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Colorectal Cancer

Mets to skull
Anyone out there have any experience with mets going to the skull bone base? Im a stage 4 dx the end of 2016, details in bio. we have been playing whack a mole with various mets to liver, lungs, and chest lymph glands, I go in and out if treatment as needed. I developed jaw, facial and ear pain tin late April. The pain was…
Avastin question
I'm starting to experience the bloody tissue syndrome in the morning with increasing severity. I don't wake up with a bloody pillow as of yet. However, this morning when I performed my usual blowing o' the nose, it took a couple of minutes to clear up, with fairly red tissue paper left in the wake. So then: Does it get…
cancer and medicare
Hi folk's, first off my y-90 treatment went off well. Just makes me tired, they say 4-6 weeks. I will be in for follow up and rescan in 2-3 months. I do feel good. I have a questionn on medicare. January 1st I will start medicare, I will have A& B. I was wondering what other sups do I get so I do not lose on the ground I…
mojogirl67
M last checked in Wed. Apr. 14th of this year. Her story/history is gone now, though she said her daughter[s] would let us know if she passed. She and I had a lot of long, caring, honest talks on messaging, and though we all knew and accepted her decision to just live without chemical intervention, I feel frustrated to…
Adding to the mystery
If you guys recall, I had a scare last month where I believed I was feeling an intestinal blockage caused by a recurrence at the original site. Everyone who knows what they are talking about poo-poo-ed that assumption and today they were proven correct as my scans showed the same slight shrinkage on tumors. What no one has…
Clinical trials good or bad news ?
Hello so finally heard from clinical trials . They sent the referral back to oncologist saying phase 1 clinical trials not right for my dad .Now if I'm not mistaken that is good news right ? Some in family take it as bad just looking for thoughts ? To me it means there is still hope with other treatments .I
Tinnitus//Constant Ringing in the Ears//No Sleep
Hi all, I am suffering from tinnitus (constant ringing in the ears), as one of the side effects post IV and oral chemotherapy for stage 3C colon cancer. It first began as soft sounds just here and there, but now about 6 months after the ringing began, it has gotten significantly worse -- I now hear the noises (varies in…
Oral or Pump delivery system for Fluorouracil
Newbie to the group here, not new to cancer. I was diagnosed with Stage IIIB colon cancer in October 2018. 4 rounds of Oxaliptatin and Fluorouracil (oral) after surgery. In Jan 2021 the doctors suspected that it had metastasized in my left lung and was confirmed in July after I had the 2 spots excised. The larger was the…
My personal list of FOLFOX - 5FU side effects
I just thought I would make a list of all the side effects I remember from my Chemo (Radiation had a whole seperate list). Its quite impressive. It has always facsinated me how each of us differ in the side effects we experiece/have experienced. This is my list. SIDE EFFECTS FROM CHEMO From the top to the bottom…
Vomiting on day 8 after Folfox?
My ex had his first Folfox treatment 8 days ago. Had mild nausea the first few days, was feeling better, and started vomiting a few hours ago. His scan a few weeks ago was clean, but i'm always worried about mets, since he's stage 4. Has anyone else experienced vomiting so late in the cycle? Thanks to all of you for your…
Kyphoplasty Part 2
I just had my second kyphoplasty - this time on vertebra L4. That vertebra was intact when Kyphoplasty 1 was done on T11 on September 15. However, a significant nursing error while removing my kidney stent resulted in L4's breaking on the 29th. To make a short story long... After kyphoplasty 1, I wasn't getting pain…
Ca19-9
Should I be concerned with CA19-9 that's a 37 out of no where?
Bad news continues on this message board need input please
Hello So after five cylces my dad's chemotherapy was stopped due to " mild " growth basically the same as it was before he started chemo . Oncologist says that's enough to know the chemotherapy will never work . Even when oncologist told me last appointment it was to soon to see results on this scan he simply wanted a…
What would you do ?
Hello all , So my dad has had 5 cycles of folfiri and side effects of chemo seem to be getting worse pain , fatigue , loose stools you name it . He had his 3 month scan last week so we are all nervous to find out what the results are . I asked the oncologist last time we saw him if the scan still shows my dad's cancer…
It's been about 17 months since Ron50 was on the chatroom
Has anyone heard from him. He always said that the ''other'' things healthwise, and fallout from his treatment, were what would get him, at some point. The hard part of these virtual connections is that so many simply fade away, some a sign of successful treatment and a ''getting back to 'regular' life''. Others just end,…
