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Head and Neck Cancer

using cpap after neck surgery
greetings all. i'm glad to have found this site and am just starting out. Dx'd with Squamous Cell - HPV +. Lymph node just below my right jaw joint is swollen. Scans and visual can not find a primary. On 8/24/21 i have surgery, TORS for base of tounge where they think their maybe a microscopic primary and regualr sugery…
Newly diagnosed cancer patients: Questions to ask your health care team
Very good info from MD Anderson Cancer Center BY Rosemary Catallo Patients and their families often come into The Learning Center, where I work as a librarian, to seek information. After interacting with people for many years -- and from reviewing the large amount of information we have access to here --I've come to…
New Tongue Cancer Diagnosis
Hello all, In early December 2021 I was diagnosed with INVASIVE SQUAMOUS CELL CARCINOMA, MODERATELY DIFFERENTIATED. So began the journey. PET/CT, then MRI, met with Surgeon and other Oncology teams later in December 2021. Became part of a new Immunotherapy Study at Johns Hopkins in Baltimore in January 2021. I have had 2…
Best way to get crushed pills down G-tube into stomach
Had a G-tube installed 5 days ago with scant advice on feeding going forward. Had told them I had a FT for 17 months 10+ years ago, so maybe they figured I knew it all. NO. I was able to swallow chopped-up pills during my initial tx. But now, swallowing them is a coin toss as to whether or not they go down the right pipe.…
End of week 6...miserable
Well I finally got hit with the treatment **** storm. When you layer 6 visits of chemo right on top of 33 radiation visits you finally are crushed under the treatment by week 6. I've been very lucky not to have scorching throat pain until now. I cannot swallow any smoothies because the nutrients stick to the burned areas…
Will I ever swallow again?
Hello, I have to preface this with the fact that I am fighting the poor me's. I finished treatments March 8th and I started seeing a speach therapist for swallowing therapy. I feel like I will never be able to swallow again. If I drink anything thin like water it goes down my airway, anything thicker even soft peaches cut…
Nausea help
I’m new to discussion boards but I really need to talk with others who have gone through nasal sinus radiation. I have been nauseous with headaches since I’ve started. I’ve had 21 treatments so far and it’s only getting worse. My doctor is saying that my radiation will not cause nausea. He is saying it’s either anxiety or…
Be careful on this website
It’s the internet and there are scammers. Just a word of caution to keep information secure. If someone wants to send you a Christmas card or asks for your phone number think twice.
Diagnosis Complete (95%) - Chemo/Rad Starting Next Week - Yikes!
Well its been interesting so far...to say the least I am 60 yrs young and hate going to the doctor to the point that I just dont go...rarely....unless I notice/feel something is Doctor worthly wrong. Lo and behold late June/21 I noticed 3 lumps on the right side of my neck and under my chin. Didnt have a Primary doctor…
Weight Survey
Folks! I'd like to do a quick survey on weight. If you can just post, what your weight was, pre-treatment, post treatment, and +1 year, +2 years, +3years out. Mine is: Pretreatment: 160 lbs Post-treatent: 140 lbs (-20 lbs) +1 year: 148 lbs (+8 lbs) Reason for the survey: Im no longer gaining weight, despite chewing down…
Biopsy results
Finally got biopsy result for my neck and lungs. They are positive for cancer. They are going to put me on immunotherapy but this cancer is very aggressive and any measures taken will be palliative. I assume just knock it back enough so it doesn't quadruple in size one day which will be very painful considering the…
New Video from Beagledad: Affordable Things to Get For Your HNC Patient Friend
https://youtu.be/nokr9oAoOdQ This video lists several inexpensive items that could make your patient's experience a little bit better. Please feel free to comment under the video if you have other suggestions or ideas for the same, or if you have benefitted from any of the ones mentioned. As always, thanks to PIPLILLY for…
A remarkable article. All should read.
I cannot recall where I read this, if it was here, please ask admin to remove this post. I found it quite fascinating. I haven't been getting much sleep. I would love to research with this man. By: Stewart Lyman, Ph.D., HPV-related Tonsil Cancer Survivor You don’t have to be an oncologist to know that fighting cancer is…
Quad Shot Radiation
I'm looking for anyone with experience with quad spot radiation for head and neck cancer treatment? THX
help to understand
