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Janet Jackson - hope it's not HNC
https://www.yahoo.com/health/janet-jackson-reportedly-battling-throat-cancer-151126263.html
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Not sure if I should just flip a coin
Hi all been awhile.Anyway in Dec I an xray done of my jaw to make sure it was solid enough for implants.Last June they did a bone graph to seal up a small hole in my chin to make healing faster then waiting for it to fill in.Finally heard back from my doctors nurse.She said the x-rays shown that the jaw looked to be in…
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Glycopyrrolate for mucousitis
Has anyone here tried this drug? My husband was given this on Monday, and I must say that it has been working wonders for him. He had a pretty rough end to the week last week with really bad mucousitis, which caused him to vomit a few times and really prevented him from eating by mouth. Thank goodness for the PEG tube over…
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Dental Impants post radiation
After completing radiation in early 2007 I started to have issues about a year later with facial swelling and random fevers. After many trips to the ER and Oncologist, I found out it was was due to my teeth. Before I started radiation I had never had a cavity. After treatment, I saw my dentist every three months like I was…
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interesting article on NPC
interesting article posted today about NPC...hopefully this gets us closer to understanding this freakin 'C' and beating it. http://www.healthcanal.com/cancers/69683-dna-change-impacts-spread-of-cancer-causing-virus.html
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First round of treatments done!
Last Tuesday I had the final radiation treatment. My white blood cell counts were too low the three times we attempted chemo, so we called chemo done as well. So I'm all done with the first round of treatments! In February, I have two rounds of higher dose chemo (Carboplatin and Taxol), three weeks apart. Then in March or…
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3 months out
Hello, My husband is 3 months out from chemoradiation for tonsil cancer. We are weaning him off the tube and it's been almost one week since we haven't used it at all. I started out making hot cereal, eggs, and soups, etc, but now we're mostly relying on shakes because they're so easy to do and to add the calories. The…
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American Cancer Society Has Let Us Down
American Cancer Society Has Let Us Down Because: Medicine still treats head cancer the same way medicine did in 1994. I was given a terminal diagnosis. I survived. But not really. I suffered for the last 15 years from the aftermath of 7500 Rads of radiation to my head, throat and lungs. Now, I have received a prognosis of…
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Swollen sinus and ear pain from radiation
Checking to see if anyone has had issues with their sinus's after radiation treatments to their Head/Neck. My treatment was directed at my sinuses and lymphs, but I still have issues with my sinus's not draining and water building up cause severe ear and sinus pain... any suggestions on what I can do to help it would be…
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Happy New Year
Hi All , Wishing you all a Healthy & Happy New Year ....today is my 4 yr anniversary cancer free . It's surreal in the fact that 4 years has passed , some days it seems like just yesterday . While I don't get to this site often , I think of you often, for those of you just starting this journey or still in the fight it's…
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Welcome 2016 This is for all the "Newer" members to our family.
We always welcome the New Members with open arms, but always have to add we are sorry you need to be here. Yes you will be going down a very rough road. Just about the worst road there is with twists and turns everywhere. So for all the caregivers and patients gowing through this remember you are not alone in this. So…
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How long after radiation will the pain finally get easier?
My husband just finished 6 weeks of rads last week. The pain this week has gotten worse. He takes about 6 oxycodones a day, but still has moments where he literally shivers with pain when he swallows or has a bit of acid reflux. He's taking something for that, but it's not 100% working. He takes all his medicine and…
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Looking for ideas to saliva issues - opening under chin
Hi all! My father had surgery for Esophageal Cancer this summer, please excuse my non-techinical terms but I want to make this as clear as I can so I am understood :) He had a total laryngectomy and the plan was to remove the larynx and the cancer ridden esophagus in the upper throat and replace the esophagus w/ a piece of…
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Keitter back in the Hospital again Up-Date
I just got an e-mail from one of Keitter nephews saying that they had to put her in the hospital today so please keep her in prayer. She has been going through hell for the last few months with this new Chemo she has been taking Thank you all for your prayer and thoughts Tim
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Insurance solution? Maybe....
