Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Treating rectal tumor with Cipro antibiotic!
Don't know if anyone else has an experience with this. Prior to being diagnosed recently with my rectal tumor via colonoscopy there was a couple of surgeons and a physician who with a couple of CT scans decided I had a rectal abscess. They gave me Cipro for 2 weeks to try to see if it would have an effect, and it did.…
PhillieG has passed
It is sad to note that one of our long time stage 4 survivors has passed. He was a fighter as well as someone who was determined to enjoy every minute he had. He dealt with cancer for 17 years. Phil loved life. Please say a prayer or send good thoughts to his family as they deal with this sad time. Marie who loves kitties
Happy Birthday Kim - Annalbelle
Have a wonderful Birthday on Monday 14th, with all the great things in life - family, food, friends, fun and allot more. We will all be thinking of you.
Sandiabuddy -car?
Did you get a new car?! Youve mentioned wanting but then holding off. If you did, it’s a beauty!
Happy Father's Day to the board dads
For those of us in the US it's Father's Day. Son woke me up at 7AM to take him to his soccer game, which I guess is a father's day after all. There are some sons and daughters on the board, you guys are great showing your support for us dads (and moms) we appreciate it. Sorry for those who might be having it a little tough…
Hair? Where?
So the anticipated alopecia has begun. That's nearly 20 yrs as a dread down the (shower) drain. I actually made it to the end of FOLFOX before they started falling out, but I still had hair on my head. While I'm rapidly losing the skull cap, the hair elsewhere remains. I mean, I could really stand to lose some ear hair,…
Hospice care
My husband allowed the hospice nurse to come. I didn't think he would, and I didn't think he understood it means no more treatment at all. In all honesty he cant have any so there is no point. So he has an infection from his drain, it has caused small undrainable abscesses to form. Basically they gave him antibiotics to…
Just Found Out Lonsurf Stopped Working and Cancer Growing
And to think I was bummed about the Knicks getting knocked out early or the Yankees playing horribly. Time to move on to a trial. I know the next move if the trial does not work, but want to get ready for the next move when/if the move after the trial move. Yup. I plan ahead. My doctors still have no idea how I can be…
Hey PhillieG Let's Talk Guitar
Something that I want to ask you. Saw how you are going through things. And keep on kicking it man. On your profile caught a couple of things. Photography (one of my big things, and shooting for a baseball team this year kept me going through chemo) and guitar. Have neuropathy in hands and feet. Finally tried playing again…
where to test CA724 and AFP in the U.S>
Dear all, I have been having GI symptoms for over a year, with elevating CEA. The breast cancer diagnosis was about 4.5 years ago. With newly discovered H.Pylori and SIBO I have, I know I have issues. After researching here in the network and the web. I found that there are tests like buncling CEA, AFP and CA724 (among…
Interesting article Microbiome
Frontiers | New Insights Into the Cancer–Microbiome–Immune Axis: Decrypting a Decade of Discoveries | Immunology (frontiersin.org) I found some parts of this article interesting and some I need to educate myself on more.
Blood in urine
We couldnt even get just a days break from the b.s. Dad did his last round of FOLFOX, was struggling through the subsequent fatigue, cold sensitivity, and nausea. Just as he felt like he was turning the corner, just as he planned to dip his feet in the pool the next day and try a beyond burger and maybe even a bit of his…
Dental work while taking Avastin?
My poor husband really needs at least a few teeth pulled for starters. His Onc. asks if he can hold out, says he will need to stop taking Avastin for 4 weeks and really does not want him to. Has anyone else had to have dental work done while on this drug? Is there any special treatment the Dentist could do so he could stay…
Dad's Update: PVE and second opinion
Hello All, Hope all are doing well and healthy. It's been a while since my last post so wanted to keep everyone posted and especially share an experience. I've updated AboutMe page with history for detailed information but briefly, dad have colon cancer metastasized to liver (July 2019) . So far two surgeries were…
Necrotic tumor and radiation advice
Hello all , " Mostly Necrotic Tumor consistant with recurrent adenocarcinoma " that was the biopsy results which stopping at the first three words I thought was a good thing . Until I read the rest and my dad's oncologist explained dead cells in a tumor often are around cancer . I always assumed dead cells in a tumor was a…
