Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Advice
As some of you may remember my mom passed away in August after fighting ovca stage 3c for 14 months. Mom's cancer was not genetic. I am looking at having a hysterectomy for adenmyosis due to the pain it is causing. This is my question to you: Should i insist on a full hysterectomy (I am 44) or just have a partial? WWYD? i…
Osteoporosis after chemo
has anyone else developed osteoporosis after receiving chemo
Caner is back
Had my CT yesterday which showed 2-3 small nodules. Three months ago my CT was clear and my ca125 was in the teens. The ca125 is now 109. Will start Doxil on Tuesday. This brings to an end my vaccine trial that I was so hopeful would be a success. I am also planning to end my nursing career. I think it is time to retire.…
port infection
Has anyone had a port infection? My mom has a tiny fluid filled blister near her port and I am concerned this might be a port infection.
Stii NED, still in the trial
I am in bloody COLD NYC this week, getting my CT scan and blood work. Scan is "perfect" per Dr S and CA 125 is 13 (down 3 pts). Coming back in April and boy, do I hope it's warmer in the Spring. Carlene
Hot flash remedies?
Hello to everyone. I have a question. Night sweats interrupt my sleep many times per night. Does anyone have ideas? Thanks
Two Years NED
It has been two years since I completed chemo and my test results indicated I was NED. My original CA-125 at diagnosis was 4,600, now it is 2. My diagnosis was stage IIIc papillary serous adenocarcinoma. My surgery results were suboptimal. I had a total of 80 liters of ascites drained during the two months following…
Getting old very fast
This is getting very old very fast my numbers are still on a rise (went from 6 to 82)for the past two months. My doctor did a catscan of my chest and stomach and found nothing he said if the number continues to rise he then will have to go looking because the cancer is back in one form or another. My question is what is…
Now what???
Hello, I was diagnosed with appendix cancer in June 2011. Surgery took out appendix, some lymph nodes and cecum (nodes and cecum negative for cancer). Haven't had a period since before the surgery (9 months). I was 51 at that time so assumed it put me into menopause and then period started this past Sunday... called gyn…
I feel very guilty about complaining when I read some of the other posts, but..
I guess I'm gonna complain anyway. When does the achiness go away? I don't really have pain, just achy hands, legs, feet at times. Sometimes it almost feels like the flu. I completed six rounds of carbo/taxol/ and Avaistan in late October ('11). I am currently on Avaistan alone for maintenance. Every 3 weeks for a year.…
Chemo is going well my CA-125 has dropped and questions please help ?
2 down and 4 to go Chemo went well great it was long but am home and feel pretty good the steroids help , I will be washing the windows at midnight am so hyper , am a little achy for me it does not kick in till about Saturday then I feel wasted . Had to wait 2 hours as my chemo was not ready which made us late . Next time…
Etoposide with Cisplatin and Avastin?
Hi there, My mother is about to start etoposide with cisplatin and avastin- wanted to see if anyone has had experience with this combination. This will be her 7th type of treatment in 2 years for uterine serious carcinoma (treated like ovarian). We are devistated that nothing has really worked to put her into long term…
CA125 Number
My mom's CA125 today, first reading, was 630.8. From all research and reading I am doing, this is an extremely high number. She's had one chemo treatment so far. They are having to do very aggressive treatment b/c my mom is a stage IV and has 2 aortic anurisms discovered at the same time as this dreadful disease:o( Because…
Ovarian Cancer returns after 14 years
Hello, I am 65 years old and my ovarian cancer has come back after 14 years! I had no idea it would come back after being gone so long. My family and I are in shock. I start treatments next week,Carboplatin and Taxol will be the drugs. The doctor said surgery was not necessary, which I am grateful for, but it is still hard…
Newly diagnosed
Dear friends, my mom went for a cat scan on January 31st after severe bloating. Cat scan revealed mass and two anortic anurisms. Biopsy revealed stage iv OC. Less than one week from learning all of this, my mom started strong chemo. She is unable to undergo surgery to relieve the pain because of the anurisms so we are…
A little confused, please shed some light
I'm not sure I'm posting this in the right place. My story started in Sept. 2010 with a trip to the ER w/ burning pain in right groin area. My blood and urine were okay. They diagnosed as urinary track infection. My tummy was a little bit bloated and hard though and the ER doc asked why it was hard. I told him the only…
update from lulu1010
