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Head and Neck Cancer

First Post-Treatment PET was Clear!
Just a quik update. i had my first post treatment PET scan done and my surgeon, oncologist and radiation oncologist all gave me the all cllear for now. I will have scopes done every 3 months and CT scans (w/o contrast) every 6 months to begin just to keep an eye on a couple items but what an initial relief! All the pain…
What to expect now
3 weeks ago had an enlarged lymph node on right side of neck removed that had not grown in 2 years. Came back testing positive for cancer. Had PET scan which showed nothing, then had ct scan which showed nothing. Then had tonsils removed and 4 mm host was found in right tonsil. All other lymph nodes seem to be OK. But am…
Bariactric Oxygen therapy for tooth extraction after throat cancer
I had throat cancer and underwent 7 weeks of chemo and radiation that concluded on July 2, 2019. I had a tooth fail (#31) that was supporting a bridge so aside from having to have the tooth pulled, I lost the bridge as well. The dentist said the extraction was a little tougher than usual but I should be fine. Fast forward…
Wishing All A Wonderful
Happy Mother's day. Wishing you many blessings and a happy day for you and your mother. If your mother is not here anymore like my mom may we relish the memories of our mothers? I am looking to the day when I will see mom again. If your mom's still here make a point to visit her more in the coming year. Time goes fast and…
Tongue Paralysis Prior to Treatment of NPC diagnosed patient
Hello, sorry if this is premature as Ay sister who is the cancer patient has yet to have her PET scan and is not yet on her treatment plan. Also I did my best to do a search of the discussion boards but couldn't find the same issue. My sister who was diagnosed with lupus about 18 months ago, all of a sudden started having…
stage 4 throat cancer
Need some direction: I am not sure if I should try chemo and radiation for 8 weeks or just have a complete laryngectomy. Does anyone have any experience with either? I would love to hear how it went. Thank You Mike
Nasopharyngeal question
So, I have a question for anyone who had NPC, or treatment that may have caused this concern. I'm about 19 months out of treatment. My source of Cancer was my left Nasal Passage. Approximately a year ago, I started noticing a regular (daily) discharge from that left side, of what looks like little sheets of translucent…
Recently diagnosed with olfactory neuroblastoma
I am a 27 year old who was diagnosed with olfactory neuroblastoma in March of this year (2019). I found the tumour in my nose in November but was told it was just a polyp until I finally seen an ENT. I had surgery to remove my tumour through my nostril in April at Toronto Western Hospital. They did the entire surgery…
Concerned for my (love) Bucket
This is the wifey. I would like to know if somebody has been in the same position, and how they fared after all the sessions. Will he feel bad for a long time afterwards? My goal is to take him on a small vacation in mid-May. My favorite hubby Bucket has tongue cancer squamous cell carcinoma stage 3. He is on radiation…
Our Furry Friends
Has anyone noticed a change in behaviour from their dogs and cats whilst you were ill? I know its a fact that certain dogs can, or can be trained to smell cancer! Thats a bit weird....personally I'd prefer a human medical diagnosis. Anyhow, I've got 2 cats and the one, Max has definatly been paying more attention to me…
Mayo HNC Doctor on N Acetylcysteine for thick mucus/saliva in HNC patients in radiation therapy
https://m.youtube.com/watch?v=kgwUWdwwsNw 6:14 run time. Jump to 3:00 for quick run down. N Acetylcysteine is helping people with the thick mucous/saliva. Thoughts? I have gobs of this stuff at home and I'm not afraid to use it!
Post Neck Dissection Tightness - any good ideas?
Hi All, Any suggestions and/or expectations for post neck dissection tightness relief? Any recommendations for topical ointments, accupuncture, cupping, botox, stretches? I had my surgery late 2020, not sure if present tightness is the norm or if this too improves with time. Z
Squamous Cell Carcinoma of the Ear Canal
I am a 12 year survivor of Nasophylangeal Cancer with metatsis to the lung. I have also had a bladder cancer and been cancer free for four years up until a week ago. I was experiencing some wierd stufdf in my right ear and my ENT doctor found an agreesive growth in the far inner portion of my ear canal. Biopsy confirms…
How To Embed A Clickable Link
In your forum posting. This is just a "For Your Information" posting to let folks know how to make a clickable link in your posting. * First, you might start typing as in answering a post but in this case, I am going to talk about and show how to post a clickable link to a page that explains it. My directions will be for…
SNUC (sinunasal unadifferentiated carcinoma)
Would like to know if anyone out there has this. It is a very rare form of cancer. My husband was diagnosed in February 2009. He has been through 6 rounds of Chemo(cisplatin+taxotere) and 33 rounds of radiation. Had surgery on Sept 29,2009 and had remaining tumor removed. Due to tumor still being present in scar tissue in…
