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Feeling tired and sleeping alot
I'm 3 months post treatment and I feel tired quite a bit and can fall asleep and sleep most of a day if I'd let myself. I went through chemo and radiation. Anyone else have this problem? Is this normal? Thanks.
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Having trouble with no saliva
Hello, I am looking for help please. My salivary glands were burned away in what was considered "stone age" radiation 18 years ago, I had a stage 4 tumor at the base of my tongue and received radiation twice a day for 8 weeks. It metastasized onto my carotid artery and I had a radical neck dissection. I lived and the…
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update from silent one
Finished my chemo and radiation on Sept 29th. 90 day PET scan showed NED of the supraglottal SCC but the left lymph node lit up the scan at 2.1cm. Greatly reduced from original 5+cm and team still not certain of character of nodes. Dr gave me option of having lymph nodes left surgically removed or just wait and see what…
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Vacationing and accomodating
Well we are attempting our first vacation since diagnosis and treatment. We finished the last of our tx. in September but fought horrible mucositis and other side effects into October. We are still dealing with severe dry mouth, dry eyes, some fatigue, and using the PEG. But it was time to get out of Dodge - or in our case…
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Necessity is the mother of invention
So my husband is targeting the end of January to get back to work in the operating room. His particular speciality (liver and pancreas cancer) usually means being in the OR anywhere from 3-9 hours. Here's the problem...dry mouth. So far he's had very little return of salivary function. He needs a way to drink without…
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Back to the Island again
Made it back Home again. The one thing I know about life is that there is no place like home. I was not born on the Island but I grew up on it, and enjoy it everytime I get to come back. Now after 43 years of working in the US I can come and go and stay as long as I want. I am not sure what it is about this place but it…
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Looking to purchase cans of Jevity 1.5 ASAP
Hello, I'm in Colorado Springs, and I'm looking to purchase any cans of Ross Jevity 1.5 that anyone might have leftover. Most medical supply stores are not open today, pharmacies don't carry it, and the hospital from which we received the initial supply of cans is not available for us today. If you have any extra cans that…
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Update on my mother
I rarely ever post on this but ever since my mom was diagnosed in 2013, this forum has been so helpful for me to know that other ppl are fighting this battle and winning. Phrannie - you were such a source of information for us - i'm so sorry to hear about your recurrence but I know you will beat and FIGHT this beast. (FU…
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Janet Jackson - hope it's not HNC
https://www.yahoo.com/health/janet-jackson-reportedly-battling-throat-cancer-151126263.html
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Not sure if I should just flip a coin
Hi all been awhile.Anyway in Dec I an xray done of my jaw to make sure it was solid enough for implants.Last June they did a bone graph to seal up a small hole in my chin to make healing faster then waiting for it to fill in.Finally heard back from my doctors nurse.She said the x-rays shown that the jaw looked to be in…
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Glycopyrrolate for mucousitis
Has anyone here tried this drug? My husband was given this on Monday, and I must say that it has been working wonders for him. He had a pretty rough end to the week last week with really bad mucousitis, which caused him to vomit a few times and really prevented him from eating by mouth. Thank goodness for the PEG tube over…
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Dental Impants post radiation
After completing radiation in early 2007 I started to have issues about a year later with facial swelling and random fevers. After many trips to the ER and Oncologist, I found out it was was due to my teeth. Before I started radiation I had never had a cavity. After treatment, I saw my dentist every three months like I was…
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interesting article on NPC
interesting article posted today about NPC...hopefully this gets us closer to understanding this freakin 'C' and beating it. http://www.healthcanal.com/cancers/69683-dna-change-impacts-spread-of-cancer-causing-virus.html
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First round of treatments done!
