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update on my update
Hi All... when I posted last week, I had a ear/sinus infection and a week long fever. I was due for chemo tomorrow, but it was postponed till next week. Can't even pretend to be sorry about that... :) . I went to my Super Bowl party last night and had a ball. As always, thanks for all the love and support........…
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Even when it isn't OVCA it still hurts when a friend is dying from cancer.
Hi Ladies. I have a friend who the end of January 2011 was believed to have ovarian cancer. Once they began her surgery last January, they realized they were not dealing with ovarian cancer, but rather a very rare type of I believe stomach cancer. It's extremely rare in the U.S., yet one of the top cancers seen in Japan.…
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Bad day
I am sorry sisters but I did not have a good day today. It has nothing to do with me. A friend of my son's died today. He had Ewing's cancer. This young man was only 20 years old. He was diagnosed in November of 2007. When I got the news, I couldn't stop crying. He had his whole life ahead of him. He was such a strong…
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CA-125 still on the rise
After asking several times I finally got the results of my last CA-125 and it is still on the rise. For those who don't know what the CA-125 is that the tumor markers that tell you if you have cancer. Mine started off before surgery or treatment at 2000 but after surgery and chemo it dropped to 6. It has remained at 6 for…
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Can CT meds increase CA 125?
Has anyone experienced CA 125 number increase after berium (sp) and iodine contrast used in CTs? This was the first time I had CA125 immediately following having a CT. My numbers more than doubled. The CT came back clear. I experienced tremendous bowel problems after drinking the "goop". It was as if I drank "go-litely"…
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Experience with carbo/gemzar?
Yesterday, my oncologist explained the results of my PET/CT scan. There are several (6 in all) nodes in my pelvic region and abdomen that are just beginning to glow. I was so thankful that there was no huge tumor necessitating more surgery - you know what the mind can do when you have six days before your appointment to…
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Hepatic steatosis?
Hello my dear teal sisters! Final result of my CT scan from February,3 have this - "Hepatic steatosis". I did read on line about it and it is not so good news, another "silent killer". Any info about this deasis? Thanks, Zina.
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Ovarian Cancer that has spread to lung??
My mom (53yrs) was recently diagnosed with Stage IV Adenocarcinoma Lung Cancer last week. She has cancer cells in the fluid around her lung, lymph nodes around lung and up around collar bone. Her brain MRI and bone scan came back clear however, the CT scan of her lower abdomen came back with a mass on her right ovary (same…
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Difficult times...need your support
Well my sisters I didn't get a good report on my last visit. Not only has my cancer reappeared, I learned that I have developed 3 significant brain tumors. Please forgive my typos etc, I am having trouble seeing and typing. I will have radiation on two of the tumors on 2/9. One is in an unoperable location and the other is…
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Result of PET/CT scan
I had another scan because my CA-125 went from 14 to 85 in two months. The NP called yesterday with the news that yes, my cancer has recurred, but I have to wait till Wednesday to see the doctor and go over the results. I was glad to hear something, rather than waiting the whole weekend, even if the news is not so great. I…
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so hard to complain
It is so hard to complain after reading Shirely's post and yet I do lol. I some times wonder how much a soul can take. She already is fighting Ovarian cancer and now it is in her brain. Last April I had to put my dog down (not the one in the picture) due to him having bone cancer, June I found out that I had ovarian…
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In a funk about CA-125
This is my first actual post, even though I log on here often. I am familiar with many of your stories. Here's mine in a nutshell: I was diagnosed with lllC after a hysterectomy and debulking surgery on Feb. 1, 2011. I had 6 treatments of carbo/taxol 3 weeks apart. I tolerated the chemo fairly well, with the usual…
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PLEASE BE PROACTIVE
Ladies, as you can see from my prior post I'm not in a good condition now...but I have soomething I feel is important and maybe applies to you. I was dx, operated, etc. in 2009. Stayed NED 13 months, had a reoccurrence, another course of carbo/tax back into remission until Dec/Jan. It's back. But then my onc has never…
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happy dance good catscan
this is a update to another post about my ca125 going from 6-52 in just six weeks. so got the results of the catscan came back showing no cancer I am still in remission. My ONC/GYN did tell me that he finish a paper that is about to come out that show a study he did. The study showed that there is a 10-20 percent of women…
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This is so hard to ask
