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This is for all the "New" members, and the others that need it as well
This is for the "New" Members and the old as well. Listen to the words and you will understand the true meaning. https://www.youtube.com/watch?v=WrcwRt6J32o Then remember you are not ever alone in this, you have the greatest support group I have ever known. This just might give this song a new meaning to you. It did for…
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Rhinectomy--any advice?
Hello all- This is my first time posting and attempting a new thread, so hopefully I am doing this correctly! I am writing on behalf of my dad (69 y/o), as we just learned he will undergo a full rhinectomy next week. Everything has happened very quickly - he was first diagnosed with a nasal tumor in late May, followed by…
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Gravity feed bags
At one point the home health agency sent us a supply of 1000 ml gravity feed bags, but we didn't need them with the tube feeding. They are unopened and sealed but the agency can't take them back because they have been "in the home". If anyone can use these I am happy to mail them - please private message me. Barbara
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Update on 2nd Go 'round w/SCC
We met with my FIL's surgeon on Tuesday and he said there was a 30-40% chance of the cancer coming back within the next 5 years without re-radiating. With radiation we would have a 20-25% percent chance that it would come back. Obviously percentages are only that, but at this point, the reward is not greater than the risk.…
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IVa HP16 SCC
63 years old. Recently diagnosed with Stage IVa HPV16 Metastatic Squamous Cell Carcinoma, unknown primary (Bob, pick-up on aisle IVa, SCC, heavy on the STD, all checkers to the front! ). Radiation and chemo (concurrent), heavy on the chemo (Cisplatin). Possibly feeding tube (nutritionist said eating will become…
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Damn
I have been in and out of hospital so much in last two months and away from the posts. In hospital now and saw posts for Phrannie, Laralyn and Joe that are so upsetting As well as my continued thoughts for Bev. My prayers for each of you. Love Candi
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Sorry folks, but I just need a place to vent.....
As most of you know I'm a pretty stoic guy. I have very few "why me" or "when will this ever end" days but, the last two weeks have been just awful. I have what the Doc's are calling "Radiation Flashback". It's a well demonstrated but thinly researched condition that is caused (they think) by some forms of Chemo. In my…
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14 months post treatment
Hello all dear H&N friends, Been away for a while trying to get all life issues sorted and back on track. Missed u all. I am 14 months post treatment! Had my Pet scan this May, and it was NED :) though I'm having some pain in my forehead and the doctor asked for an MRI on Christmas. So till then, will keep u posted. Time…
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KTEACHER UPDATE
Hi All. Bev's sister, Shirley, posting here. So many of you are kind enough to continue to contact Bev and send prayers and well wishes and question how she is doing. She is extremely weak and tired. The pain in her head is getting worse, to the point that Don is having to increase her doses of morphine. She is still on…
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Two year checkup....NED
Well Monday was a very long day. I had to drive to my two year checkup which is 213 miles and we had a large storm so the four hour drive took five hours to get their be cause we got stuck for one hour in standstill traffic because of a wreck. The good news was the checkup was good as expected and my doctor said he liked…
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Joe Cortney CT UPDATE
Well folks got the results of the CT today and, I must say both my Doc and I are really shocked. A brief history is probably in order. A little over a year ago I had a reoccurrence of my HPV+ SQ BOT. There were a bunch of METS in my lungs and a new tumor that was wrapped around the muscle under the tongue and SQ was…
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Husband had his surgery yesterday.
And it went well. It was such a long day though. I don't think I was fully prepared for how long of a day it would be. Surgery was at 7:30 am, and he was done by 11 am. I didn't see him until about 3 pm. The doctor removed all of the tongue cancer (including margins, it ended up being about 1/3 of the right side of the…
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Keitter Up-Date 10-31-2-15
Hi everyone just a little up-date on Keitter, I just got an e-mail from her today, she is still fighting with all she can. They had to postpone some of her Chemo because she has lost to much weight and it was also making her very sick to continue treatment. Please keep the prayers coming in her behalf. God Bless you all…
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Worried about pain medication withdrawl
In order to manage the severe pain my husband experienced from the side effects of chemoradiation, and then a bout of "radiation recall" concurrent with adjuvant chemo in Spetember, the pain team doctors prescribed a high dose of methadone to replace fentanyl (150mcg) patches and oxycodone for breakthrough pain. Initially…
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Can't believe I am here- first post-updated
I am a wife posting because my husband was diagnosed on Monday. And I don't know what else to do. He had a sore on his tongue that would not go away and finally the third doctor he saw suggested a biopsy. And it came back as poorly differentiated squamous cell carcinoma of the tongue. We don't know what stage, but the…
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Raw bleeding nose
Hello everyone, I am a two time nesopharngeal cancer survivor, pateient, sufferer, whatever it is called. Being a two timer (total of 14 weeks radiation to the head, not to mention all the fun chemo) basically everything above the shoulders is functioning at 20% except the brain, at least I think so. Anyway to make a long…
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3 Years 10 months
Hi all , While I don't post often anymore , I still stop in now and then to catch up on the postings. I see my onco tomorrow and my ent on Monday for my 6 month check ups...had my CT scan on Monday , and after all this time that dang scanextity still creaps in ... So as my heading says I'm still kicking cancers **** and…
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Round Two
Fellow warriors I haven't been on much lately because as I have explained in a previous posting it just seems cancer is all around me. I spoke abote one of our secretaries who developed brain cance in March and has sincepassed away and another officer of the local is also battling cancer. Now for another kick in the butt I…
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Saw the Oncologist today....
