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Ovarian and Cervical Cancer seems I got both !!
Hi my name is Donna and seems that what was thought to be a lump on my ovaries is cancer . I was diagnosed with papillary serious carsonoma on April 1st last year. It had spread and I was given chemo and radiation pretty intense for 5 weeks then I had brachy therapy my last PET scan showed a lump on my ovaries that was…
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How long does it take for hair to grow back?
My last treatment is March 21. I'm hoping I will have enough to do a cute pixie haircut by August when we go on our cruise.
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Progression during platinum treatment- 2nd recurrence-Now what?
Hello Ladies, I am being treated for a 2nd recurrence after being in remission and platinum free for 5 years. I had my 6th treatment of Taxotere/Carbo yesterday and my CA-125 has gradually trended upward. 14, 8, 13, 14, 22 and it is now 35 (normal under 21 test). I have disease in the lymph nodes and that is why the CA-125…
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New doctor and not happy with my care so far
I have recently recurred and midway through treatment my oncologist retired. I am not very happy with his replacement. I want to switch to a new cancer center/medical center, but have very limited options in my area. I don't feel very cared for currently. I have had to correct too many mistakes with the pre-meds I receive…
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The Chris Bledy Book
She wrote the book "Beating Ovarian Cancer" a few years ago, apparently she's been in remission for 8-10 years after one recurrence. (She said 8 years at the time the book was written, a few years ago.) Anyway, she follows some really unorthodox methods, I like to hear of naturopathic methods, but some of these were, well,…
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Great new today.
I got wonderful news today from my doctors office. They called and said my Pet Scan showed no metastic cancer and the spot on my spleen appears to be a cyst and it will be watched. Praise the Lord and everyone that prayed for me. Thanks Sharon
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Metastatic Adeno Carcinoma - Please Help
My mum had a hysterectomy in 2008.She had complained about heavy bleeding during her periods. On diagnosis we found there was a fibroid growth in the uterus. The gynecologist suggested to remove the uterus and the ovaries. After the hysterectomy,the fibroid was given for biopsy which resulted to be negative for malignancy…
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Whine time!
Hi Ladies, When I read what some of you have and are continuing to endure, I feel ashamed of myself for ever complaining. I am now on Avaistan alone for maintenance. I took a round of it last Tuesday. This morning when I woke up I ached like I had the flu. What do any of you take OTC for body aches and pains? Mine is mild…
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checking in
Hi ladies, just a quick update. I have been wating for AWESOME news from my doctor before checking in, but since that does't seem to be coming my way, I will check in with JUST OK news. I had my 3rd debulk surgery in August and have been on carbo/gem since then. CA125 is high (averaging at 400) for a few months, but seems…
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For some of you who think there is no hope in sight, there is hope
I was diagnosed 2 years ago november. my primary doctor told me to sign up for hospice, he called my husband aside and told him to get my things in order that there was not much hope for me. I was sent to a wonderful onocologist and when he opened me up all my organs were stuck together, he was unable to take my uterus or…
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;( crappy day...
Sigh, I have tried to submit this post 3 times but no luck. Suffice to say if you see 2 or 3 different topics of this nature, I apologize...each time I try to submit it gets eaten...just disapears or I get moved to a different cancer board...I just give up on it
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Dysgerminoma
I am hoping to get in contact with other people who have done the BEP treatment. I finished in June and am looking for support.
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One more step done
As many of you know I was identified as BRCA-2 positive. I chose to have prophylactic double mastectomies and had the surgery on Tuesday. Everyone with this gene has to make their own decision of the course they want to take. I am told that the majority chose to have more frequent monitoring. I just felt I needed to take…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…
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fistula
my small intestine formed a fistula out an old incision. Was transpoted from N.H down to Boston for a specalist to take over care. Saw him friday and he decribed the surgery to me and said it was a very serious operation and it could kill me. So needlous to say I hav been a basket case and my family too. All I have done is…
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Hi everyone, just wanted to let you know I'm leaving the group
Hi everyone, I was going to stay on group & keep posting, but unfortunately, I've gotten very few responses to my postings. I miss Nancy dearly as we seemed to have alot in common and as sick as she was, she always corresponded back and forth. But, I guess not everyone can relate to everyone's questions. I am holding my…
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Lighten it up on your next CT Scan
Hi! Ladies I'm not trying to minimize the seriousness of our disease...but I try to find something humorous when I really nervous and scared. On my last CT scan, they had me remove my clothing just from my waist up and gave me a lovely gown(you've seen them....gorgeous huh?) They let me keep from waist down on what I wore…
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I see a light at the end of the tunnel hope it's not a train lol
I met with the nurse from Pallative nurse today and she has already gave me the name of a new pain doctor who specializes in cancer pain. I finally feel like someone is listening to me I am really hoping this works out. I meet with the new doctor on the 31st and already talking about taking me off of the morphine and…
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Stevia?
Hi Ladies, Do any of you bake with Stevia? I asked my nurse practioner about it yesterday, and he was unsure. He said he has heard good things about it. I was just wondering if any of you had any insight? Thanks. Carla
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My CT results
I was told by my oncologist that I had to complete 3 cycles of chemo before going for a CT scan. I did complete the 3rd cycle of Alimta and talked to my pcp this week. My PCP decided that he would order the CT scan for me and I went yesterday. He called me late yesterday and unfortunately the results were not good. There…
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I threw a pity party last night
and you all were almost invited but I decided to wait until I was a little less emotional to share my feelings. I previously posted I was bummed with my CA 125 result and appreciate all your supportive and reassuring responses. I know going from 5 to 8 is not much but like one of you said it is the upward trend that…
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So many new names....
I see so many new names, and I just want to hug all of you! I've not been very active on any of the support boards lately. After I went back into remission, my dad became ill and passed away. At any rate, I was diagnosed in 2 years ago this month, had debulking and chemo. Declared NED in July 2010. Recurrence to the brain…
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you mean what I feel really does matter
Anne Behymer Ok I am in pallative care but not because I am near the end. I have been having so much trouble with the pain that I am no longer living my life. The pain dictates my days and usally it stay home and try not to move. I have for three months been working with a pain doctor (really three) at AZ pain center with…
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Hi Tina
I noticed your reply post about topotecan and wanted to shout out a "hi" to you. I might have missed posts from you, but I haven't come across one lately and it's great to hear that you are doing so well. Here's hoping your results just keep getting better and better. (((HUGS))) Maria
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Cyst grew, so take out the ovary?
Hi. I could use some advise. I am post-menopausal, in very good health, but I have three cysts in my right ovary, one grew from one ultrasound to the next six months later. Oncologist GYN said take the ovary out six months ago, but I wanted to wait. The GYN gave me another blood test and then said he agreed, dont take it…
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has tototecan worked for anyone?
i had my first recurrence for stage IV in october after a 10 mo remission. i finished a once weekly topotecan chemo for three weeks, then one week off, and now i'm in the middle of my second round. my ca125 was in the high 400's and is now an alarming 1078! the oncology nurse was kinda encouraging when she said that this…