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Vitamix owners can you testify?
So I bought a Vitamix so I can make tube feed out of real food and then smoothies... From what I've read you can basically blend anything, add water so it flows, strain and pour in tube? Just wondering what kind of stuff people make. Food again, right? Haha!
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white spot on tongue
Hello, my name is Janice and I am a bit nervous about a painful, white spot on my tongue. I have just noticed this yesterday while working. It hurts and I am constantly rubbing it against my teeth. It is extremely sore. I am wondering who to seek out regarding this. I am thinking of seeing ENT, but am unsure. I am no…
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Neck pain and headaches?
Anyone experiences headache and mild neck pain/tenderness 4 years after NCP radiation? I'be been heaving mild headaches, more noticeable on the right side of my scalp but also on the left and at very top of my scalp. I'm bald so i joke about my scalp feeling cold when I get sick. :) but I have been noticing this for the…
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This Just In
I JUST RECEIVED THIS TODAY in an email from HNCA (Head and Neck Cancer Alliance) It's a free film you can watch on laryngectomees that overcame their issues and sang concerts. It's available to stream: Sep 9th - Sep 18th and you can see a trailer video now. There will also be a Q&A By registering for the screening, you…
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Ongoing appointments
I skipped mine. I know, I know, but I am all hospitalled and doctored out. If I never see another it'll be too soon - not just cancer, blew my left knee, and my right hip is bone on bone - which I WAS going to get taken care of so I can ignore it till it hurts again, but my son fell climbing and has .. wrecked is a nice…
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Five Year Post Exam
Five Year Post exam today. Clear. NED. I do not feel like I "beat" cancer. I think we fought to a draw, and I hope to avoid a re-match. I started Stage 2, SCC +HPV-16. I received 35 IMRT, and 5 Carbo Taxol. I was scheduled for 7, but by the end was so beat-up we decided to rely on just the radiation. I started at 235 lbs,…
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New cancer on the opposite side from 5 years ago
OK>..We know we have tongue cancer on the left middle area of the tongue....and we know we face a glossectomy and flap. BUT I am afraid he has more than we know as he is having the same ear, temple, estation tube, trouble swallowing, and jaw ache that he had when he was diagnosed in 2016. This just hit me and now I'm…
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Made my choice for treatment
So, I de ided before meetung with radiation Dr today, that I will go with Rads and Chemo for 7 weeks. During my meeting, the Rad Dr advised that surgein said during tumor board duscussion, that he felt that gking the surgery route would shiw that they could nit get clean margins, si he advised rads and chemo would be a…
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partial glossectomy with radial forearm free flap
We got the call we had dreaded today. After a squamous cell carcinoma tumor in the spring was removed and we thought all was well we have now have a reoccurance in the same part of the tongue. Next week we will go to Siteman Cancer Center in St. Louis, MO for a soft tissue CT and a PET scan. Soft tissue CT on JULY 8 of…
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Radiation Residuals
Hi, Hubby is almost 5 years past his last H&N treatments. He had chemo for 8 weeks and then 7 weeks of chemo and 35 radiation treatments. now he seems to be having some pain that we think might be from the past radiation. temple headache, ear ache, pain into estation tube, jaw pain, and most recently trouble swallowing. He…
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High Protein & High Calorie drinks recipes,
Hello to all needing the extra nutrition , ! These are rather basic, with no exotic type ingredients . They were in fact given to me by the Nutrition dept here, way long before my cancer, because I have had a strictured esophagus and trouble swallowing long before cancer. My doctors knew that my Radiation treatments would…
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How often do you get imaging done for nasopharyngeal cancers?
Hi everyone! hope all is well. I haven't posted for a while. I hope everyone is doing well. My dad has been doing great. I'm curious how often is CT scan normally ordered for nasophangeal cancer 3-5 years post treatment if you don't have symptoms? it's been about 4.5 years since dad's last treatment and it seems like they…
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Travel Insurance Denied
Although I love traveling with Overseas Adventure Travel, they use a company called Tripmate.com for travel insurance. Tripmate is a truly evil company, I purchased their cancel for any reason trip insurance via the Overseas Adventure Travel website. Then when I was diagnosed with throat cancer a month after purchasing the…
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Base of tongue cancer
I myself have been battling cancer in throat since 2013, had a billateral neck dissection, a few years ago I had a ulcer come up on the base of tongue and after consulting my doctor I was told that this was just an ulcer, well after about 4 months they finally did a biopsy, and found out that I had cancer on base of…
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tongue cancer - reoccurance
Hi All, After 9 years my tougue cancer is back. I just got the biopsy result today and made all the follow up appointments. Anyone went thru reoccurance? Any advice? I know second time around options are liited. This group helped a ton my first time around. I am so grateful for this group. Thanks, Sam
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Deciding between 2 treatment options
So, I met with 3 Drs yeaterday. Chemo, Radiation, and ENT. After the meetings were over, We walked out with 2 options to pick from. Surgery by TORS to remove tonsils, follwed by removing swollen lymph nodes in neck along with radiation, with a possible Chemo backup if lymoh nodes appeared ruptured. Or, Chemo and Radiation,…
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Tongue Flap complications
Hello fellow HNSCC patients/ surviv Its been a long time since I have posted... This month, I am 4 years out from my diagnosis, G Tube, etc. I am 71.5 pounds...and my tumors have been Recurrent, even after Radiation treatments. My esophagus is severely strictured--- Twice it closed up completely... For 2 year now, I have…
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tips please for TORS & neck surgery.
