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Head and Neck Cancer

6 month NED!
Dear Cancer, You have taught me so much!!!…. Sometimes I want to say thank you for the teachings, but mostly I want to say SCREW YOU forever. (You had me once, but never again.) BECAUSE OF YOU I: • Pray and PRAISE GOD constantly. • Live every minute to the fullest. • Am starting my bucket list early - NOW. • Verbalize and…
19 weeks and 3 days out of treatment today
So after all the fun off 7 weeks radiation and 3 high doses of Cisplatin I ran my first marathon of the year today at 57 years of age in 3:35:20 and placed 2nd overall. I was 5 minutes slower than before treatment for the same race as last year so I guess at the moment the new me is just about the same as the old me. It…
Post treatment check up
Hi, my father went for his first post treatment check up today. He finished treatment at the end of September. We were expecting them to scan, scope whatever his throat to see if the cancer treatment worked. They took blood, and then used a mirror to look at his throat and said they thought it looked OK, but would like him…
(Video) Had my first post treatment scope done
(47yr male, good health, SCC BOT HPV+ Stage IV) Last week I had my first post treatment scope completed by my oncologist. I am two months post treatment. She wanted to wait until my throat had healed some before trying to scope me (I appreciated that). Other than a swollen and shortened epiglottis and some ulceration, she…
Trouble Eating
It's been over a year and a half since my treatments and my taste still is not back to normal. A lot of food I try to eat taste very hot or spicy to the point I just can't eat it. Like, ketchup, salad dressing, pepper, red sauces and more. If it even has the smallest trace of one of these I can't eat it. Has anyone else…
Skin sensitivity? (head, chest, arms)
Just wondering if anyone else who went through radiation and chemo if they experienced unusual skin sensitivity post treatment. I'm 2 months post and for the last 5 days I've noticed in parts of my body with hair that I've developed some soreness. Specifically; the top and back of my head, both arms and across my chest.…
keytruda before surgery?
i have been offered to be in a trial for the drug keytruda - getting a dose 1 week before partial glossectomy surgery. All info i have read about keytruda is when it is applied to those who are unable to undergo surgery. I understand this is a trial, so maybe this is a new approach. has anyone experienced this approach?
What to eat when everything tastes like cardboard?
I know the superthread has info on this, and trust me, I've been there. I have tried so many things from there with limited success. I'm hoping to get some more current ideas of what to try on my husband. He's hungry and willing to try things, but we have a very limited menu right now. He was able to eat beef bone broth…
Epiglottis Issues Post Radiation Treatment
Bio: 47yr old white male, good physical health, no smoking, no drinking, diagnosed with SCC base of tongue involving one lymph node - HPV+. I finished treatment 5-6 weeks ago (35 rads and 3 large doses of chemo - no surgery). I had a pre-existing condition of trouble swallowing due to untreated GERD prior to cancer…
Neuropathy
8 years after chemo and rads for larynx cancer my neuropthy, which started in my feet about 3 months after has, over the years, gotten much worse, it has now travelled up both legs to my knees, sometimes making it difficult to walk. The calf muscles stiffen up and sometimes I cannot feel the floor. The good side is that it…
Endoscopy
I had an appt with the surgeon who will carry out my endoscopy. I was in two minds whether to have it done or not. It's not the normal endoscopy, they will go through my PEG tube site up to my esophugus and another surgeon will go through my throat and hopefully they will meet in the middle. They haven't done many of these…
Jaw and Ear pain -SCC
Hi All Did anybody had ear and jaw pain after chemo and radiation therapy?? I'M having this for past 1 week as my oncologist is out of the country. I completed 33 rads with 6 chemo sitting on Sept 21. Please reply with your valuable thoughts. Thank you
Benecalorie
Has anyone on here tried Benecalorie? It is a high calorie protein supplement you can add to food. Has it worked out well for any of you?
lymphedema, scar tissue, muscle spasms after treatment
I've had severe lymphedema pain (and ongoing treatment for it), but now the therapist is working (painfully!) on scar tissue in my neck To top those two, my pain doctor has diagnosed severe muscle spasms and referred me to a neurologist (who cannot see me til January 11) for botox. Has anyone gone through any or all of…
False teeth
For those of you who had to have all teeth pulled prior to surgery and radiation, how long after treatment were you able to get new teeth? I do not know what anyone else has gone through. thanks - Martha
