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Is Your Care Team Caring For You?
I got a response from a man on this site after one of my previous videos where he mentioned that his care team did not do half of what I had mentioned mine did and I saw a clear opportunity for another helpful video ..and here it is. Please consider clicking the LIke button and or commenting below the video with your…
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Squamous cell Carcinoma Recurrency Nasal cancer
I would like to meet p[eople having recurrence of SCC
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My Treatment Plan
Carboplatin IV; Fluoracil (5-fu) IV; Keytruda IV every three weeks x 6 cycles. Time for some light reading.
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nasty pain , what now?!
Hi warriors, Havent been around for a while. Were to start steriotactic radiation on Sep 20. But , she has a nasty pain kind of in the left side of her throat, she feels its higher up and though its a constant it hurts most when she swallows. Got scoped twice in the last week to check this but they say everything looks…
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HPV16+ resolved with radiation 2 years ago, but now
When I got the Proton radiation, I asked my Oncologist what the chances were of it being curative, he said 98% in my case (soft palate). Now I have a 6mm spot in my lung that could be recurrence. He never mentioned that and I am livid. Was this a play on words? The more I read about HPV 16, the worse it gets, sounds like…
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Easy way to get more protein!
I don't know if it's been mentioned on here. It probably has, but my search yielded no results. I would like to bring it up in the event it has not, or as a reminder. WE need protein and many people need to gain weight! (I'll just use Orgain powder as an example here, there are many with more calories) 10 oz of FAGE yogurt…
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Thickening Liquids
Hello folks. I just want to make everybody aware of a product that thickens food and drinks in case you have trouble with coughing or aspiration during eating or drinking. I was introduced to this during my time in rehab in 2019 and recently started using it again. I never heard of this product or idea before so maybe some…
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Roll Call Reminder-Post Your Update Status
Hello all. Just a quick reminder if you haven't posted your update in the new roll call now is the time to do it. Matt has been working long and hard to adapt it to the new format and it is now available. To all of our H&N members feel free to post to the roll call which lets people know the basic stats that you want to…
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3 years today
It has been 3 yrs. today since my last treatment. I am doing pretty good I have 85 to 90 % taste back and went back to work after the 7 months that I was out for treatment which included TORS, radical neck dissection, and 33 rad tx. You can go to my bio for the full take if you would like. I still have dry mouth and some…
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4 months past treatment of tonsil cancer
Hello everyone, New to this post stuff. My husband had tonsil cancer caused from hpv, he is now 4 months past treatment. He does not want to eat, has no appetite, no energy, is this normal. I am so scared that he is never going to be normal again. I just would like to know if anyone else has this problem, oh yeah he did…
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New CSN Website-Post/Edit Picture and Images.
I have recently found there are a few things you can do with pictures you post on CSN. I recently added a post on tips on the new site and how much easier it is for everybody to add pictures or images. Well now once you post a picture in your post or comment there are a few things you can do such as shift the picture to…
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Ear Ache after completion of Radidation Treatment
I am almost ten weeks out and have started experiencing an ear ache on the side that recieved the most radidation. Anyone else experienced this....
