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Oral Cancer treated with Surgery and Radiation
Good morning, I was recently diagnosed with early stage oral cancer. After 2 glossectomies and the removal of my lymph nodes I am now going through radiation. Fortunately the nodes were clean and from what they tell me the radiation is a lower dose and only 30 sessions. I am currently through 9 of the 30 and am starting to…
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Is this the end? Or am I being negative? Input please.
Hi, all. I just had a few questions. My father was diagnosed in May of last year with stage four H&N, which unfortunately has metastisized to his lungs. He had relatively little disease in his lungs, but we have not done a scan in four months. I am doing research because I am aware that he is categorized as "terminal," but…
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One month post treatment
Hi, Me again. My 72 year old dad had his last radiation treatment on Sept 29th. He had 5 days a week for 7 weeks radiation, and was to have chemo once a week for those 7 weeks. They had to stop after the 5th chemo because of side effects on his blood. They did not resume that treatment, so he missed the last two chemos. He…
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Travel after rad/chemo BOT cancer treatment
My husbsnd starts Radiation/chemo treatment for stage IV squamous cell BOT GPV+ cancer. He is slated for 7 weeks daily radiation plus chemotherapy. We normally spend our winters in the Dominican Republic. I would like to cancel but he is insistent that after the radiation ends that in a week or so he would be able to…
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Tongue Biopsy pain
I had about a 1/4 inch in diameter size biopsy taken from under my tongue yesterday. The pain is in my throat, jaw, tongue and ear. Does anyone know how long it will last? Im trying not to obsess about the results but after reading some stories I relate to so many symptoms. Had the white spot on tongue for a year and a…
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Anyone experience thrush in their esophagus??
So my husband is starting week 5 of treatment tomorrow and has just been diagnosed with thrush in his esophagus! He can get soft food and liquids down, but he says it BURNS so bad in his upper chest area. His doctor has him on Fluconazole so I am hoping that clears it all up asap. Just wondering if anyone else has…
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Erbitux? How soon did you develop the rash?
Hi, for those that had Erbitux, how long did it take for you to develop the rash? My husband had his first round 3 days ago and no rash yet! I feel like I want to see the rash to know that the stuff is in there and working! Not sure if there is anything to that or not...I've seen opinions on both sides.
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I am retiring after cancer treatment.
I am 5 months out from treatment and a month NED after scan. I worked through treatment some days off. And the company was great. I feel I'm letting them down but I can't really do the job I used to do. I'll be 64 a week after I pull the plug. We will pay for cobra for a year and pray cancer is gone. I'm feeling like I'm…
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Another Rare Cancer
Looking for anyone who has Olfactory Esthesioneuroblastoma.
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Severe Tinnitus after Erbitux and Radiation
Hi Everyone, It's about a year since I was first diagnosed with a BOT SCC, first had a tonsilectomy to confirm it was cancer and then started treatment in January 2017. I completed 35 Proton treatments and 5 rounds of Erbitux in March and had my 6 month PET/CT a little while back and everything looks really good with no…
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Parotid Cancer Recovery
I have had neck surgery to remove my tumor of the parotid gland, along with six weeks of radiation to my neck. I finished two weeks ago, but can not seem to regain my strength. I have already lost 15 lbs. and can't afford to lose any more. My mouth is finally healing, but with the dryness and taste problems, nothing is…
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Last Question / Advice
I apologize in advance for creating a new thread, but I wanted to write out one long post, to both vent my frustration and how scared I am and to look for advice. For starters, I have had been a user of smokeless tobacco for roughly 8 years. On and off, there would be times that I had quite, earlier this year I had quit…
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Scared
Just joined I have an ENT appointment in 2 days. I noticed a pea sized lump back middle of tongue it's maybe even smaller than that about 3mm. Swollen lymph nodes in neck started a few weeks ago. Went to 3 doctors and dentist for 5 months for what I thought wasnswollen large taste buds or thrush or infection and they gave…
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How am I doing so far?
