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Just Tuning In - Still Going ;)

Like a couple of others, I am not around here as much with the new format. I take a look now and again but not do sign in often.
Anyway, still in drug trial and it is still working. No more major reductions in tumors, but basically they are all stable, with the tumors that are being monitored with slight reductions. Since I am able to breath, do not cough up blood, can exercise, I am fine with it being stable. My back pain is finally fully under control and I am reducing my pain meds by a lot.
Some numbness in front of legs, but I am trying to stretch and do others things. Considering they thought I was not going to make it through last summer (I was in REAL bad shape), no complaints from here. Try your best to stay as positive as possible, it helps and you never know what is coming down the road. I am in my 9th year and the things I have seen since my DX is impressive.
I will still check the board now and again and try to provide updates and/or add my two cents when I see posts where I think I can help out a bit.
Comments
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Glad you're hanging in there, and it's all working in your favor, letting you do stuff, and get through all the side effects and other things. Even being NED doesn't mean the costs of living a physical work life don't accumulate with time, my mobility is taking a hit, leaving me on a kind of daily step count, which affects conditioning, etc. I'm not complaining though, I'm happy to hangout a while longer, and watch the world go by, lol. Thanks for checking in, and do keep on keeping on..........................................Dave
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Hey haven't been on in a while myself. The new format is TERRIBLE. Talk about use lr unfriendly. You can't find anyone. I'm glad to see your post!!! I'm so sorry you're in pain and dealing with so much but glad you made it over a hump. My Dr. Dr Andrea cerxek has come up with a med that got rid of rectal cancer in 18 people very quickly. Wveryone needs to google here. Shes at Sloan in NY . There is hope that a cure is coming. Too late for me since I had an APR but I wish it for all others. Love Helen
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Helen
I saw that one.
There are so many great things happening, and happening quicker it seems. I keep on feeling that we are getting close to being the last of the generations with the harsh treatments. The trial I am in is really easy, other than being tired (though 9 years of drugs, surgery and radiation probably a good part of that) If people can do what I did - just a series of infusions to start, then one monthly, it would be great. I had reactions to the first two infusions, but after that, really nothing. I try to take some solace in all of this that being part of this trial is going to point to something that will be a big help.
NH
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Thanks for your update. I'm glad to hear you are stable, but we all wish for 'cured', I hope you get there. Are you able to share the name of the treatment you are testing? The only virus version I have been following is vaxinia cf33, they are in phase 1 trials for a year now. All the talk sounds great, but they haven't shared any actual results yet to know.
Thanks,
Charlie
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