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Colorectal Cancer

Colon, Liver, Lungs, Part 2
Followig the good news of the scan showing good reduction in tumors, the side effects continued. Hand/Foot syndrome continued to be intense. She had some dizziness which resulted in her walking with a walking stick. It is working but it is taking it's toll on her. We had a re-exam with the holistic oncologist who discussed…
Some things discussed in Germany
Hello, Atm I am more active with German people suffering from colon cancer. I figured out 2 interesting things for people to consider. Both of them do lack scientific research for now but there is no harm. Sulforaphan: appearantly this substance blocks cancer growth and increases the effectiveness of chemotherapy. For now…
When it rains, it pours. Kyphoplasty, anyone?
My latest scans show decrease in size for my lung mets, but increase in size and number of my spinal mets. Basically, I'm now on palliative care; no cure options. My chemo is being changed from Irinotecan and Avastin to Lonsurf and Avastin. I'm having a hard time wrapping my head around the idea that this cancer will kill…
It's a month of mile markers in my life
Today, the 6th being the last marker, 7 years since my second liver surgery, with nothing but watching andtesting between then and now. I note it, but don't really celebrate it, given the other markers relate to my late wife. Sep. 1st would have been our 26th anny. The 25th wouldd be her 60th birthday, and my day of…
Support for my Mom
Hi everyone! I’m here looking for some support for my Mom. My Dad was diagnosed with stage IV colorectal cancer 4 1/2 years ago. My Mom struggles with leaving the house and having people ask how my Dad is doing. We live in a small community so it often seems that people are maybe being a bit nosy. When my sister had…
God answers prayers
It's been a while since I've started a thread. I wanted to say that sometimes miracles do happen and the devil loses. I have a niece who has breast cancer that metathesized to other areas and she was given just 2 years to live. She's a school teacher for special ed students. There is an experimental therapy having to do…
Lonsurf
First day on Lonsurf. 75 mg twice a day. 5 days on, 2 days off and then another 5 days on and then 2 weeks off. I slept all day after the first dose. I can't sleep for 2 weeks out of the month. I hope this gets better.
Upcoming Surger - Possible metastasis? + hysterectomy
Good morning. Hope everyone is having a great day. Stage 3 colon at splenic flexure march 2020. Surgically removed, unsuccessful attempt at chemo. Quit halfway through first treatment due to sever congestive heart failure. Accidentally found BRCA2 mutation during testign for Lynch syndrome. PET scan after healing from that…
don't care
I don't care anymore. How do I delete all my stuff and get off this.
Probably not good
Hate to add the the recent reports of us board members not doing so great. Last weekend, I felt a familiar feeling, that of a slight obstruction in the colon. It was around the site of the last surgery I had. It was enough to interfere with my ability to eat a decent meal, probably many here familiar with that. Could have…
Thanks to all of you for the support
I was devastated when I had to go to the last line drug, especially after reading about it, and lost that spirit of I will do what it takes and my miracle will be found. But with the support and kind words, I have in my head that I can handle stivarga, and maybe will be a candidate for a met removal here or there until one…
Butt Jelly
Pardon my crudeness in title, I'm not sure exactly what to call it! hehehehe Ever since I was midway through chemo and radiation, I started passing a clear jelly. I usually have a horrible, horrible stomach ache followed by a huge bowel movement when I usually only go bits and pieces. Then for the rest of the day I pass…
Just an Update
Sorry I've been absent from the board. I'm dealing with some personal medical issues right now that I've been going through since April. Just not wanting to discuss it at this time, but I've been seeing one doctor and others since then. I've got another specialist I'm seeing in September. Please keep me in your prayers and…
Standard of Care
Standard of care. Do you ever wonder how many didn't make it simply because they were at a facility that simply follows a standard, and are not allowed to deviate to help their patients?
Bad things are happening
Papa will go to the hospital today. Since contrast ahent on Friday his digestion is not working. CT did only show bigger liver metastases. He can not eat, so parenteral nutrition. Since Sunday he is in pain, cannot eat which is usually his highlight. I am mad at the doctor. We mentioned it on Tuesday but she did not…
