Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Went to SLP last week and
not really feeling much better. The pain gets worse everyday, and I had to bust out my mortar and pestle again because I am losing my ability to swallow my meds. I'm wondering if this lymphedema spot in my neck has become infected because it hurts like the devil sometimes but I never have a temperature. Maybe I just can't…
Base of Tongue Cancer/Head Neck Cancer
My 58 yr old husband was diagnosed with cancer of the head/neck and base of tongue just about 4 weeks ago on May 20, 2009 and had head and neck surgery 3 weeks ago to remove one cancerous lymph node and 5 other non-cancerous lymph nodes and a non cancerous saliva gland. We are told by the Oncologist that he will have chemo…
Video about Chemo expectations
https://youtu.be/AlWfJ5lgJ4o Here is today's video about a few things to expect regarding chemo. Primarily for newer folks, but survivors, please comment or share your experiences tips and tricks as well! Thank you Don AKA Beagledad
Opdivo and Abraxane
Is anyone on here experienced with Opdivo for throat cancer? My husband will be starting a new study that combines Opdivo (Immunothrapy drug) and Abraxane (Chemotherapy) for his Head and Neck cancer. He was on a different study at Siteman Cancer Center in St. Louis, MO USA which included Keytruda and his tumor doubled in…
Can you drink Jevity 1.5
Just a curiosity. Went to get my Covid vaccine booster (actually 3rd shot, full dose because, cancer). When I got home I just didn't feel like doing a tube feed so I grabbed a can of vanilla flavored Ensure to drink instead. That stuff is NAASTY!! I asked my wife to taste it, she smelled it and said no way! Anyway, I drank…
Neck/Chin Lymph Nodes - Leave in or Remove?
Have radiation and chemo start up set for this Wed Nov 3.... Oncologist refered me to an ENT (to locate/size the C) while PET scans and appointments with Chemo, Nutritionist being set up and completed Met with ENT last week....couldnt find the C location....he discussed removing the lymph nodes and while under do deeper…
Jaime, this video was made for you!
After reading Jamie's posts this morning I had to make this video. Don aka Beagledad (PS you can hear Carly barking in the background!) https://youtu.be/szQXHzwxf1Y
Newbie
Hi, My name is Kurt. On October 1, I was diagnosed with tonsillar cancer w/ has metastisized to 4-5 lymph nodes on the same side of the neck as the tonsillar mass. This was based on a CT Scan w/contrast, a PET Scan and a biopsy all done the last 2 weeks in September. Its stage 1, T1,N1,Mo (HPV+ -- P16+). I begin…
Be an Active Participant in Your Recovery
https://youtu.be/QEwOEdmusTc Today's video is short and is all about a theme for your cancer and recovery I call, "Be an Active Participant". I was amazed when I was going through this at how many medical professionals were surprised that I was doing what they told me. I had to ask them, "Do others NOT do what you…
PEG Tube fears and swallowing issue
Having seen several posts over the years that basically say if you get a Feeding Tube you lose swallowing ability, I am compelled to call said line of thinking what it is- BALONEY. I had a PEG all thru tx back in early-2009, and actually kept for 15 months in case the C came back. During tx one of my best friends were ice…
1st Post Treatment PET Scan
Chemo doc called with results. Nothing mentioned about thyroid. Two small lung nodules. Mass under jaw which they don't know if it's cancer or infection or necrotic tissue. Something on my kidney which will be put on back burner. I am due to see my ENT surgeon soon. I had them burn copies of my discs and I will have him…
YouTube Videos of my experience
Hi friends. I have decided to create a series of youtube videos describing my experiences and hacks and information for HNC folks to find when they search out info after diagnosis. I encourage folks at any point in their experience to watch and or comment. I am NOT monetizing these; these are for information sake only so I…
Eating Part 3 (I lost the middle part)
So. Something happened. Recently. Don't ask me. I don't know. I will never figure this stuff out. Something happened. All along, I have tended to be rather scientific, which drives my wife nuts (see the above, or the previous, as the case may be)... analyzing the texture, the heat, all of that sort of bull, trying to…
UPDATE ON ROLL CALL
ROLL CALL STATUS CHECK Hi All H&N members And a shout-out to those members who PM me (over the past couple of years) with questions and information for the roll call including, wbcgaruss, donfoo, Charmit, Barbaraek, johnsonbl, tommyodavey, Sonja.K, MarineE5, okeydokey, Login 51, MMDowns, MJG1, LitlCJdoll to name a few.…
No Scanxiety-The Results Are In
It seems these days are not like the old days when a lady on here named Phrannie51 would have a scan coming up and get it and have scanxiety and be hanging off the ceiling fan for a couple of days till she got the results. I had my Cat Scan with dye (They call it Contrast) this morning at 11:00 AM and they called at 3:30…
