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Head and Neck Cancer

15 Months NED but still smoking..
Just Venting because im worried and no matter what I say to my hubby it doen't matter i watch him everyday first thing get up and out for a smoke.. smoking probably 20 -25 cigarettes a day.. high stress for certain which I guess is why ...working hard we have our own business.. He was doing pretty good but now on downswing…
Sometimes we got to have some fun....
We haven't done a pet post on here for a while.....and for those of us who have pets, we know that they make treatment a little easier....they make us laugh, they give us a reason to pull ourselves outside, even if it's just a pee run. These are my two girls....Lola and Betty (their names sound like they're part of a…
15 years post and now on a feeding tube
Hello all, I am new here and don't know where to start. In 2000 I did the 7wks radiation with 3 chemo treatments and then neck disection to remove lymphnodes at age 39. Recovery was slow but I made progress and life was somewhat back to normal. Well in Sept. 2013 I had to be put on a feeding tube from asperation and now I…
What a roller coaster....
After my PET scan, the ENT said "only in the two nodes"....I felt relieved hearing that. Then a week later I see the Oncologist and he says "well, not exactly....there's a spot in the pharnyx that lit up a little bit,,,2.7"....ok so I deal with that idea, thinking it's in the actual throat where I've never had cancer, talk…
Starting treatments this week!
Hopefully it's OK if I post about my lung cancer treatments here even though they aren't H&N. :-) The final decision is that the lung mass and nodes are inoperable, so I'm having 6.5 weeks of concurrent radiation and chemo (carboplatin+taxol). After that, I'll have two separate full-dose chemo treatments, three weeks…
Trach OUT!!!
My FIL had his trach removed today (so excited)! Any idea on how long it will take for the hole in his neck to heal?
Scope today
Today we had the follow-up nasopharyngeal scope following treatment. About three weeks ago we had gotten the all clear NED from the PET scan. Today's visual scope confirmed that the tumor is gone. What a blessing! Followup CT/MRI in 3 months and then another scope. Looks like that will be our routine for the next year.…
Encouragement
dear all, i saw this today and it made me feel so proud of my husbands scars and thankful for them. It also reminded me of all we went through since the day he was diagnosed. Time has passed. The scars have healed. We are doing well. Back during treatment it was hard to imagine we would get to this point. If you are just…
Just getting started and need info...HELP!!
Hey Everyone... I've struggled with hoarseness for six years. Over time, I've seen four ENT's without a solid diagnosis. I've been told by most it's acidreflux and prescribed meds...no help. I've had two endoscopoy's that showed no Barrett's or esophogus damage. However, my ENT (2013) found, and removed, two polyps. The…
Sweetblood
I was wondering how she was doing and if she still post. She helped me a lot when i was going through my cancer.
Something Wrong With Tongue
Ok, so a couple of days ago, my throat began to hurt and I just thought that I was becoming ill and had tonsillitis or something. Today, it is still hurting but I don't feel ill. So I went to the mirror and touched the back of my throat with my finger and I felt a couple of lumps (which I then thought were the reason it…
This is for all the "New" members, and the others that need it as well
This is for the "New" Members and the old as well. Listen to the words and you will understand the true meaning. https://www.youtube.com/watch?v=WrcwRt6J32o Then remember you are not ever alone in this, you have the greatest support group I have ever known. This just might give this song a new meaning to you. It did for…
Rhinectomy--any advice?
Hello all- This is my first time posting and attempting a new thread, so hopefully I am doing this correctly! I am writing on behalf of my dad (69 y/o), as we just learned he will undergo a full rhinectomy next week. Everything has happened very quickly - he was first diagnosed with a nasal tumor in late May, followed by…
Gravity feed bags
At one point the home health agency sent us a supply of 1000 ml gravity feed bags, but we didn't need them with the tube feeding. They are unopened and sealed but the agency can't take them back because they have been "in the home". If anyone can use these I am happy to mail them - please private message me. Barbara
Update on 2nd Go 'round w/SCC
We met with my FIL's surgeon on Tuesday and he said there was a 30-40% chance of the cancer coming back within the next 5 years without re-radiating. With radiation we would have a 20-25% percent chance that it would come back. Obviously percentages are only that, but at this point, the reward is not greater than the risk.…
IVa HP16 SCC
