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The cost of silence...a short rant
I was watching a show on TV, where a sick person was featured. They spent a good portion of the feature praising how well she dealt with her multiple illness' and "never once complained about her pain." Why do we prize suffering in silence so much? Yes we can deal with pain gracefully but do we have to do it in silence? I…
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need a little encouragement
i had my petscan last friday and they made me stay afterwards and get over a litre of fluid drained from my lung.....fourth time in the last 12 months. saw the oncologist this morning and was told that the topotecan isn't working and that the cancer is spreading...started gemzar today...ca125 is 1300 .... has gemzar worked…
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Marsha update
I saw a GYn surgeon yesterday. He is referring me to an oncology gyn surgeon. I go Monday. I have an ultrasound today. My mind is everywhere and I try not to worry but it is hard to think of anything else.
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CT completed today
I had my CT done today so I will know on Monday if the cancer is back. I have been so jumpy today I almost did not make it through the CT. MY nerves in my arm, chest, and face have been jumping around a lot today when I spoke with my NP she said it was because we uped the does and I am having a reaction to the morphine so…
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Second round of Carbo/Gemzar/avastin
I had myself prepared to have my ca125 number go up or stay the same from researching this drug combo. I had read a lot of posts where it took two or more treatments before the number would start to drop. So it was a pleasant surprise to find out my number dropped to 7, it was only 34 but I am very excited to get such a…
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Chest and shoulder soreness 4 months after radiation
I had radiation to my clavicle and chest area in September for ovarian cancer spread to lymph nodes in that area. I now have pretty consistant soreness to the chest, shoulder and axilla on the radiated side. This all started about a week ago. Just wondered if anyone else has experienced this after radiation.
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Digestive problems and acid reflux after chemo
anyone else have trouble with digestion and acid reflux. I was good for a bout a year and a half, now i seem to get acid reflux and indigestion alot. at first I thought it had come back but it hasn't, anyone else having these issues? Hugs Lynda
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scan results
scan came back suspicious cystic mass. I see the surgeon tomorrow for a consult
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Met with my gyn/onc last nite
Saw my gyn/onc last nite to review surgery & latest CT scan. He was completely saddened by my continued growth with OC. We discussed surgery, and he did tell me he would be willing to do it if I want it, but recommended against it. He said there are numerous tumors (small) on the bowel) and didn't want to risk surgery,…
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UK trial Paclitaxcl and Cisplatin info needed please
My lovely mum Patricia is 56yrs young and was diagnosed with primary peritoneal carcinoma at the end of Oct 2011. She's having 4th chemo (paclitaxcl + carboplatin) on 25th Jan then surgery (debulking I think they call it) on 16th Feb. She's been asked if she'd like to take part in a trial involving IV and IP infusion of…
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carolenk-ca125 &fistula
Carolenk I've heard a number of things can affect your ca125 numbers. Do you think this fistula could affect mine. Dr told me ( surgeon) that this was coming on for a long time.will be talking with my onocologist tomorrow' just wanted to know your thoughts. thanks Kathy
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New - Starting First Round of Chemo on Thursday
Hi all. Been lurking for a week or two, time to share my story as I'm starting chemo on Thursday. First inkling of problem was visit to ER on 12/18 - thought I had a gall bladder problem. By the time I left the ER I knew I had lesions, and possibly tumors, on both ovaries. I heard the word cancer for the first time that…
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Am I a wimp?
Chemo is kicking my butt. I don't know how you all do it, who have had multiple rounds and cocktails. I starting on dense dose taxol/carbo. We had to give up on taxol after two rounds because of severe neuropathy. What I call the fiery knives. It was horrible. I'm on neurontin which has helped but it's not gone. Switched…
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I found this quote that I believe was written for us
"When the Japanese mend broken objects, they aggrandize the damage by filling the cracks with gold. They believe that when something's suffered damage and has a history it becomes more beautiful." I love this quote; it makes me feel like a valuable Ming vase. Karen
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Ovarian and Cervical Cancer seems I got both !!
Hi my name is Donna and seems that what was thought to be a lump on my ovaries is cancer . I was diagnosed with papillary serious carsonoma on April 1st last year. It had spread and I was given chemo and radiation pretty intense for 5 weeks then I had brachy therapy my last PET scan showed a lump on my ovaries that was…
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How long does it take for hair to grow back?
My last treatment is March 21. I'm hoping I will have enough to do a cute pixie haircut by August when we go on our cruise.
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Progression during platinum treatment- 2nd recurrence-Now what?
Hello Ladies, I am being treated for a 2nd recurrence after being in remission and platinum free for 5 years. I had my 6th treatment of Taxotere/Carbo yesterday and my CA-125 has gradually trended upward. 14, 8, 13, 14, 22 and it is now 35 (normal under 21 test). I have disease in the lymph nodes and that is why the CA-125…
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New doctor and not happy with my care so far
I have recently recurred and midway through treatment my oncologist retired. I am not very happy with his replacement. I want to switch to a new cancer center/medical center, but have very limited options in my area. I don't feel very cared for currently. I have had to correct too many mistakes with the pre-meds I receive…
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The Chris Bledy Book
She wrote the book "Beating Ovarian Cancer" a few years ago, apparently she's been in remission for 8-10 years after one recurrence. (She said 8 years at the time the book was written, a few years ago.) Anyway, she follows some really unorthodox methods, I like to hear of naturopathic methods, but some of these were, well,…
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Great new today.
I got wonderful news today from my doctors office. They called and said my Pet Scan showed no metastic cancer and the spot on my spleen appears to be a cyst and it will be watched. Praise the Lord and everyone that prayed for me. Thanks Sharon
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Metastatic Adeno Carcinoma - Please Help
My mum had a hysterectomy in 2008.She had complained about heavy bleeding during her periods. On diagnosis we found there was a fibroid growth in the uterus. The gynecologist suggested to remove the uterus and the ovaries. After the hysterectomy,the fibroid was given for biopsy which resulted to be negative for malignancy…
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Whine time!
Hi Ladies, When I read what some of you have and are continuing to endure, I feel ashamed of myself for ever complaining. I am now on Avaistan alone for maintenance. I took a round of it last Tuesday. This morning when I woke up I ached like I had the flu. What do any of you take OTC for body aches and pains? Mine is mild…
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checking in
Hi ladies, just a quick update. I have been wating for AWESOME news from my doctor before checking in, but since that does't seem to be coming my way, I will check in with JUST OK news. I had my 3rd debulk surgery in August and have been on carbo/gem since then. CA125 is high (averaging at 400) for a few months, but seems…
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For some of you who think there is no hope in sight, there is hope
I was diagnosed 2 years ago november. my primary doctor told me to sign up for hospice, he called my husband aside and told him to get my things in order that there was not much hope for me. I was sent to a wonderful onocologist and when he opened me up all my organs were stuck together, he was unable to take my uterus or…
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;( crappy day...
Sigh, I have tried to submit this post 3 times but no luck. Suffice to say if you see 2 or 3 different topics of this nature, I apologize...each time I try to submit it gets eaten...just disapears or I get moved to a different cancer board...I just give up on it
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Dysgerminoma
I am hoping to get in contact with other people who have done the BEP treatment. I finished in June and am looking for support.
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One more step done
As many of you know I was identified as BRCA-2 positive. I chose to have prophylactic double mastectomies and had the surgery on Tuesday. Everyone with this gene has to make their own decision of the course they want to take. I am told that the majority chose to have more frequent monitoring. I just felt I needed to take…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…