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dental work
Hello I'm new here and although not diagnosed yet...looks pretty clear where things are heading...wish I could say differently. Anyway I'm educating myself as much as I can in advance and from I can see this community of extraordinary people is a wealth of knowledge and caring support. My Teeth are not on the best shape…
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Persistent Cough Post Treatment
(47 Male, good health, SCC BOT HPV+, Stage IV) I'm 2 months post treatment and I've noticed I am experiencing a persistent and annoying cough most days. I had been able to treat it extremely well with the hydrocodone I was prescribed during treatment. However, that is no longer an option since I am not experiencing any…
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Happy Thanksgiving!
I am SOOOO happy for all the wonderful friends on this message board! I am happy for all the extra time I have with my husband due to the extraodinary caregivers! Hoping the best to all! Crystal
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Trigeminal Neuralgia
8 years after treament, I have recently been crawling the walls with extreme pain in the right side of my faace - very like the pain I had during radiotherapy, but just on one side, as if I have severe ear ache, dental bscess and broken jaw all at once. Docotr has finally said it is trigeminal neuralgia, and has started me…
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necrosis of jaw
Hello everyone. I am 15 months post treatment for base of tongue cancer . I had a few teeth removed first to prevent issues after radiation. I had radiation plus chemo, my tumor was inoperable stage 3. I developed tooth pain after treatment and it was discovered I had a cracked molar. Radiation is tough on teeth.... I did…
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New to H&N and very SCARED
Hi... I've recently posted here a few times already and only one person replied, but here goes. In a few hours I will have an MRI of my neck to confirm a mass that was recently scoped by my new ENT at the base of my tongue. He suspects it is HPV. I don't know anything else YET but both my wife and I have had other cancers…
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Lasting effect of HBOT?
I was diagnosed with Squamous cell carcinoma at base of tongue (left) and had a left radical neck dissection followed by 20 days of radiation in 1997. In 2010 prior to a tooth extraction I underwent 20 dives of HBOT, surgery for the extraction and debridement of osteoradionecrosis site followed by 10 more dives. I now need…
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Jaw is closing more and more
Hey all, Hope all is well with everyone here. Many of you know my story. To keep it short, I'm finding my jaw is closing more and more every day. I've been to therapy for stretching exercises and I admit, I have not been consistent with it. For those with radiation to the neck area, are you experiencing this? I know…
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Well, ...
I finished rads and chemo May 5th 2017, had redical neck disection on august 31st, september I was told I was all clear. Until today. When I woke up I had a lot of gunk in my thoat, so I did what we usually do, and hacked it up (sorry if this is graphic) Instead of being clear to slightly yellow, it was red, deep red,…
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Sodium lows
developed during Chem over a yr & 1/2 ago. My Sodium levels are lower than normal. I don’t have any saliva tho I make it just can’t get out due to delayed Radiation damage to My ducts. Having to see a specialist in Baton Rouge to see if he can get some released. After treatment I had saliva, taste, was doing great now I…
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Mucoepidermoid Carcinoma Stage 4 Intermediate Grade Minor Saliva Gland
I had a soft dark purple lesion that I found with my tongue in the roof of my mouth on the right side in early September. Painless I might add. Looked basically like a very small blood blister. Went to my regular doctor that sent me to my dentist who sent me to an oral surgeon. Oral surgeon removed the lesion and said he…
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mucoepidermoid carcinoma
My Mom just got diagnosed with mucoepidermoid (intermediate) carcinoma of the salivary gland. . I would like to correspond with someone who has somewhat same situation. They are planning a neck resection later this month, with follow-up radiation. I am very afraid for her.
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Immunotherapy against HPV-related cancer in the mouth?
Does anyone know, if there‘s an immunotherapy against HPV-related sqamous cell carcinoma in the mouth? I‘ve had Proton therapy in that area during the summer, and now I‘ve run into massive pain. At first, I thought this to be the after-effects of the Proton-treatment, but today I have been told that this would be very…
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One week post treatment update
My husband is almost one week post treatment. It has definitely been a tough week and he has spent the most part of it on the sofa. He had 35 radiation treatments and 6 Cetuximab. He was scheduled for 7, but his doctor canceled his last chemo because his neck is in awful condition. He got 2 liters of fluid last Monday…
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Sugar cravings!
