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Tonsil/throat cancer, HPV positive with trach and gtube going in
I wanted to start this blog because it seems my bf is in a small group of people who start treatment with a trach and gtube already. He has been having difficulty swallowing and breathing for a few months. Even thought he was encouraged to go get it checked out, he was between jobs and had no healt insurance. He was having…
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Worried For My Dad
Hello everyone! To start, I’d like to say to those who have beat cancer, congratulations, and for those fighting, keep fighting and I hope for the best for you. I’m writing because I’m extremely worried about my Dad. My Dad has had cancer twice (Osteo Sarcoma in the late 90’s and Stage IV Squamous Cell Carcinoma two years…
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Post radiation surprises
6 months post radiation after surgery to remove a very large neck tumor and some chemo. Still no taste and saliva as well as dry mouth. On peg tube 9 months and trying to supplement liquid feedings with whatever solids I can tolerate (not many) Hearing loss and constipation are also present. Easy to think about giving up…
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Pain for pressure near ear
Hello - Can anyone suggest a pain med, heat, cold, or anything that might help to relieve fairly extreme pressure near the ear and radiates up and down to cause a headache. And can anyone think of a medication that might be effective for earaches. A neurologist I saw is suggesting to try cymbalta which some find helpful…
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Proton Beam, Cisplatin, and Spindle Cells: A Treatment Diary
Hi all, Boy, it's been a bit of journey since my last forum post. I am happy to say I am now 1 week into treatment, and finally feeling well enough to post and update. Here's a quick recap of my story for those of you who haven't read the previous posts: 29yo; Feb of 2017 I had an extremely small superficial SCC lesion…
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Unused Tube food
I have 4 unopened cases of ISO source containers for tube feeding, anyone know what to do with them? Company will not take them back. Looking for a place to donate.
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ROLL CALL 2015 (ENROLLMENT, CHECKING-IN, STATUS UPDATE) CLOSED 8-15-15
In Memory of HAWVET (Johnny) who began the ROLL CALL thread with this post: 8-5-2008 12:32AM I sometimes wonder who visits this Head and Neck Cancer area. I thought I would get a count. Probably, not everyone will sign up. If you do, please complete the following: Forum Name, Type of Cancer, Year, and Home State I will…
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Tips to make life easier during treatment
My husband has just finished the standard chemo/radiation 35 session treatment. During the last almost three months we have hit upon some things that have made things easier: 1 gets lots of disposable cups to use to spit in during "mucus attacks" and always have some around when traveling. 2. Paper napkins are sturdier and…
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BLENDED FOOD FIELD REPORT
Hey guys, for all of you folks out there who are tube feeders, or blended food eaters, it's time for a field report on a new (to me) line of blended food, which I believe that I heard about on WebWhispers, and happily, like a lot. REALFOOD BLENDS, Meals For Tube-Fed People is a company that has created packages of complete…
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Post Cancer Treatment PET scan and follow-up scare.
I'm a 47-year old male that was diagnosed with SCC BOT HPV+ with neck lymph-node involvement back in June of 2017. Other than the cancer diagnosis I was in excellent health. No prescriptions, no ailments and live an active lifestyle. I completed my treatment in Sept. of 2017. Treatment consisted of 35 daily radiation…
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No saliva
Hi everyone ive been reading all the topics and keep hopeing I could give some helpful advice,buti seems like I am dumbfounded.I am one year post treatment all my scans have come back NED.What im wondering has anyone had a problem with saliva not comeing back or taste buds.I never have got hungry.I live on Boost and…
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Weight gainer
I am 2 months out from 35 rads/6 cisplatin, lost 35 lbs. Had been drinking smoothies, after treatment, of milk, ice cream,and berries, but was gaining little back. Friend suggested Bulk 1340 from GNC, usiong this and working out, I have gained back 7.5 pounds this past month. Goes down easy, little is fat, and has made a…
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Lymphedema
Hi all, I have read the Superthread but haven't found my answer. I have watched the videos and am doing MLD for small to mod swelling under my chin, 8 weeks out from chemoradiation and big neck dissection in July. I have booked an appt c an MLD specialist to make sure I am doing it right (though I must be as it disappears…
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I'm a really, really bad pet owner :(
I'm not kidding - I thought I'd share so no one else does the same. Whenever I do roast chicken, I always boil the bones after and make chicken vegetable soup, yummy! so a few times a year - I'd make soup, and my dog would get a ladle of it on her food, for which I was greatly loved! When I was diagnosed, and thru…
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Husband not eating...very worried
My husband finished his last Cisplatin chemo on 1/16 and his last radiation on 1/23. He does not have a feeding tube. It has been two weeks since he has had anything to eat. No Ensure, nothing. He is barely able to even swallow water so he goes every day for two hours of IV fluids. He continues to lose weight. He’s on…
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Worried about PET scan next week
Had my first follow up with the ENT today and he said everything looked ok but depending on the out come of the scan whether I would have to have more treatment, specifically a neck dissection. I had already thought of this but now I'm so worried and can't get it out of my mind. I think he said even if it lit up a little…
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Just started radiation SCC vocal cord Questions???
