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My 54 years old today post
Is being scrutinized lol maybe I wrote something that flagged me. 54!!!! Woot. This setup is still terrible. I can't find everyone I'm looking to check on. Looks like a lot of ppl stopped coming on when it changed over=( but I did see quite a few names that brought me smiles. Hello all. Hopefully my post will reappear soon.
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Rectal cancer
Is there any person who has survived?
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Ron50?
Hi all, I haven't been on in quite a while. I'm at a point where my emotions run very high coming on the board. I had to stop taking anti anxieties, they were ruining my brain. That meant avoiding triggers. I wouldn't say what I am now is "back to normal" but I don't think about cancer night and day like I used to. I've…
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another anniversary
G'day all, been a while since I have been on. This month I finish year 22 ex stage 3c colon cancer, still cancer free. The past year has not been fun. Australia continues in severe drought and in september it caught fire. Over twenty people have died and an estimated billion native animals have perished. The fires are…
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My story
Hi . I was diagnosed with colorectal cancer stage 4 that metastasized to my lungs, and liver in 2018. Actually, I didn't know it metastasized to my lungs until after surgery. I thought I was in the clear after removing the tumor . I definitely was not by far in the "clear" . My story is similar to a lot of patients. I have…
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Treatments
Hi all, I was just wondering if anyone had any experience on treatments after progression on panitumumab/ folfiri combo? My dad has inoperable locally advanced rectal ca and was on it for about two years but just experienced progression. I’m heading avastin is the next line? Anyone with any experience on this? Thanks!
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CEAs
I know everyone is different, but as I read previous posts (I was looking up liver mets), I see an occassional mention of a CEA in the low double digits and that was considered a problem. I would rejoice to have a CEA that low. Is my doctor not telling me something? What kind of CEA's has anyone else had.
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Bowel frequency after reversal
My husband had stage three colorectal cancer. He had a resection and a temporary colostomy bag. He has since had his bag reversed but, ever since then he has been dealing with frequent bowl movements. He will need to use the bathroom up to 15 times a day and each time he will pass just a small amount of stool. Has anyone…
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A new battle
Hi everyone! We got my dads CT results from his oncologist Friday and he’s all clear on his colon cancer which would put him 2 years NED. The only thing is they found a 6mm nodule on his bladder. His doctor referred him to urology for a cystoscopy so now I have to hope and pray this isn’t a new cancer that wants to invade…
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Just got home
Had my colon resection surgery Tuesday Just got home an hour ago it'd Friday. Now have to wait for pathology report. My question is. I look 9 months pregnant! BLOOOOOATED!! How can I pass gas? Will it just happen or can.i help it along?
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Anyone else tried MMS ?
It was suggesed by a doctor i trust to try MMS, so i did. the standard regime. I did some research, went ahead after having it on my shelf for a month, getting the confidence to add another alternative remedy to my already overloaded routine. i starrted it when my cea was hovering around 16 back in january 2012 I stopped…
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I want to die
I’m sorry this is my first time. I was diagnosed with stage 4 cancer last year. I was told to do chemo every 2 weeks until it stopped working but after a year I couldn’t take it and have recently stopped chemo. I made that decision but 3 weeks ago I tried to overdose on painkillers and I don’t know how to get back to…
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New to this
I start chemo treatments tomorrow at 9:00. Should I eat? And should I take my Percocet? I forgot to ask the doctor and I am first one in The morning.
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Lightheadedness from Chemo, or something more?
