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Ovarian Cancer

extreme fatigue
Hi There, My mom has pretty much been in chemo non-stop for 2 years. She had to take a break due to a brain met (that was successfully treated with gamma knife). During that break, she was prescribed dexamethasone, which is an immunosuppresent among other things. Her cancer went wild and dramatically spread throughout her…
Thank you everyone for you kind replies
I really means alot to have this support. Today is not such a bad day and will be seeing the oncologist. So thank you again to everyone who has responded to my posts. By the way, now I know why docs don't suggest Hexalen, the oral pill. It did absolutely nothing for me except make the cancer worse. But, what the heck, I…
My mom has just been diagnosed with PPC.
I live in NC and my parents are from Mo. My mom just retired a little over a year ago and she has been looking foward to enjoying life without having to work. She has been ill for the last few months and we all thought it was from a lap band surgery she had about 3 years ago. My parents have been traveling back and forth…
Recieved a nice invitation today
from a wonderful woman I met awhile ago who runs an organization that raises monies and awareness for OVCA. She lost her daughter who was 24, and she works tirelessly in her daughter's name. She invited me to be her guest at a fundraiser and is sitting me at a table with other organizers of local run/walks and other…
Chemo Over
So, my 8 courses of chemo (carbo/taxol) are over and I've had a PET scan. Apparently a couple of small tumors disappeared and there's two that are pretty small that have gotten smaller. My onc. had talked about maintenance chemo, this visit he said he was now putting me on just Avastin every three weeks. When I questioned…
Feeling lost and confused right now
Hi all well I went to the ONC today to talk about what we are going to do regarding the rising CA125 it 82 right now. When I walked into the meeting I thought we were going to talk about cat scan vs pet scan what I found out was I am being dropped from the study because my CA125 is still rising and not dropping needless to…
Newbie
Hi guys! My name is Caroline and I am new here. I have joined this forum to know more about Ovarian Cancer as well as to share ideas and help others. Nice meeting you guys. Caroline
Lulu1010 can you answer a question for me about the overnite carbo infusion - you answered my post
Thank you for letting me know you had the carbo infusion as a slow drip. Did you stay overnight in the hospital? Were you able to get all 6 cycles and was it Carboplatin alone and anything else you can share with me would be appreciated. Thanks again.
What is palliative care
One of my home care insurance nurses said I should ask the dr. to get palliative care. What is that & what does it do that your doctor doesn't do. Thanks.
Has anyone had ascites - I think I do now
I think I have ascites, my abdomen is a little distended, I've gained some weight despite not eating anything more than usual and my ankle seems a little puffy. My cancer is getting worse. Has anyone had this? What needed to be done? If you had drainage did your gyn/onc do it in the hospital or someone else. Any…
Teal Warriors
In July I will celebrate 3 years Cancer Free. Since my diagnosis of Ovarian and Uterine Cancer in 2008 I find myself getting more and more angry or bitter if you will at the fact that there are hardly any organizations relating to Ovarian/Uterine Cancer. Recently my sister decided to become a co-chair for a breast cancer…
sulforaphane/broccoli extract
This supplement appears to be beneficial to all cancer patients, and does not appear to have any contraindications. I learned about this supplement because, through genetic testing two years ago, we discovered I do not have the GSTM1 gene, which would allow my body to make glutathione, a powerful antioxidant. I had been…
im new
Hello! I'm 31 years old, 7 years ago i was diagnosed with a brain tumor on my puitary gland and take medicine for that AND NOW I was just diagnosed with stage 1 ovarian cancer on 02/20/2012. I was so shocked and angry. The obgyn called and told me on the phone, stating "he was shocked that I had this." I just collapsed…
Tethys - Vitamin D
Sorry for the shoutout, but I was wondering if you had the chance to speak with your naturopath about Vitamin D? Remember the thread from about a week ago? I stopped taking my Vitamin D daily because I read it had estrogenic effects and was a hormone (I thought we shouldn't take hormones with Ov/Ca). If you have any…
My cancer seems very aggressive
Had my appointment today for CA125 and scan results. Not good. CA125 is up from 485 to 1,305 and scan shows disease progression. My oncologist began by telling me it was not good news. Only finished Topotecan 6 weeks ago so this is quite a blow. My onc has put me on an oral chemo called Leukeran (Chlorambucil). Has anyone…