Thought I would check in with what has been going on. I have been off chemo since May and getting a trial vaccine. Six weeks after my last CT scan that was negative I started to have abdominal pain and constipation. Abdominal series at that time was negative. The doctor felt it was a GI issue since the CT scan was negative…
Borderline Ovarian Cancer. Age 20.
I was recently diagnosed with borderline (low malignancy) ovarian cancer that was categorized a stage 2. I underwent a laporatomy about a month ago. I just recently turned 20. I simply want to contact other women around my age who have this condition to compare experiences. I was told that my condition is incredibly rare…
Health care and prayers
Just wanted to share my joyful news.I get to keep my car, I get to keep my car :) . I did get AHCCCS and my doctor co-pays are going to go from 50.00 to 5.00, my medication co-pays are going from 20.00-70.00 to 2.30 per script. I also do not have to pay a premiume not sure I spelled that right lol. So instead of paying…
stage 3 ovarian reoccurance doctor said pain was cancer
My mother in law is fighting stage 3(I do not have the letter) ovarian cancer for the second time in 8 months. She was having a lot of pain, and doctor said it was cancer and that will happen(she had only had one chemo treatment thus far)brother-in-law pushed for help they ended up draining the max amount of fluids from…
pleural effusion question
i've had to have both of my lungs drained several times. i had a semi permanent tube placed in my right lung with a tube hanging out my side (for 2 months) so my husband could "drain me" as needed. that was NASTY. my left lung keeps filling up and now i either have to have the semi permanent tube placed again or they do a…
Almost 4 years and its back - Is chemo worst the second time around
I made it almost four years to the day...went for my check up CA125 - 64 always had been 8. Sent for Cat Scan - spot on liver. Next week going in for surgery to remove the lower part of my liver then chemo again. My question is, I heard that chemo the second time around is worst then the first time. I had such bone pain in…
It has been a while!!
Wow... It has been a while since last time I wrote something!!! Last time I was asking for help for my adhesions problem...today, after 2 1/2 years after my cancer surgery, I am still here, my alternative cancer treatment is working so far, i had to go out of the county to take care of my adhesions, and thank God, I found…
CA 125 up after surgeries
I had two surgeries in three weeks time. First they removed the ovaries and tumor...thought it was benign....long story short..it ended up crossing the line from borderline to malignant. Needed to get full hysterectomy, took omentum, tested lymph nodes, fluid, etc. All came back negative. Doc said no Chemo needed. Had a…
Iscador
If you don't know what Iscador is, it is made of mistletoe extract. It is used to stimulate the immune system to help it recognize and fight cancer. It is standard of care for cancer patients in many European countries. There are five different types of Iscador, each specific to about half a dozen types of cancer. When you…
Estrogen Inhibitors
I just completed my 8th and hopefully final round of chemo today. So I have a pleasant week to look forward to....(cough, cough, chuckle)! My oncologist is going to be putting me on Aromasin and Megace (estrogen inhibitors) and I would like to know if anyone else has taken this combination and how were the side effects. Is…
New to board - 25 year cancer survivor and disn't know I had cancer at time of hystorectomy! Now it'
Had hystorectomy when I was 24 due to endometreosis. Was told I had Pre cancerous cell growth. I was "cured" after hysterectomy. Now, 25 years later, I have ovarian cancer again, only now it is in my lymph nodes! Cancer showed itself in a lump near my collarbone. After a CT scan, Sonogram of arm (to rule out blood clot),…
Ponderings
Back story...at the time of my surgery, I did not have nodes taken. They sent the suspicious ovary to pathology while I was in surgery and the initial diagnosis was benign. Three days later the final pathology report revealed cancer. My CA 125 3 weeks before surgery was 210. I get a Ca 125 every 3 weeks with my chemo. It…
medicare and me, oh my!
I recieved my invitation to Medicare in the mail. I'm told that I'm eligible because I've recieved SSDI for two years. I want to make the right choices for supplemental and drug plans and I have about two months to decide. I've spoken to my ONC's business office, the hospital business office and was told to speak to my…
Results of Pet/scan----not good
Well my CA125, which showed a 2, must have been a fluke. My pet/scan shows progression. I am pretty much devastated. They are switching me now to topecan (sp?). I will have to do it every week. I just don't know what to think anymore. I wished that I knew what to do. Most of the time I am pretty positive but this kind of…

Ovarian Cancer

Discussion List

Discussion Boards