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Colorectal Cancer

Chemo advice
So my dad's second opinion came and pending a biopsy they agree it is most likely cancer that my dad still has so it looks like we are headed back to chemo . We were really unprepared for the first chemo which caused alot of stress on my dad and family and the chemo ended up having little affect on my dad's cancer and…
Solitary lymph node metastasis : what treatment is available?
Hi, My latest PET scan lit up ONE lymph node in pelvic region (external iliac lymph node along right obturator chain). The lymph node in question is 1.2 cm x 1.6 cm (SUVmax=5.8 ). There were no other findings in the PET scan. It has been four years since my first rectal cancer diagnosis. The radiologist calls this a…
Continue maintenance chemo?
Hi All, I'm new on here. My mom was diagnosed with colorectal cancer in 2019 and had surgery and chemo then as her medical team advised. Unfortunately in Jan 2021, the cancer came back- close to the original site in 2019 and also in her thyroid. Her doctors seemed pretty sure the thyroid was a separate cancer as this is…
Starting LONSURF
Guess mom is starting on LONSURF. After 2 years of various chemo and the last 3 months off chemo on trying to see if there was surgical option, we're finally on to using LONSURF. Didn't really want to use LONSURF to begin with because of the huge side effects from what I've read. Also, LONSURF is considered the "last line"…
Scan coming trying to be prepared
Hello , So my dad has a scan coming up next week so of course I am already worried I honestly don't know how to not worry about scans . So I am hoping for the best and trying to prepare for the worse . If this chemotherapy isn't working I been wondering what is the next steps we could talk about pursuing ? My dad says no…
Lonsurf and nightly toilet visits
Hello We are starting day 4 on the first cycle of Lonsurf. Last night Papa was hourly on the toilet. I am worried that something is wrong with the kidney. The oncologist warned us that the drug can cause the appearance of proteins in the urine. Did anyone have something similar? If so did it go away or is it a bad sign?…
LONSURF Suggested By My Oncologist
Bulldog2 Posts: 1 Joined: Sep 2021 Sep 29, 2021 - 6:50 pm LONSURF New Hi. My oncologist suggested I start on the Lonsurf regimen in a few weeks. Been reading the posts here and it looks like Longsurf only works for 10-12% of patients who take it. Some get terrible side effects, others hardly any. I was diagnosed with stage…
Emotionally draining weeks
Hello, So, normally it would be the last week at home. Lucky me I will have 6 weeks of internship here cause tbh last year it was difficult to go. No I think impossible. Last year at this time, we ralked about cure, the cancer is gone. Now we have only Lonsurf left. I think I need to fo some recap. 17th August we got to…
Chemo and Cancer Pain
Hello So my dad is on folfiri chemotherapy and overrall things are going okay expect his pain level seems to be going up . He says his neuropathy is getting worse also that he has bad pain in his buttocks which got me thinking is this kind of thing normal ? Does the chemotherapy make pain worse or could this be something…
Stage 4 colon cancer spread to both sides of liver
Hello all, I was diagnosed yesterday with stage 4 colon cancer that has spread to both sides of my liver. The colon tumor is large and obstructs elimination of faeces. The treatment they have told me will be 1) a colostomy to relive the constipation 2) a port 3) chemo to reduce the cancer/tumor 4) once reduced, removal of…
Father newly diagnosed and we need direction
Hello! My father was diagnosed with colorectal cancer after a colonoscopy about 6 week ago. They sent him for CT scan to check for additional masses in the abdomen but it looked clear No bloodwork was performed he was then referred to a surgeon who specializes in colon surgery and 3 weeks ago he had a colonectomy and…
Promised update on kyphoplasty
I'm back from my 2 procedures this week at Sloan Kettering. First was the kidney stent, which immediately relieved my very severe hip pain that I had no idea was kidney- related. The relief is amazing. Kyphoplasty was the next day. Painless procedure done under general anesthesia. I don't know what pain relief it provided…
NewHere
Anyone heard from NewHere and know how he's doing?
4 years ago
September 2017 after a year of surgery, radiation and chemo to resolve initial cancer, I had my 6 month ct and there was 2 small nodules in my left lung. We waited 3 months to see if it would go away. Stressful 3 months to say the least. Well December came and we did another and, of course, they had grown. My cancer had…
2nd opinion tomorrow
