-
Raw bleeding nose
Hello everyone, I am a two time nesopharngeal cancer survivor, pateient, sufferer, whatever it is called. Being a two timer (total of 14 weeks radiation to the head, not to mention all the fun chemo) basically everything above the shoulders is functioning at 20% except the brain, at least I think so. Anyway to make a long…
-
3 Years 10 months
Hi all , While I don't post often anymore , I still stop in now and then to catch up on the postings. I see my onco tomorrow and my ent on Monday for my 6 month check ups...had my CT scan on Monday , and after all this time that dang scanextity still creaps in ... So as my heading says I'm still kicking cancers **** and…
-
Round Two
Fellow warriors I haven't been on much lately because as I have explained in a previous posting it just seems cancer is all around me. I spoke abote one of our secretaries who developed brain cance in March and has sincepassed away and another officer of the local is also battling cancer. Now for another kick in the butt I…
-
Saw the Oncologist today....
So....there are the two nodes that lit up....but I guess also, there is a tiny little spot on the left pharynx that also lit up, just not like the nodes....nodes were SUV 5, that spot was a 2.7...but Dr. Goodman said that spot and the nodes are "inline"....I didn't know lymph nodes crossed the mid-line, but according to…
-
ROLL CALL 2015 - UPDATED 9-1-15 (CLOSED)
ROLL CALL 2015 Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll or Check-In whenever you see the ROLL CALL thread. I…
-
Jim
Had a little cancer scare last week when our new primary care physician considered some symptoms worrisome. Not cancer but rather neurological. Jim had three mini-strokes last weekend. He has fully recovered. This has been a real fear since he developed dysautonomia and one I was hoping would never come to reality.…
-
Esophageal Speech Failing after 40 years
Yes, my mom had a full laryngectomy in 1974 when she was in her early 40's. I can't believe it was actually 41 years ago as it's all I remember for her; I was 7 years old when she had her laryngectomy due to cancer. She successfully used esophageal speech until the last couple of years. I know some people historically have…
-
Nausea and Cisplatin -Help!
Hello everyone. My husbands last of 35 proton radiation tratments is tomorrow. YAAAAAYYYYYY!!!!! We can finally go home after 8 weeks out of town! His last chemo treatment of low dose of Cisplatin was 6 days ago and he is miserably nauseaous. Any ideas how to calm his stomach or when the nausea starts to subside? He s…
-
Cancer and radiation 44years ago
. I am a 44year survivor of lymphoepithilioma (cancer in the sinus draining and causing tumors in the lymph nodes on the neck. Because I was so young my doctors decided to try cobalt radiation instead of a radical neck dissection. It was successful and became standard treatment for quite awhile. Find someone to talk to.…
-
Knot in throat i
I have found a white spoit on the left side of my throat ,I am a week from My first scan after treatemt (With rad).I having the feelings that my throat is closine.But it feels like flum stuck,that I could cough up but I can"t. ..You All, Have done this ? Is it me. worring and in my mind .I hav e gone through some feelings…
-
Second go 'round w/ SCC
My FIL was diagnosed with SCC and underwent a supraglottic laryngectomy on 9/19. Unfortunately, he went through SCC 15 years ago in which they did a radical neck discectomy and he received his full dose of radiation at that time. His current pathologic stage is pT4aN0. Clean margins, but his pathology report indicates…
-
What is the protocol for spam on the message board
It really ticks me off that people use this message board to spam...like for tv shows etc. I have noticed an increase in the last few weeks. especially when their message starts with a cancer related line. They are taking advantage of people. What is the proper protocol to alert the administrators and block these people…
-
Cisplatin and Radiation begin Tuesday question??
Hi, I am getting weekly cisplatin. The first dose is scheduled at 5 pm and my time is blocked out until 1 am. I know everybody is different but how long did your chemo take? My dose is smaller given weekly but wow. Feedback appreciated. Karen
-
Just thanks
I just wanted to thank everyone for their advise ,still tired but helps to hear I am not the only one that is where I am at. I have a doctor A surgen and he told me the sugery (SP) was a 10-12-hr operation. He recomened cemo-Radition first.I had no idea what was going on. But He said chemo-radation is no picnic .Boy was he…
-
Fentanyl patches and hot showers are a fatal combination!
I was on a Fentanyl patch for a while. But weaned myself off it because I needed my hot showers so badly to clear my thick mucus. You might already know this. But just thought I'd share this with everyone in case people are unaware. Hot showers can trigger the patches to release too much drugs too quickly. The overdose…
-
Raised blister like bumps on tongue
Hello all, It's been awhile since we've posted here. Dale is 5 years post operation and 4 1/2 years after all chemo and radiation. All clear and really no matters to address since all treatments. He had stage 4 throat cancer on tongue and 3 lymphnodes. HPV based. He has some small, raised bumps on his tongue. maybe about a…
-
I learned a new abbreviation today...
