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Head and Neck Cancer

Long time reader...first time posting...just completed 33 radiation sessions
Hello all! I've been reading this forum since I was diagnosed with adenoid cystic carcinoma in January. After surgery for what was initially diagnosed as a benign tumor, it ended up being Stage II ACC…
25 views
10 comments
0 point
Started by JM0377
Most recent by hlrowe
Nov 14, 2015
Head and Neck Cancer
Pain After I Am Ned
I had stage 4 squamas cell carcinoma on my tongue and inside my mouth along with my neck lymphnodes. I hade all of my tongue removed except about 1/4 in strip on my right side of my tongue. I also had…
13 views
4 comments
0 point
Started by Dav1965
Most recent by Kenny-
Nov 13, 2015
Head and Neck Cancer
Ok...about this neck dissection.....
I've been half nervous to even look it up on the internet, but since my ENT seems to have trouble spelling things out, I did.... So....those of you have had one. Did you have physical therapy? How lon…
237 views
32 comments
0 point
Started by phrannie51
Most recent by TracyLynn72
Nov 13, 2015
Head and Neck Cancer
15 Months NED but still smoking..
Just Venting because im worried and no matter what I say to my hubby it doen't matter i watch him everyday first thing get up and out for a smoke.. smoking probably 20 -25 cigarettes a day.. high stre…
18 views
3 comments
0 point
Started by granmudder
Most recent by jackflash22
Nov 13, 2015
Head and Neck Cancer
Sometimes we got to have some fun....
We haven't done a pet post on here for a while.....and for those of us who have pets, we know that they make treatment a little easier....they make us laugh, they give us a reason to pull ourselves ou…
25 views
43 comments
0 point
Started by phrannie51
Most recent by jackflash22
Nov 13, 2015
Head and Neck Cancer
15 years post and now on a feeding tube
Hello all, I am new here and don't know where to start. In 2000 I did the 7wks radiation with 3 chemo treatments and then neck disection to remove lymphnodes at age 39. Recovery was slow but I made pr…
7 views
4 comments
0 point
Started by Snickers1234
Most recent by jackflash22
Nov 13, 2015
Head and Neck Cancer
What a roller coaster....
After my PET scan, the ENT said "only in the two nodes"....I felt relieved hearing that. Then a week later I see the Oncologist and he says "well, not exactly....there's a spot in the pharnyx that lit…
32 views
28 comments
0 point
Started by phrannie51
Most recent by jackflash22
Nov 12, 2015
Head and Neck Cancer
Starting treatments this week!
Hopefully it's OK if I post about my lung cancer treatments here even though they aren't H&N. :-) The final decision is that the lung mass and nodes are inoperable, so I'm having 6.5 weeks of concurre…
10 views
8 comments
0 point
Started by Laralyn
Most recent by D Lewis
Nov 12, 2015
Head and Neck Cancer
Trach OUT!!!
My FIL had his trach removed today (so excited)! Any idea on how long it will take for the hole in his neck to heal?
9 views
6 comments
0 point
Started by Story45
Most recent by phrannie51
Nov 12, 2015
Head and Neck Cancer
Scope today
Today we had the follow-up nasopharyngeal scope following treatment. About three weeks ago we had gotten the all clear NED from the PET scan. Today's visual scope confirmed that the tumor is gone. Wha…
33 views
11 comments
0 point
Started by Barbaraek
Most recent by NJMOM
Nov 11, 2015
Head and Neck Cancer
Encouragement
dear all, i saw this today and it made me feel so proud of my husbands scars and thankful for them. It also reminded me of all we went through since the day he was diagnosed. Time has passed. The scar…
4 views
2 comments
0 point
Started by avisemi
Most recent by wmc
Nov 11, 2015
Head and Neck Cancer
Just getting started and need info...HELP!!
Hey Everyone... I've struggled with hoarseness for six years. Over time, I've seen four ENT's without a solid diagnosis. I've been told by most it's acidreflux and prescribed meds...no help. I've had …
10 views
11 comments
0 point
Started by Pjsmooty
Most recent by Pjsmooty
Nov 11, 2015
Head and Neck Cancer
Sweetblood
I was wondering how she was doing and if she still post. She helped me a lot when i was going through my cancer.
5 views
3 comments
0 point
Started by Dav1965
Most recent by Skiffin16
Nov 10, 2015
Head and Neck Cancer
Something Wrong With Tongue
Ok, so a couple of days ago, my throat began to hurt and I just thought that I was becoming ill and had tonsillitis or something. Today, it is still hurting but I don't feel ill. So I went to the mirr…
6 views
3 comments
0 point
Started by Unknownguy
Most recent by GavinP
Nov 10, 2015
Head and Neck Cancer
This is for all the "New" members, and the others that need it as well
This is for the "New" Members and the old as well. Listen to the words and you will understand the true meaning. https://www.youtube.com/watch?v=WrcwRt6J32o Then remember you are not ever alone in thi…
1 views
0 point
Started by wmc
Nov 10, 2015
Head and Neck Cancer
Rhinectomy--any advice?
Hello all- This is my first time posting and attempting a new thread, so hopefully I am doing this correctly! I am writing on behalf of my dad (69 y/o), as we just learned he will undergo a full rhine…
46 views
2 comments
0 point
Started by PTL_NYC
Most recent by PTL_NYC
Nov 9, 2015
Head and Neck Cancer
Gravity feed bags
At one point the home health agency sent us a supply of 1000 ml gravity feed bags, but we didn't need them with the tube feeding. They are unopened and sealed but the agency can't take them back becau…
