarian cancer. I finished front line in June. I had my first appointment post-cancer appointment in August (near the end of it). My doctor ordered a PET Scan. I finally got in on Friday (the machine was broke). The tech…
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Janae update
Just to give you a little update. Its day 8 of my 5th out of six chemo trearments. Emotionally I am doing alot better than i was the week before my fith chemo. That time was really hard. Its not perfect but a lot better. Im not sure about physically though. I hope i start feeling better as the days go by leading up to my…
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Just read this from Dana Farber
http://blog.dana-farber.org/insight/2016/08/what-is-the-latest-research-in-endometrial-cancer/ Love, Eldri
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Is not having a biopsy normal? Please help!
Hi all, I stumbled upon this forum when I started desperately researching about uterine cancer. My mother, age 65, was recently diagnosed with what could be this type of endometrial/uterine cancer. She recently did a Pap test along with a ultrasound in the pelvic and transvaginal area. Her Pap results came back abnormal…
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Has anyone had Eyes, Ears Brain or Dizziness problems after Da vinci surgery ?
Two of our sisters voiced concerns about eye problems. I am hoping to establish side effects,known and new ones. Moli-Any and all responses will be appreciated, Thanks.
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Afinitor
Afinitor (Everolimus) has anyone been on it? I was approved for it, but have not decided whether and or when I will start. I was also approved for Keytruda a couple of months ago, but chose to enjoy my summer after not responding to chemo and radiation except I responded very well to the side effects.
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Diarrhea. Some people think it's funny
With external radiation, what's the time frame with when diarrhea usually happens?
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DebraJo - We Miss You!
Hi All, Has anyone heard from DebraJo? She hasn't been on in quite a while. I sent her a message mid-August with no response. Getting worried about her! Also, she had posted her telephone number last year. I'm in the process of trying to find that post. So, if any of you happen to have it please PM me with it. Love and…
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Just checking in
i had treatment #30 something (I have lost count) today, third of the Keytruda immunotherapy. Still no side effects. I have a cough and some congestion, but my Onc is pretty sure it is allergies. Last time my CA 125 jumped from 156 to 865. This time it fell to 460. We are not paying much attention to it because the cancers…
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Qustions about internal radiation vs external radiation. please help
I mentioned this on my last thred and now have some questions about internal radiation. That was the plan for me when i first started this chemo stuff. Im preparing myself to talk to my radiation doctor, but thought i would ask you guess a few questions. Ive read that brachytherapy(intrtnal radition) targets a specific…
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MMMT Stage 3C1 - 5 Year Survivor today
As of today I am five years clean from Stage 3C1 MMMT (carcinoma sarcoma) Uterine Cancer. I was 55 when I was diagnosed. Tumor in Uterus was stage 1A but I had 2 microscopic cells in 1 lymph node so it was upgrade to stage 3C1. Very brief history, I was post-menopausal in 1992 at age 36. In 2004 started spotting again went…
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Test
Test
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Roll Call for External Radiation After Chemo
I'm back to really having to face the possibility of radiation after I have surgery to do a 2nd pelvic wash in a few weeks. I checked out the link to IMRT information No Time For Cancer posted in the CQ thread and was wondering if that was offered because you still had a solid tumor present that they could aim at? I was…
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September is gynecologic cancer awareness month!
Below the belt warriors wear your peach and teal colors for yourself, each other, and all the sisters we have lost. Being on this board long enough means I, like many of you, have seen a us lose a friend or two. Multiply that by the ladies we personally know and we are a nation. God bless the warriors. God bless the…
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feeling a little better about up comming chemo
After a pretty emotional day yesterday, i finally got up and got ready for my doctors appointment today. Unfortionatly he is out of the office today, so i am seeing his nurse practitioner. If it is the nurse i have talked to before, i havent had a lot of luck with her. But i guess i will do what needs to be done. I was…
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In the dark without a flashlight
Here I am, for the first time on a messsage board. Lately, my emotional state has taken a beating. It was suggested to me to try this site. Another first is me admitting I can't do this alone. Talking with friends and family is all well and good, but I want to talk to someone who has been there. This roller coaster ride…
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UPSC Fighters- My Mom's story of hope! NED after 4 years
Ladies - wanted to share a glimmer of hope. My Mom was diagnosed in 2011 with UPSC Grade 3A. Had radical hysterectomy followed by the standard taxol/carboplatin every 3 weeks. Had ascites and CA125 in 200's throughout 2014. In early 2015 she had a recurrence of 3 nodules in her pelvis and Dr. Chu of Fox Chase Cancer Center…
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Life after total Hysterectomy - no hormones!?!
