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Clogged Ear after Radiation
Please help! Did anyone have a very clogged ear after radiation to the head & neck from fluid build-up? I have already had a tube surgically inserted, but it has not helped me hear any better. How long before some improvement? I have been through with radiation for over 3 months now. None of my doctors seem to know, or…
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Tonsil cancer
Thanks for all the support that I found here! Such a bless ! My husband finished the treatment of chemo and radiation for stage 3 HPV. Tonsil cancer .It was tough but he was having a good recovery , gaining some weight , he lost 45 pounds during treatment but now after almost 4 months he is in a terrible pain in the ears…
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Ear Throat Pain / Tingliness
Hi All - I apologize, as I am sure many get annoyed at the threads started for people freaking out about possible warning signs and not being diagnosed, but I wanted to get some feedback and see what you thought my next steps should be. I just returned from an ENT after suffering with one-sided ear and throat pain for the…
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New CSN Site-Posted Pictures-Images
I have run into another option on the new CSN website pertaining to pictures. I had posted earlier that I had reduced a picture and posted it but it still came out as a huge picture when posted covering the page from edge to edge. Well, I have now found once a picture is posted you can perform several options with it…
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The New CSN Tips-Ideas
Someone has told me that they don't like the feature of the new site where our pictures are much smaller. I agree but if you click on the person's picture on the left side of the forum a box then pops up which shows not only an enlarged picture, I would say as large as before, but also a space to click on to view their…
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Ear pain months after treatment
My husband is 10 weeks out of his 35 radiation/5 cicplatan treatments, and his ear (same side as base tongue tumor)has been KILLING him for the last 3 weeks. He said the pain is in his ear and radiates down his jaw. We had a Dr's appt. today where they looked in his ear and found nothing... He is scheduled to get a CT scan…
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Sore ear
For the last week my left ear and cheek area have been bothering me, I tried to research ear pain but not a lot of luck. I do remember Longtime Survivor commenting on some post that they to were worried if it could be the tumor coming back and he said it was likely the radiation I guess I will know soon enough I get my PET…
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Lung disease as new complication
Oh wow, I have new, serious complications. I am 4 years out from primary SqCC Tumor, and mine is an aggressive, Recurrent one. My 6 th tumor occurred less than a year after my Radiation treatments. All along, I have had recurrent Pneumonia as well. 5 separate incidences of Pneumonia, admitted each time. I aspirate badly.…
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new format
I think I liked the old format / layout better. Time will tell.
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Extreme pain, questions and bit of a vent
I am having pain bad enough to medicate 24/7. My chemo doc is covering me until I can see the pain specialist next week. I am on 600 mg gabapentin 3x a day, norco 10/325 every 4 hours as needed. Probably not that much for HNC... I was taking ibuprofen too but trying to stay off of any blood thinners for upcoming biopsy(not…
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finished chemo & rad - a copy of questions
completed 5 / 6 chemo (taxol & carbostatin) on 11/16/21 & 33 rads on 12/2/21. the last day i dd 2 sessions, i was having trouble getting in due to floods; one hospital stay which found blood clots in my lungs, very low WBC (which has resolved) & some sort of infection. i'm on a fentanyl patch & oxy pills. ?: i'm having…
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Roll Call upload problems
Well H&N members . I am trying to get the Roll Call to you with limited success. It looks like a conversation with our will CSN Support (IT) Team is in order. I will return. CivilMatt
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Questions About the New Web Site Answered
Hi, all you H&N folks hope you are doing well. I asked some questions today about the new website. Some things I couldn't find or understand and things I wasn't sure of etc. The part at the bottom where you could preview your post or comment before you post it is not there anymore now you have to save it as a draft see a…
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Neuropathy - B Vitamins
I've been struggling with Neuropathy (numbness in my arms, hands and feet) ever since finishing 5 FU Chemo treatment, a couple years ago. Recently, a couple people on here recommended B Complex vitamins for it. I started taking them - and at first, I was disappointed, that I saw no results. However, this week - after two…
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Nasopharyngeal Cancer Treatment follow-up
I am 59 years old. I had a tumor removed from my neck in December, 2018. Biopsy was not benign. Primary tumor was in my left nasal passage NPC (Naso Pharyngeal Cancer). I had 35 radiation sessions, with Cisplatin, that ended in March 2019. I had 3 more 5 FU Fluorouracil (seek and destroy) chemo sessions, which ended in…
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Thanksgiving-What Are You Thankful For
This is a thanksgiving posting and it is soon here in fact Thursday in just 3 days. Feel Free to post what you are thankful for or well wishes or whatever is on your heart this time of year. I have so much to be thankful for I am not going to list it all here. But I have a God who pulled me through many tough times and…
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CivilMatt's TABLE insertion experiment
Good morning or afternoon where ever you are in the H&N world. I hope that some of the information (which those of you undergoing treatments) glean from this forum help you manage what can be a most difficult time. I know, I have been there myself! I do see Russ is dishing out tips and comfort to those who seek it. He is…
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Happy Thanksgiving
Happy Thanksgiving to all my fellow cancer warriors. Take care and God Bless. Rick
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Lymphedema - Self Massage
I am new to this site and just a little about me. I was diagnosed with SCC baase of tounge and tonsil on Jan 12 of this year. My story is very similar to alot of you all. 6 weeks of IMRT Therapy and I have experienced most of the side effects that you all discussed for the thickening phlegm, trouble swallowing, xerestoma…
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3 1/2 year checkup...
