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My cancer seems very aggressive
Had my appointment today for CA125 and scan results. Not good. CA125 is up from 485 to 1,305 and scan shows disease progression. My oncologist began by telling me it was not good news. Only finished Topotecan 6 weeks ago so this is quite a blow. My onc has put me on an oral chemo called Leukeran (Chlorambucil). Has anyone…
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getting nervers about Thursday
I have been reading about so many of my strong teal sister entering the battle again. My prayer are with you as you battle this disease please keep us updated on how you are doing. When reading about things that were going on with you health before you found out that the cancer has returned has me nerves for my upcoming…
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Got some bad news today
Went to see my onc today...for checkup & discuss chemo treatment, as current one isn't working. My hemoglobin was very low & have to get blood transfusion again. I also told the onc that the current treatment wasn't working according to latest CT scan and wanted to start on Carbo even though 2 years ago I had an allergic…
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Non-chemo OVCA therapy
Here's the link to something interesting said about PARP inhibitors (still in clinical trials). The best part of this article is the part where the expert says (and I paraphrase) "patients with ovarian cancer, for various reasons, are living longer than ever before."…
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Doxil
I had my first Doxil treatment this week. I know it has little side effects but I felt tired and not much appetite. Did anyone else who had this have minor side effects. I sure didnt feel like doing much. The other question is what kinds of things did you do during the time of treatment. I know we are not to use our hands…
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so now it's completely gone......
Hello again Girls, ok so now the hair is all gone, we had a shave fest yesterday, we did all kinds of things, first tried a mohawk, then the funnies was the comb over, I did a Donald Trump impersonation, we laughed so hard, and then I did Hitler, what was scary is I really looked like Hitler. Meghan my daughter actually…
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Need some advice
I need some advice from others who know what I am talking about. I started out on dense dose taxol. We had to nix the taxol after 2 rounds and swtiched to taxotere because of severe neuropathy. I'm talking fiery razorblades in my hands and feet and fiery tingles all over my body. Started neurontin and vit b6 and the…
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Stupid question
Been a member for a month and can't figure out why I don't have a little icon by my name. I know.....stupid question but still wondering.......
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Question about GLA
Does anyone know if it is safe to take GLA Gamma-Linolenic-Acid? I don't want to take anything that would be a hormone as my doctor told me to stay away from anything that would replace hormones. I heard that GLA helps with nerve pain and hair and nail growth so I want to take it. Thanks.
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Lupron & Ovarian Cancer link
Last March my mother (age 48) was diagnosed with an advanced stage of ovarian cancer. She had been taking Lupron for nearly three years to help combat her severe migrane headaches (the doctor informed her that Lupron would 'trick' her body into going into menapause to help with the hormonal imbalance that was causing the…
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In need of advice
First, I would like to thank you all for sharing your stories and experiences. I have been reading and rereading these discussion boards looking for hope... and you all have given me so much already. My mother told me about two weeks ago that she had a cyst, that she was going to have to get removed. I was running and she…
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Questions for my teal sisters
Ok something new not bad but wish it was not happening. My lyrica and morphine were upped at the same time and then the twitching started. The pallaitive care nurse said it was the morphine, she had me on 60mg am/noon/pm she also upped my lyrica from 75mg to 300mg I was taking 152mg at noon and 150mg at 3am. I went back on…
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Need some "teal" input
Sorry I haven't been on the board much but we've been enjoying life! This is what I need some input on---finished my second chemo end of Nov and this recent checkup had my CA125 going from 7 to 24.5 in a 3 month period. Earlier chemo in 09 got me 2 yrs before I went from 7 to 30. Dr. said not to worry. Have to have a…
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update on Thursday appointment
It has been moved to Monday we all got the stomach flu that was going around, which is so funny since my mom and I do not get out of the house that much. I was thinking about how we could have gotten it. 1. Dad brings it home from work.... no he is not sick 2, Got it last time I went to doctor....no that was to long ago 3.…
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Ambien
For those of you taking Ambien for sleep issues, please be aware that Ambien increases Interluken 8, which stimulates cancer growth. Maybe consider finding another option. :)
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Hand tremors (shaking)
Has anyone experienced hands shaking while on chemotherapy? Mine just started to shake the last couple of days and don't know if it was the result of being on Hexalen. Thanks.
