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Eating Part 3 (I lost the middle part)
So. Something happened. Recently. Don't ask me. I don't know. I will never figure this stuff out. Something happened. All along, I have tended to be rather scientific, which drives my wife nuts (see the above, or the previous, as the case may be)... analyzing the texture, the heat, all of that sort of bull, trying to…
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UPDATE ON ROLL CALL
ROLL CALL STATUS CHECK Hi All H&N members And a shout-out to those members who PM me (over the past couple of years) with questions and information for the roll call including, wbcgaruss, donfoo, Charmit, Barbaraek, johnsonbl, tommyodavey, Sonja.K, MarineE5, okeydokey, Login 51, MMDowns, MJG1, LitlCJdoll to name a few.…
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No Scanxiety-The Results Are In
It seems these days are not like the old days when a lady on here named Phrannie51 would have a scan coming up and get it and have scanxiety and be hanging off the ceiling fan for a couple of days till she got the results. I had my Cat Scan with dye (They call it Contrast) this morning at 11:00 AM and they called at 3:30…
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Forearm flap question
I went on tube feed for a bit because I was having extreme pain in my jaw joint when chewing. I believe it is related to the occipital neuralgia which may or may not be cancer related. I am trying to eat something every little bit so I can get off the tube. I still drink coffee, water, oatmeal and soup but slowly trying to…
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STRAYING BEYOND CANCER ISSUES AND OVERSHARING
Folks, I just wanted to say that the majority of posts I've been reading here lately have gotten far away from the "normal" issues we discuss about having Cancer, before and after treatments, and how our recovery is coming along. I'll use myself as an example by saying that for the last couple of months I've been packing…
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ROLL CALL 2020 - CLOSED!, NO SUBMIT! NEW ROLL CALL 2021 SOON!
PLEASE READ ROLL CALL 2020 Second UPDATE: September 24, 2020 (Side note: for those of you interested in some “Matt junk” my Dad would have been 99 years old today if he was still alive. Also, there was a memorial service for my former boss today. The job was at an engineering firm where I was one of the staff engineers,…
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A Full Year
Well folks, it was a year ago today I was diagnosed with tonsil cancer. Between now and the end of Feb 2022 I will remember many dates and what happend "one year ago". Certain times frames went by super fast, some slower than I can even imagine, and others just whizzed on by. For those of you that will and have already…
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FU With Chemo Doc
Still no PET scan. She wandered off somewhere to light a fire under some people. If I don't hear anything in a week I'm supposed to call back. The thyroid cancer I don't remember hearing about was apparently discovered in the original surgery and they have a biopsy positive for thyroid cancer so I will have to get my…
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Where Are The Jannies? YooHoo Admin Mods! Wherefore Art Thou?
Who do we have to know to rid us of all this sportsball spam?
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how do you report spammer valdezlar
valdezlar About valdezlar Joined onSaturday, October 16 2021Last onlineSaturday, October 16 2021
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A Treatment Team?
I read about a team of referring MDs treating cancer. I have a primary care Doc at the VA that is nicknamed Dr. Clueless by her patients in the waiting room. Good for twice yearly bloodwork and refilling prescriptions. My surgery was done at a nearby Air Force hospital (I am not active duty it was a VA referral) and the…
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cleaning the toilet - need some guidance
ok. completed my 1st chemo & rad today. regarding the toliet, we've been getting different information from the cancer center staff and from some of the national groups. Most, not all, recommend that men sit on the toliet to pee, makes sense. They all say to clean any splases, makes sense. Here's the confusion: some say…
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How To Embed A Clickable Link
I thought I would post this to let folks know how to make the links they post blue and clickable. So here goes. If it is not clear as to what to do please let me know and I will try to refine it. In your forum posting. This is just a "For Your Information" posting to let folks know how to make a clickable link in your…
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My story
2.9 cm Varrucous Carcinoma Tumor inner right cheek T2NOMO NECK DISECTION, RADIAL FOREARM FREE FLAP RECONSTRUCTION March 2021 25 Radiation Oncology treatment. last 27 September 2201 The time between surgery and oncology is part of my journey with the VA. My 69th birthday this year. . I live in a small town in…
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Trach Tube Shower Cap Mucus Deflector
Hey everybody. I was diagnosed with cancer in my tongue in early 2017. In March of 2017, the surgeons removed 70% of my tongue including the "flap" and reconstructed everything with tissue donated from my left thigh area. As a result, I have a trachea tube that is more than likely permanent. As a result of that, I am…
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Liquid Mucinex thru feeding tube?