And all is good. I am, as has been said here before, "unremarkable". I met with 2 nurse practitionsers, one of which was new to me, and the one that did the scope. Both are very good. When I go back in May I will see the other familiar nurse practitioner and my ENT. Next year I'll have 2 visits and then will see them once…
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Noob with floor of mouth cancer
Hello. I was just diagnosed with floor of mouth cancer in the first week of January. It is on the right side of my mouth between my tongue and teeth. I have had at least 6 biopsies in the last 15 or so years-2 of them under general anesthesia-on the right side of my tongue adjacent to the growth on the floor of my mouth.…
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No brag, just fact
It's hard to know if things I might share will be taken as I intend them. I am reporting this ONLY to give anyone who needs it additional reason for hope. I certainly had little to do with being blessed enough to have SCC at a time in history when it is treatable. Last week I had my five year scan and have been declared…
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An update
Hey folks. Some of you may remember: I had my neck dissection 14 months ago, after a T4 tumor was discovered inside my left tonsil. After that, 6 weeks of radiation. It all went pretty smoothly, although I had enormous trouble with keeping myself fed, during rads, because my taste buds went berserk. It's about a year now,…
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2 Dry Mouth & Nose Hacks - Short Video by Beagledad
This video is one of the "useful" ones I have promised. These two hacks made my recovery a tad easier and I hope they will for you, too. If you have used either of these or have others please leave Comments on the video's page as well as here for others to see. THANK YOU! Don AKA Beagledad https://youtu.be/3Cn_4-XL0eI
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TORS and Neck Dissection Information
Are you considering TORS, or already planning for it? This video can help you preapre with some ideas and discussions. If you have further hacks or just want to make comments on the video, please do so below the video so others outside of CSN can view them. Thank you! Don/Beagledad https://youtu.be/jYTxjBKILRE
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Went to SLP last week and
not really feeling much better. The pain gets worse everyday, and I had to bust out my mortar and pestle again because I am losing my ability to swallow my meds. I'm wondering if this lymphedema spot in my neck has become infected because it hurts like the devil sometimes but I never have a temperature. Maybe I just can't…
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Base of Tongue Cancer/Head Neck Cancer
My 58 yr old husband was diagnosed with cancer of the head/neck and base of tongue just about 4 weeks ago on May 20, 2009 and had head and neck surgery 3 weeks ago to remove one cancerous lymph node and 5 other non-cancerous lymph nodes and a non cancerous saliva gland. We are told by the Oncologist that he will have chemo…
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Video about Chemo expectations
https://youtu.be/AlWfJ5lgJ4o Here is today's video about a few things to expect regarding chemo. Primarily for newer folks, but survivors, please comment or share your experiences tips and tricks as well! Thank you Don AKA Beagledad
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Opdivo and Abraxane
Is anyone on here experienced with Opdivo for throat cancer? My husband will be starting a new study that combines Opdivo (Immunothrapy drug) and Abraxane (Chemotherapy) for his Head and Neck cancer. He was on a different study at Siteman Cancer Center in St. Louis, MO USA which included Keytruda and his tumor doubled in…
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Can you drink Jevity 1.5
Just a curiosity. Went to get my Covid vaccine booster (actually 3rd shot, full dose because, cancer). When I got home I just didn't feel like doing a tube feed so I grabbed a can of vanilla flavored Ensure to drink instead. That stuff is NAASTY!! I asked my wife to taste it, she smelled it and said no way! Anyway, I drank…