I have to switch to stivarga, and I can't stop crying
I have to switch to stivarga and I feel like it means I will die soon. I can't stop crying. And what really sucks is that they accessed my port so I can't even leave until they take it out.
Any suggestions about lung mets surgery
I got the news that I have to switch drugs. I asked about surgery, and he said doesn't make sense because I am metastatic. But doesn't it make sense to get them removed if possilble, and continue chemo so others don't grow?
FAP Stomach C
This is happening so fast!
Hello. My ex husband went to the ER with stomach issues just this past Monday. He was admitted, and has a complete obstruction of his colon which they basically said is a tumor. Bug surgery tomorrow to remove half the colon, hopefully no ostomy. Then waiting for pathology. There's some other palpable mass on his abdominal…
Any Suggestions for a daughter wanting to help?
My mom (76 yrs. old) was recently diagnosed with colorectal cancer and has lost 15 pounds this month. She hasn't started treatment yet and she is down to 95 lbs. We've talked to the dietitian and it's not that we don't know what she needs to eat, it's her lack of desire to eat. She also lost my father this past spring, to…
Terrible August
So, we did not gdt good news. The disease is progressing. It might be in the lung. They want to change Avastin to another one, otherwise Lonsurf. Keytruda is not an option. We are searching for 2nd opinions. Cure is not an option. CEA is 80, the highest ever. We are all crying. There is not much anymore to do...
A daughter trying to do what's right
I'm new to this network and I'm trying to do what's right and I'm open to advice. My father died in February of this year and in July my mom (76 yrs) was diagnosed with colorectal cancer. She's grieving my dad and trying to navigate what the future looks like. As we wait for treatment to begin, she has lost interest in…
June, July updates and thoughts
Hello, After somebusy weeks I wanted to give you an update. So what happened in the last months... So May was the hardest month ever. One metastasis grew from 22mm to 51mm in 3 weeks time. The doctors were scared and told us so. Due to that they started Folfiri plus Avastin. The MRI 2 weeks after showed stable disease with…
Lonsurf
Well now I know why not many responces to my last post. Lonsurf seems to be a crap drug.
change for me
Update. I continue to ride the roller coaster of cancer. My last scan showed mild progression and latest blood work showed increase in cea 18.5 highest for me since the start of all this. Anyway I am off the Folfox and Avastin, not surprising since I've had 45 to 50 treatments of it. Next week I will see the Doctor and I…
CEA rising but no cancer detection
Hello im new to this board and I really hope you can help me. I never had cancer before and my CEA level was consistently below 2 for past 10 years. However suddenly this year my CEA was increased to 11.3. Then two weeks later, it increased to 14.1. We did colonoscopy, PET, and CT but no tumor is detected. I know smoking…
Depression
I don't know if I'm in the right section to post this. Have you experienced depression post chemo? I'm four months out from my last chemo session and awaiting resection. Diagnosis was stage 3 colon cancer. I've been feeling very low and spend a lot of time in bed. I know I need to get up and exercise, eat right etc but it…
Updates, ctDNA and more vaccine speculation
I remember in the earlier days of the Internet on a (non cancer related) message board like this there was a guy whose username was "Updates" and he never posted anything personal or funny or anything like he was a newsbot. Just thinking about that makes me grin and probably no one else (except those people who remember…
More chemo?
A friend was diagnosed with Stage 4 colorectal cancer last January - had 15 inches of colon, gallbladder and 1/2 liver removed after almost a year of chemo. Drs always saw shadows on her lungs but now it has progessed. Is chemo necessary or are surgery and radiation enough?
Are we getting close to the end?
I'm new to this but I need someone to either reassure me that things could get better or its time to prepare for losing my husband. My husband was diagnosed on March 5, 2018 with stage 3 rectal cancer and he did radiatin and chemo prior to surgery to remove rectal tumor and lymph nodes. Surgery was in August and the…

Colorectal Cancer

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