Well, after an hour of updating our information on the Marketplace and seeing premiums that were outrageous...I had to walk away for a few days. I now have logged in and found a policy that is about $50 more a month than what we are paying now. Is it comparable like they say? No. Is it worth having "something"? I think…
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My brother came to spend Christmas
I went and picked up my brother who lives somewhere in New Orleans so he could spend Christmas with me. It was nice having him around but man I could not wait to bring him back to New Orleans. He is an alcoholic and the one thing I hate is seeing someone with no health problems distorting their body. I am not sure why…
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Taste of food
First I want to thank those that welcomed me into the group and your words of encouragement and tips. My main obstacle right now after 3 weeks is the taste of food. All food tastes the same and that is it tastes like is aeful. Being a "foodie" I always ate for the pleasure of it and now it almost makes me sick when I try…
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Driving by had to stop in
Hi All Just wanted to sign in and say Hi and Merry Christmas to everyone. As some of you may know I am working on becoming a two time survivor this time for prostate cancer. I am back at the University of Pennsylvania and start cyber knife treatments January 11th. I was down Thursday for the planning session which included…
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Water bottle Nazis
For those of you who read my "I'm Angry" post about my husband not being allowed to take a water bottle into his 5 hour recertification exam (in spite of having a doctor's note).... I am now thumbing my nose at the water bottle Nazis. He passed his exam with flying colors and doesn't have to sit for it again until 2026.…
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Happy holidays, Merry Christmas, and Happy New Year!
Whatever holidays your family celebrates around this time of year, I hope you find them relaxing and joyful! For those going through treatments, enjoy the short break. My thoughts are with all of us as we move into a new year that I hope has as many scientific advances in treatments as we saw this year!
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What I got for Christmas UP-Date
My brother and I was talking last night when all of a sudden my hearing went out. Thinking that all it was is the batteries in my hearing aids I got up and changed them, that is when I realized it is not my hearing aids it was my hearing. I am not sure what happened but I went 100% totally deaf, I work up this morning but…
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Chef Daddy Mike
For all of you who remember Chef Daddy Mike, I got a text massage from him today saying he has been in the hospital for the last month throwing up blood but the ER doctors could not find the reason why. Then a few days later he started to have pains in his gut, he went back to the ER this time they did a CT and told him he…
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Merry Christmas
4 years out, cancer on my epiglottis, di vinci robotic surgery, no chemo or radiation needed. To all my bus riders, people who are just boarding, Merry Christmas and the very best New Year ever. The battle is real, the struggles are hard, but, oh, how sweet the victories!!!
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Merry Christmas to all...
Merry Christmas to our online Family
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giant central cell granuloma (Gccg)
Before I start, to all with this burden, my blessings to you and your families. My 21 yr old daughter has GCCG. Was prescribed by oncologist at seattle cancer treatment center for DENOSUMAB treatment. Has been taking for 8 months. Tumor has ceased growing, bone growth evident in jaw, a miracle. But my daughter believes…
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Cancer center treatment of America
My husband was diagnosed with stage 4 tonsil cancer the week after Thanksgiving. We are looking into his treatment options. We are being told its to large for surgery. We live in a small town in South Georgia. We have talked to doctors here and we have an appointment with cancer center treatment in Atlanta. Has anyone else…
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Clear scan
My husband just had his 3 month PET scan following chemoradiation for tonsil cancer and I am thrilled to report that he is CANCER FREE!!! We are so very grateful and relieved! I also wanted to say Thanks again to the folks here on this thread. When I was overwhelmed with caregiving and facing the most bleak moments of my…
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Merry Christmas, Happy Holidays and a Happy New Year
Three years ago today I was just coming out of surgery for a tonsillectomy and biopsies after a positive diagnosis of SCC Head and Neck cancer. Subsequent testing, surgeries and biopsies put me at SCC H&N Tx N2b MO Stage IV HPV+ (Not Pretty!). Unknown primaries make up only 1-2% of all H&N cancers. The road was long and…
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SCC 1/2 of tongue removed and lymph nodes
I'm new here and at this stage just scared to death. My son is a "special" individual (William's Syndrome); 31 years old. He had 1/2 of his tongue and lymph nodes on both sides removed two weeks ago. Continue to deal with the trach and PEG. We have an appointment with radiation oncology week after next. They are not…
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I just need to vent and get it out: UPDATE
I do not expect any replys, but I hope by just getting this out it will help me in some way deal with my grief. I do not talk with my sister for the last 18 years after my Mother passed because how she was and had become and lied to my Aunts. I do wish her all the best, but that does not include being in my life, I have…