Hope I'm doing this right, please bear with me. I've searched previous posts on this, just can't find the specific answer. I'm 3 sessions from the end of my radiation treatments for cancer at the base of my tongue. My biggest problem with side effects is, like many here, thick, nasty mucus!! My radiologist suggested…
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Beards--Post Radiation--Guys Weigh In Here
My beard doesn't grow in consistently and evenly like it used to since I had radiation and I am pretty sure others on here have mentioned it so guys weigh in here and let us know did your beard change after radiation? Such as general growth, thickness, patchy growth, etc., or no changes.
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Sudden worsening of symptoms nerve pain and lymphedema
I just had follow ups with medical oncology and radiation oncology. I was able to drive there with no pain meds other than ibuprofen. I don't take pain meds until I get home. So of course I told them I wasn't having much pain. Now I am having a lot more nerve pain which, IMO, is being aggravated by the sudden worsening of…
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Help
Hello, My Name is Robert I was told by a clinic doctor that he wanted to skip to getting a pet/CT scan cause I have throat cancer and we need to see if it has spread, long story short, I have no insurance and can't seem to find anyone here in Florida that can seem to help me to get the emergency Medicare, I am 57 yrs old…
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My journey so far
My journey has started and am in week #3 now. I have had 11 rads and 3 chemo infusions and 2 chemo fuilds for kidneys etc. Next fluid is this Friday. Jusy having a sore uvula and some pain in surrounding area so far, which I am usiong tylenol for at the moment. I am also uasing water salt BS rinses and have lidicane and…
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COVID booster today
This evening I got the Booster vaccine Pfizer MDV. At CVS, one had to schedule an appointment to get one.... Nah, so I drove down the street to Walgreens, filled out 3 pages of paperwork and got it. I waited around 20 minutes and then went shopping at Barnes & Noble booksellers. And I still can detect, Nothing. No effects,…
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Late Posting Of Unusual Incident
This posting is a little behind as it happened last month but I thought I would share it because some will relate to it. And some may have it happen or something similar in the future. And our mind immediately goes to cancer especially if it's in the area of previous cancer. So here goes--- Latest Unusual Happening Friday…
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New here & could use some help! HPV+ (p16) SCCHN Currently in treatment
Hello everyone. I've joined a group none of us want to join. In early August, I was diagnosed with Stage 1 HPV+ (p16) squamous cell carcinoma. The primary tumor is in the base of my tongue. I have four lymph nodes on the left side of my neck/jaw that are also positive (via the PET) for cancer. I had my tonsils and adenoids…
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Tongue swollen 4 weeks, 4 days post radiation
Carcinoma, base of tongue. Four days ago, Four week post rad follow up, my radiation oncologist says my recovery is doing well. The next day visit with my medical oncologist (who's been treating me for prostate C) looked in my mouth and said basically the same thing, "You're doing fine!" while acknowledging "You've been…
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Surgery Update & questions
I had TORS & neck surgery on 8/24/21. They found microscopic tumors at right side of base of tongue, margins not clean. Removed 21 lymph nodes in neck, 1 had cancer and clean margins. Some of the neck muscle was removed as well. SCC, HPV+, Stage 1. Radiation & chemo starts 2nd or 3rd week of october. chemo will be…
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Port
Those that have a port, does it bother you or hurt when you sleep. I'm now 5 yrs out but weekly IVs from being over Chemoed caused a sodium issue that I need a hydration bag weekly. Chemo destroyed My arm veins so very hard to manage & a port was suggested. My niece just DX by Cancer on 4 drugs had a port installed before…
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FT-dependent avoidance
Tx side-effect of the 68 Gys to the lower part of my throat led to my becoming FT-dependent some 10 years out in 2019. Know I should have gone to the U of Iowa for an evaluation, but did not. PCP just said because of aspiration and failed swallow test I needed a FT, again, and Why never entered his mind. Well over a year…
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Squamous cell of the tongue
I had a 2nd occurrence in 2020. I've had 1/2 of my tongue removed. It's been a most challenging, frustrating time. My surgery was on October 16, 2020 and I'm still on a feeding tube, crushing my meds and using a syringe to get them in to the peg. Nobody shared with me these incredible difficulties! Also, I had a neck…
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Taste is wacko & dry mouth - my 1st post
I am a new cancer patient and have been reading up on some posts within the HNC Board. Back in January 2021, I was diagnosed with & had surgery to remove a metastatic melanoma cancer of the anterior neck lymph node along with some oral squamous cell carcinoma. Four weeks of radiation and started immunotherapy every 2 weeks…
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Skin cancer after tonsil cancer
my husband finished treatment for tonsil (and one lymph node) cancer in January. Sonce March he has developed 10 skin cancers and more. anyone else experience this??