Has anyone have or gone through huge sugar cravings? I have been craving everything and anything sweet. Cakes, cookies, chocolate. All that good, but very bad for you stuff:) I have always liked sweets, but not quite like this. cindy
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Carotid Paraganglioma
Hello everyone, I was recently diagnosed with a right carotid paraganglioma (unfortunately won't know if its benign or malignant until they are able to surgically remove and do the biopsy, but fingers crossed and hoping for the best). Wanted to ask if anyone had gone through a similar case, if they had surgery, how they…
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Beth Chapman and Throat Cancer Documentary
Did anyone watch the documentary on throat cancer by Beth Chapman (Dog the Bounty Hunter). The show never mentioned HPV which is a well known cause of throat cancer. I wish they would have disclosed what caused the throat cancer so that others would be aware of one of the many cancers HPV causes if that was the case.
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Husband diagnosed Nasal Cavity SCC
I am new here. Please forgive the copy/paste but I don't have the strength to type this out again. Any advice at all is appreciated. ________ For the past year, he has been having severe nose bleeds. For the past 8 months he has seen multiple Dr's without answer. His last Dr. biopsied his nose (in May) and said he did not…
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Bitter taste returned
Zinc Sulfate was recommended for the bitter/metallic taste and worked well for 2.5 months until a few days ago. Its driving me crazy! Any tricks that any of you have tried that workedfor you?
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Radiation damage to my teeth and gums
Finished 28 (I think it was 28) treatments of radiation in April 2007. The first year was difficult, didn't like not having taste or saliva. Saw my dentist every three months to make sure my teeth would not suffer from lack of saliva. He never gave me fluoride trays and didn't feel the need to take X-rays. At the end of…
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Drugs for nausea that work
I was so dreading my 3rd and last chemo last week because of the severe nausea and vomiting that I experienced with the 2nd round and was so surprised when it didn't happen. The only thing different this time was they gave me a scopolamine patch that really seemed to help compared to all the other drugs I took for the 1st…
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One week post treatment!
My husband is one week post treatment (35 radiations plus 8 Erbitux for Stage IV BOT SCC HPV+) today! He is doing pretty well. The only thing that seemed to continue to "cook" was the skin on his neck. That got pretty red for a few days this week. He is putting on Aquaphor but is convinced that it is making the skin there…
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False Teeth humour..
So my father who does not have cancer of any form, but also does not have good eyesight or hearing (years of working on jets will do that to your ears) father - (not happy, waving a tube) says, This fixodent doesnt work! brother - dad, that'll be because its Hydrocortisone cream, doesn't itch tho, right?
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mouth sores help
My husband is 5 months out from teatment for stage 3 SCC of base of tongue, T2 N1. He had 2 Cisplatin treatments, 5 Erbitux, and 42 radiation treatments. Peg tube used from second week. Very, very ill all of treatment. Staph infection in 6th week, gastric issues for 4 months. Back to back thrush infections in mouth for 3…
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THREE MONTH PET SCAN RESULTS
THREE MONTH PET SCAN RESULTS NM PET CT ROUTINE SKULL TO MID THIGH - Details Impression Resolution of previously demonstrated left vallecular and left cervical nodal hypermetabolic activity. No suspicious hypermetabolic activity is identified. Electronically signed by: Jeremy Rau Date: 11/17/17 Time: 16:07 Narrative STUDY:…
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The C: Section Chronicles Update
Hi All. I've been flat out creating 3D models the past couple of months and haven't been keeping up to date with the forum. It's been 7 months since I had my last radiation treatment. 7 or even 6 months ago I would never imagined feeling as good as I have the last couple of months. I think the best part of the recovery was…
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6 month NED!
Dear Cancer, You have taught me so much!!!…. Sometimes I want to say thank you for the teachings, but mostly I want to say SCREW YOU forever. (You had me once, but never again.) BECAUSE OF YOU I: • Pray and PRAISE GOD constantly. • Live every minute to the fullest. • Am starting my bucket list early - NOW. • Verbalize and…
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19 weeks and 3 days out of treatment today
So after all the fun off 7 weeks radiation and 3 high doses of Cisplatin I ran my first marathon of the year today at 57 years of age in 3:35:20 and placed 2nd overall. I was 5 minutes slower than before treatment for the same race as last year so I guess at the moment the new me is just about the same as the old me. It…
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Post treatment check up
Hi, my father went for his first post treatment check up today. He finished treatment at the end of September. We were expecting them to scan, scope whatever his throat to see if the cancer treatment worked. They took blood, and then used a mirror to look at his throat and said they thought it looked OK, but would like him…
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(Video) Had my first post treatment scope done
(47yr male, good health, SCC BOT HPV+ Stage IV) Last week I had my first post treatment scope completed by my oncologist. I am two months post treatment. She wanted to wait until my throat had healed some before trying to scope me (I appreciated that). Other than a swollen and shortened epiglottis and some ulceration, she…