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Old fashioned sick
I THINK I have one heck of a cold. Called one of my drs. yesterday and a nurse told me that my symptoms are from radiation (which ended months ago). Waked today with 101.4 trmp and a bad sore throat that feels very swollen, have slept most of the day and my nose runs and runs.Does anyone remember a time like this? I'm…
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4 months out from treatment and side effects
I was diagnosed in March 2017, went through 7 weeks radiation and 3 cycles of cIsplatin and had my 3 month PET and all is clear. During treatment I worked and immediately after was in the office full time. I wasn't feeling well,but powered through and did what I could each day. It's now 4 months after last radiation and I…
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Newbie Here
My husband was diagnosed with throat cancer the end of October. He wi start his 4th week of radiation and his 2nd chemo tomorrow. He has a lot of mouth pain but hasn’t started pain meds yet. We will ask for those tomorow. How much worse can I expect his pain to get over the next four weeks? And should I expect he’all need…
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To Radiate Or Not To Radiate That Is The Question
I posted here about a month ago and a great many of you responded to my questions and offered some very good insight and now I'm back. I had a "radical" neck dissection on March 9th and now I am in recovery. According to the ENT surgeon, he got 99% of the cancer in my neck and the doc's did locate and remove the source of…
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throat cancer
My dad was diagnosed with throat cancer and done 30 radiation treatments it was on both vocal cords. After the treatments the dr said it was gone and he would start to heal in a few months. well one side healed up fine the other side has not he said he fill a knot in his throat now and has coughing fits also. the Dr said…
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Ways to stay full when on liquid diet?
I'm only on tube feeds, I do 5 8oz osmolite a day. I've been having an issue with getting hungry too often. I'll eat then 3 hours later I'm hungry again and I can hardly stand to go all night without something, I wake up at 4am super starved. Before when I ate normal I could eat dinner at 6 and not even eat till 10-11 the…
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Neck dissection on Monday 9/23
Hi all, Quick recap - 29 year old and had a T1 superficial SSC on the right side of my tongue back in February. Nonsmoker, light drinker, and HPV-. Was told it was unlikely it spread to the nodes after successful surgery and negative margins. I have had a swollen lymph node for about a month now, and it is increasing in…
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Need help finding surgeon for carotid body tumor
Hi all. My 39-year-old husband has a carotid body tumor. We're in Chattanooga, TN. The surgeon we met with yesterday says we need to find a surgeon who has as much experience as possible with carotid body tumors. Can anyone make any suggestions? We are willing to travel and we are close to Nashville, Atlanta, Birmingham…
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Considering sucked
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The C: Section Chronicles - Last one of 2017
The C: Section Chronicles - Last one of 2017 This year has certainly been rough, but not the roughest I have had. It is 8 months to the day of my LDOT (Last day of treatment), and while I have tried to keep a positive outlook on it all I have come to the realisation that life is on a very slender thread. We don't know…
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Merry Christmas / Thank you / Update
Hi, just wanted to say Merry Christmas and a big thank you to you all! My husband is 6 weeks post treatment (HPV+ BOT SCC Stage IVa treated with 35 radiations and 8 Erbitux. No PEG) and is doing pretty well. This site was VERY VERY helpful in regards to reading about other people's experiences, tips, suggestions, etc.…
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Physical activity post treatment
Anyone else feeling way, way out of shape after treatment?(several months out) I think I have about 85% of my energy back and yet to go on a simple walk I can't do anymore than 30min, and I am way slowing down about halfway through. I am very tired by the end of th e walk. I used to be able to walk same speed for a good…
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Olfactory Neuroblastoma Treatment
Hello, I was diganosed with Esthesioneuroblastoma (Olfactory Neuroblastoma) on August 15, 2017. I am still learning about it daily. I went in for a full resection of the tumor which had eaten through my cranial wall into my brain cavity on August 31, 2017. I will be six weeks healed and the craniel patch estabilshed this…
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Taste still not returning
Whats the deal? Last chemo was first week of August. Last radiation was middle of July. Here we are at December and I still cannot taste 99% of foods. I don't understand, I didn't have tongue cancer, they didnt zap my tongue directly or any of my mouth, just my nose area forehead and neck. Any ideas why it's not returning?…
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Anyone had SSC of the mandible with surgery and radiation that can share their experience with radia
Hi... I am new to this forum and very grateful I found it ! Such wonderful people and the wealth of information is truely a blessing to anyone facing HNC. I found out I had SSC of the mandible in Sept. this year. A mandiblectomy at the end of October and another surgery the first of November because the margins weren't…
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Rhinectomy
Hi - I'm new to the board. Three days out from a complete Rhinectomy. I have follow up surgery Monday for lymph node dissection in the neck. Radiation scheduled to start around Chrsitmas. Can anyone hsare any experiences s to what to expect over the next few weeeks and about radiaton treatment? Thanks,
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Cesplatin and hearing loss
I completed Radiation 35 treatments and 3 chemo cesplatin on Sept 1st for HPV. Since then I have loss a lot of hearing probably left with 20 percent and also have ringing In my ears. Has anyone experience this and gained hearing back? I am hoping since only a month ago I will improve. If anyone has a positive story I would…
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Tumor left tonsil
My experience started a year ago with a lump on left side of neck with swelling. A CT was done and subsequently referred to ENT. Biopsy was negative but ENT treated with antibiotics and swelling went away but still a small lump and a very slight sore throat. ENT not satisfied and wanted a 6 months checkup. Another scan and…
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Slight swelling externally to throat/clavicle post treatment?
