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Post Cancer Treatment PET scan and follow-up scare.
I'm a 47-year old male that was diagnosed with SCC BOT HPV+ with neck lymph-node involvement back in June of 2017. Other than the cancer diagnosis I was in excellent health. No prescriptions, no ailments and live an active lifestyle. I completed my treatment in Sept. of 2017. Treatment consisted of 35 daily radiation…
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No saliva
Hi everyone ive been reading all the topics and keep hopeing I could give some helpful advice,buti seems like I am dumbfounded.I am one year post treatment all my scans have come back NED.What im wondering has anyone had a problem with saliva not comeing back or taste buds.I never have got hungry.I live on Boost and…
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Weight gainer
I am 2 months out from 35 rads/6 cisplatin, lost 35 lbs. Had been drinking smoothies, after treatment, of milk, ice cream,and berries, but was gaining little back. Friend suggested Bulk 1340 from GNC, usiong this and working out, I have gained back 7.5 pounds this past month. Goes down easy, little is fat, and has made a…
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Lymphedema
Hi all, I have read the Superthread but haven't found my answer. I have watched the videos and am doing MLD for small to mod swelling under my chin, 8 weeks out from chemoradiation and big neck dissection in July. I have booked an appt c an MLD specialist to make sure I am doing it right (though I must be as it disappears…
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I'm a really, really bad pet owner :(
I'm not kidding - I thought I'd share so no one else does the same. Whenever I do roast chicken, I always boil the bones after and make chicken vegetable soup, yummy! so a few times a year - I'd make soup, and my dog would get a ladle of it on her food, for which I was greatly loved! When I was diagnosed, and thru…
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Husband not eating...very worried
My husband finished his last Cisplatin chemo on 1/16 and his last radiation on 1/23. He does not have a feeding tube. It has been two weeks since he has had anything to eat. No Ensure, nothing. He is barely able to even swallow water so he goes every day for two hours of IV fluids. He continues to lose weight. He’s on…
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Worried about PET scan next week
Had my first follow up with the ENT today and he said everything looked ok but depending on the out come of the scan whether I would have to have more treatment, specifically a neck dissection. I had already thought of this but now I'm so worried and can't get it out of my mind. I think he said even if it lit up a little…
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Just started radiation SCC vocal cord Questions???
Hi all, just started photon radiation therapy on the 21st of December. I am just on the 9th treatment of 28 and I have what feels like a lump in my throat everytime I swallow. Is this normal so early? They said after 4 weeks it might start to hurt and its already starting to feel like its so raw. Also very red on my neck.…
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Possible Tongue Cancer
Hi everyone. I have been having strange symptoms. My tongue, inside of my cheeks and roof of my mouth are red all swollen. The papillae on my tonge are raised and red. My mouth burns everytime I eat something. The burning intensifies with hot foods, minty toothpaste and minty gum. I feel as though something is caught at…
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Mouth sores two months after chemo/radiation
I finished my 45 radiations and 4 treatments of chemo two months ago. I had squamous cell cancer in my mouth. This is my second time 11 years later. Problem is I now have a mouth sore in same spot? I have no saliva at this point so wondering if it is thrush or if cancer could come back in less than 2 months?? Or dry mouth…
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Partial remission NPC
Hi, previously this week I asked a question in regard to my husband 3 months post treatment CT Scan. He is scheduled also for an MRI and a PET scan mid february by then it will be 4 months since last radiation. thanks to a reply I got the term partial remission out of the discussion, so thank you. We were both surprise to…
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Skull bone tumour - extreme dizziness
Hello all - I wonder if there is anyone on this site that has been diagnosed with a tumour in the skull bone. I have CRC with liver mets and currently post on the CRC site. I am having a biopsy on a skull bone tumour that I have in behind my ear. It was diagnosed through a brain scan due to feeling a little off balance.…
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Tonsil cancer/ melanoma
Hi my husband was just released today from the hospital after having a neck dissection. Lets start from the beginning. Almost a year ago my husband had a swollen lymp node on his right side of neck. He said it would get big and be sore then get smaller. Since it would only bother him every now and then, never had it…
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Head & Neck SCC 2 1/2 weeks post treatment
Hello, My Husband is 2 1/2 weeks post treatment for H&N squamous cell carcinoma hpv+, right side of his neck stage-4, 5 lymph nodes involved, no known primary. Treatment consisted of: 35 IMRT radiation treatment, 1 Treatment of Cisplatin, treatment had to be changed to Carboplatin and Taxol, total 3 treatments, and pain…
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Question about remission, etc
hi, new to the board. My husband has nasopharyngeal cancer with lymph nodes metastasis and Epstein Barr Virus markers. He received 35 rt and 5 cisplatin, the 6th had to be cancelled due to febrile neutropenia. He finished his treatment in late october and was told that he was in remission for the next 2 years. Since he did…
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Grade 1 Osteoradionecrosis
Dear all, I waa treated for right tonsil SSC. May las radiotherapy was on July 2016. Today,I had a denist appointment. They found out that small piece of my upper jaw bone is eposed( here is no gum soft tissue to cover my bone. They mnrion about oseoradionecrosis. I am woiying abou it. They will check me gain in 3 mo…
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2.5 yrs out and experiencing side effects
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One Year on...