So....there are the two nodes that lit up....but I guess also, there is a tiny little spot on the left pharynx that also lit up, just not like the nodes....nodes were SUV 5, that spot was a 2.7...but Dr. Goodman said that spot and the nodes are "inline"....I didn't know lymph nodes crossed the mid-line, but according to…
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ROLL CALL 2015 - UPDATED 9-1-15 (CLOSED)
ROLL CALL 2015 Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll or Check-In whenever you see the ROLL CALL thread. I…
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Jim
Had a little cancer scare last week when our new primary care physician considered some symptoms worrisome. Not cancer but rather neurological. Jim had three mini-strokes last weekend. He has fully recovered. This has been a real fear since he developed dysautonomia and one I was hoping would never come to reality.…
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Esophageal Speech Failing after 40 years
Yes, my mom had a full laryngectomy in 1974 when she was in her early 40's. I can't believe it was actually 41 years ago as it's all I remember for her; I was 7 years old when she had her laryngectomy due to cancer. She successfully used esophageal speech until the last couple of years. I know some people historically have…
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Nausea and Cisplatin -Help!
Hello everyone. My husbands last of 35 proton radiation tratments is tomorrow. YAAAAAYYYYYY!!!!! We can finally go home after 8 weeks out of town! His last chemo treatment of low dose of Cisplatin was 6 days ago and he is miserably nauseaous. Any ideas how to calm his stomach or when the nausea starts to subside? He s…
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Cancer and radiation 44years ago
. I am a 44year survivor of lymphoepithilioma (cancer in the sinus draining and causing tumors in the lymph nodes on the neck. Because I was so young my doctors decided to try cobalt radiation instead of a radical neck dissection. It was successful and became standard treatment for quite awhile. Find someone to talk to.…
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Knot in throat i
I have found a white spoit on the left side of my throat ,I am a week from My first scan after treatemt (With rad).I having the feelings that my throat is closine.But it feels like flum stuck,that I could cough up but I can"t. ..You All, Have done this ? Is it me. worring and in my mind .I hav e gone through some feelings…
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Second go 'round w/ SCC
My FIL was diagnosed with SCC and underwent a supraglottic laryngectomy on 9/19. Unfortunately, he went through SCC 15 years ago in which they did a radical neck discectomy and he received his full dose of radiation at that time. His current pathologic stage is pT4aN0. Clean margins, but his pathology report indicates…
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What is the protocol for spam on the message board
It really ticks me off that people use this message board to spam...like for tv shows etc. I have noticed an increase in the last few weeks. especially when their message starts with a cancer related line. They are taking advantage of people. What is the proper protocol to alert the administrators and block these people…
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Cisplatin and Radiation begin Tuesday question??
Hi, I am getting weekly cisplatin. The first dose is scheduled at 5 pm and my time is blocked out until 1 am. I know everybody is different but how long did your chemo take? My dose is smaller given weekly but wow. Feedback appreciated. Karen
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Just thanks
I just wanted to thank everyone for their advise ,still tired but helps to hear I am not the only one that is where I am at. I have a doctor A surgen and he told me the sugery (SP) was a 10-12-hr operation. He recomened cemo-Radition first.I had no idea what was going on. But He said chemo-radation is no picnic .Boy was he…
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Fentanyl patches and hot showers are a fatal combination!
I was on a Fentanyl patch for a while. But weaned myself off it because I needed my hot showers so badly to clear my thick mucus. You might already know this. But just thought I'd share this with everyone in case people are unaware. Hot showers can trigger the patches to release too much drugs too quickly. The overdose…