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Auction quilt UPDATED
So I posted the wallhanging/quilt in an earlier post. Here is a picture of my husband and I with Hall of Fame quarterback Jim Kelly - who is a survivor of H&N SCC. He was kind enough to sign the quilt and it was auctioned off and brought in $150. Very emotional evening for my husband and I. Barbara
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New to this, but getting experience real quick
Hi to all out there and my sincere best wishes to the same I have only recently joined this elite club and have paid my membership dues in full. When I first heard the nasty "C" word, it most certainly came as far more than just a shock. It was a smack upside the head of the most gargantuan proportions. I very quickly…
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Rad/Chemo starts next week
My husband is ready. I am scared. So where I left off was that my husband had stage 1 (T1N0M0) oral tongue cancer that had not spread to any lymph nodes. There was perinueral invasion so we were deciding between careful monitoring and further treatment. On Nov. 19th, we spent 9 hours at doctor's offices at MD Anderson and…
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Physical Therapy?
I was wondering if anyone has had any PT done to help ease the tense muscles on your shoulder from a neck dissection? I was going to ask the doctor about it when I see him next week. Ibuprofen helps some but not that much. I use biofreeze a lot that helps some. But just sitting in the chair watching tv I can feel the…
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MOUTH WASH
When I started my radation ,I joined a trial study on different mouth washes,to numb you so you could eat. The study had 3 different washes. I was luckey and the one I got worked.!! It would num my throath about 2hrs. I don"t know if you can get it but it was great. It is doxepin hydrochloride oral solution,usp…
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Submandibular gland swollen
I've searched everywhere trying to find some answer, since my family isn't particularly supportive, they would prefer to bury their heads. Anyways, I am 30 years old, female. About a year ago I noticed a gland on the left side of my throat under my jaw was swollen. i left it alone for a few months, until it started growing…
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Happy Thanksgiving!
Wishing you all a very happy Thanksgiving! I know that I personally have an awful lot to be thankful for this year (and every year!) I am truly thankful for all of my family here on CSN! I hope you all have a great day with friends and family! Love you all!!
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A big scare...and lessons learned
So the main lesson learned is that you need to transition to real food by mouth S-L-O-W-L-Y. For the past month I've been helping my husband try to eat some foods by mouth again. Mostly I've been doing pureed soups, yogurt, applesauce etc. Well today he took the nurse practitioners that work in his clinic out to lunch for…
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Filling for cavity post-radiation
Hi, I am almost two weeks post-radiation and require a filling for a cavity. I have read about needing antibiotics for extensive dental work such as extractions, but haven't seen anything about precautions for a filling. My dentist thinks I shouldn't need any antibiotics. Of course, my radiation oncologist's office isn't…
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scan results
Both head & neck and chest CTs were negative. Don't think there will ever come a time that I don't cry for happy when I hear those results. The anxiety is so bottled up and just explodes. Prayers answered thank you all.
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ROLLCALL 2015 - UPDATED NOV. 1, 2015
ROLL CALL 2015 Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll (name, town, state, dx) or Check-In whenever you see…
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Sudden sensorineural hearing loss
A few weeks ago my husband was fitted with hearing aids and things were GREAT! He was hearing better than he had in years...or at least since the Cisplatin accelerated his hearing loss. He was no longer asking people to repeat everything, no longer leaning in to hear people. The bluetooth directly to his mobile phone was…
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Nasopharynx is....