Greetings. I'm having TORS on the base of the tonque and regular surgery on the top lymph node(s), just under the jaw bone - both on the right side on 8/24/21. They have yet to confirm the primary and are going exploring on the base of the tongue. Squamous Cell + HPV. This will be in Seattle at Swedish and then any…
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Checking In
Hi everyone. Sorry I haven't been on here in awhile. Just had an appt this morning with my ENT. I'm still on a permanent trach and FT unless I opt to get a larengectomy. I have to have my trach and Gtube changed every 3 months. So not fun at all, plus being scoped every few months, which I have been refusing until today.…
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Summer Flowers
Around the house. I hope everyone is enjoying God's Blessings of summer's bounty of fresh vegetables and lots of flowers and birds. Wishing a happy rest of the summer to all you folks. Wishing You The Best-Take Care-God Bless-Russ
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Any mid 20 year olds??
hey y'all!! I was 23 when I was diagnosed in 2020, I am finished with treatment and am now 24!! This may sound odd, but I Was curious if their were any other 20 something year olds on here that were looking for a cancer friend?! I feel like I haven't really been able to relate to many people in my life lately, which has…
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Immunotherapy for esthesioneuroblastoma recurrence
Hi, My boyfriend has a second recurrence of esthesioneuroblastoma that is a new tumor , nickel sized, located between his nose and eye. Drs offered the big surgery taking out the eye, some bone and tissue with then a flap put in place for the hole . They offered hope that this would stave off another recurrence. Then the…
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Hen and neck biopsy results are in.
So, my ENT called yesterdat morning to advise biopsy results came back as hpv positive squarmous cell. He mentioned the number 16 but, I did not think to get clarification on what he meant by 16. He said it is in the tonsil on left side, same.side as my swollen lymph nodes in neck. Can anyone give me info on this? He also…
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Cardiac Issues
I haven't seen any references to cardiac issues that arise after treatment, so I have to assume that mine are coincidental rather than causitive. I had a sleep study done prior to my diagnosis and treatment (3years prior) and then had a repeat done about six months after treatment that noted significant bradycardia. This…
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Zoom meeting for HPV Negative head/ neck cancer patients
Hello forum, Today August 1st I spent over an hour on the Phone for n a Zoom meeting. Tony is an attorney going through HPV Negative HNSCC,, and he contacted SPOHNC ( Support for People with Oral and Head & Neck cancer) because he wanted more information. Specifically, he became very aware that the Research he found…
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Dental care
What is everyone doing, or been instructed to do for regular dental care at home? Upon finihsing my radiation and chemo treatments in 2018, the folks in the dentistry molded some trays and instructed me to use a 1.1% fluoride gel with the trays everyday for the rest of my life. They were renewing my prescription for the…
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Open surgery for eye removal due to esthesioneuroblastoma
Hi, My boyfriend is in his second recurrence of esthesioneuroblastoma. It is now so close to his eye the doctors want to remove his eye and possible nearby structures....a ten to twelve hour surgery. Has anyone been through this? What was your recovery like, pain, postoperative care? Any info, personal experience or advice…
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Taste & Saliva
One of the big questions I had after finishing my treatment for HPV 16 tonsil / lymph node cancer was when I was going to get my taste and saliva back. I had 35 rads and 3 high dose cisplatin treatments. For me, this was one of the hardest things I dealt with. I would look thru these threads all the time to see the…
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Non HPV Squamous Cell Carcinoma, seeking
Hello Forum, Perhaps some of you also received the e-mail I got today, from Chris at The Head & Neck Cancer Alliance. I am curious to hear if anyone got the same letter. She is seeking someone like me, with Non HPV HNSCC, specifically to communicate with and support a like patient. His tumors are Negative for HPV, as all 6…
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TOOTH EXTRACTION
After finally finding an Oral Surgeon that accepts my insurance, I had an intial consult yesterday. He took a look at the tooth that was needing pulled (lower lateral Incisor) and said there would be NO NEED for HBOT treatment. He gave a couple reasons why and those were because my body was already trying to rid itself of…