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Today I see my Rad s Onco UPDATE.S
* Saw the dr. Got the same. Can do Quadromet (whole body rads). She didn't seem excited. My son asked why she didn't sound toxxxo excited. She said a lot of paperwork with ins. To get it approved and a 50/50 chance that it will do anything. Side effects are.low red and white cells, and red cells may not come back. If it…
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Havent posted in awhile- little concerned
Hello guys, I dont post much but ready everyday. So sad that therre are so many new people on this forum. For those who know my mom's story she has been cancer free for 3 years and 10 months since her last surgery. She had total of 2 recurrances after original cancer diagnosed in 2010. anyway in the last couple of days she…
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Son in law
of all the bad luck my step son in law has just been diagnosed with head and neck cancer. He has to start surgery and radiation soon. He's heading out to Florida with his daughters to spend Xmas day in Disney land so he's postponed treatment. He lost his wife to ovarian cancer three years ago, his daughters all live at…
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Commercials
Is anyone else annoyed by constant Cancer commercials on TV? It is impossible to forget about cancer for a minute , there seems to be constant American Cancer Society and Cancer Treatment Center commercials. We have AT&T Uverse and The Cancer Treatment Centers have two channels running continuous commercials. It annoys me…
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I'm Angry!!
Ok, I usually don't get mad... but yesterday I was sooo angry. As some of you know my husband is a cancer doc himself and is now 3 months post tx. for SCC nasopharyngeal tumor. Like many of you has xerostomia - dry mouth - and so far produces close to zero saliva. On top of all that he has been through this year, it was…
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good responce
Hello everyone, thank you all again for your responces to my concerns. That said. I want to wish everyone out there the happiest of holidays. I know sometimes it looks hard to do, but sit up straight. Remember you have been the best person you've known since you were 6 and still are (don't tell my wife). Decide to do it.…
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Trouble with ear pain while eating and swallowing
Hi, I am new here. My name is Tracy and I am 11 years out of treatment for head and neck cancer. My cancer was on the RIGHT side and was found in a lymph node in my neck. They could not find the cancer anywhere else so I am known as an Unknow primary. I was blasted on the right and left side from my nose area all the way…
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Remind Me
Hi, Well last Wed I finished all my rads/chemo and I know I am still cooking. Cooking for weeks possibly. My Onc said the first week would be no better and the second week might be a tad better. But please remind me. My throat is killing me and its this weird itchy thing. My mucous is supposedly my saliva per MD thats…
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Painful throat, glands, neck and headache
I had cancer of the voice box almost five years ago with radiation and chemo for my treatment. Happy to say I've had a good four and a half years with one or two scares that proved nothing to worry about. In August I started to get a burning in my throat. A helpful person on the boards suggested acid reflux backing up to…
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What did you eat during treatments?
It must seem odd that I'm asking this question, since I went through H&N treatments with the other folks here. My experience wasn't quite the usual one though--I had a PEG tube from the start, and beyond swallowing water mostly relied on it during treatments because narcotics caused my stomach to largely shut down. So I…
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Rib Cancer
Hi all, I have learned so much from this group for my uncle when he was diagnosed with neck cancer. He had been NED for the last 3 years and recently started having pain in his shoulder. We took him to the Dr. today and an xray and scan were done, the Dr said that he now has cancer on his ribs. He goes thru the VA and they…
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new member 1 year post surgery. still need help
Last December I had a total Laryngectomy and Lymph Node removal. I kept /keep a P.M.A. But I'm still very depressed. I see A Doctor for this I'm on meds but they don't seem to make much of a change in how I feel. I've read some books and talked with the surgens they assure me I'll be fine. every night I go to sleep…
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The time does go by fast, so far.
6 radiation days done (1/5 done) and 2 chemo done (1/3 done) already. Seems like just yesterday that my husband started. So far he feels great, and he saw his radiation doc and oncologist yesterday who both said that he looks great too. So far no weight loss (still hanging in there at 205 lbs at 5'11") and blood counts all…
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trach from throat cancer
My father has had a trach now since February 2015. He was diagnosed with stage 3 throat cancer which was on his voicebox. We found this out on a Friday and that Monday morning went in for surgery to have the trach placed. He has since finished his radiation and chemo treatments. He still has a ton of swelling from the…
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Have you
has anyone had liquid run back down their nose. I was drinking coffee and suddenly felt my nose running and coffee was coming out. Sometimes when I eat a biscuit I feel like I want to sneeze and its in the base of my nose. This is only just started.