I'm 3-months post treatment for SCC BOT HPV+ Stage 3. Other than dry mouth and some slight fatigue, I'm doing really well and pretty much back to normal. That said, over the last week I've noticed a fullness or swelling externally to underneath my chin and down my throat - extending to the top of my clavicle. It is not…
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post fibula free flap
Hi everyone! My story is much like everyone else's here..glad to be a survivor...original cancer was tongue..squamous cell hemiglissectomy with unilateral neck dissection done in 2002 with radiation to follow. Did fine until November of 2012 when we discovered osteoradionecrosis set in and basically ate up lower jaw…
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just diagnosed with adenocarciaoma
Just had a biopsy on a mass in the side of my neck.It came back adenocarciaoma.Go to cancer doc tomorrow, dont really know what to expect.Anyone else familiar with this this type of cancer?
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Dumb Question
I know I have created several threads, with the last one mentioning that it would be my last thread, but I am just really confused and looking for help. As noted in previous threads, I have had multiple biopsy completed for a spot on my lip that I was concerned about. First biopsy was completed early August and just had a…
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Number of PET scans
Hi, I thought of doing a poll on the number of PET scans you had. I think its important in early post-treatment time, and should reduce as time progresses. Although, the management of it seems divided. Some do it only when another scan cannot decisively confirm the presence/absence of tumour. Here's the data if the…
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3rd CT scan
So tomorrow my hubby goes in for his 3rd scan post treatment. The last two were completely clear. But still there’s the worry that this time.... I’m choosing to remain positive and pray for the best. send positive vibes if you will
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Proton radiation therapy (Procure) questions ( 2nd time getting RT)
Hello all ! just discovered this board after my husband being initially diagnosed with Base of tongue HPV positive cancer 4 years ago .Well after being free of cancer 39 months his cancer has reoccurred ( maxillary sinus and some muscles and the base of skull again..Clivus ) .My husbands original cancer was very extensive…
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Completed 4th year H&N
i have completed the 4 year mark. I only have 2 6 monthly check ups .....the the doc says he won’t need to see me again after that.
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nasopharyngeal cancer
I am looking for anyone who has had this type of cancer.Or who knows someone who has had it.It is rare in the United States and I am having difficulty finding people to talk with about this .Any information would be greatly appreciated.Thanks!
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The return of normal
Like many here who have experienced treatment (as patient or as caregiver) I have gone thru much change on taste and drymouth. I am a bit less than a year out from last treatment, and today, suddenly and unexpectedly, I awoke to find my taste clear and full, and I am enjoying at least a day of regular quantity and quality…
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Vocal cord cancer
My Son in law has cancer of the vocal cords. He has had three surgeries - two biopsies came back clean, but the third one came back with the "C" attached. His surgeon feels that the only way to save his voice and rid himself of this cancer is by using the KTP Lazer. After the first two surgeries, their insurance kicked hem…
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Severe Trimus
For some background here... I had throat cancer in 2012 with 4 rounds of 24/7 chemo and 35 rounds of radiation. I recovered pretty well and was fine until 2014 when it retured with the tumer being higher in my throat, this was follwed by 6 rounds of chemo and 33 rounds of radiation. This is where things really fell apart.…