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Probably not good
Hate to add the the recent reports of us board members not doing so great. Last weekend, I felt a familiar feeling, that of a slight obstruction in the colon. It was around the site of the last surgery I had. It was enough to interfere with my ability to eat a decent meal, probably many here familiar with that. Could have…
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Thanks to all of you for the support
I was devastated when I had to go to the last line drug, especially after reading about it, and lost that spirit of I will do what it takes and my miracle will be found. But with the support and kind words, I have in my head that I can handle stivarga, and maybe will be a candidate for a met removal here or there until one…
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Butt Jelly
Pardon my crudeness in title, I'm not sure exactly what to call it! hehehehe Ever since I was midway through chemo and radiation, I started passing a clear jelly. I usually have a horrible, horrible stomach ache followed by a huge bowel movement when I usually only go bits and pieces. Then for the rest of the day I pass…
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Just an Update
Sorry I've been absent from the board. I'm dealing with some personal medical issues right now that I've been going through since April. Just not wanting to discuss it at this time, but I've been seeing one doctor and others since then. I've got another specialist I'm seeing in September. Please keep me in your prayers and…
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Standard of Care
Standard of care. Do you ever wonder how many didn't make it simply because they were at a facility that simply follows a standard, and are not allowed to deviate to help their patients?
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Bad things are happening
Papa will go to the hospital today. Since contrast ahent on Friday his digestion is not working. CT did only show bigger liver metastases. He can not eat, so parenteral nutrition. Since Sunday he is in pain, cannot eat which is usually his highlight. I am mad at the doctor. We mentioned it on Tuesday but she did not…
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I have to switch to stivarga, and I can't stop crying
I have to switch to stivarga and I feel like it means I will die soon. I can't stop crying. And what really sucks is that they accessed my port so I can't even leave until they take it out.
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Any suggestions about lung mets surgery
I got the news that I have to switch drugs. I asked about surgery, and he said doesn't make sense because I am metastatic. But doesn't it make sense to get them removed if possilble, and continue chemo so others don't grow?
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FAP Stomach C
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This is happening so fast!
Hello. My ex husband went to the ER with stomach issues just this past Monday. He was admitted, and has a complete obstruction of his colon which they basically said is a tumor. Bug surgery tomorrow to remove half the colon, hopefully no ostomy. Then waiting for pathology. There's some other palpable mass on his abdominal…
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Any Suggestions for a daughter wanting to help?
My mom (76 yrs. old) was recently diagnosed with colorectal cancer and has lost 15 pounds this month. She hasn't started treatment yet and she is down to 95 lbs. We've talked to the dietitian and it's not that we don't know what she needs to eat, it's her lack of desire to eat. She also lost my father this past spring, to…
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Terrible August
So, we did not gdt good news. The disease is progressing. It might be in the lung. They want to change Avastin to another one, otherwise Lonsurf. Keytruda is not an option. We are searching for 2nd opinions. Cure is not an option. CEA is 80, the highest ever. We are all crying. There is not much anymore to do...
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A daughter trying to do what's right
I'm new to this network and I'm trying to do what's right and I'm open to advice. My father died in February of this year and in July my mom (76 yrs) was diagnosed with colorectal cancer. She's grieving my dad and trying to navigate what the future looks like. As we wait for treatment to begin, she has lost interest in…
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June, July updates and thoughts
Hello, After somebusy weeks I wanted to give you an update. So what happened in the last months... So May was the hardest month ever. One metastasis grew from 22mm to 51mm in 3 weeks time. The doctors were scared and told us so. Due to that they started Folfiri plus Avastin. The MRI 2 weeks after showed stable disease with…
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Lonsurf
Well now I know why not many responces to my last post. Lonsurf seems to be a crap drug.