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Can't Find My Earlier Posts
I am a Stage 4 throat cancer survivor from 2008. Relatives told me to forget it and go on, never wanting to hear again about my battle and treatment. But I re-discovered my username for this blog after many years. Years ago on this site I asked about an old high school friend was sold on not getting standard medical…
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Security Alert
Has anyone else received a "security alert" when signing in to CSN? Should it be a concern?
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Maybe useful info
For those of you on Medicare who have found that additional scans will not be covered there may be a solution. Medicare recently approved low dose CT lung scans for people on Medicare, under 77 years old and with a history of smoking. You must have smoked within the last 15 years and smoked on average of one pack per day…
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OK, Stanford Medical wants me to speak and show the SLP's how to make Products Laryngectomees need
Ok I went to Stanford Medical yesterday 430 miles round trip to have my TEP Prosthesis changed [so I can talk]. This one lasted five months and might have gone just a little longer, and they have been only lasting two months. So once again it is time to certify and recertify the SLP's who work with TEP's. They have me…
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Trying to hang in there
To catch folks up, since I haven't posted here that much in the past 6 months or so, I was treated for Stg. IV SCC HPV+ in my left tonsil and soft palate in mid-2012. I had chemoradiation with cisplatin. I was all clear until late October of this year, when pneumonia revealed a mass in my right lung. It's the same cancer…
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Another newbie
I want to start by saying thank you to everyone who posts on this site. I've been lurking for a few weeks now and have already learned so much. I am 'the wife'. Paul was diagnosed with Tonsil cancer, stage 4b SCC in September. Neck dissection followed in October and Cetuximab and radio kicked off two weeks ago. The…
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Hello
Just realized I haven't checked in on everyone in months. After my mom died in August, of cancer, I was just so numb and sad I couldn't think straight. Three weeks ago Jim's dog had severe pancreatitis and was diagnosed with diabetes. Diabetes in dogs is very expensive to treat and I can't afford it so as with my mom and…
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blast from the past!
Hello everyone! It has been SO very long since I've been on here. I had some computer issues, got rid of said computer and now I am accessing thru my iPad. I've missed you all and hope you are all well. So far I'm NED, yay! Please know I never ever go a day without thinking of you all and thankful for all that you did to…
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Current patient and wanted to introduce myself
Hello all, I am new to the group and am posting my situation in case someone has a similar situation and has questions. I was diagnosed with stage iv SCC N-0 March 2014. I had surgery to remove the tumor in my sinus cavity and my soft palette was removed with some hard palette, due to personal feelings about quality of…
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New caregiver need advise
Hello to all, I am new to this entire process. My husband was just diagnosed with 2.5cm mass on base of tongue. He also has a spot on lung found by accident when is CT scan was done. The surgeon said no surgery because it is too large. We meet with the radiologist on Tuesday. What questions should we ask about his…
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Friend that refuses treatment
I would like to know answers to some important topics. I am now a 13 month survivor of stage 4 tongue based squamus cell cancer. A life log friend was recently diagnosed with stage 2-3 of the same thing. I completed the full operation/chemo/radiation treatment. My friend just decided to refuse normal treatment and go to a…
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So many new people...
Just reading the posts over the last week or so, it seems that there is a whole new "class" of folks lined up to receive treatment or are just beginning their treatments. I just wanted to say I'm thinking of ALL of you. It is such a rough and rocky road, but you will make it. My husband and I have hit the 6 month post…
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I found this product.....
via a friend who's dad is going through throat cancer. Granted it's not full of calories, BUT it's a protein powder that comes in flavors other than vanilla and chocolate.....it actually comes "unflavored" so can be added to anything that could use a boost in protein. You could get 21 grams of protein in a glass of water .…
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Day 1 in the books
and I am so proud of my husband. Radiation and Chemo (cisplatin) done like a champ. It was such a long day, and I am so glad my parents were here to get my kids from school and make them dinner because we didn't get home until late. I cried a lot today, but my husband was so strong. He doesn't feel any different so…
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Freaking out!!
My husband went for his first post treatment pet scan and we are scheduled to meet with our ENT on Friday to discuss the results. This afternoon, his oncologist called to tell my husband that he has seen the pet scan and the BOT in the tongue looks very, very good...small spot there but it may be inactive/dead and that the…