My husband is on round 10 of Folfox (well, actually now 5-Fu/Leucovorin only now) and just stopped Avastin to prep for cytoreduction surgery scheduled for September. He is experiencing lightheadedness most of the time (does not affect his balance or work, but is persistent). His oncologist now wants to do an MRI to make…
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1st treatment down, 5 to go
My mom, originally thought to be stage 2A, just began treatment for stage 4 colon cancer with mets to the liver. Her prognosis is good and we're trying to stay positive. She started treatment this past Monday. She is getting 5FU, Oxilaplatin and Avastin. She breezed through the first treatment with very minor issues. I'm…
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Itcy skin
When I get hot my face, neck and arms itch like crazy. I've tried Benedryl with no relief, anybody have any ideas or does this happen to anyone else? I take chemo (5FU and Avastin) every other week on Monday. The problem is no worse on the week I take my chemo than the week I don't take chemo. This happens anytime I'm hot,…
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Possible recurring??? Signatera question
Hi everyone, I have been reading your posts seen last year but this is my 1st post. My background...I'm 47. I was diagnosed with right colon cancer with stage 3b last September 2022. CEA pre surgery was 46. CEA post surgery was 18. I was on Oxiila and 5 FU for 12 rounds. My last chemo was on March 2023. CEA went down to 4…
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Memorial Sloan Kettering Cancer Center - Honest Review
This is going to be a long post but I think people should honestly know about Memorial Sloan Kettering Cancer Center if they plan on going there. A little history first: My mom has Stage 4 Colon Cancer mets Liver. Been on chemo since late 2015. She recently got Y90 radiation done for the liver. Now off chemo for 3 months…
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rectal cancer
hi all, just diagnosed with rectal cancer through biopsy.go for bone and cat scan on monday.port installed on thursday. can any one let me know what to expect out of these procedures. thanks
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Memory issues after chemo
Hi all, I think my mother has been going through dementia. Either due to old age or the side effect of chemo. Her last chemo was in Feb 2023 but there has been a constant decline in her short term memory and increased restlessness since the chemo ended. Recently she had a bout of covid infection too. I am at a loss to…
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1 Year Update
Good morning everyone, I wanted to post a status update as I hit my 1-year post diagnosis for stage IV rectal cancer. I just finished my 23rd treatment with Folfiri and Cetuximab. A couple weeks ago I had a PET scan and consults for liver resection and even liver transplant. Unfortunately, the pet shows some spots still in…
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HIPEC Questions
Hi, I’m looking for more information on HIPEC surgery. My mother was diagnosed in 2020 with appendix cancer we found out because her appendix had ruptured. The mucin from the appendix got to her colon. So now they are calling it colorectal/small bowel cancer. She was cancer free after they removed her appendix in 2020 but…
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Insurance is PAINFUL
anyone else have sooo many issues with insurance that it delayed your treatment? How is this the best healthcare systems?! It blows my mind how what my doctor deems is best for me won’t be done because of some jerk at an insurance company. I have United Healthcare and for everything else they have been fine but for my…
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CEA rising with No Evidence of Progression (Covid related maybe)
Good Afternoon Everyone, I just returned from my regular 3-month lab work, CT scan, and Appt. with Oncologist at MD Anderson Cancer Center in Houston. The lab work had a very wonky CEA reading. Back in November, I had one lesion on my liver that was growing larger despite being on Folfiri + Erbitux. Doc decided to ablate…
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About Abita...
Hi everyone. As you can tell from my username, I'm Abita's cousin. Her last post on the boards was about her brain metastases and subsequent surgery. She had successful surgery and radiation, but unfortunately, as soon as that was over, she had another growth right behind her eye, which caused her to go blind in that eye.…
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My Mothers Diagnosis
Hello everyone, I am new here and I am fortunate to have found this website. My post is regarding my mother. A little backstory on how she got her diagnosis in 2020 right before the pandemic she started getting really bad stomach pains. Know if anyone knows my mother, she does not complain about pain one bit. She has never…
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Platelets
Again my platelets are below 70 and delaying for the 3rd time. My doc wanted to do 12 treatments I’ve done 7. I’m not sure what will happen from here?
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Advice
I have been diagnosed with Stage IV colon cancer which had spread throughout my intestinal wall. It is treatable, but not curable. They have given me 6 mos to 5 yrs. If chemo doesn't help, they say the next step would be pallative/hospice care. I had to have emergency surgery because the stent perforated my intestines and…
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HAI pump - what to expect and the treatment
My husband has stage 4 colon cancer in various places in the liver. There has been no spread to any other organs. Oxaliplatin and 5-FU treatments have been very effective and they are now discussing installing an HAI pump, at which time they would also take out the colon tumor. We will know more soon and I know our doctor…
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Sodium Ascorbate IV - Intravenous (vitamin c + sodium bicarbonate)
I have seen many posts in which forum members ask where they can purchase various necessary treatments, so I decided to ask you too... Can someone guide me where I could purchase Sodium Ascorbate IV needed for the treatment of my uncle diagnosed with cancer? We are open to alternative therapies, but it is difficult to…