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Head and Neck Cancer

Sorry folks, but I just need a place to vent.....
As most of you know I'm a pretty stoic guy. I have very few "why me" or "when will this ever end" days but, the last two weeks have been just awful. I have what the Doc's are calling "Radiation Flashback". It's a well demonstrated but thinly researched condition that is caused (they think) by some forms of Chemo. In my…
14 months post treatment
Hello all dear H&N friends, Been away for a while trying to get all life issues sorted and back on track. Missed u all. I am 14 months post treatment! Had my Pet scan this May, and it was NED :) though I'm having some pain in my forehead and the doctor asked for an MRI on Christmas. So till then, will keep u posted. Time…
KTEACHER UPDATE
Hi All. Bev's sister, Shirley, posting here. So many of you are kind enough to continue to contact Bev and send prayers and well wishes and question how she is doing. She is extremely weak and tired. The pain in her head is getting worse, to the point that Don is having to increase her doses of morphine. She is still on…
Two year checkup....NED
Well Monday was a very long day. I had to drive to my two year checkup which is 213 miles and we had a large storm so the four hour drive took five hours to get their be cause we got stuck for one hour in standstill traffic because of a wreck. The good news was the checkup was good as expected and my doctor said he liked…
Joe Cortney CT UPDATE
Well folks got the results of the CT today and, I must say both my Doc and I are really shocked. A brief history is probably in order. A little over a year ago I had a reoccurrence of my HPV+ SQ BOT. There were a bunch of METS in my lungs and a new tumor that was wrapped around the muscle under the tongue and SQ was…
Husband had his surgery yesterday.
And it went well. It was such a long day though. I don't think I was fully prepared for how long of a day it would be. Surgery was at 7:30 am, and he was done by 11 am. I didn't see him until about 3 pm. The doctor removed all of the tongue cancer (including margins, it ended up being about 1/3 of the right side of the…
Keitter Up-Date 10-31-2-15
Hi everyone just a little up-date on Keitter, I just got an e-mail from her today, she is still fighting with all she can. They had to postpone some of her Chemo because she has lost to much weight and it was also making her very sick to continue treatment. Please keep the prayers coming in her behalf. God Bless you all…
Worried about pain medication withdrawl
In order to manage the severe pain my husband experienced from the side effects of chemoradiation, and then a bout of "radiation recall" concurrent with adjuvant chemo in Spetember, the pain team doctors prescribed a high dose of methadone to replace fentanyl (150mcg) patches and oxycodone for breakthrough pain. Initially…
Can't believe I am here- first post-updated
I am a wife posting because my husband was diagnosed on Monday. And I don't know what else to do. He had a sore on his tongue that would not go away and finally the third doctor he saw suggested a biopsy. And it came back as poorly differentiated squamous cell carcinoma of the tongue. We don't know what stage, but the…
Raw bleeding nose
Hello everyone, I am a two time nesopharngeal cancer survivor, pateient, sufferer, whatever it is called. Being a two timer (total of 14 weeks radiation to the head, not to mention all the fun chemo) basically everything above the shoulders is functioning at 20% except the brain, at least I think so. Anyway to make a long…
3 Years 10 months
Hi all , While I don't post often anymore , I still stop in now and then to catch up on the postings. I see my onco tomorrow and my ent on Monday for my 6 month check ups...had my CT scan on Monday , and after all this time that dang scanextity still creaps in ... So as my heading says I'm still kicking cancers **** and…
Round Two
Fellow warriors I haven't been on much lately because as I have explained in a previous posting it just seems cancer is all around me. I spoke abote one of our secretaries who developed brain cance in March and has sincepassed away and another officer of the local is also battling cancer. Now for another kick in the butt I…
Saw the Oncologist today....
So....there are the two nodes that lit up....but I guess also, there is a tiny little spot on the left pharynx that also lit up, just not like the nodes....nodes were SUV 5, that spot was a 2.7...but Dr. Goodman said that spot and the nodes are "inline"....I didn't know lymph nodes crossed the mid-line, but according to…
ROLL CALL 2015 - UPDATED 9-1-15 (CLOSED)
ROLL CALL 2015 Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll or Check-In whenever you see the ROLL CALL thread. I…
Jim
Had a little cancer scare last week when our new primary care physician considered some symptoms worrisome. Not cancer but rather neurological. Jim had three mini-strokes last weekend. He has fully recovered. This has been a real fear since he developed dysautonomia and one I was hoping would never come to reality.…
Esophageal Speech Failing after 40 years
