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Squamous Cell Carcinoma of the Ear Canal
I am a 12 year survivor of Nasophylangeal Cancer with metatsis to the lung. I have also had a bladder cancer and been cancer free for four years up until a week ago. I was experiencing some wierd stufdf in my right ear and my ENT doctor found an agreesive growth in the far inner portion of my ear canal. Biopsy confirms…
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How To Embed A Clickable Link
In your forum posting. This is just a "For Your Information" posting to let folks know how to make a clickable link in your posting. * First, you might start typing as in answering a post but in this case, I am going to talk about and show how to post a clickable link to a page that explains it. My directions will be for…
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SNUC (sinunasal unadifferentiated carcinoma)
Would like to know if anyone out there has this. It is a very rare form of cancer. My husband was diagnosed in February 2009. He has been through 6 rounds of Chemo(cisplatin+taxotere) and 33 rounds of radiation. Had surgery on Sept 29,2009 and had remaining tumor removed. Due to tumor still being present in scar tissue in…
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Well we made it ten years, but it's back
In late 2010 to early 2011, my husband had basal tongue and salivary gland cancer. He went through chemo, robotic surgery, and radiation, and all the follow up therapy. We thought we had gotten past it and were home free. We've been traveling, eating whatever my husband wanted, he's been singing and playing music, speaking…
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biopsy for reoccurrence - what to consider
Hi All, I had gone thru this journey in 2012 and had found this group extremely friendly - could not have done without all the information and support. I have sores in mouth that are not going away from almost 3 weeks so need a biopsy. I had toungue cancer on right hand side and I had 30 radiation treatments. I am…
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Received good news today
First I want to thank everyone for their prayers, support and great information during this scare I was having thinking the lump near my tonsil might be cancer. I didn't know what else to think since I have already had oral cancer on my tongue. We need to take Russ's advice when he tells us it isn't cancer until they say…
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New Member to the "Club"
Hello all HNC'ers, Well, as others have said...not a club that you want to be a member of....but the community support, knowledge, and perspective is tremendous. First the facts: Diagnosis: SCC with unknown Primary, although Tonsil Primary is suspected. Currently, at the University of Florida Shands ENT. SCC diagnosed…
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Face Mask
Talk about claustrophobic lol I got fitted for the mask today. Told them clear me nasal and mouth passage and eyes. What a horrible feeling. Next week we start rad and I think following week is chemo. Gearing up for the long haul. Just purchased 6 cases Boost VHC plus, a Ninja blender etc.... Doc doesnt think Taxol/Carbo…
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Possible cancer again - need advice
I have been here before when I had tongue cancer and now I have a lump near my right tonsil that I am very concerned about considering I have had oral cancer before. I see an ENT to monitor my tongue cancer situation and he is a highly skilled and experienced surgeon whose practice focuses on head and neck cancer. He is…
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Bad news for those of us who enjoy Marijuana
According to the following research we may need to quit. https://www.ncbi.nlm.nih.gov/pubmed/31932491
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Easter
Wishing all the folks on the forum here a Happy and Blessed Easter. I pray for continued Blessing for all the folks on here as we deal with the good and not so good but no matter what keep looking for the positives in everything. All we can do is trust in our medical teams, trust in God, and deal with our situation at…
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Clinical trials
Sorry haven't bee on here for a couple years, been battling a ulcer, cancer on base of tongue, have been doing things like immunotherapy, then when that stopped working tried a clinical trial of high intense radiation treatments, that's kinda where everything gets crazy, mainly because the radiation caused lots of…
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Another Year
Hello all, yesterday was eleven years that I completed radiation. I thought the full neck disection was rough but the radiation out did that. It was HPV and decided in 2018 it wanted to do an encore in my right lung but **** got booed off the stage. Those five radiation treatments were a walk in the park compared 30 in the…
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Recently Diagnosed
Has anyone survived stage 4 pharyngeal cancer? Im diagnosed without staging but have had symptoms about a year now and was wondering if it's possible to survive worst case scenario. I'm 32 and this is pretty scary. Also if it is distant, would it also be in my lymph system? I've developed pain in my left rib cage recently…
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Post surgery recovery difficult
My husband is one-week post surgery; robotic removal of tumor from BOT; neck dissections of lymph nodes bilaterally. His cancer was squamous cell HPV. We're waiting on pathology report, but the surgeon said that the tumor was more involved than initially expected and that the lymph nodes were entangled in veins, nerves. So…
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GOOD NEWS...NED- 3 years out
Hello fellow warriors. Just wanted to report that my CT scan today came back NED. Oddly, had a panic attack while getting the scan and had to stop twice. Unusual for me since I was bolted down during rads 5 days a week for 6 weeks with no problems. My heart rate and blood pressure shot up and only until I sat up at the…
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advice on how to combat bad taste in mouth and excessive mucus
My husband is undergoing chemo and radiation for a Stage 2 HPV+ oropahryngeal cancer. He is taking all nutrition through the PEG tube due to difficulty swallowing and the horrible taste in his mouth. He is also experiencing a great amount of mucus. He has tried the salt, water, baking soda rinse - doesn't seem to help. Any…
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Hyperbaric Oxygen for Salivary Glands question
Does anyone have experience with hyperbaric oxygen treatments to improve their salivary gland functionality post radiation? Interested what the results were and if recommended.
