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just diagnosed with adenocarciaoma
Just had a biopsy on a mass in the side of my neck.It came back adenocarciaoma.Go to cancer doc tomorrow, dont really know what to expect.Anyone else familiar with this this type of cancer?
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Dumb Question
I know I have created several threads, with the last one mentioning that it would be my last thread, but I am just really confused and looking for help. As noted in previous threads, I have had multiple biopsy completed for a spot on my lip that I was concerned about. First biopsy was completed early August and just had a…
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Number of PET scans
Hi, I thought of doing a poll on the number of PET scans you had. I think its important in early post-treatment time, and should reduce as time progresses. Although, the management of it seems divided. Some do it only when another scan cannot decisively confirm the presence/absence of tumour. Here's the data if the…
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3rd CT scan
So tomorrow my hubby goes in for his 3rd scan post treatment. The last two were completely clear. But still there’s the worry that this time.... I’m choosing to remain positive and pray for the best. send positive vibes if you will
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Proton radiation therapy (Procure) questions ( 2nd time getting RT)
Hello all ! just discovered this board after my husband being initially diagnosed with Base of tongue HPV positive cancer 4 years ago .Well after being free of cancer 39 months his cancer has reoccurred ( maxillary sinus and some muscles and the base of skull again..Clivus ) .My husbands original cancer was very extensive…
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Completed 4th year H&N
i have completed the 4 year mark. I only have 2 6 monthly check ups .....the the doc says he won’t need to see me again after that.
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nasopharyngeal cancer
I am looking for anyone who has had this type of cancer.Or who knows someone who has had it.It is rare in the United States and I am having difficulty finding people to talk with about this .Any information would be greatly appreciated.Thanks!
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The return of normal
Like many here who have experienced treatment (as patient or as caregiver) I have gone thru much change on taste and drymouth. I am a bit less than a year out from last treatment, and today, suddenly and unexpectedly, I awoke to find my taste clear and full, and I am enjoying at least a day of regular quantity and quality…
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Vocal cord cancer
My Son in law has cancer of the vocal cords. He has had three surgeries - two biopsies came back clean, but the third one came back with the "C" attached. His surgeon feels that the only way to save his voice and rid himself of this cancer is by using the KTP Lazer. After the first two surgeries, their insurance kicked hem…
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Severe Trimus
For some background here... I had throat cancer in 2012 with 4 rounds of 24/7 chemo and 35 rounds of radiation. I recovered pretty well and was fine until 2014 when it retured with the tumer being higher in my throat, this was follwed by 6 rounds of chemo and 33 rounds of radiation. This is where things really fell apart.…
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dental work
Hello I'm new here and although not diagnosed yet...looks pretty clear where things are heading...wish I could say differently. Anyway I'm educating myself as much as I can in advance and from I can see this community of extraordinary people is a wealth of knowledge and caring support. My Teeth are not on the best shape…
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Persistent Cough Post Treatment
(47 Male, good health, SCC BOT HPV+, Stage IV) I'm 2 months post treatment and I've noticed I am experiencing a persistent and annoying cough most days. I had been able to treat it extremely well with the hydrocodone I was prescribed during treatment. However, that is no longer an option since I am not experiencing any…
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Happy Thanksgiving!
I am SOOOO happy for all the wonderful friends on this message board! I am happy for all the extra time I have with my husband due to the extraodinary caregivers! Hoping the best to all! Crystal
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Trigeminal Neuralgia
8 years after treament, I have recently been crawling the walls with extreme pain in the right side of my faace - very like the pain I had during radiotherapy, but just on one side, as if I have severe ear ache, dental bscess and broken jaw all at once. Docotr has finally said it is trigeminal neuralgia, and has started me…
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necrosis of jaw
Hello everyone. I am 15 months post treatment for base of tongue cancer . I had a few teeth removed first to prevent issues after radiation. I had radiation plus chemo, my tumor was inoperable stage 3. I developed tooth pain after treatment and it was discovered I had a cracked molar. Radiation is tough on teeth.... I did…
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New to H&N and very SCARED
Hi... I've recently posted here a few times already and only one person replied, but here goes. In a few hours I will have an MRI of my neck to confirm a mass that was recently scoped by my new ENT at the base of my tongue. He suspects it is HPV. I don't know anything else YET but both my wife and I have had other cancers…
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Lasting effect of HBOT?