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My latest CT results
Hi everyone, wasn't supposed to have CT scan for another month, but last week have been having terrible pains in stomach & last nite went to my back. I decided to go to the ER today and my doctor ordered a CT scan. I didn't really want it done because I have only been on this new regimen since January & finished Cycle 2…
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Pre hospice meeting with doctor and family
Pre-hospice meeting with doctor and family this Friday and I have been appointed as the one to find out what we should be asking. My Mother-in-law is 70 years old, had surgery and chemo last year for stage 3-c ovarian cancer. It has returned and they have her on gemcitabine and cerplatin 2 weeks on, 1 week off. The doctor…
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Newspaper Article about Ambien
Hi everyone, I brought an article into my dr. about the Ambien and read some of the postings causing cancer. He said he would change my Ambien if I wanted to but the other sleeping aids have many, many side effects and are like a tranquilizer. Since I don't want that I'm going to stay on the Ambien. I also spoke with my…
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dealing with diagnosis
My mom was recently diagnosed with stage 4 ovarian cancer and was not given a good prognosis. She is a fighter and 25 yr survivor of breast cancer. She decided to fight this and has started chemo. She is having numerous problems both cancer related and not. Most recently was diagnosed with a mrsa infection. I am a huge…
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Can one live with cancer without treatment?
I was diagnosed 3.5 ys ago, went through debulking and several rounds of chemo. Tolerated well the first two but caved in at Doxil and cut it short. Then had one year of feeling fine, but they found some small methastising and put me on Tamoxifen. This was so bad - not just nausea but everything else in the catalogue - my…
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back to square one
My cancer has reared it's ugly head again. I will be starting chemo next week. Gemzar and Cisplatin. I am also hanging up my nursing shoes. Time to kick back and concentrate on beating this beast to the ground. I am sad and scared. Thank God for family and friends and this board. I now realize I will probably be on chemo…
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cisplatin,gemzar,and avastin every two weeks. Anyone else ever have this regimen?
Had reoccurrence during taxol maintenance. ONC started me on Carbo,gemzar and avastin every 21 days and just gemzar on day 8. Did 3months of that and then another CT. Definate improvement, down to 2 enlarged lynph nodes and one small soft tissue tumor by my liver. So continued on with Carbo,gemzar,avastin combo for another…
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Twitching
I am where most of us have been or are at too, waiting for an exam later this week. It is not until Thursday. So, I am twitching. I am also jittery. My hubby just left on a business trip and won't be back until after the exam, so he can't distract me. Hell, he rarely seems to be there when the important things happen, so…
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staying bug free
In all that we go through I feel so bad when my mom gets sick. She has the stomach bug that is going around and she has to worrie about keeping me bug free. She can't just lay around and try to get over the bug she has to make sure I am taken care of while she is sick. Sometimes I forget how hard my mom works at taking…
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What items make you feel better?
Hi, I'm a cancer survivor who is working to help other patients/survivors. Thinking about your treatments and side effects, physically, mentally, etc. What type of items could someone give you to help make you more comfortable. Example: I had dry mouth and nausea - fruit flavored hard candy helped. Reading helped me pass…
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We lost another teal warrior this week
I sm sorry to have to give the news that we lost a good friend of mine this monday. Charlene also known as 7 boys passed away. Her funeral will be held tomorrow. My heart goes out to this family. She fought the fight for 2 full years. I will miss her.
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Advice
As some of you may remember my mom passed away in August after fighting ovca stage 3c for 14 months. Mom's cancer was not genetic. I am looking at having a hysterectomy for adenmyosis due to the pain it is causing. This is my question to you: Should i insist on a full hysterectomy (I am 44) or just have a partial? WWYD? i…
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Osteoporosis after chemo
has anyone else developed osteoporosis after receiving chemo
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Caner is back
Had my CT yesterday which showed 2-3 small nodules. Three months ago my CT was clear and my ca125 was in the teens. The ca125 is now 109. Will start Doxil on Tuesday. This brings to an end my vaccine trial that I was so hopeful would be a success. I am also planning to end my nursing career. I think it is time to retire.…