Only because this is something I would ask my mom but she has never had cancer let alone ovarian. Ok here it goes last night I was rubbing my stomach and my mom asked "are you in pain?" I told her yes not to bad but I am in pain. My Surgery was back in June last year so it's not from that, she asked "what kind of pain is…
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BRCA1, Grapefruit, and Strontium
As always, I gained a couple of new tidbits of information from my naturopath at my appointment today. Sorry, I cannot quote the sources, as she said these were just small mentions in larger, unrelated papers. BRCA1 positive wormen should NEVER eat grapefruit as it interferes wtih the p450 pathway. And BRCA1 women should…
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People say the damnest things
Well how my day went I got up for my appointment to have the blood drawn to see if the cancer is back. Ok right off the bat I am not in a good mood. I notice that Today I was moving better than I have in the past few weeks. Mom then stated ya because you are getting close to your next treatment, crap she's right I start to…
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I'm lost
So Johns Hopkens medical onc has nothing for my wife either. Talked to our onc here and he see's nothing out there that would be a fit for her right now. It's an udder felling of despair at this point. I'm not showing this to my wife but every door that closes scares the crap out of me. She seems fine but slowly she is…
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playing catch-up ... again
Hi All... I feel so out of touch and I'm trying to catch up with all the posts that I have missed. Last week was supposed to be my "good week" after my January chemo rounds, but I developed a high fever and have been sick all week. I'm on an antibiotic for they think is an ear/sinus infection and have had three blood draws…
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The cost of silence...a short rant
I was watching a show on TV, where a sick person was featured. They spent a good portion of the feature praising how well she dealt with her multiple illness' and "never once complained about her pain." Why do we prize suffering in silence so much? Yes we can deal with pain gracefully but do we have to do it in silence? I…
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need a little encouragement
i had my petscan last friday and they made me stay afterwards and get over a litre of fluid drained from my lung.....fourth time in the last 12 months. saw the oncologist this morning and was told that the topotecan isn't working and that the cancer is spreading...started gemzar today...ca125 is 1300 .... has gemzar worked…
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Marsha update
I saw a GYn surgeon yesterday. He is referring me to an oncology gyn surgeon. I go Monday. I have an ultrasound today. My mind is everywhere and I try not to worry but it is hard to think of anything else.
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CT completed today
I had my CT done today so I will know on Monday if the cancer is back. I have been so jumpy today I almost did not make it through the CT. MY nerves in my arm, chest, and face have been jumping around a lot today when I spoke with my NP she said it was because we uped the does and I am having a reaction to the morphine so…
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Second round of Carbo/Gemzar/avastin
I had myself prepared to have my ca125 number go up or stay the same from researching this drug combo. I had read a lot of posts where it took two or more treatments before the number would start to drop. So it was a pleasant surprise to find out my number dropped to 7, it was only 34 but I am very excited to get such a…
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Chest and shoulder soreness 4 months after radiation
I had radiation to my clavicle and chest area in September for ovarian cancer spread to lymph nodes in that area. I now have pretty consistant soreness to the chest, shoulder and axilla on the radiated side. This all started about a week ago. Just wondered if anyone else has experienced this after radiation.
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Digestive problems and acid reflux after chemo
anyone else have trouble with digestion and acid reflux. I was good for a bout a year and a half, now i seem to get acid reflux and indigestion alot. at first I thought it had come back but it hasn't, anyone else having these issues? Hugs Lynda
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scan results
scan came back suspicious cystic mass. I see the surgeon tomorrow for a consult
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Met with my gyn/onc last nite
Saw my gyn/onc last nite to review surgery & latest CT scan. He was completely saddened by my continued growth with OC. We discussed surgery, and he did tell me he would be willing to do it if I want it, but recommended against it. He said there are numerous tumors (small) on the bowel) and didn't want to risk surgery,…
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UK trial Paclitaxcl and Cisplatin info needed please
My lovely mum Patricia is 56yrs young and was diagnosed with primary peritoneal carcinoma at the end of Oct 2011. She's having 4th chemo (paclitaxcl + carboplatin) on 25th Jan then surgery (debulking I think they call it) on 16th Feb. She's been asked if she'd like to take part in a trial involving IV and IP infusion of…
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carolenk-ca125 &fistula
Carolenk I've heard a number of things can affect your ca125 numbers. Do you think this fistula could affect mine. Dr told me ( surgeon) that this was coming on for a long time.will be talking with my onocologist tomorrow' just wanted to know your thoughts. thanks Kathy