Understanding this P16 contraction is boggling my husband and I Is there other ways that a person can contract the positive p16 factor?
Recurrence of upper esophageal cancer
Had feeding tube placed on Jan. 6th and home on the 11th but suffered blockage on the 19th. Went to see Dr. but ended up in ER with pneumonia on the 20th due to aspiration. Home today. Feeling much better but wondered if it's safe to rinse and spit anything just to taste something again? No swallowing involved, just need…
I have chemo next week constantly spitting and coughing
So what is the deal here? Do I spit discreetly into a kleenex? Anybody else reach this point?
Think I got this lol
Click my profile select (+) then choose new topic Create topic title Start typing Hit post topic Hope this works.
Cannot eat even after 2.5 months post treatment of esophagus/pyriform sinus cancer
Hi My mother a breast cancer survivor(happend in 2010) was suffering from esophagus plus pyriform sinus cancer. She had completed the treatment of 35 RT and 7 CT on October End,2021. She still cannot eat anything. When she try to drink water by spoon, she in the begining have saliva coming out but post that half spoon of…
oral cancer
Hello, just had to share a sucess story of OPDIVO...It seems unreal. I was dx aug 2017- stage 4 base of tonge with mets to lypmp. completed 35 doses of high radation tx. and 3 doses of cisplatin. Only to find out the 3 mth scan there was further local re- occurence of the oral cancer. Met with ENT for surgical options, was…
Neck Burns Poll
Merry Christmas first of all! I don't want to jinx myself here, but I have been doing searches, and I'm having a hard time locating what I am looking for. I'm only really locating when the burns have gotten really bad for some people. What week/s for you did your neck noticeably start to turn red and burn on the outside?…
A Blessed And Happy New Year-Leave Your New Year Wishes Here
Hello everyone here on the H & N section of CSN. First of all, I encourage you to post your New Years' greetings and wishes here, and if there is an individual who has been a special supporter, or multiple people, your medical team, a special doctor or nurse helping and supporting you in your cancer journey feel free to…
11 Years Out From Stage III BOT
UPDATE: 1-13-22 Just dropping in to say hello to all my old warrior friends and to encourage all those just beginning or not so long out of the thick of it....there is light at the end! As I posted this tonight, I whispered a prayer under my breath for you all. I teied to put a few new pics on here, but forgive my lack of…
Roll call
I just returned from my 6 year annual check up. Still all clear. I think my ENT was surprised I still exist
new format
I can say at this point that I much prefer the old format of this website much better. I just think for me the old format was much easier to use and easier to follow everyone's journeys. I find myself not visiting the site nearly as much as I used to because of not liking the new format. I have been on this site since…
Tooth pain
My husband has developed tooth pain 8 months after radiation therapy for tonsil cancer. I have a call in to the dentist...anyone else experience this?
This is an Oldie but a Goodie (I like it).
Happy New Year H&N Members, Back in 2013 I came across the following post by a 2010 H&N member known as nkimber. I found it to be very heartfelt and I have been re-posting it back to the top of the H&N forum (most) every January since. Many H&N members were very fond of nkimber and enjoyed re-reading her post. Thank You,…
Radial arm free flap question?
Hi All; I am a recent new member to this forum and I have read many of the posts and have found them to be really helpful. For context, I am 48 years old, non smoker, HPV negative and a decent competitive runner. I am also a recent survivor of SCC. A year ago I had a biopsy done and was found to have a T1 N0 M0 that was on…
Second go with Head and Neck Squamus Cell Carcinoma---Things going sideways
This is the story of a man (my sweet hubby) with P-14 Squamous Cell Carcinoma of the Head and Neck from 2016 and TWO new cancers on the opposite side (tongue and throat) in 2021. My husband went through 8 weeks of weekely abraxane and cisplatin followed by 7 weeks of daily radiation and cisplatin. He responded and…
Hearing Aids
So, I did everything possible to try to eradicate my hearing. I grew up on a farm, around noisy equipment, shot guns, listened to intensely loud music, and spent time in a US Navy ship's engine room! Then, I got Cisplatin Chemo... Ironically, my hearing is actually good ... in the lower frequencies. But, it drops off at…

Head and Neck Cancer

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