Hi all, just started photon radiation therapy on the 21st of December. I am just on the 9th treatment of 28 and I have what feels like a lump in my throat everytime I swallow. Is this normal so early? They said after 4 weeks it might start to hurt and its already starting to feel like its so raw. Also very red on my neck.…
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Possible Tongue Cancer
Hi everyone. I have been having strange symptoms. My tongue, inside of my cheeks and roof of my mouth are red all swollen. The papillae on my tonge are raised and red. My mouth burns everytime I eat something. The burning intensifies with hot foods, minty toothpaste and minty gum. I feel as though something is caught at…
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Mouth sores two months after chemo/radiation
I finished my 45 radiations and 4 treatments of chemo two months ago. I had squamous cell cancer in my mouth. This is my second time 11 years later. Problem is I now have a mouth sore in same spot? I have no saliva at this point so wondering if it is thrush or if cancer could come back in less than 2 months?? Or dry mouth…
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Partial remission NPC
Hi, previously this week I asked a question in regard to my husband 3 months post treatment CT Scan. He is scheduled also for an MRI and a PET scan mid february by then it will be 4 months since last radiation. thanks to a reply I got the term partial remission out of the discussion, so thank you. We were both surprise to…
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Skull bone tumour - extreme dizziness
Hello all - I wonder if there is anyone on this site that has been diagnosed with a tumour in the skull bone. I have CRC with liver mets and currently post on the CRC site. I am having a biopsy on a skull bone tumour that I have in behind my ear. It was diagnosed through a brain scan due to feeling a little off balance.…
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Tonsil cancer/ melanoma
Hi my husband was just released today from the hospital after having a neck dissection. Lets start from the beginning. Almost a year ago my husband had a swollen lymp node on his right side of neck. He said it would get big and be sore then get smaller. Since it would only bother him every now and then, never had it…
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Head & Neck SCC 2 1/2 weeks post treatment
Hello, My Husband is 2 1/2 weeks post treatment for H&N squamous cell carcinoma hpv+, right side of his neck stage-4, 5 lymph nodes involved, no known primary. Treatment consisted of: 35 IMRT radiation treatment, 1 Treatment of Cisplatin, treatment had to be changed to Carboplatin and Taxol, total 3 treatments, and pain…
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Question about remission, etc
hi, new to the board. My husband has nasopharyngeal cancer with lymph nodes metastasis and Epstein Barr Virus markers. He received 35 rt and 5 cisplatin, the 6th had to be cancelled due to febrile neutropenia. He finished his treatment in late october and was told that he was in remission for the next 2 years. Since he did…
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Grade 1 Osteoradionecrosis
Dear all, I waa treated for right tonsil SSC. May las radiotherapy was on July 2016. Today,I had a denist appointment. They found out that small piece of my upper jaw bone is eposed( here is no gum soft tissue to cover my bone. They mnrion about oseoradionecrosis. I am woiying abou it. They will check me gain in 3 mo…
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2.5 yrs out and experiencing side effects
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One Year on...
It's a year since I had "that feeling" that something just wasn't right. Almost a year since I insisted on an US and scans, and come February 17, it'll be a year since I was told "you have cancer" So here I am, 7 weeks of radiation, 2 cisplatins, (couldn't do 3) a modified radiacal neck disection later.. oh and 110 pounds,…
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Father - New Floor of Mouth SCC diagnosis
Hello everyone, I'm new here. My father was just diagnosed last week with a Stage 4 floor of mouth squamous cell carcinoma that has spread to lymph nodes (6.1cm tumor). We have been going through a whirlwind of appointments over the past week. The good news is that the cancer has not spread anywhere else in the body, the…
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Peg Tube Question
My husband has finished 3 rounds of Cisplatin Chemo and has two more rads. He doesn’t have a peg tube. He is barely eating. He’s probably getting less than 500 calories a day. I’m extremely worried. Even though he’s at the end of his treatment can he still get a feeding tube?
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Nausea
Hi everyone... Hope everyone is doing well ! I have a wquestion about radiation treatments and nausea. I am on #13 of a total of 30 treatments. Almost immediately I started to feel some nausea. When I have brought this up to my radiation doctor ,he says radiation does not cause nausea only chemo ( I am not doing chemo) so…