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change for me
Update. I continue to ride the roller coaster of cancer. My last scan showed mild progression and latest blood work showed increase in cea 18.5 highest for me since the start of all this. Anyway I am off the Folfox and Avastin, not surprising since I've had 45 to 50 treatments of it. Next week I will see the Doctor and I…
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CEA rising but no cancer detection
Hello im new to this board and I really hope you can help me. I never had cancer before and my CEA level was consistently below 2 for past 10 years. However suddenly this year my CEA was increased to 11.3. Then two weeks later, it increased to 14.1. We did colonoscopy, PET, and CT but no tumor is detected. I know smoking…
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Depression
I don't know if I'm in the right section to post this. Have you experienced depression post chemo? I'm four months out from my last chemo session and awaiting resection. Diagnosis was stage 3 colon cancer. I've been feeling very low and spend a lot of time in bed. I know I need to get up and exercise, eat right etc but it…
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Updates, ctDNA and more vaccine speculation
I remember in the earlier days of the Internet on a (non cancer related) message board like this there was a guy whose username was "Updates" and he never posted anything personal or funny or anything like he was a newsbot. Just thinking about that makes me grin and probably no one else (except those people who remember…
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More chemo?
A friend was diagnosed with Stage 4 colorectal cancer last January - had 15 inches of colon, gallbladder and 1/2 liver removed after almost a year of chemo. Drs always saw shadows on her lungs but now it has progessed. Is chemo necessary or are surgery and radiation enough?
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Are we getting close to the end?
I'm new to this but I need someone to either reassure me that things could get better or its time to prepare for losing my husband. My husband was diagnosed on March 5, 2018 with stage 3 rectal cancer and he did radiatin and chemo prior to surgery to remove rectal tumor and lymph nodes. Surgery was in August and the…
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Happy Birthday Canadian Sandy
I hope your Birthday is filled with the most wonderful things life can offer. I will raise a glass in your honour - and I will take some cake as well. Tru
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Happy Birthday, Tueffel!
I figured while it is still the 19th here in America, it is your birthday in Germany - even if you are still abed. May you have a wonderful day, and I do so hope you get to do something fun. Tru
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Depression and Anxiety following end of treatment
I am new to the discussion boards. I was diagnosed with a cT3b Stage III rectal tumor in August of last year. I completed four months of adjuvant treatment which included chemo and one week of short course radiation. My resection was in January 2021 and I had my reversal at the end of February 2021. I am currently in…
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Happy Birthday Tunadog - 27th July
Tunadog! I hope you are having fun, and that life is treating you well. Have a wonderful day - a wonderful life. Tru
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CEA marker rising . CT scan clear
Hello, My father was diagnosed with rectal cancer last June. Underwent radiotherapy and then surgery in August 2018. Ever since the surgery , the CEA marker has been rising 2.86, 3.58, 4.88 for every 3 monthly check-up (He's a non-smoker). CT scan of Chest, abodmen & pelvis seems clear. Anyone had the same issue and what…
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Back in the thick of things - cancer in spine and lungs
And so I'm back in full treatment, but need some reminders. It's been a while. I just (as in Friday) started back in chemo - this time just the Irinetocan and Avastin (no 5FU). I am still extremely weak 3 days later. Is this normal? I keep just dozing off, and anything I do is too much. I'd love to get on my bike, but am…
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Maybe a dumb question ?
Hello , My dad just got another kidney infection and was due to start chemo the 28th but he is on 10 days of antibiotics . So my question is will the oncologist cancel the chemo because of this ?
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blood work
Hi All, haven't been here in awhile. Just chillin and moving along. I have a quick question. My blood work came back today and for some reason it said Atypical Lymphocytes 2+ I never hade that test before and I don't know what it means. Also CEA has jumped to 12.9 Any help. Thanks, Tom
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Question about symptoms?
Hi I'm new here and I'm wondering if anyone has had hip and pelvis pain as a top symptom before being diagnosed with colorectal cancer. My health has been slowly declining for over 2 years I was sent to a rheumatologist last year and he diagnosed me with undifferentiated mixed connective tissue disease which basically…