Yes, my mom had a full laryngectomy in 1974 when she was in her early 40's. I can't believe it was actually 41 years ago as it's all I remember for her; I was 7 years old when she had her laryngectomy due to cancer. She successfully used esophageal speech until the last couple of years. I know some people historically have…
Nausea and Cisplatin -Help!
Hello everyone. My husbands last of 35 proton radiation tratments is tomorrow. YAAAAAYYYYYY!!!!! We can finally go home after 8 weeks out of town! His last chemo treatment of low dose of Cisplatin was 6 days ago and he is miserably nauseaous. Any ideas how to calm his stomach or when the nausea starts to subside? He s…
Cancer and radiation 44years ago
. I am a 44year survivor of lymphoepithilioma (cancer in the sinus draining and causing tumors in the lymph nodes on the neck. Because I was so young my doctors decided to try cobalt radiation instead of a radical neck dissection. It was successful and became standard treatment for quite awhile. Find someone to talk to.…
Knot in throat i
I have found a white spoit on the left side of my throat ,I am a week from My first scan after treatemt (With rad).I having the feelings that my throat is closine.But it feels like flum stuck,that I could cough up but I can"t. ..You All, Have done this ? Is it me. worring and in my mind .I hav e gone through some feelings…
Second go 'round w/ SCC
My FIL was diagnosed with SCC and underwent a supraglottic laryngectomy on 9/19. Unfortunately, he went through SCC 15 years ago in which they did a radical neck discectomy and he received his full dose of radiation at that time. His current pathologic stage is pT4aN0. Clean margins, but his pathology report indicates…
What is the protocol for spam on the message board
It really ticks me off that people use this message board to spam...like for tv shows etc. I have noticed an increase in the last few weeks. especially when their message starts with a cancer related line. They are taking advantage of people. What is the proper protocol to alert the administrators and block these people…
Cisplatin and Radiation begin Tuesday question??
Hi, I am getting weekly cisplatin. The first dose is scheduled at 5 pm and my time is blocked out until 1 am. I know everybody is different but how long did your chemo take? My dose is smaller given weekly but wow. Feedback appreciated. Karen
Just thanks
I just wanted to thank everyone for their advise ,still tired but helps to hear I am not the only one that is where I am at. I have a doctor A surgen and he told me the sugery (SP) was a 10-12-hr operation. He recomened cemo-Radition first.I had no idea what was going on. But He said chemo-radation is no picnic .Boy was he…
Fentanyl patches and hot showers are a fatal combination!
I was on a Fentanyl patch for a while. But weaned myself off it because I needed my hot showers so badly to clear my thick mucus. You might already know this. But just thought I'd share this with everyone in case people are unaware. Hot showers can trigger the patches to release too much drugs too quickly. The overdose…
Raised blister like bumps on tongue
Hello all, It's been awhile since we've posted here. Dale is 5 years post operation and 4 1/2 years after all chemo and radiation. All clear and really no matters to address since all treatments. He had stage 4 throat cancer on tongue and 3 lymphnodes. HPV based. He has some small, raised bumps on his tongue. maybe about a…
I learned a new abbreviation today...
I knew that NED meant no "evidence of disease". What I learned today was the abbreviation CR - "Complete Response"! That means the PET was all clear, NED and no trace of the tumor...all gone. It was more than we hoped for - my husband's reactions to chemo and radiation were so severe, and he is still battling mouth sores…
very Tired
First day 2nd post,Very tired I don;t know if this a information site or pity site, Don't care. History age 62, Ran 13 marathons 21 1/2 marthons,200+ trithons(sp) bike 45 miles a week,Can't run any more Bad back),8 weeks out from radation, It seens like the more time the more I am tired.I am getting really depressed.My…
Radation Fatigue
Iam out of radation treatment about 8 wks.I am so tired,today I moved 5 cases of pop and Had to sit down ,I thought I was going to fall down.It seems in the morning I can do little, but as the day goes on I get a little stronger. How long can this last . Thanks John
3 year anniversary-pyriform sinus ssc
Posts: 1 Joined: Oct 2015 Oct 13, 2015 - 4:19 pm My husband finished treatment three years ago today. He was diagnosed with ssc in his right pyriform sinus. At the time he was 55 and a non smoker. He has always exercised and had a very healthy diet. He had his treatment at the University of Chicago and we would highly…
My Uncle had Oral Cancer after surgery jaw getting harder & harder day by day
My Uncle had a Surgery of Lower Jaw cancer & it had been remade by Doctor. After two month of Surgery every thing was fine but now suddenly Lower Jaw started to get Harder & Harder day by day. (IS THIS A SIGN OF PROBLEM OR WHAT CAN ANY ONE SAY THIS TO ME)

Head and Neck Cancer

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