Officially Two Years NED...

Hissy_Fitz
Hissy_Fitz Member Posts: 1,834
in Ovarian Cancer #1
This month is my two year remission anniversary. (Diagnosed Sept, 2009) I saw my doctor yesterday and he has promoted me to checkups every six months. I still have to have my labs run monthly, for the clinical vaccine trial in NYC, and they do a CT scan every 3 months, as well. My CA125 is 16 and my pelvic exam was normal, as was my CT scan last month.

Like Leesa, I am saddened to see that we have so many new members in our very unpopular little club. You will all soon discover that these women are your best friends - your shoulder to cry on and strong arms to lean on when you need strength and support. No one understands us the way we understand each other.

It has been my privilege to meet three of you in person, and to hear the voices of a dozen more. I cannot tell you how much all of you have meant to me, these last 29 months.

I feel fortunate to have had two years of good health, post-chemo, and I have to say, the members of this board have been the best part of those years. I can still remember that night in September, 2009, when I first Googled "ovarian cancer discussion boards." I don't think I have ever felt more afraid, or more alone. Sadly, some of the women who gave me the greatest sense of purpose and camaraderie are no longer with us. If I ever write a book about cancer, I am going to dedicate it to Saundra, Bonnie, Linda Dorion, Nancy Kavleski, Susan Neighbors, and the others. And to Lisa J....the world's most devoted daughter, who shared that awful journey with her mom, Joan.

Here's to you, ladies. You are all brave and might warriors.

Carlene
«1

Comments

  • Sara2011
    Sara2011 Member Posts: 78 Member
    #2
    Congratulations!
    What a blessing to be in remission and to be doing so well. I am in awe of the many women on this site like you that have battled this disease for several years and have such strength to keep going. I appreciate the input you post, it's an encouragement.
  • carolenk
    carolenk Member Posts: 907 Member
    #3
    Sara2011 said:

    Congratulations!
    What a blessing to be in remission and to be doing so well. I am in awe of the many women on this site like you that have battled this disease for several years and have such strength to keep going. I appreciate the input you post, it's an encouragement.

    Congratulations!
    I hope to be around to read many more "still NED" updates. The good thing about being in the vaccine trial is the peace of mind you get from being monitored closely. Do you have any idea of how the other women in the trial are doing?
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #4
    carolenk said:

    Congratulations!
    I hope to be around to read many more "still NED" updates. The good thing about being in the vaccine trial is the peace of mind you get from being monitored closely. Do you have any idea of how the other women in the trial are doing?

    I forgot to ask when I was
    I forgot to ask when I was there in January, but as of last Oct they had lost 6 due to recurrences. One of those was Annie Cris. Has she posted recently? I know she was having surgery to remove the new growth. I think that was around Sept or Oct.

    Annie and I had very similar timelines, and hers came back after an initial remission of just over two years, I believe. You never achieve real peace of mind with this disease. That's the worst part of it.

    Carlene
  • lulu1010
    lulu1010 Member Posts: 367
    #5
    Hissy_Fitz said:

    I forgot to ask when I was
    I forgot to ask when I was there in January, but as of last Oct they had lost 6 due to recurrences. One of those was Annie Cris. Has she posted recently? I know she was having surgery to remove the new growth. I think that was around Sept or Oct.

    Annie and I had very similar timelines, and hers came back after an initial remission of just over two years, I believe. You never achieve real peace of mind with this disease. That's the worst part of it.

    Carlene

    Congratulations!
    You are so inspiring! We hope you dance the happy dance on and on and on!
  • JoWin615
    JoWin615 Member Posts: 150 Member
    #6
    Congrats!
    What a fabulous milestone! Your expertise and advice are a huge help to many of us. The new members of yesterday become the teachers of today. Your comment about never having true peace of mind with this disease is brilliant. Stick with us!

    Cheers, Jo
  • anicca
    anicca Member Posts: 334 Member
    #7
    Congratulations!
    Wishing you many more NED milestones!
  • pattysoo
    pattysoo Member Posts: 170
    #8
    An encouraging post. Thanks. I hope to get there (2 years, that is) too.
  • karen1951
    karen1951 Member Posts: 103
    #9
    hi carlene....i just wanted
    hi carlene....i just wanted to congratulate you on your great news....i always look for your posts...they are always inspiring.....my best thoughts and prayers go with you and all the other girls on this board....karen
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #10
    karen1951 said:

    hi carlene....i just wanted
    hi carlene....i just wanted to congratulate you on your great news....i always look for your posts...they are always inspiring.....my best thoughts and prayers go with you and all the other girls on this board....karen

    Congratulations, Carlene
    And thank you for your warm support and caring advice to the women on this board. I wish you many, many more years of NED!

    Kelly
  • leesag
    leesag Member Posts: 621 Member
    #11
    Congratulations Carlene!
    Two years without a recurrence gives us all hope!
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #12
    :)
    I am so happy to hear your good news I also did a serch in mid June of last year and found this site. You have been such a blessing to me and I know many more here on this board, I always am drawn to your post when I am down because I know you will lift my spirit.


    Hugs, Love, and Prayers
    Anne
  • Mwee
    Mwee Member Posts: 1,338
    #13
    Dear Carlene
    YEAH!! Two years and counting... here's to dancing forever. I, also had the great priviledge to know the mighty, brave and generous warriors that were here for me when I was terrified and alone. They will forever be in my heart.

    Here's to milestones....................... (((HUGS))) Maria
  • 7 angels
    7 angels Member Posts: 20
    #14
    Dancing
    I hope that you continue to repy on here, Its fanastic that you are dancing with Ned I hope you continue to. Im been reading repys for the past year and half just reading and trying to take all in while fighting this beast. Please post on you give me the hope that we can do this .
  • Cindy54
    Cindy54 Member Posts: 452
    #15
    7 angels said:

    Dancing
    I hope that you continue to repy on here, Its fanastic that you are dancing with Ned I hope you continue to. Im been reading repys for the past year and half just reading and trying to take all in while fighting this beast. Please post on you give me the hope that we can do this .

    Good News....
    Just wonderful to hear this,,,hugs to you, Cindy
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #16
    Congratulations
    You are an inspiration to all of us, you are paving the way for many more women to be ned two years post diagnosis and beyond ! I miss reading your daily posts but love that you are busy with life. You Rock !
    Colleen
  • Robkel7
    Robkel7 Member Posts: 68
    #17
    Keep Kickin Butt!
    This made my day, Carlene. So very happy for you. NED forever. <3
  • clamryn
    clamryn Member Posts: 508
    #18
    Congrats
    That is so awesome. I too have seen so many new ones on board and it makes me so sad. Carlene I congratulate you on pursuing the trial. You never give up and that is what I admire about you. This helps all of us.

    Many hugs to you
    Linda
  • azgrandma
    azgrandma Member Posts: 609 Member
    #19
    clamryn said:

    Congrats
    That is so awesome. I too have seen so many new ones on board and it makes me so sad. Carlene I congratulate you on pursuing the trial. You never give up and that is what I admire about you. This helps all of us.

    Many hugs to you
    Linda

    I am so happy for you
    so happy for you Carlene
  • srwruns
    srwruns Member Posts: 343
    #20
    Yeah!

    Yeah!
  • srwruns
    srwruns Member Posts: 343
    #21
    Yeah!

    Yeah!

Discussion Boards