It's a year since I had "that feeling" that something just wasn't right. Almost a year since I insisted on an US and scans, and come February 17, it'll be a year since I was told "you have cancer" So here I am, 7 weeks of radiation, 2 cisplatins, (couldn't do 3) a modified radiacal neck disection later.. oh and 110 pounds,…
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Father - New Floor of Mouth SCC diagnosis
Hello everyone, I'm new here. My father was just diagnosed last week with a Stage 4 floor of mouth squamous cell carcinoma that has spread to lymph nodes (6.1cm tumor). We have been going through a whirlwind of appointments over the past week. The good news is that the cancer has not spread anywhere else in the body, the…
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Peg Tube Question
My husband has finished 3 rounds of Cisplatin Chemo and has two more rads. He doesn’t have a peg tube. He is barely eating. He’s probably getting less than 500 calories a day. I’m extremely worried. Even though he’s at the end of his treatment can he still get a feeding tube?
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Nausea
Hi everyone... Hope everyone is doing well ! I have a wquestion about radiation treatments and nausea. I am on #13 of a total of 30 treatments. Almost immediately I started to feel some nausea. When I have brought this up to my radiation doctor ,he says radiation does not cause nausea only chemo ( I am not doing chemo) so…
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Hearing loss
It has been 5 months since my last treatment (35 rad with 2 chemo) for HPV tonsil and tongue.. I cannot hear highpitched sounds and voices are muffled. Background noises seem to be louder than ever. My ENT says my hearing loss is due to my age, 62, and not my treatments. He thinks it is a coincedence that I am noticing it…
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SEcond time around tonsil cancer and nasopharyngeal cancer
In 2010 I had a late stage SCC of the tonsil with mets in the neck. I was successfully treated with chemo radiation (65 grays over 6 weeks) and after had neck dissection of Right hand side. I had a second cancer diagnosed this year with SCC in the parapharyngeal space, the GPs really let me down and did nothing quickly…
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Radiation
My husband has completed 19 of his 35 radiation treatments. He has completed 2 Cisplatin chemo treatments. So far he’s doing pretty good. Although his taste is pretty much gone he’s still eating most everything. At what point over the 16 treatments will things start getting really bad? Thanks!
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New and ready to fight
My husband was diagnosed in September 2017 with SCC HPV+ tonsil cancer. He is 41 and otherwise very healthy. He had a neck dissection and tonsillectomy in October and will be starting seven weeks of radiation and chemo very soon (Cisplatin 1x week). Right now, he is in calorie loading mode and trying to eat as much healthy…
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How soon after completing treatment did y'all get a scan?
My husband is on his F I N A L week of treatment for Stage IV BOT HPV+ SCC. He's had 30 (out of 35) radiation treatments and 7 (out of 8) Erbitux infusions. (If anyone wants more details you can click on my name and read the "about me" page. I know that, when I read other's posts, I always wish I knew more about their…
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Tongue cancer
I am interested in what treatments were done and in what order? What was the outcome?
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Bad Taste in Mouth
Does anyone have any tips for getting rid of the bad taste. My husband has completed 23 of 35 radiation treatments and 2 of 3 Cisplatin chemos. He had one bout of thrush but the Nystatin has cleared that up. He has a mild sore throat but right now ibuprofen seems to help. However, the awful taste in his mouth is preventing…
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Peg tube build up
Got my peg tube switched out over a month ago and a week later I already started seeing food sticking to the inside of it. The first tube I got didn't have build up for several months. I always flush it with hot water but that doesn't help. I've even tried alkaseltzer but nothing seems to stop it. The tube is so tiny I…
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small cell throat cancer new diagnosis help
hello,i am new here my father got diagnosed with small cell throat cancer. quick background on him he is 70 a smoker pack a day. other then that he dosnt really drink booze eats healthy ect. he was a fire-fighter for 25 years he is also a vietnam vet. this all came rather as a shock he was fine then on my birthday dec 19th…