63 years old. Recently diagnosed with Stage IVa HPV16 Metastatic Squamous Cell Carcinoma, unknown primary (Bob, pick-up on aisle IVa, SCC, heavy on the STD, all checkers to the front! ). Radiation and chemo (concurrent), heavy on the chemo (Cisplatin). Possibly feeding tube (nutritionist said eating will become…
Damn
I have been in and out of hospital so much in last two months and away from the posts. In hospital now and saw posts for Phrannie, Laralyn and Joe that are so upsetting As well as my continued thoughts for Bev. My prayers for each of you. Love Candi
Sorry folks, but I just need a place to vent.....
As most of you know I'm a pretty stoic guy. I have very few "why me" or "when will this ever end" days but, the last two weeks have been just awful. I have what the Doc's are calling "Radiation Flashback". It's a well demonstrated but thinly researched condition that is caused (they think) by some forms of Chemo. In my…
14 months post treatment
Hello all dear H&N friends, Been away for a while trying to get all life issues sorted and back on track. Missed u all. I am 14 months post treatment! Had my Pet scan this May, and it was NED :) though I'm having some pain in my forehead and the doctor asked for an MRI on Christmas. So till then, will keep u posted. Time…
KTEACHER UPDATE
Hi All. Bev's sister, Shirley, posting here. So many of you are kind enough to continue to contact Bev and send prayers and well wishes and question how she is doing. She is extremely weak and tired. The pain in her head is getting worse, to the point that Don is having to increase her doses of morphine. She is still on…
Two year checkup....NED
Well Monday was a very long day. I had to drive to my two year checkup which is 213 miles and we had a large storm so the four hour drive took five hours to get their be cause we got stuck for one hour in standstill traffic because of a wreck. The good news was the checkup was good as expected and my doctor said he liked…
Joe Cortney CT UPDATE
Well folks got the results of the CT today and, I must say both my Doc and I are really shocked. A brief history is probably in order. A little over a year ago I had a reoccurrence of my HPV+ SQ BOT. There were a bunch of METS in my lungs and a new tumor that was wrapped around the muscle under the tongue and SQ was…
Husband had his surgery yesterday.
And it went well. It was such a long day though. I don't think I was fully prepared for how long of a day it would be. Surgery was at 7:30 am, and he was done by 11 am. I didn't see him until about 3 pm. The doctor removed all of the tongue cancer (including margins, it ended up being about 1/3 of the right side of the…
Keitter Up-Date 10-31-2-15
Hi everyone just a little up-date on Keitter, I just got an e-mail from her today, she is still fighting with all she can. They had to postpone some of her Chemo because she has lost to much weight and it was also making her very sick to continue treatment. Please keep the prayers coming in her behalf. God Bless you all…
Worried about pain medication withdrawl
In order to manage the severe pain my husband experienced from the side effects of chemoradiation, and then a bout of "radiation recall" concurrent with adjuvant chemo in Spetember, the pain team doctors prescribed a high dose of methadone to replace fentanyl (150mcg) patches and oxycodone for breakthrough pain. Initially…
Can't believe I am here- first post-updated
I am a wife posting because my husband was diagnosed on Monday. And I don't know what else to do. He had a sore on his tongue that would not go away and finally the third doctor he saw suggested a biopsy. And it came back as poorly differentiated squamous cell carcinoma of the tongue. We don't know what stage, but the…
Raw bleeding nose
Hello everyone, I am a two time nesopharngeal cancer survivor, pateient, sufferer, whatever it is called. Being a two timer (total of 14 weeks radiation to the head, not to mention all the fun chemo) basically everything above the shoulders is functioning at 20% except the brain, at least I think so. Anyway to make a long…
3 Years 10 months
Hi all , While I don't post often anymore , I still stop in now and then to catch up on the postings. I see my onco tomorrow and my ent on Monday for my 6 month check ups...had my CT scan on Monday , and after all this time that dang scanextity still creaps in ... So as my heading says I'm still kicking cancers **** and…
Round Two
Fellow warriors I haven't been on much lately because as I have explained in a previous posting it just seems cancer is all around me. I spoke abote one of our secretaries who developed brain cance in March and has sincepassed away and another officer of the local is also battling cancer. Now for another kick in the butt I…
Saw the Oncologist today....
So....there are the two nodes that lit up....but I guess also, there is a tiny little spot on the left pharynx that also lit up, just not like the nodes....nodes were SUV 5, that spot was a 2.7...but Dr. Goodman said that spot and the nodes are "inline"....I didn't know lymph nodes crossed the mid-line, but according to…

Head and Neck Cancer

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