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My Journey
So, I thought I'd start posting a blog as my treatment progresses. Maybe it will be of some help to those that find their way here in the future and regardless, it helps me to write about it. If you just got here, you can read re diagnosis and surgery in the 1st pargraph of the 1st post in the "Hello All" thread so i'll…
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3 weeks post treatments update: how long did it take for you to really start feeling better?
Hi, The journey continues ... Last 2 weeks of treatments were brutal. Ill spare you the specifics, but i can tell you fentanyl and oxy were my friend. Post treatment recovery started out slow especially with the continued mouth sores and sore throat. 3 weeks post treatments I am still experiencing some new mouth sores and…
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Questions for doctor
Those not knowing what to ask; you can use these as a base. Please add to it... 1. We know the cancer is Squamous Cell Carcinoma. It was in his right tonsil, right neck and lymph nodes. Are there any other sites (from PET Scan) that show cancer? 2. The cancer in the Lymph Nodes is it also Squamous Cell Carcinoma or is it…
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Mouth and Tongue Sores
Hi Everyone - I completed my chemo and radiation trial on 1/8. By Saturday morning I developed sores on my tongue and they start near the tip and go all the way to the back of my tongue. I tried magic mouthwash this morning and it caused the pain to INCREASE significantly. It almost brought me to my knees. I've searched…
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A Progress Report from Beagledad
[P=L tonsil, S= 2 nodes in lymph. TORS with MRND. 4 of 5 negative margins, + on deep margin. This was followed up by 7 Cisplatin chemos and 33 bilateral IMRT rads 60/54g] Good morning to you all! I am happy to report that last Friday, Feb 26th, I completed my last radiation treatment and am now on Day 6 of Recovery.…
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Chemo Belly
Good morning, folks. Here I am with 19 radiation of 33 done. 5 of 7 chemos (Cisplatin) done. I know I am heading into the tough weeks now. Thankfully, my doc is proactive and has already prescribed some liquid morphine for me .... don't need it yet but nice to know it is there with my Magic Mouthwash. I am asking for your…
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Post Radiation Swelling Question
Hey guys..I know taste and swelling are things that take a spell after radiation ... I have heard all sorts of timelines re: taste (as normal, everyone is different). How long did it take some of y'all for the throat selling to go down? I know I am only 10 days post rads, and am not being impatient..although I am..LOL.…
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Covid Vaccine
My Chemo and Radiation was almost 10 years ago now..... Should I be concerned about taking the Vaccjne? any input would be appreciated
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neck massage
my loving boyfriend was dx after 1 1/2 years of a hoarse voice wth stage 4 SCC of the larynx , trachea, strap neck muscles and thyroid. had total laryngectomy on 8/21/2015 and doing well with his 2nd week of radiation. But neck scar is stiff and I am looking for help with education on scar massage of the neck. Anyone out…
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How long does it take to get results of your PET SCAN?
Pet Scan is coming up for our loved one and we are seeing the doctor right after it's completed. Will we get the results immediately or is this something that takes days/weeks to get completed? We just got the neck and base of tongue cancer diagnosis 2 weeks ago and are anxiously awaiting for results to assure us that the…
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TORS oncological tonsillectomy No Radiation
Hi Folks, I underwent a unilateral tonsillectomy for biopsy it was HPV+ T1 SCC. Then 7 weeks later went on to have a selective neck level 4 (all clear) and a TORS tonsillectomy (Same side just full resection of tonsil bed) Sept 8 2020. I have been going mad with fear the last couple of months as I have these episodes where…
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Tightness in Neck and Jaw
I just joined this support group. I was diagnosed with squamous cell carcinoma located in my left lower jaw bone area in October of 2020. After two ct scans and one pet scan that showed the cancer did not spread to any other areas my bone surgeon scheduled my surgery for December 10th 2020. He removed the lower left jaw…