Last Tuesday I had the final radiation treatment. My white blood cell counts were too low the three times we attempted chemo, so we called chemo done as well. So I'm all done with the first round of treatments! In February, I have two rounds of higher dose chemo (Carboplatin and Taxol), three weeks apart. Then in March or…
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3 months out
Hello, My husband is 3 months out from chemoradiation for tonsil cancer. We are weaning him off the tube and it's been almost one week since we haven't used it at all. I started out making hot cereal, eggs, and soups, etc, but now we're mostly relying on shakes because they're so easy to do and to add the calories. The…
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American Cancer Society Has Let Us Down
American Cancer Society Has Let Us Down Because: Medicine still treats head cancer the same way medicine did in 1994. I was given a terminal diagnosis. I survived. But not really. I suffered for the last 15 years from the aftermath of 7500 Rads of radiation to my head, throat and lungs. Now, I have received a prognosis of…
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Swollen sinus and ear pain from radiation
Checking to see if anyone has had issues with their sinus's after radiation treatments to their Head/Neck. My treatment was directed at my sinuses and lymphs, but I still have issues with my sinus's not draining and water building up cause severe ear and sinus pain... any suggestions on what I can do to help it would be…
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Happy New Year
Hi All , Wishing you all a Healthy & Happy New Year ....today is my 4 yr anniversary cancer free . It's surreal in the fact that 4 years has passed , some days it seems like just yesterday . While I don't get to this site often , I think of you often, for those of you just starting this journey or still in the fight it's…
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Welcome 2016 This is for all the "Newer" members to our family.
We always welcome the New Members with open arms, but always have to add we are sorry you need to be here. Yes you will be going down a very rough road. Just about the worst road there is with twists and turns everywhere. So for all the caregivers and patients gowing through this remember you are not alone in this. So…
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How long after radiation will the pain finally get easier?
My husband just finished 6 weeks of rads last week. The pain this week has gotten worse. He takes about 6 oxycodones a day, but still has moments where he literally shivers with pain when he swallows or has a bit of acid reflux. He's taking something for that, but it's not 100% working. He takes all his medicine and…
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Looking for ideas to saliva issues - opening under chin
Hi all! My father had surgery for Esophageal Cancer this summer, please excuse my non-techinical terms but I want to make this as clear as I can so I am understood :) He had a total laryngectomy and the plan was to remove the larynx and the cancer ridden esophagus in the upper throat and replace the esophagus w/ a piece of…
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Keitter back in the Hospital again Up-Date
I just got an e-mail from one of Keitter nephews saying that they had to put her in the hospital today so please keep her in prayer. She has been going through hell for the last few months with this new Chemo she has been taking Thank you all for your prayer and thoughts Tim
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Insurance solution? Maybe....
Well, after an hour of updating our information on the Marketplace and seeing premiums that were outrageous...I had to walk away for a few days. I now have logged in and found a policy that is about $50 more a month than what we are paying now. Is it comparable like they say? No. Is it worth having "something"? I think…
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My brother came to spend Christmas
I went and picked up my brother who lives somewhere in New Orleans so he could spend Christmas with me. It was nice having him around but man I could not wait to bring him back to New Orleans. He is an alcoholic and the one thing I hate is seeing someone with no health problems distorting their body. I am not sure why…
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Taste of food
First I want to thank those that welcomed me into the group and your words of encouragement and tips. My main obstacle right now after 3 weeks is the taste of food. All food tastes the same and that is it tastes like is aeful. Being a "foodie" I always ate for the pleasure of it and now it almost makes me sick when I try…
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Driving by had to stop in
Hi All Just wanted to sign in and say Hi and Merry Christmas to everyone. As some of you may know I am working on becoming a two time survivor this time for prostate cancer. I am back at the University of Pennsylvania and start cyber knife treatments January 11th. I was down Thursday for the planning session which included…
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Water bottle Nazis
For those of you who read my "I'm Angry" post about my husband not being allowed to take a water bottle into his 5 hour recertification exam (in spite of having a doctor's note).... I am now thumbing my nose at the water bottle Nazis. He passed his exam with flying colors and doesn't have to sit for it again until 2026.…
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Happy holidays, Merry Christmas, and Happy New Year!
Whatever holidays your family celebrates around this time of year, I hope you find them relaxing and joyful! For those going through treatments, enjoy the short break. My thoughts are with all of us as we move into a new year that I hope has as many scientific advances in treatments as we saw this year!
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What I got for Christmas UP-Date
My brother and I was talking last night when all of a sudden my hearing went out. Thinking that all it was is the batteries in my hearing aids I got up and changed them, that is when I realized it is not my hearing aids it was my hearing. I am not sure what happened but I went 100% totally deaf, I work up this morning but…
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Chef Daddy Mike
For all of you who remember Chef Daddy Mike, I got a text massage from him today saying he has been in the hospital for the last month throwing up blood but the ER doctors could not find the reason why. Then a few days later he started to have pains in his gut, he went back to the ER this time they did a CT and told him he…