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How soon post treatment were you able to taste and eat?
Just wondering. Looking forward to eating again. I tried to keep eating as long as possible but mostly tube fed now because food is repulsive to me right now-no flavor or too salty. I only have 5 more rads to go. I was able to eat a couple bites of pizza yesterday but all I could taste was just the teeniest hint of bread…
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New to the group, hoping to understand my post treatment emotions...
Hi, I am 3 months out from surgery and radiation for mucosal melanoma in my nose. The orginal diagosis and prognosis were bad, the treatment was brutal but not as bad as other people I saw and got to know during the 30 radiation treatments. I am recovering and am having more trouble with depression and 'survivor's guilt'…
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New member and scared.
So, spoke to ENT this morning about pain and wirrying about the bioosy resluts. He told me the results are not back yet but, he sees that they did a scan for lymphoma and says it is not lymphoma. Is that good??? Please advise
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Just A Quick Update
I have had a recent visit with my ENT from Hershey Medical Center and he says everything looks OK, clear, and stable after scoping me about 2 weeks ago. Last week I had a follow-up visit with the dermatologist and she gave me the whole upper body, head, etc exam and removed one more suspect spot. Previous to that several…
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Pre Diag and have questiins
Hello, I just had cinsult with ENT today for his exam and to go over CT results. He advised he thinks it is Cancer and could not advise further. He suggested a biopsy for next Thursday to remove material from swoolen nodes in my neck. He is removing from my throat area and from masal area next to my uvela. I am scared out…
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Port
Those that have a port, does it bother you or hurt when you sleep. I'm now 5 yrs out but weekly IVs from being over Chemoed caused a sodium issue that I need a hydration bag weekly. Chemo destroyed My arm veins so very hard to manage & a port was suggested. My niece just DX by Cancer on 4 drugs had a port installed before…
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Hello everyone! About time I introduce myself!
Greetings to all. I have been lurking on this board for almost two months now while I went through my treatment. The knowledge I learned here from those who have gone before me has been invaluable, so many great people here helping others! I hope to do the same. During the late summer of 2020, I was experiencing chronic…
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Broken bone after radiation
I had neck/throat cancer over 10 years ago. I had chemo and radiation, 40 radiation treatments. I've had problems with my head and mouth since, barely have saliva, hearing loss, cararacts, lost 2 teeth,but I've lived with that. Recently I fell and broke my jaw. It's been wired a month, but it does seem to be healing. I…
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long term radiation problems assoc with ssc base of tongue
My husband was diagnosed and treated for stage 4 base of tongue ssc seven years ago. After 8 weeks of chemo and radiation followed by a radical neck dissection, he has been cancer free since! The effects of radiation seem to be accumulating though. He has developed problems regulating his blood pressure with fluctuations…
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Yawning and Sneezing
After months of no yawning or sneezing, both are back this week (4 weeks post treatment). It is a little painful when they happen, but I figure its good for my mouth and operating systems...?
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Forum Posting Info
Hello folks I hope everyone is doing as well as possible. I just wanted to post a couple of items relating to posting on the forum. Some may already know about them and some may not but here goes. I have found out if you hold down the shift key when you press enter it doesn't skip a line and leave a space between them.…
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New to the group!
Good evening, I'm a 42 year old male and just completed 7 sessions of chemo (cisplatin), 35 sessions of radiation for Head & Neck a week ago. SCC, HPV+. I'm so glad the treatment is done. I went through the first 4 weeks of radiation with not too much issue. I experienced the saliva thickening and definitely the metallic…
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Just diagnosed
Hi, my name is Brian. I'm 45 and was just diagnosed with cancer last week. I had a small lump in my neck and they found "fragments of squamous cell carcinoma." The ENT doctor informed me this is not the source...I have a PET scan Thursday. To say I'm scared, anxious and nervous is an understatement! I don't smoke or drink…
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HPV16 Symptoms! Not Cancer Symptoms! past or present?
I was P16+ T1 left tonsil, I had TORS radical tonsillectomy and selective level 4 neck, 44 nodes all clear, No rads No chemo. I believe that I could feel HPV16 flaring up causing tissue change a year before I found a bump on my tonsil. It first started a year before finding the tumor with a significant episode of extreme…
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dysphagia swallowing problems following NPC
Hi from uk. Have not caught up with this board for years. plagued by swallowing problems since treatment 20 years ago. Eating has never been the same and cannot eat lumpy foods at all well without choking .does anyone else find it has not gone back to near normal?