Forearm flap question
I went on tube feed for a bit because I was having extreme pain in my jaw joint when chewing. I believe it is related to the occipital neuralgia which may or may not be cancer related. I am trying to eat something every little bit so I can get off the tube. I still drink coffee, water, oatmeal and soup but slowly trying to…
STRAYING BEYOND CANCER ISSUES AND OVERSHARING
Folks, I just wanted to say that the majority of posts I've been reading here lately have gotten far away from the "normal" issues we discuss about having Cancer, before and after treatments, and how our recovery is coming along. I'll use myself as an example by saying that for the last couple of months I've been packing…
ROLL CALL 2020 - CLOSED!, NO SUBMIT! NEW ROLL CALL 2021 SOON!
PLEASE READ ROLL CALL 2020 Second UPDATE: September 24, 2020 (Side note: for those of you interested in some “Matt junk” my Dad would have been 99 years old today if he was still alive. Also, there was a memorial service for my former boss today. The job was at an engineering firm where I was one of the staff engineers,…
A Full Year
Well folks, it was a year ago today I was diagnosed with tonsil cancer. Between now and the end of Feb 2022 I will remember many dates and what happend "one year ago". Certain times frames went by super fast, some slower than I can even imagine, and others just whizzed on by. For those of you that will and have already…
FU With Chemo Doc
Still no PET scan. She wandered off somewhere to light a fire under some people. If I don't hear anything in a week I'm supposed to call back. The thyroid cancer I don't remember hearing about was apparently discovered in the original surgery and they have a biopsy positive for thyroid cancer so I will have to get my…
Where Are The Jannies? YooHoo Admin Mods! Wherefore Art Thou?
Who do we have to know to rid us of all this sportsball spam?
how do you report spammer valdezlar
valdezlar About valdezlar Joined onSaturday, October 16 2021Last onlineSaturday, October 16 2021
A Treatment Team?
I read about a team of referring MDs treating cancer. I have a primary care Doc at the VA that is nicknamed Dr. Clueless by her patients in the waiting room. Good for twice yearly bloodwork and refilling prescriptions. My surgery was done at a nearby Air Force hospital (I am not active duty it was a VA referral) and the…
cleaning the toilet - need some guidance
ok. completed my 1st chemo & rad today. regarding the toliet, we've been getting different information from the cancer center staff and from some of the national groups. Most, not all, recommend that men sit on the toliet to pee, makes sense. They all say to clean any splases, makes sense. Here's the confusion: some say…
How To Embed A Clickable Link
I thought I would post this to let folks know how to make the links they post blue and clickable. So here goes. If it is not clear as to what to do please let me know and I will try to refine it. In your forum posting. This is just a "For Your Information" posting to let folks know how to make a clickable link in your…
My story
2.9 cm Varrucous Carcinoma Tumor inner right cheek T2NOMO NECK DISECTION, RADIAL FOREARM FREE FLAP RECONSTRUCTION March 2021 25 Radiation Oncology treatment. last 27 September 2201 The time between surgery and oncology is part of my journey with the VA. My 69th birthday this year. . I live in a small town in…
Trach Tube Shower Cap Mucus Deflector
Hey everybody. I was diagnosed with cancer in my tongue in early 2017. In March of 2017, the surgeons removed 70% of my tongue including the "flap" and reconstructed everything with tissue donated from my left thigh area. As a result, I have a trachea tube that is more than likely permanent. As a result of that, I am…
Liquid Mucinex thru feeding tube?
Hope I'm doing this right, please bear with me. I've searched previous posts on this, just can't find the specific answer. I'm 3 sessions from the end of my radiation treatments for cancer at the base of my tongue. My biggest problem with side effects is, like many here, thick, nasty mucus!! My radiologist suggested…
Beards--Post Radiation--Guys Weigh In Here
My beard doesn't grow in consistently and evenly like it used to since I had radiation and I am pretty sure others on here have mentioned it so guys weigh in here and let us know did your beard change after radiation? Such as general growth, thickness, patchy growth, etc., or no changes.
Sudden worsening of symptoms nerve pain and lymphedema
I just had follow ups with medical oncology and radiation oncology. I was able to drive there with no pain meds other than ibuprofen. I don't take pain meds until I get home. So of course I told them I wasn't having much pain. Now I am having a lot more nerve pain which, IMO, is being aggravated by the sudden worsening of…

Head and Neck Cancer

Discussion List

Discussion Boards