getting nervers about Thursday
I have been reading about so many of my strong teal sister entering the battle again. My prayer are with you as you battle this disease please keep us updated on how you are doing. When reading about things that were going on with you health before you found out that the cancer has returned has me nerves for my upcoming…
Got some bad news today
Went to see my onc today...for checkup & discuss chemo treatment, as current one isn't working. My hemoglobin was very low & have to get blood transfusion again. I also told the onc that the current treatment wasn't working according to latest CT scan and wanted to start on Carbo even though 2 years ago I had an allergic…
Non-chemo OVCA therapy
Here's the link to something interesting said about PARP inhibitors (still in clinical trials). The best part of this article is the part where the expert says (and I paraphrase) "patients with ovarian cancer, for various reasons, are living longer than ever before."…
Doxil
I had my first Doxil treatment this week. I know it has little side effects but I felt tired and not much appetite. Did anyone else who had this have minor side effects. I sure didnt feel like doing much. The other question is what kinds of things did you do during the time of treatment. I know we are not to use our hands…
so now it's completely gone......
Hello again Girls, ok so now the hair is all gone, we had a shave fest yesterday, we did all kinds of things, first tried a mohawk, then the funnies was the comb over, I did a Donald Trump impersonation, we laughed so hard, and then I did Hitler, what was scary is I really looked like Hitler. Meghan my daughter actually…
Need some advice
I need some advice from others who know what I am talking about. I started out on dense dose taxol. We had to nix the taxol after 2 rounds and swtiched to taxotere because of severe neuropathy. I'm talking fiery razorblades in my hands and feet and fiery tingles all over my body. Started neurontin and vit b6 and the…
Stupid question
Been a member for a month and can't figure out why I don't have a little icon by my name. I know.....stupid question but still wondering.......
Question about GLA
Does anyone know if it is safe to take GLA Gamma-Linolenic-Acid? I don't want to take anything that would be a hormone as my doctor told me to stay away from anything that would replace hormones. I heard that GLA helps with nerve pain and hair and nail growth so I want to take it. Thanks.
Lupron & Ovarian Cancer link
Last March my mother (age 48) was diagnosed with an advanced stage of ovarian cancer. She had been taking Lupron for nearly three years to help combat her severe migrane headaches (the doctor informed her that Lupron would 'trick' her body into going into menapause to help with the hormonal imbalance that was causing the…
In need of advice
First, I would like to thank you all for sharing your stories and experiences. I have been reading and rereading these discussion boards looking for hope... and you all have given me so much already. My mother told me about two weeks ago that she had a cyst, that she was going to have to get removed. I was running and she…
Questions for my teal sisters
Ok something new not bad but wish it was not happening. My lyrica and morphine were upped at the same time and then the twitching started. The pallaitive care nurse said it was the morphine, she had me on 60mg am/noon/pm she also upped my lyrica from 75mg to 300mg I was taking 152mg at noon and 150mg at 3am. I went back on…
Need some "teal" input
Sorry I haven't been on the board much but we've been enjoying life! This is what I need some input on---finished my second chemo end of Nov and this recent checkup had my CA125 going from 7 to 24.5 in a 3 month period. Earlier chemo in 09 got me 2 yrs before I went from 7 to 30. Dr. said not to worry. Have to have a…
update on Thursday appointment
It has been moved to Monday we all got the stomach flu that was going around, which is so funny since my mom and I do not get out of the house that much. I was thinking about how we could have gotten it. 1. Dad brings it home from work.... no he is not sick 2, Got it last time I went to doctor....no that was to long ago 3.…
Ambien
For those of you taking Ambien for sleep issues, please be aware that Ambien increases Interluken 8, which stimulates cancer growth. Maybe consider finding another option. :)
Hand tremors (shaking)
Has anyone experienced hands shaking while on chemotherapy? Mine just started to shake the last couple of days and don't know if it was the result of being on Hexalen. Thanks.

Ovarian Cancer

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