Chemo advice
So my dad's second opinion came and pending a biopsy they agree it is most likely cancer that my dad still has so it looks like we are headed back to chemo . We were really unprepared for the first chemo which caused alot of stress on my dad and family and the chemo ended up having little affect on my dad's cancer and…
Solitary lymph node metastasis : what treatment is available?
Hi, My latest PET scan lit up ONE lymph node in pelvic region (external iliac lymph node along right obturator chain). The lymph node in question is 1.2 cm x 1.6 cm (SUVmax=5.8 ). There were no other findings in the PET scan. It has been four years since my first rectal cancer diagnosis. The radiologist calls this a…
Continue maintenance chemo?
Hi All, I'm new on here. My mom was diagnosed with colorectal cancer in 2019 and had surgery and chemo then as her medical team advised. Unfortunately in Jan 2021, the cancer came back- close to the original site in 2019 and also in her thyroid. Her doctors seemed pretty sure the thyroid was a separate cancer as this is…
Starting LONSURF
Guess mom is starting on LONSURF. After 2 years of various chemo and the last 3 months off chemo on trying to see if there was surgical option, we're finally on to using LONSURF. Didn't really want to use LONSURF to begin with because of the huge side effects from what I've read. Also, LONSURF is considered the "last line"…
Scan coming trying to be prepared
Hello , So my dad has a scan coming up next week so of course I am already worried I honestly don't know how to not worry about scans . So I am hoping for the best and trying to prepare for the worse . If this chemotherapy isn't working I been wondering what is the next steps we could talk about pursuing ? My dad says no…
Lonsurf and nightly toilet visits
Hello We are starting day 4 on the first cycle of Lonsurf. Last night Papa was hourly on the toilet. I am worried that something is wrong with the kidney. The oncologist warned us that the drug can cause the appearance of proteins in the urine. Did anyone have something similar? If so did it go away or is it a bad sign?…
LONSURF Suggested By My Oncologist
Bulldog2 Posts: 1 Joined: Sep 2021 Sep 29, 2021 - 6:50 pm LONSURF New Hi. My oncologist suggested I start on the Lonsurf regimen in a few weeks. Been reading the posts here and it looks like Longsurf only works for 10-12% of patients who take it. Some get terrible side effects, others hardly any. I was diagnosed with stage…
Emotionally draining weeks
Hello, So, normally it would be the last week at home. Lucky me I will have 6 weeks of internship here cause tbh last year it was difficult to go. No I think impossible. Last year at this time, we ralked about cure, the cancer is gone. Now we have only Lonsurf left. I think I need to fo some recap. 17th August we got to…
Chemo and Cancer Pain
Hello So my dad is on folfiri chemotherapy and overrall things are going okay expect his pain level seems to be going up . He says his neuropathy is getting worse also that he has bad pain in his buttocks which got me thinking is this kind of thing normal ? Does the chemotherapy make pain worse or could this be something…
Stage 4 colon cancer spread to both sides of liver
Hello all, I was diagnosed yesterday with stage 4 colon cancer that has spread to both sides of my liver. The colon tumor is large and obstructs elimination of faeces. The treatment they have told me will be 1) a colostomy to relive the constipation 2) a port 3) chemo to reduce the cancer/tumor 4) once reduced, removal of…
Father newly diagnosed and we need direction
Hello! My father was diagnosed with colorectal cancer after a colonoscopy about 6 week ago. They sent him for CT scan to check for additional masses in the abdomen but it looked clear No bloodwork was performed he was then referred to a surgeon who specializes in colon surgery and 3 weeks ago he had a colonectomy and…
Promised update on kyphoplasty
I'm back from my 2 procedures this week at Sloan Kettering. First was the kidney stent, which immediately relieved my very severe hip pain that I had no idea was kidney- related. The relief is amazing. Kyphoplasty was the next day. Painless procedure done under general anesthesia. I don't know what pain relief it provided…
NewHere
Anyone heard from NewHere and know how he's doing?
4 years ago
September 2017 after a year of surgery, radiation and chemo to resolve initial cancer, I had my 6 month ct and there was 2 small nodules in my left lung. We waited 3 months to see if it would go away. Stressful 3 months to say the least. Well December came and we did another and, of course, they had grown. My cancer had…
2nd opinion tomorrow
We will get a second opinion from an university cancer clinical center tomorrow. They took our neighbor under their wing, hopeless case for others doctors, and these doctors cured him. Maybe they will give my dad time? I dont know but after these last weeks: progressive disease, peritoneal mets and surgery (which was…

Colorectal Cancer

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