Life after total Hysterectomy - no hormones!?! Hello; I am 48 years of age and diagnosed only a week ago. I have surgery scheduled 2/19 for a total Hyst. I just learned that because of the nature of uterine cancer and the way it thrives on estrogen I will not be able to take or use hormones after. I have no idea yet what…
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Happy Labor Day
Happy Labor Day Everyone! Lets make it a cancer free no worry day with our families, friends, and loved ones. Red
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getting closer but still need support
I am so axious and some times just darn ready to have these chemo treatments done. I do chemo treatment 5 in one week. My days have been up and down lately. yesterday i was on the computer most of the day just feeling like i am not worth doing any thing. last night i dicided i didnt want to do that so today i have been a…
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Specialists in Uterine MMMT/carcinosarcoma
Hello all-I am on the hunt for recommendations! We are looking for second opinions, and would like to talk to a gynocological oncologist and surgeon that specializes in Uterine MMMT/carcinosarcoma. We are located in Asheville, NC, but if the Drs are wonderful-positive and committed, we are willing to go just about…
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Advice
Hello. I have never done this so I hope I don't mess it up. I have grade 3 adenocarcinoma 80 0/0, serious carcinoma 10 0/0, undifferentiated carcinoma 10 0/0 Had a robotic hysterectomy took uterus, ovaries, Fallopian tubes, cervix and sentinel lobes. Post surgical appointment for staging and treatment is this Friday. Have…
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Any Military Spouses (current or former) or Anyone In these Communities?
My husband is up for orders this summer. I am in "EFMP", and was wondering if the following communities (the doc can be 60 minutes away) had gyn oncologists that take Tricare Standard: - Omaha, NE - Colorado Springs, CO - San Antonio, TX - Washington D.C.
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Chemo question
Just wondering if anyone knows how long after a chemo infusion is given cancer cells start to die? Is it during the first week when the medicine is in your body or is it the second week when the white cells also go low? Can you feel the change from first cycle or is it only after a few cycles that cancer recedes?
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Website that helps to choose best suited clinical trials for you
I just read a post on the Inspire support group about a wonderful site that helps people with selecting the best clinical trial for their cancer. https://www.cancercommons.org/home. Cancer Commons is a non-profit network of patients, physicians, and scientists from many disciplines. They identify the knowledge needed to…
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Nose Sores
Now I have learned I never do anything normal. I now have one killer sore in my nose. I wasn't paying any attention just thought since the hair was gone it was sensitive. Well now it is a true ooowie, swollen and painful. I tried Vicks and it soothed for a while I just put heating cloth on my nose and put some neosoprin in…
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Update regarding postmenopausal bleeding + increased pain
Hello, just wanted to update that a surgery date has been set for next week on the 8th of September. I don't have access to speak with the surgeon until either the pre-anesthetic consult on Monday the 5th so will see what she says about the morcellator. I left a message with her nurse saying I just wanted to have the…
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Hair and a few thoughts
Once again, I have hair and enough of it that I am going without a hat. It kind of wants to stand in a mohawk. I am also getting hair "everywhere " else. I am going to have to get used to buying shampoo again.. Today I had an check up with my Gyno-Onc/ surgeon, a doctor that I have had since the beginning of this journey.…
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Port Pain...
I just had a Powerport put in last Tuesday, followed by three rounds of chemo and it worked fabulous, however, I continue to have pain where the cathedar was inserted. It feels like a burn or pulling when I stretch my neck and sometimes when I turn my head, but it's not every time and there is no pain at all where the…
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Papillary serous sarcoma patients
I am newly diagnosed with papillary serous carcinoma and needing some help preparing for the surgery and treatment to follow. Does anyone have some good articles or practical advice? My husband has multiple myeloma and there is a lot of useful info through MMRF and IMF. Is there anything for my type of cancer? Thank you!…