We will get a second opinion from an university cancer clinical center tomorrow. They took our neighbor under their wing, hopeless case for others doctors, and these doctors cured him. Maybe they will give my dad time? I dont know but after these last weeks: progressive disease, peritoneal mets and surgery (which was…
Why not a delete button in editing?
Doubled posts are exceedingly annoying!!
Recently diagnosed
I was diagnosed with Colon Cancer on July 19, 2021. I had surgery on August 24th to remove the tumor in my colon and a tumor was also found on my liver that was removed. A CT scan was done prior to surger and a "likely cyst" was noted on my liver, well guess that was wrong. So now facing Stage 4 colon cancer. Still waiting…
niacin and melatonin in cv19/CRC
In case you all missed it. Article older but still stands test. Network Pharmacology and bioinformatics analyses identify intersection genes of niacin and COVID-19 as potential therapeutic targets | Briefings in Bioinformatics | Oxford Academic (oup.com) There is no magic bullet but there are things to help!
Is it safe to have a glass or 2 of wine a few days into off week?
I was not a big drinker by the time I got diagnosed. It i kind of miss having a glass or 2 of a nice wine.
Eyes on the Sparrow (trials)
Super old, American pop-culture obsessed people will immediately remember the title of this thread as the title to the theme of the old cop show "Baretta." Others will just scratch their head. The reasons I was thinking about it has little to do with cancer, but then again, the lyrics go: Keep your eye on the sparrow, When…
Rising CEA and clear scans.
I waited till I got the final news before posting this thread. Hopefully this thread will help others that may be in a similar situation as what I experienced. Summary: Had my 6 months checkup being 3.5 years from diagnosis. CEA from blood drawn on 6/29 came back at 9.7. CEA retested on 7/11 came back at 11. CEA retested…
Colon, Liver, Lungs, Part 2
Followig the good news of the scan showing good reduction in tumors, the side effects continued. Hand/Foot syndrome continued to be intense. She had some dizziness which resulted in her walking with a walking stick. It is working but it is taking it's toll on her. We had a re-exam with the holistic oncologist who discussed…
Some things discussed in Germany
Hello, Atm I am more active with German people suffering from colon cancer. I figured out 2 interesting things for people to consider. Both of them do lack scientific research for now but there is no harm. Sulforaphan: appearantly this substance blocks cancer growth and increases the effectiveness of chemotherapy. For now…
When it rains, it pours. Kyphoplasty, anyone?
My latest scans show decrease in size for my lung mets, but increase in size and number of my spinal mets. Basically, I'm now on palliative care; no cure options. My chemo is being changed from Irinotecan and Avastin to Lonsurf and Avastin. I'm having a hard time wrapping my head around the idea that this cancer will kill…
It's a month of mile markers in my life
Today, the 6th being the last marker, 7 years since my second liver surgery, with nothing but watching andtesting between then and now. I note it, but don't really celebrate it, given the other markers relate to my late wife. Sep. 1st would have been our 26th anny. The 25th wouldd be her 60th birthday, and my day of…
Support for my Mom
Hi everyone! I’m here looking for some support for my Mom. My Dad was diagnosed with stage IV colorectal cancer 4 1/2 years ago. My Mom struggles with leaving the house and having people ask how my Dad is doing. We live in a small community so it often seems that people are maybe being a bit nosy. When my sister had…
God answers prayers
It's been a while since I've started a thread. I wanted to say that sometimes miracles do happen and the devil loses. I have a niece who has breast cancer that metathesized to other areas and she was given just 2 years to live. She's a school teacher for special ed students. There is an experimental therapy having to do…
Lonsurf
First day on Lonsurf. 75 mg twice a day. 5 days on, 2 days off and then another 5 days on and then 2 weeks off. I slept all day after the first dose. I can't sleep for 2 weeks out of the month. I hope this gets better.
Upcoming Surger - Possible metastasis? + hysterectomy
Good morning. Hope everyone is having a great day. Stage 3 colon at splenic flexure march 2020. Surgically removed, unsuccessful attempt at chemo. Quit halfway through first treatment due to sever congestive heart failure. Accidentally found BRCA2 mutation during testign for Lynch syndrome. PET scan after healing from that…
don't care
I don't care anymore. How do I delete all my stuff and get off this.

Colorectal Cancer

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