I knew that NED meant no "evidence of disease". What I learned today was the abbreviation CR - "Complete Response"! That means the PET was all clear, NED and no trace of the tumor...all gone. It was more than we hoped for - my husband's reactions to chemo and radiation were so severe, and he is still battling mouth sores…
-
very Tired
First day 2nd post,Very tired I don;t know if this a information site or pity site, Don't care. History age 62, Ran 13 marathons 21 1/2 marthons,200+ trithons(sp) bike 45 miles a week,Can't run any more Bad back),8 weeks out from radation, It seens like the more time the more I am tired.I am getting really depressed.My…
-
Radation Fatigue
Iam out of radation treatment about 8 wks.I am so tired,today I moved 5 cases of pop and Had to sit down ,I thought I was going to fall down.It seems in the morning I can do little, but as the day goes on I get a little stronger. How long can this last . Thanks John
-
3 year anniversary-pyriform sinus ssc
Posts: 1 Joined: Oct 2015 Oct 13, 2015 - 4:19 pm My husband finished treatment three years ago today. He was diagnosed with ssc in his right pyriform sinus. At the time he was 55 and a non smoker. He has always exercised and had a very healthy diet. He had his treatment at the University of Chicago and we would highly…
-
My Uncle had Oral Cancer after surgery jaw getting harder & harder day by day
My Uncle had a Surgery of Lower Jaw cancer & it had been remade by Doctor. After two month of Surgery every thing was fine but now suddenly Lower Jaw started to get Harder & Harder day by day. (IS THIS A SIGN OF PROBLEM OR WHAT CAN ANY ONE SAY THIS TO ME)
-
New Guy Starting Chemoradiation treatment tomorrow... Yikes!
Hello All, I am am new to this site and a first time poster. I would first like to say a quick thank you all of you who are on here and continue to post valuable information and answer other various questions concerning all things H&N cancer related. I have already learned a lot from all your many posts and I really…
-
PET Scan Results
Praise God! No recurrance! The doctor said it looks like inflammation and they will recheck in three months. I am praying for good news from the rest of you. Bill echoed my feelings so well in his earlier post. As one of my favorite passages says, "I thank my God for every remembrance of you!"
-
New Granddaughter
My number 7 grandchild came to be a part of our family yesterday. She weighed in at 8lbs \13oz and 19 inches long. I now have 5 Girls and 2 Boys; just 10 years ago I did not believe I would ever see this day. It sure makes an old man happy
-
3 year anniversary-pyriform sinus ssc
Posts: 1 Joined: Oct 2015 Oct 13, 2015 - 4:19 pm My husband finished treatment three years ago today. He was diagnosed with ssc in his right pyriform sinus. At the time he was 55 and a non smoker. He has always exercised and had a very healthy diet. He had his treatment at the University of Chicago and we would highly…
-
what can help reach and keep remission
I am almost 3 weeks after treatment and I am still struggling for the side effects, mainly on mouse soar, throat soar, etc. This is tough and the contents in the site helped a lot. But I actually want to bring a topic on what we as a patient can do to reach or keep remission. I always curious about what others in this site…
-
Larynx Radiation - BIG Lump Sensation
Greetings... I am a 39 y/o male and I was diagnosed with very early Stage 1 Laryngeal Cancer recently. I've never smoked, and do not drink... so everyone was shocked that my simple vocal "polyp" turned out to be cancerous. I'm thinking it may be due to Reflux, which I've always had, but my ENT thinks it's more likely due…
-
What is LPR? GURD that goes higher up........
WHAT IS LPR? This is just an FYI, as I have GURD and LPR: During gastroesophageal reflux, the contents of the stomach and upper digestive tract may reflux all the way up the esophagus, beyond the upper esophageal sphincter (a ring of muscle at the top of the esophagus), and into the back of the throat and possibly the back…
-
NED for me
Greetings all, I began using this site 6 years ago after my daughter was diagnosed with multiple myeloma and then shortly after my wife with Lung cancer. Although I lost them both to cancer the information I gathered was invaluable so when I was diagnosed this past December 2014 with SCC I looked up my password and entered…
-
neck dissection after effects
Besides the issue that I'm having with the radiation side effects that everyone here has been very helpful with on advise on my other post, I have another issue I would like to hear your comments on. If you don't mind. I had surgery done for the tumor at the base of my tongue and right tonsil and then a dissection to…