Chemo nausea
Hi All- Just wanted to say I have had great success in quelling chemo nausea by drinking tart cherry juice the morning of chemo. I drink about 1/2 cup. The brand I use is Smart Juice Tart Cherry. Next I am going to try drinking it every morning of chemo to see if I can feel even better on the second and third days. I hope…
Newly Diagnosed, Colon, Liver Lungs
We are new to the forum. Here is a little history. My wife is 61 and pretty healthy. She is a type 2 diabetic but has her diabetes mostly controlled with metformin and diet. Her A1C was 6.0 during her last blood work. She is physically very active. She began having some pain in her right side which grew in intensity over a…
Happy Birthday Danker!
June is the Birthday month, of our friend, and oldest forum member, Danker. Everybody join with me in celebration of this very special forum member. Whose wisdom of years is combined with excellent advice of a long-term survivor.
Just a daughters fear
Hello guys, I guess I just hve one of these days. You start to worry and then I do research on pubmed and worry more. Btw I found an interesting table with characteristics of different KRAS mutations. So yeah I overgoogled things especially the KRAS mutation my dad has. I just wanted to find something positive on this,…
Am I the only one? Looking for someone with a similar experience.
In July of 2019 I went to the ER with an appendicitis. The appendix was removed. Two days later I was told I had cancer in my appendix. I was just 50 at the time so they decided to do a colonoscopy before going back in to remove more tissue to make sure they had clean margins. A very large tumor was found in my colon right…
thoughts on stivarga/regorafenib
Anyone on this? Are the results good? Are the side effects bad?
Anyone know the difference ?
Between a oncologist and a hematologist ? reason I ask I just found out my dad's doctor is a hematologist not a oncologist does this matter ?
Over 30 races, 35 rounds of chemo since cancer came back
Did a couple of running races, including a 1/2 marathon, in the last couple of weeks (virtual and social distant still) while on a chemo cycle of Lonsurf. Since my cancer came back as inoperable, with mets throughout lungs and in my spine, I have completed over 30 races of various lengths, including 10 triathlons and had…
Update on Treatments But CEA not normal
I have finally finished with my 12 Treatment of Folfox after having a Hemicolectomy back in November. I was excited to finally be done with the treatments, since my PET Scan before showed no evidence of the diseese. I have some nueropathy and some other minor side effects, but nothing too severe at this point. I had blood…
6 minutes on elliptical
I am not sure how many of you know that I have been trying to get started with cardio thinking that it will help with the dismal fatigue and maybe even help fight the cancer. Well, I know most people won't understand how proud I am of a mere 6 minutes at an incline on the elliptical. But was thinking some of y'all might…
Sorry to say
My dear hubby Jim, succumbed to this God awful disease 2 days ago. They had him off of chemo temporally for the colostomy and that stupid ulcer and it just grew so fast. Last week we were supposed to enter a clinical trial, but instead his liver went into failure. God bless the man, he worked up until the end. Thursday he…
Need advice about surgery, and reconnection
Hello All I’m seeking insight and advise about having a colon resection, reversal, the ostomy bag and the side effects. Most particularly the side effects of having the surgical reversal (reconnecting your colon). I apologize if this is post contains a little too TMI…. I was diagnosed this past August with stage 3B…
Signatera & when was your first follow up scan?
As much as I initially felt confident in dad doing 6 treatments of FOLFOX instead of the 12 his oncologist recommended, now that he has finished it's so scary. His oncologist has made a few comments about the studies not being clear that 6 treatments is enough and such, but it doesn't matter, dad is dying to have his…
Surviving financially
I'm a new member on this forum. I've worked in an environment in which I'm exposed to carcinogens for the the past 15 years. My question is, are all cancers covered under medicaid? My fear is of getting a form of cancer that is not covered under medicaid or medicare or is not advanced enough so that I end up being drained…
colon cancer and prostate cancer
Im looking for a treatment center near rochester ny that can deal with bolth cancers Colon grad 3 and prostate gleason 3+4 also have Lynch Syndrom

Colorectal Cancer

Discussion List

Discussion Boards