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Head and Neck Cancer

Filling for cavity post-radiation
Hi, I am almost two weeks post-radiation and require a filling for a cavity. I have read about needing antibiotics for extensive dental work such as extractions, but haven't seen anything about precautions for a filling. My dentist thinks I shouldn't need any antibiotics. Of course, my radiation oncologist's office isn't…
scan results
Both head & neck and chest CTs were negative. Don't think there will ever come a time that I don't cry for happy when I hear those results. The anxiety is so bottled up and just explodes. Prayers answered thank you all.
ROLLCALL 2015 - UPDATED NOV. 1, 2015
ROLL CALL 2015 Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll (name, town, state, dx) or Check-In whenever you see…
Sudden sensorineural hearing loss
A few weeks ago my husband was fitted with hearing aids and things were GREAT! He was hearing better than he had in years...or at least since the Cisplatin accelerated his hearing loss. He was no longer asking people to repeat everything, no longer leaning in to hear people. The bluetooth directly to his mobile phone was…
Nasopharynx is....
....clear! Whoo Hoo....Yippie Ki Yi.....Woopie.....Hallaluah....!!!! Dr. called a little while ago with the biopsy results. He took several biopsies of the nasopharynx, all of them were clear. Ended up with 3 nodes with cancer, not just the two that we saw on the PET scan.....one is excapsulated, so that means chemo again…
What Cancer cannot do - UPDATE
Am posting this for everyone...and especially for those on the board here who are in the middle of their treatment. Big fundraiser coming up for the cancer center where my husband works and was treated, so I made this wallhanging to be auctioned off. I figured the person who buys it can use the outside rectangles as a…
Damn! The drain hole
from the neck dissection won't quit leaking. It was fine Tues and most of yesterday....then last night when I was getting undressed for bed the cork blew out, and it drenched my camisole....soaked it. I put another bandaid on it, but woke up this morning and my pj's are soaked. Put gauze and tape over it, and it is now…
First post here - hubby is 7 weeks out
Hi all, I'm new here, but have been reading your posts since last summer when my hubby was dx with tonsillar squamous cell carcinoma. He had 35 doses of radiation and 7 weekly doses of Cisplatin. From what I can tell by reading here, he had a pretty severe reaction to the chemo. He was dehydrated, fell down, had…
Keitter doing a little better
Hi Everone: I got an e-mail from Keitter the Chemo is giving her a good butt kicking but it sounds like she is doing a lot better this week. She also has a lot of her family coming in for the holidays, especially her Mother and Sisters. She said to thank you all for remembering her in your prayers. That’s what family is…
Food Aversion
Hi, I just wanted to run something by you guys. Heading into my fourth week of TX. Starting last week I developed a food aversion (made that up). First I was full after a couple bites and of course food tastes either weird or bad. Then the metallic taste started and I was sick after eating a few bites. Now it just seems…
Appetite after rad treatments
I finished my rad treatments after tumor removal at base of tongue and partial dissection of one lymph node level 1 just under right jaw. Last rad treatment was on Sept. 21st. I have a feeding tube but I can eat most anything now. I have a little bit of a hard time with any tough meats because I only have my front teeth…
How a bad day turned into a very good day
Where do I even begin? My husband had a partial glossectomy and selective neck dissection on Nov. 4th. Recovery was going very well until last night when out of the blue, he bit his tongue pretty hard. After applying pressure with gauze and not getting the bleeding to stop, his doctor advised us to go to the ER. To make a…
my mouth sores
My mouth sores or tongue sores as it bwere just won't go away! I'm at over 12 weeks and keep great oral hygene up as well as the salt and baking soda rinse,and even use a mouth sore rinse by ORGEL buy the damned thing is still here on the side of my tongue where the most cancer was. Nurse says cause I'm still cooking well…
Last ct & oral exam--clean
Just got my last ct and exam by two different doctors ,I think they share me for the money. I came out clean. I had a white spot on my left tonsil that I was worried about, but they both told me it was something not to be worried about, I just want to thank everyone who answered all of my concerns. I still have alot of…
Am I delusional?
Starting off in Sept with parotid gland primary stage 4 metastasized to lymph nodes and lungs. Began 3rd round of carboplatin/Navelbine and my oncologist said the parotid glan tumor is not palpable. How effective could this treatment be for my other tumors? I have a PET scan in December. Am I delusional to think the tumors…