FDG Avid nodular Lesion is Seen in left cervical region closely abutting hyoid bone
Hello There, My Father is sufferring with serious headache and a tumor type in neck. He had gone through a cancer operation of mouth in july 2016, could it be the side effects of cancer again ?? I AM PUTTING THE LATEST PET/CT SCAN REPORT BELOW please explain me the actual disease my father is suffering from ? Brain: No…
SSC
Hi All, I was diagnosed with SSC - Base of the tongue by july 2017.. successfully completed 33 rads & 6 chemos... After one month of treatments took PET Scan & the results say the tumor is not shrunken as expected, also never spread to any other organs. Tumor size is 20×50 mm ... Only 3 lymph nodes affected.. What can i…
Blood seen during ENT scope
Had appointment with the ENT doctor who scoped me and saw an inflamed area that had a spot of blood on it. This was the same area as the tumor. He asked me if I had been spitting up blood and I said I had not seen any blood. I asked if it was just a spot that had not healed yet (only 11 weeks out of treatment) and he said…
Six Years Out From Stage III Base of Tongue- Hang Tough!
Six years ago this week I got a call at work from my doctor at 6pm on a Friday. I said to her "this can't be good". It wasn't. My CT scan had revealed a tumor at the base of my tongue with metastasis to my lymph node. Only a biopsy could confirm cancer, but the doctor, when pressed, felt certain that's what it would be.…
Tumors in the head/neck
Looking for help from anyone post op who has had neck surgery to remove a carotid body tumor. What if any complications have developed and what courses of treatment have been used for pain control/relief .
Latest scan results weren't what I wanted to hear It's back
I had my 3rd set of check up scans last Thursday. Met with the doctor today to get the results. Not what wanted to hear. I have another tumor in my left lymph node at the jaw and it is wrapped around the a cartirod vien. Scheduled for surgery on Monday at MD Anderson. Previous treatment ended in January. I had 40 radiation…
CT scan clear
My husband is 15 weeks post treatment for HPV+ stage 4 cancer of right tonsil with metasization to lymph nodes in the neck. He was given the all clear today from both his oncologist and his ENT. We were happy to get the good news. He will continue to see doctors every 3 months for the next year. He had 3 large doses of…
Allergic to Erbitux
Well, this clinches it. Of all the drugs I could have been allergic to it has to be this one. So they took me off of it and will start a regimine of Keytruda until, and I quote, "until disease progression or unacceptable toxicity for up to 24 months." I have run out of options. We are now working on my quality of life.…
Question about Cisplatin
I have a question to those that have had multiple doses of this poison please. As far as your side effects go, were your 2nd or 3rd doses the same as the 1st, better, or worse? I'm getting close to my 2nd dose and the 1st made me extremely sick. Thanks in advance.
Weight gain... how to plump up my hubby?
Hello all! It’s been awhile. I hope everyone is doing well. My husband is in his 6 month of post treatment. I can’t believe how time flies! Thanks goodness for that. He’s doing well. His first PET scan was clear and all dr. visits have been really good. His taste is coming along nicely and for the most part he’s eating…
Post Surgery Corrections
Hi, My son has undergone reuired surgery and treatment for SINOVIAL SARCOMA on Left Temporal regison. He had to forego his left JAW MUSCLES in the process which has created a deformation (CAVITY) on this face. It is 4 + years now and doctors are suggested to go in for FACIAL SURGERY to correct the deformation. I am…
18 weeks post treatment all good
Just had my 18 week consultation with my ENT consultant and all is good, scans look good. My next appointment is in January.
Therabite or Orastretch
Anyone have one for sale? My husband has severe trismus after 7 weeks of treatment for stage IV Tonsil cancer. Unfortunately they are over $400 retail so thought I would check here as money is a little tight at the moment.
Cancer of Tonsil - PET scan Question
Hi all, I'm the caregiver/medical advocate for my husband who was diagnosed with Stage iV, Tonsil with METS to Lymph Node. We found the lymph node first which was 3.5 cm by 4. We had an excellent ENT who has Oncology Exp. And went from AnitBIOMeds/Scope/MRI/Biopsy/PET and then Surgical Biopsy with Option for Neck…
Urinary Incontinence
wo weeks ago I started the new chemo treatment (Erbitux). The day after my bladder just decided to start leaking as I was walking to the bathroom. Then for my next chemo, last week, it happened again. And one night in bed. Since that time, there was a complication and chemo last week had to be postponed. Now I don't have…

Head and Neck Cancer

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