3 views
1 comments
0 point
Started by Barbaraek
Most recent by MarineE5
Nov 9, 2015
Head and Neck Cancer
Update on 2nd Go 'round w/SCC
We met with my FIL's surgeon on Tuesday and he said there was a 30-40% chance of the cancer coming back within the next 5 years without re-radiating. With radiation we would have a 20-25% percent chan…
6 views
4 comments
0 point
Started by Story45
Most recent by Story45
Nov 8, 2015
Head and Neck Cancer
IVa HP16 SCC
63 years old. Recently diagnosed with Stage IVa HPV16 Metastatic Squamous Cell Carcinoma, unknown primary (Bob, pick-up on aisle IVa, SCC, heavy on the STD, all checkers to the front! ). Radiation and…
51 views
18 comments
0 point
Started by Oregonian_squamous
Most recent by sammydiego
Nov 7, 2015
Head and Neck Cancer
Damn
I have been in and out of hospital so much in last two months and away from the posts. In hospital now and saw posts for Phrannie, Laralyn and Joe that are so upsetting As well as my continued thought…
8 views
8 comments
0 point
Started by hwt
Most recent by jcortney
Nov 6, 2015
Head and Neck Cancer
Sorry folks, but I just need a place to vent.....
As most of you know I'm a pretty stoic guy. I have very few "why me" or "when will this ever end" days but, the last two weeks have been just awful. I have what the Doc's are calling "Radiation Flashb…
19 views
20 comments
0 point
Started by jcortney
Most recent by Goyca
Nov 6, 2015
Head and Neck Cancer
14 months post treatment
Hello all dear H&N friends, Been away for a while trying to get all life issues sorted and back on track. Missed u all. I am 14 months post treatment! Had my Pet scan this May, and it was NED :) thoug…
3 views
8 comments
0 point
Started by Goyca
Most recent by Goyca
Nov 6, 2015
Head and Neck Cancer
KTEACHER UPDATE
Hi All. Bev's sister, Shirley, posting here. So many of you are kind enough to continue to contact Bev and send prayers and well wishes and question how she is doing. She is extremely weak and tired. …
23 views
15 comments
0 point
Started by KTeacher
Most recent by Goyca
Nov 6, 2015
Head and Neck Cancer
Two year checkup....NED
Well Monday was a very long day. I had to drive to my two year checkup which is 213 miles and we had a large storm so the four hour drive took five hours to get their be cause we got stuck for one hou…
12 views
18 comments
0 point
Started by wmc
Most recent by Goyca
Nov 6, 2015
Head and Neck Cancer
Joe Cortney CT UPDATE
Well folks got the results of the CT today and, I must say both my Doc and I are really shocked. A brief history is probably in order. A little over a year ago I had a reoccurrence of my HPV+ SQ BOT. …
36 views
14 comments
0 point
Started by jcortney
Most recent by donfoo
Nov 6, 2015
Head and Neck Cancer
Husband had his surgery yesterday.
And it went well. It was such a long day though. I don't think I was fully prepared for how long of a day it would be. Surgery was at 7:30 am, and he was done by 11 am. I didn't see him until about 3 …
1 views
9 comments
0 point
Started by swopoe
Most recent by swopoe
Nov 6, 2015
Head and Neck Cancer
Keitter Up-Date 10-31-2-15
Hi everyone just a little up-date on Keitter, I just got an e-mail from her today, she is still fighting with all she can. They had to postpone some of her Chemo because she has lost to much weight a…
20 views
6 comments
0 point
Started by Hondo
Most recent by joannaw81
Nov 5, 2015
Head and Neck Cancer
Worried about pain medication withdrawl
In order to manage the severe pain my husband experienced from the side effects of chemoradiation, and then a bout of "radiation recall" concurrent with adjuvant chemo in Spetember, the pain team doct…
17 views
12 comments
0 point
Started by Barbaraek
Most recent by wmc
Nov 5, 2015
Head and Neck Cancer
Can't believe I am here- first post-updated
I am a wife posting because my husband was diagnosed on Monday. And I don't know what else to do. He had a sore on his tongue that would not go away and finally the third doctor he saw suggested a bio…
45 views
22 comments
0 point
Started by swopoe
Most recent by luv_freedom
Nov 2, 2015
Head and Neck Cancer
Raw bleeding nose
Hello everyone, I am a two time nesopharngeal cancer survivor, pateient, sufferer, whatever it is called. Being a two timer (total of 14 weeks radiation to the head, not to mention all the fun chemo) …
22 views
1 comments
0 point
Started by dadio
Most recent by MrsBD
Nov 2, 2015
Head and Neck Cancer

Head and Neck Cancer

Head and Neck Cancer

Long time reader...first time posting...just completed 33 radiation sessions

Pain After I Am Ned

Ok...about this neck dissection.....

15 Months NED but still smoking..

Sometimes we got to have some fun....

15 years post and now on a feeding tube

What a roller coaster....

Starting treatments this week!

Trach OUT!!!

Scope today

Encouragement

Just getting started and need info...HELP!!

Sweetblood

Something Wrong With Tongue

This is for all the "New" members, and the others that need it as well

Rhinectomy--any advice?

Gravity feed bags

Update on 2nd Go 'round w/SCC

IVa HP16 SCC

Damn

Sorry folks, but I just need a place to vent.....

14 months post treatment

KTEACHER UPDATE

Two year checkup....NED

Joe Cortney CT UPDATE

Husband had his surgery yesterday.

Keitter Up-Date 10-31-2-15

Worried about pain medication withdrawl

Can't believe I am here- first post-updated

Raw bleeding nose

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Head and Neck Cancer

Head and Neck Cancer

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