I was diagnosed with Squamous cell carcinoma at base of tongue (left) and had a left radical neck dissection followed by 20 days of radiation in 1997. In 2010 prior to a tooth extraction I underwent 20 dives of HBOT, surgery for the extraction and debridement of osteoradionecrosis site followed by 10 more dives. I now need…
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Jaw is closing more and more
Hey all, Hope all is well with everyone here. Many of you know my story. To keep it short, I'm finding my jaw is closing more and more every day. I've been to therapy for stretching exercises and I admit, I have not been consistent with it. For those with radiation to the neck area, are you experiencing this? I know…
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Well, ...
I finished rads and chemo May 5th 2017, had redical neck disection on august 31st, september I was told I was all clear. Until today. When I woke up I had a lot of gunk in my thoat, so I did what we usually do, and hacked it up (sorry if this is graphic) Instead of being clear to slightly yellow, it was red, deep red,…
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Sodium lows
developed during Chem over a yr & 1/2 ago. My Sodium levels are lower than normal. I don’t have any saliva tho I make it just can’t get out due to delayed Radiation damage to My ducts. Having to see a specialist in Baton Rouge to see if he can get some released. After treatment I had saliva, taste, was doing great now I…
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Mucoepidermoid Carcinoma Stage 4 Intermediate Grade Minor Saliva Gland
I had a soft dark purple lesion that I found with my tongue in the roof of my mouth on the right side in early September. Painless I might add. Looked basically like a very small blood blister. Went to my regular doctor that sent me to my dentist who sent me to an oral surgeon. Oral surgeon removed the lesion and said he…
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mucoepidermoid carcinoma
My Mom just got diagnosed with mucoepidermoid (intermediate) carcinoma of the salivary gland. . I would like to correspond with someone who has somewhat same situation. They are planning a neck resection later this month, with follow-up radiation. I am very afraid for her.
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Immunotherapy against HPV-related cancer in the mouth?
Does anyone know, if there‘s an immunotherapy against HPV-related sqamous cell carcinoma in the mouth? I‘ve had Proton therapy in that area during the summer, and now I‘ve run into massive pain. At first, I thought this to be the after-effects of the Proton-treatment, but today I have been told that this would be very…
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One week post treatment update
My husband is almost one week post treatment. It has definitely been a tough week and he has spent the most part of it on the sofa. He had 35 radiation treatments and 6 Cetuximab. He was scheduled for 7, but his doctor canceled his last chemo because his neck is in awful condition. He got 2 liters of fluid last Monday…
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Sugar cravings!
Has anyone have or gone through huge sugar cravings? I have been craving everything and anything sweet. Cakes, cookies, chocolate. All that good, but very bad for you stuff:) I have always liked sweets, but not quite like this. cindy
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Carotid Paraganglioma
Hello everyone, I was recently diagnosed with a right carotid paraganglioma (unfortunately won't know if its benign or malignant until they are able to surgically remove and do the biopsy, but fingers crossed and hoping for the best). Wanted to ask if anyone had gone through a similar case, if they had surgery, how they…
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Beth Chapman and Throat Cancer Documentary
Did anyone watch the documentary on throat cancer by Beth Chapman (Dog the Bounty Hunter). The show never mentioned HPV which is a well known cause of throat cancer. I wish they would have disclosed what caused the throat cancer so that others would be aware of one of the many cancers HPV causes if that was the case.
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Husband diagnosed Nasal Cavity SCC
I am new here. Please forgive the copy/paste but I don't have the strength to type this out again. Any advice at all is appreciated. ________ For the past year, he has been having severe nose bleeds. For the past 8 months he has seen multiple Dr's without answer. His last Dr. biopsied his nose (in May) and said he did not…
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Bitter taste returned
Zinc Sulfate was recommended for the bitter/metallic taste and worked well for 2.5 months until a few days ago. Its driving me crazy! Any tricks that any of you have tried that workedfor you?
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Radiation damage to my teeth and gums
Finished 28 (I think it was 28) treatments of radiation in April 2007. The first year was difficult, didn't like not having taste or saliva. Saw my dentist every three months to make sure my teeth would not suffer from lack of saliva. He never gave me fluoride trays and didn't feel the need to take X-rays. At the end of…