Well we made it ten years, but it's back
In late 2010 to early 2011, my husband had basal tongue and salivary gland cancer. He went through chemo, robotic surgery, and radiation, and all the follow up therapy. We thought we had gotten past it and were home free. We've been traveling, eating whatever my husband wanted, he's been singing and playing music, speaking…
biopsy for reoccurrence - what to consider
Hi All, I had gone thru this journey in 2012 and had found this group extremely friendly - could not have done without all the information and support. I have sores in mouth that are not going away from almost 3 weeks so need a biopsy. I had toungue cancer on right hand side and I had 30 radiation treatments. I am…
Received good news today
First I want to thank everyone for their prayers, support and great information during this scare I was having thinking the lump near my tonsil might be cancer. I didn't know what else to think since I have already had oral cancer on my tongue. We need to take Russ's advice when he tells us it isn't cancer until they say…
New Member to the "Club"
Hello all HNC'ers, Well, as others have said...not a club that you want to be a member of....but the community support, knowledge, and perspective is tremendous. First the facts: Diagnosis: SCC with unknown Primary, although Tonsil Primary is suspected. Currently, at the University of Florida Shands ENT. SCC diagnosed…
Face Mask
Talk about claustrophobic lol I got fitted for the mask today. Told them clear me nasal and mouth passage and eyes. What a horrible feeling. Next week we start rad and I think following week is chemo. Gearing up for the long haul. Just purchased 6 cases Boost VHC plus, a Ninja blender etc.... Doc doesnt think Taxol/Carbo…
Possible cancer again - need advice
I have been here before when I had tongue cancer and now I have a lump near my right tonsil that I am very concerned about considering I have had oral cancer before. I see an ENT to monitor my tongue cancer situation and he is a highly skilled and experienced surgeon whose practice focuses on head and neck cancer. He is…
Bad news for those of us who enjoy Marijuana
According to the following research we may need to quit. https://www.ncbi.nlm.nih.gov/pubmed/31932491
Easter
Wishing all the folks on the forum here a Happy and Blessed Easter. I pray for continued Blessing for all the folks on here as we deal with the good and not so good but no matter what keep looking for the positives in everything. All we can do is trust in our medical teams, trust in God, and deal with our situation at…
Clinical trials
Sorry haven't bee on here for a couple years, been battling a ulcer, cancer on base of tongue, have been doing things like immunotherapy, then when that stopped working tried a clinical trial of high intense radiation treatments, that's kinda where everything gets crazy, mainly because the radiation caused lots of…
Another Year
Hello all, yesterday was eleven years that I completed radiation. I thought the full neck disection was rough but the radiation out did that. It was HPV and decided in 2018 it wanted to do an encore in my right lung but **** got booed off the stage. Those five radiation treatments were a walk in the park compared 30 in the…
Recently Diagnosed
Has anyone survived stage 4 pharyngeal cancer? Im diagnosed without staging but have had symptoms about a year now and was wondering if it's possible to survive worst case scenario. I'm 32 and this is pretty scary. Also if it is distant, would it also be in my lymph system? I've developed pain in my left rib cage recently…
Post surgery recovery difficult
My husband is one-week post surgery; robotic removal of tumor from BOT; neck dissections of lymph nodes bilaterally. His cancer was squamous cell HPV. We're waiting on pathology report, but the surgeon said that the tumor was more involved than initially expected and that the lymph nodes were entangled in veins, nerves. So…
GOOD NEWS...NED- 3 years out
Hello fellow warriors. Just wanted to report that my CT scan today came back NED. Oddly, had a panic attack while getting the scan and had to stop twice. Unusual for me since I was bolted down during rads 5 days a week for 6 weeks with no problems. My heart rate and blood pressure shot up and only until I sat up at the…
advice on how to combat bad taste in mouth and excessive mucus
My husband is undergoing chemo and radiation for a Stage 2 HPV+ oropahryngeal cancer. He is taking all nutrition through the PEG tube due to difficulty swallowing and the horrible taste in his mouth. He is also experiencing a great amount of mucus. He has tried the salt, water, baking soda rinse - doesn't seem to help. Any…
Hyperbaric Oxygen for Salivary Glands question
Does anyone have experience with hyperbaric oxygen treatments to improve their salivary gland functionality post radiation? Interested what the results were and if recommended.

Head and Neck Cancer

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