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Looking for advice about radiation tx
49 yo female/non smoker. Diagnosed with squamous cell carcinoma on my tongue. It was caught early, was a small spot on my tongue and was anticipated that surgery (with modified neck dissection) would be the end of it. Blessedly I made it thru the surgery with very few issues and am healing well. Unfortunately the neck…
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Cartoid Artery
I am 28 months out from finishing my treatment from HPV 16 tonsil / lymph node cancer and am still doing great. My GP just had me do an ultra sound of my cartoid arteries to determine if any issues are developing. I have been warned by my ENT that narrowing of the arteries is a possible side effect of the radiation. My ENT…
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Still loosing weight after peg removal
G'day im new here and have been eating by mouth for about a month. The problem I'm still loosing weight, I have the peg still but am very reluctant to use it. I'm going down to the hospital to have a cat scan and the peg removed this week as they found a spot on my lung. I've had my post treatment scan and there was a…
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Osteoradionecrosis
Wow! Thought I was in the clear! Three weeks from my fourth year NED report! Now I have something else to deal with! Osteoradionecrosis! Quite the mouth full, literally! I have options of , hyperbaric chamber and surgery to do skin graphs, or chamber alone, or try meds to help encourage blood flow.. anyone out there have…
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PEG tube pain
Had PEG tube put in on June 1st and am healing slowly. Still have some blood on gauze when I clean and change it. I am sore at the location however, the real pain I am having is to the left of the stoma... about five inches away. It is like a muscle spasm that only lasts a few seconds at a time. I called my Gastro doctor…
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Mouth and throat sores after treatments
Hi, one month after treatments for neck and throat cancer 35 rads and 5 chemos , I still am getting these little mouth sores around my troat that look like little blisters they come and go. Mainly appear during eating , they are painful and resolve the next day or in several hours until I irritate the troat eating again.…
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Immuno-therapyTrial
I thought I would just post this and maybe some readers or someone they know may be interested or need it as an option. PDS Biotech is developing a new immuno-therapy designed to target HPV-16 called PDS0101. PDS0101 has been shown to stimulate high levels of HPV-16-specific killer T-cells that target and kill head and…
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Honoring Memorial Day
Today is Memorial Day Memorial Day is the day to remember those men and women who died while serving in our nation’s armed forces Take a moment this weekend to honor those who served our nation and are no longer with us. As Americans, we enjoy the enormous blessing of freedom. Remembering those who died to preserve that…
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Neck and Swallowing Exercises
So I'm supposed to do these everyday. Typically I'll do 2-3 sets of ten reps. I got a late start on my neck exercises because when I first tried to do them as per instructed instead of babying along my neck wasn't healed and bled. Now I've tried again and I am getting shooting pains in my neck throughout the day. I was…
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Post-radiation advice?
After 33 grueling sessions, my last radiation is this evening! I read through several posts on this forum to try and preempt some of the side effects. I don't know if it's the fact that I received proton radiation or the fact that I was expecting the worse, but for the most part my side effects were not too too terrible.…
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Extended lLoss of Taste
I have a friend, who finished throat Cancer treatment, about 18 months ago. I ran into him today, and he told me he STILL hasn't regained much of a sense of taste. He says unless it's super sweet, food just doesn't register. I told him about CSN, but also offered to ask my friends on here for advice on this. Can anyone…
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Painful swallowing, but...
I'm 3 1/2 years out from BOT cancer surgery, full modified radical neck dissection, they took 60+ lymph nodes and followed it all up with lower-dose rads. I had persistent, diffuse neck pain for nearly 2 years, docs couldn't find anything really causing it - maybe just my messed-up neck anatomy, nerves that had been cut,…
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90 days post treatments symptoms lymphedemia, hypothyroidism and dry mouth....
Hi, 90 days post treatments effects.... Dry mouth especially at night affecting my quality of sleep. I use a humidifier air purifier as well as plenty of water and I still wake up several times in the night super dehydrated.. lymphedema In the neck showed up about two weeks ago, I'm currently receiving occupational therapy…
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I'm much better
Hello, friends. I wanted to give all a bit of news, hope, and thanks for the support. Currently, I have almost all my taste back. My beard grows almost normally (when I let it) and my saliva is almost completely restored as well. The lymph oedema below my chin has also completely disappeared, and all that is left is a bit…
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Current Update on my Great Recovery
In light of Mattie65's update, I wanted to share some hope on my end as well. When I was diagnosed and early in my treatment this forum was great HOWEVER, the negative stories stuck out more than the positive ones so I really want others to see it can be OK. I had neck dissection on 11/18 and began chemo/radiation on…