....clear! Whoo Hoo....Yippie Ki Yi.....Woopie.....Hallaluah....!!!! Dr. called a little while ago with the biopsy results. He took several biopsies of the nasopharynx, all of them were clear. Ended up with 3 nodes with cancer, not just the two that we saw on the PET scan.....one is excapsulated, so that means chemo again…
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What Cancer cannot do - UPDATE
Am posting this for everyone...and especially for those on the board here who are in the middle of their treatment. Big fundraiser coming up for the cancer center where my husband works and was treated, so I made this wallhanging to be auctioned off. I figured the person who buys it can use the outside rectangles as a…
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Damn! The drain hole
from the neck dissection won't quit leaking. It was fine Tues and most of yesterday....then last night when I was getting undressed for bed the cork blew out, and it drenched my camisole....soaked it. I put another bandaid on it, but woke up this morning and my pj's are soaked. Put gauze and tape over it, and it is now…
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First post here - hubby is 7 weeks out
Hi all, I'm new here, but have been reading your posts since last summer when my hubby was dx with tonsillar squamous cell carcinoma. He had 35 doses of radiation and 7 weekly doses of Cisplatin. From what I can tell by reading here, he had a pretty severe reaction to the chemo. He was dehydrated, fell down, had…
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Keitter doing a little better
Hi Everone: I got an e-mail from Keitter the Chemo is giving her a good butt kicking but it sounds like she is doing a lot better this week. She also has a lot of her family coming in for the holidays, especially her Mother and Sisters. She said to thank you all for remembering her in your prayers. That’s what family is…
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Food Aversion
Hi, I just wanted to run something by you guys. Heading into my fourth week of TX. Starting last week I developed a food aversion (made that up). First I was full after a couple bites and of course food tastes either weird or bad. Then the metallic taste started and I was sick after eating a few bites. Now it just seems…
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Appetite after rad treatments
I finished my rad treatments after tumor removal at base of tongue and partial dissection of one lymph node level 1 just under right jaw. Last rad treatment was on Sept. 21st. I have a feeding tube but I can eat most anything now. I have a little bit of a hard time with any tough meats because I only have my front teeth…
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How a bad day turned into a very good day
Where do I even begin? My husband had a partial glossectomy and selective neck dissection on Nov. 4th. Recovery was going very well until last night when out of the blue, he bit his tongue pretty hard. After applying pressure with gauze and not getting the bleeding to stop, his doctor advised us to go to the ER. To make a…
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my mouth sores
My mouth sores or tongue sores as it bwere just won't go away! I'm at over 12 weeks and keep great oral hygene up as well as the salt and baking soda rinse,and even use a mouth sore rinse by ORGEL buy the damned thing is still here on the side of my tongue where the most cancer was. Nurse says cause I'm still cooking well…
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Last ct & oral exam--clean
Just got my last ct and exam by two different doctors ,I think they share me for the money. I came out clean. I had a white spot on my left tonsil that I was worried about, but they both told me it was something not to be worried about, I just want to thank everyone who answered all of my concerns. I still have alot of…
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Am I delusional?
Starting off in Sept with parotid gland primary stage 4 metastasized to lymph nodes and lungs. Began 3rd round of carboplatin/Navelbine and my oncologist said the parotid glan tumor is not palpable. How effective could this treatment be for my other tumors? I have a PET scan in December. Am I delusional to think the tumors…
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Possible Reoccurence of Throat Cancer
I've had a sore throat, cough, transference ear pain, etc. since August. When I went to see my ENT in August, she said I had scar tissue problems and see her back in a year. Fortunately, I didn't wait a year and scheduled a new appointment which was yesterday. My ENT is on Adminstrative Leave (?), so I had a new doctor who…
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Simply Brilliant-changed to the U tube version
https://www.youtube.com/watch?v=T8dDeq3QYzM
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Phran?
Can someone who has phrannie's contact info get us an update. I sitting on pins waiting to hear she's ok. I gave her my info on Thursday night in case she needed to get me offline but stupidly didn't get her husband's cell phone. Joe
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Help appreciated! 22 and freaking out
Hello everyone, I stumbled upon this website when doing some research online. When I clear my throat I've been spitting blood for the past 4 or 5 months almost. I went to an ENT around that time, and he dismissed it as membrane irriation and really didn't take it seriously, due to my age and the unliklieness of cancer at…
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shoulder pain?
I seem to be past the sore throat pain now and am eating food normal, although the appetite still is not there yet. Been about 8 weeks post radiation treatments now. But what about the constant burning and pain from the dissection? That was done on the 1st of July? Some days are worse than others. Last night I was up every…
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shoulder pain?
I seem to be past the sore throat pain now and am eating food normal, although the appetite still is not there yet. Been about 8 weeks post radiation treatments now. But what about the constant burning and pain from the dissection? That was done on the 1st of July? Some days are worse than others. Last night I was up every…
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DebbieJeanne
I have not been on for a few months and came back recently with a question. I saw the Phrannie posts and I have been back a bit more to see how she is doing (she was so helpful to me). I have not seen any recent posts from DebbieJeanne. She was always supportive and a sweetheart. Is she doing ok? Does anyone know? Thanks…