Possible Reoccurence of Throat Cancer
I've had a sore throat, cough, transference ear pain, etc. since August. When I went to see my ENT in August, she said I had scar tissue problems and see her back in a year. Fortunately, I didn't wait a year and scheduled a new appointment which was yesterday. My ENT is on Adminstrative Leave (?), so I had a new doctor who…
Simply Brilliant-changed to the U tube version
https://www.youtube.com/watch?v=T8dDeq3QYzM
Phran?
Can someone who has phrannie's contact info get us an update. I sitting on pins waiting to hear she's ok. I gave her my info on Thursday night in case she needed to get me offline but stupidly didn't get her husband's cell phone. Joe
Help appreciated! 22 and freaking out
Hello everyone, I stumbled upon this website when doing some research online. When I clear my throat I've been spitting blood for the past 4 or 5 months almost. I went to an ENT around that time, and he dismissed it as membrane irriation and really didn't take it seriously, due to my age and the unliklieness of cancer at…
shoulder pain?
I seem to be past the sore throat pain now and am eating food normal, although the appetite still is not there yet. Been about 8 weeks post radiation treatments now. But what about the constant burning and pain from the dissection? That was done on the 1st of July? Some days are worse than others. Last night I was up every…
shoulder pain?
I seem to be past the sore throat pain now and am eating food normal, although the appetite still is not there yet. Been about 8 weeks post radiation treatments now. But what about the constant burning and pain from the dissection? That was done on the 1st of July? Some days are worse than others. Last night I was up every…
DebbieJeanne
I have not been on for a few months and came back recently with a question. I saw the Phrannie posts and I have been back a bit more to see how she is doing (she was so helpful to me). I have not seen any recent posts from DebbieJeanne. She was always supportive and a sweetheart. Is she doing ok? Does anyone know? Thanks…
Long time reader...first time posting...just completed 33 radiation sessions
Hello all! I've been reading this forum since I was diagnosed with adenoid cystic carcinoma in January. After surgery for what was initially diagnosed as a benign tumor, it ended up being Stage II ACC of my submandibular gland. Since we thought it was benign, I ended up with positive margins and also had perinueral…
Pain After I Am Ned
I had stage 4 squamas cell carcinoma on my tongue and inside my mouth along with my neck lymphnodes. I hade all of my tongue removed except about 1/4 in strip on my right side of my tongue. I also had a double neck dissection with cancer in my lympthnodes. I had chemo Cisplatin and radiation. I had 72 or 76 grey radiation…
Ok...about this neck dissection.....
I've been half nervous to even look it up on the internet, but since my ENT seems to have trouble spelling things out, I did.... So....those of you have had one. Did you have physical therapy? How long before you were pretty much back to normal? I know there is going to be a limitation of movement, but how much of you…
15 Months NED but still smoking..
Just Venting because im worried and no matter what I say to my hubby it doen't matter i watch him everyday first thing get up and out for a smoke.. smoking probably 20 -25 cigarettes a day.. high stress for certain which I guess is why ...working hard we have our own business.. He was doing pretty good but now on downswing…
Sometimes we got to have some fun....
We haven't done a pet post on here for a while.....and for those of us who have pets, we know that they make treatment a little easier....they make us laugh, they give us a reason to pull ourselves outside, even if it's just a pee run. These are my two girls....Lola and Betty (their names sound like they're part of a…
15 years post and now on a feeding tube
Hello all, I am new here and don't know where to start. In 2000 I did the 7wks radiation with 3 chemo treatments and then neck disection to remove lymphnodes at age 39. Recovery was slow but I made progress and life was somewhat back to normal. Well in Sept. 2013 I had to be put on a feeding tube from asperation and now I…
What a roller coaster....
After my PET scan, the ENT said "only in the two nodes"....I felt relieved hearing that. Then a week later I see the Oncologist and he says "well, not exactly....there's a spot in the pharnyx that lit up a little bit,,,2.7"....ok so I deal with that idea, thinking it's in the actual throat where I've never had cancer, talk…
Starting treatments this week!
Hopefully it's OK if I post about my lung cancer treatments here even though they aren't H&N. :-) The final decision is that the lung mass and nodes are inoperable, so I'm having 6.5 weeks of concurrent radiation and chemo (carboplatin+taxol). After that, I'll have two separate full-dose chemo treatments, three weeks…

Head and Neck Cancer

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