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EAR PAIN
Good morning and hope all is well with my CSN friends. I have been having some ear pain lately. it is the ear on the same side as my surgery, and the pain only lasts maybe 10-20 seconds, but can be very intense. It seems like it is in my ear canal, not too very deep inside. My jaw is always sore, and wonder if it might…
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post treatment ear pain
Larngeal ca, no loss of voice box, one yr.exactly post treatment, radiation and chemo. I am having massive ear pain on opposite side of tumor. it has been exacerbating in the last month, can't lie on it and sometimes getting stabbing pain. Is this usual? any others with it? any hints to help
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Tube in ear
I went to the ENT today- couldn't take not hearing anymore. He drained my left ear and installed a tube . I can hear again. Hearing is still not what it was 4 weeks ago but at least I can hear out of my left ear. I told the doctor I joined this foreman and learned a few new words. Lymphodema - I asked if what was under my…
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Clogged Ear after Radiation
Please help! Did anyone have a very clogged ear after radiation to the head & neck from fluid build-up? I have already had a tube surgically inserted, but it has not helped me hear any better. How long before some improvement? I have been through with radiation for over 3 months now. None of my doctors seem to know, or…
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Tonsil cancer
Thanks for all the support that I found here! Such a bless ! My husband finished the treatment of chemo and radiation for stage 3 HPV. Tonsil cancer .It was tough but he was having a good recovery , gaining some weight , he lost 45 pounds during treatment but now after almost 4 months he is in a terrible pain in the ears…
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Ear Throat Pain / Tingliness
Hi All - I apologize, as I am sure many get annoyed at the threads started for people freaking out about possible warning signs and not being diagnosed, but I wanted to get some feedback and see what you thought my next steps should be. I just returned from an ENT after suffering with one-sided ear and throat pain for the…
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New CSN Site-Posted Pictures-Images
I have run into another option on the new CSN website pertaining to pictures. I had posted earlier that I had reduced a picture and posted it but it still came out as a huge picture when posted covering the page from edge to edge. Well, I have now found once a picture is posted you can perform several options with it…
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The New CSN Tips-Ideas
Someone has told me that they don't like the feature of the new site where our pictures are much smaller. I agree but if you click on the person's picture on the left side of the forum a box then pops up which shows not only an enlarged picture, I would say as large as before, but also a space to click on to view their…
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Ear pain months after treatment
My husband is 10 weeks out of his 35 radiation/5 cicplatan treatments, and his ear (same side as base tongue tumor)has been KILLING him for the last 3 weeks. He said the pain is in his ear and radiates down his jaw. We had a Dr's appt. today where they looked in his ear and found nothing... He is scheduled to get a CT scan…
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Sore ear
For the last week my left ear and cheek area have been bothering me, I tried to research ear pain but not a lot of luck. I do remember Longtime Survivor commenting on some post that they to were worried if it could be the tumor coming back and he said it was likely the radiation I guess I will know soon enough I get my PET…
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Lung disease as new complication
Oh wow, I have new, serious complications. I am 4 years out from primary SqCC Tumor, and mine is an aggressive, Recurrent one. My 6 th tumor occurred less than a year after my Radiation treatments. All along, I have had recurrent Pneumonia as well. 5 separate incidences of Pneumonia, admitted each time. I aspirate badly.…
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new format
I think I liked the old format / layout better. Time will tell.
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Extreme pain, questions and bit of a vent
I am having pain bad enough to medicate 24/7. My chemo doc is covering me until I can see the pain specialist next week. I am on 600 mg gabapentin 3x a day, norco 10/325 every 4 hours as needed. Probably not that much for HNC... I was taking ibuprofen too but trying to stay off of any blood thinners for upcoming biopsy(not…
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finished chemo & rad - a copy of questions
completed 5 / 6 chemo (taxol & carbostatin) on 11/16/21 & 33 rads on 12/2/21. the last day i dd 2 sessions, i was having trouble getting in due to floods; one hospital stay which found blood clots in my lungs, very low WBC (which has resolved) & some sort of infection. i'm on a fentanyl patch & oxy pills. ?: i'm having…
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Roll Call upload problems
Well H&N members . I am trying to get the Roll Call to you with limited success. It looks like a conversation with our will CSN Support (IT) Team is in order. I will return. CivilMatt
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Questions About the New Web Site Answered
Hi, all you H&N folks hope you are doing well. I asked some questions today about the new website. Some things I couldn't find or understand and things I wasn't sure of etc. The part at the bottom where you could preview your post or comment before you post it is not there anymore now you have to save it as a draft see a…
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Neuropathy - B Vitamins
I've been struggling with Neuropathy (numbness in my arms, hands and feet) ever since finishing 5 FU Chemo treatment, a couple years ago. Recently, a couple people on here recommended B Complex vitamins for it. I started taking them - and at first, I was disappointed, that I saw no results. However, this week - after two…
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Nasopharyngeal Cancer Treatment follow-up
I am 59 years old. I had a tumor removed from my neck in December, 2018. Biopsy was not benign. Primary tumor was in my left nasal passage NPC (Naso Pharyngeal Cancer). I had 35 radiation sessions, with Cisplatin, that ended in March 2019. I had 3 more 5 FU Fluorouracil (seek and destroy) chemo sessions, which ended in…