Hi All, my second time trying to post a thread, so hope both don't show up. I am in 4th wk of chemoradiation and looking at advice to carry me through the last 2.5. I have no ng tube and am this week drinking 5 boost/ensure + h2o per day. Meticulous mouth care, but a few small ulcerish areas controlled c 2% lidocaine spot…
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FREE medical grade Aspirator Pump to patient in OKC area
Hello all. I recently completed my treatment for SCC base of tongue cancer. While going through treatment we purchased a medical grade aspirator suction machine to aid in my extremely thick mucus I was producing. Unfortunately, even though it was advertised as being able to suction thick mucus, we could tell as soon as we…
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Fluoride Trays
I just spoke with my husband‘s dentist about fluoride trays. He said that in theory they are a good idea, but in practice they are not.He said it is not a good idea to leave fluoride on your teeth for that long. Also, since we now have fluoride in our water and toothpaste and mouth rinses it is not necessary. He suggested…
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Post squamous cell carcinoma base of tonque questions
Hi Everyone, I was diagnosed last May with Stage 4 squamous cell carcinoma, started at base of tongue and spread to lympnodes on right side of neck, 2 large tumors that turned into one big one... I'm 44 never smoke, occasional beer drinker.. I had no pain or symptoms at first, until I felt the lympnodes which came on…
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Cancer Still Growing
Hi everyone, I'm new to this board but not to the cancer. I'm about to explain the road I've travelled for about four years and where I'm headed. I wanted to sort of vent to others who understand. Four years ago I had a swelling under my arm. I went to the doctor first thing the following morning. He thought it might be…
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6 Months since LDOT (Last Day of Treatment)
It's been a rough ride, but apart from dry mouth it looks like clear sailing ahead. My oncologist says I'm NED and that is good enough for me. Finally getting energy to get out and do things although my interest in the garden has wained. What used to be a pleasure now takes an effort. I'm hoping that will change.
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Side Effects
I was doing pretty good until Friday evening. Then the vomiting started. It wasn't time to take another pill but it wouldn't have done me any good. I ran a fever complete with chills for about twenty minutes I suspect, and the throwing up continued through the night. When I thought it was safe to take a pill I threw it up…
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Return to work
Dear all, I am preparing to return to work. I would love to here about your experiences. Do and do not suggestions? I am debating between disclosing my diagnosis or not. Any advise would be appreciated. Thanks in advance
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CAT SCAN RESULTS AFTER 2 MONTHS OUT OF TREATMENT
CAT SCAN RESULTS Study Result of CT Scan Impression 1. No discrete left vallecular mass seen comment there is soft tissue fullness in the region which could represent post therapy change, but residual mass is possible. 2. Interval decrease in size of the metastatic left cervical lymph node, now measuring 1.2 cm. 3. 5 mm…
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2 weeks post radiation/chemo
Hi, My 72 year old father finished 7 weeks of radiation 2 weeks ago today. He did do weekly chemo also, but they stopped that after week 5 bc of his blood counts. Currently he is exhausted and spending most of his time sleeping. Is this normal for this point in time? He is still choking back the boost, he doesn't have a…
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HPV related cancer made the evening news
I was watching the NBC national feed news last nite and there was a segment about all the new cases of throat cancer in men related to the HPV virus. To bad the vaccine wasn't available when were kids.
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"Best" hospital for Head/Neck?
I am very pleased with the care I've been receiving at University of Chicago Hospitals (live in Chicagoland suburbs), but my squamous cell tongue cancer has proven to be quite resistant to chemo (and is described by one doctor as "mean"), and I'm no longer a candidate for follow-on chemo/radiation. They are down to choices…
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Audio Recording Doctors Visits
I've noticed in a few threads people mentioning that they were frequently frustrated with the fact that they often forgot crucial instructions or what was said during doctors visits because of the medications they were on or simply because of the chemo fog their brain was in. Some said this is why they tried to always…
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Nausea won’t quit
Hi All, well, I finished treatment two months ago and have to say I feel the after effects are far worse than the treatment. I had delayed radiation burns to my whole neck which we treated with the creams and they went away. I had the mouth and tongue sores but dealt with those and managed to maintain my weight so the…
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Proton Beam Therapy?
I've been doing some research on radiation treatment and found a couple of references to proton beam therapy. Only a few places in the country but lots more planned. Anyone been treated with Proton Beam Therapy instead of IMRT? Would like to hear how it went (side effects). Lizzie
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tips for getting through cancer treatment that worked for me
When I was diagnosed back in March, I was able to connect with some different individuals who were going through the process, or had just completed treatment, ahead of me. Here are some of the suggestions that I took that might help others. Some came from the my team at Sloan Kettering, as well. I'll give some quick stats…
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Post treatment therapies - survey
Hi all NPC survivors! I was treated for NPC stage 2 in 2013. Doctors did not recommend or mention of any therapy for side effects from chemo and radiation. Did anyone had or having any therapy post treatment besides medications? It seems we are on our own once we rang the bell. Please share your experiences if you receive…