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Colorectal Cancer

NED
Hello all - I have hesitated to post this for a bit, but saw my surgeon at the end of April for an exam prior to scheduled surgery to remove what was left of my tumor following chemo and chemo radiation. Did the exam and flex sigmoidoscopy and he said that I had a "complete clinical response" and that the tumor appeared to…
My husband is gone
he left this world fighting still at 6 am this morning after fighting this for 11 years. We are all relieved he is out of pain and discomfort now, but we miss him so much. We are not whole without him and never will be again. Thank you all so much for all of your support and kindness all these years, I am so deeply…
2 year CT with contrast
Had my annual CT scan with contrast this week. The summary stated NED. While l'm happy for myself..........l know many on here are struggling...........maybe their hope is running low. l pray each of y'all peace and healing. keep up the good fight........
Please help with any input - probable reoccurrence
I'm beyond devastated now and so confused. Can anyone give it to me straight about this impression from my dads CT. Or any information they know about mesentery metastasi, especially one so close to the artery. "There is a small aortocaval lymph node which measures 8mm x 7mm on series 5 image 56. There is a soft tissue…
Sad news about foxy
While working to gather information about Ron50 (still no word back from his son) I read several posts from/about foxy. She and Ron had received the same chemo treatment back in the 1990s (5fu and levamisol). Levamisol was later banned for human use in many countries, including the United States, due to its adverse…
Channeling Pepe - Happy 4th July
To all of our American forum members - which I am not - American, that is. May you have some fun, this weekend. Food and family, and maybe a firework display to brighten the night sky - which we are not, becasue of extreme fire danger. Only a handful of you will understand the subject line. Pepe (pepebcn) was one of our…
Feel sad for some
I always feel sad for the one's who pass on and their familys. We only know one another through this board and I have to say there is not a braver bunch of people anywhere. I pray for all of us everynight. It is so up lifting to read your stories of survival. You all keep me going.
Positive PET/Negative Colonoscopy
Hello, all! First time really joining the boards here. I forgot this resource existed and there is a reason I am circling back around. A little about me: I was diagnosed Stage 3 Colon last March during an emergency exploratory to find a bowel perf. Baseball size tumor in the splenic flexure. 5 of 13 nodes positice with…
just joined and you have already eased many of my fears
I just had the bandages removed from my port. I will start 5FU in a fanny pack next Monday. Will go 5 days of chemo and radiation, weekends off, and that for 5 weeks. Then dr says hopeful that my stage 2 rectal tumor will be small and easily removed by surgery. So I guess I'm looking at a kinda crappy summer but a sunny…
Where do I go from here?
I'm 45 and was diagnosed with stage 3 colon cancer 12/23/20. The folllowing January I had a sigmoid resection and as of today have completed 9 of 12 rounds of chemo. For the most part I have been pretty well all things considered. Lots of fatigue, cold sensitivity, and I am now starting to feel neoropathy in my fingers and…
Happy Birthday, Inspired2013
Have a wonderful day. We will be thinking of you. I know you haven't been on the forum for a while, and pray that is good news in itself. Tru
39 years is a long time
39 years is a long time but that's how long I simply drifted threw life never taking the time to appreciate my dad and just had good I had it . Knowing that he was always there to help me or bail me out of trouble or just to listen to me. Become so common in that time that I just assumed he would always be there . And…
mri scan
I had a large colon cancer tumor removed in December. A pet scan showed that I have a metastasis in my liver and another in a lymph node. They sent me for a mri scan and it revealed that I have another 15 small lesions in my liver. They called them colon cancer metastases. Without a biopsy, how would they know that these…
cancer signaling pathways
v16p2323.pdf (ijbs.com) For any who keep up with Interleukins. Pretty straightforward.
It’s taken me a long time, but I’m becoming an official hippie
We just spent 3 rough days in NYC at Sloan Kettering, where the original 2 appointments over 2 days became about 10 appointments over 3 days, as we added MRIs, more CT scans, labs, a myelogram and a radiation oncology “fitting/simulation.” The cancer has metastasized to my spine and definitely in my lungs as well. I’m…
Surviving and looking back
While searching old posts, looking for information that will help us track down Ron, I came across a thread by our dear friend, Craig - The Lion - long gone but not forgotten. https://csn.cancer.org/node/253494 . I read MY reply, and was quite chuffed, as I was a newbie and still qutie shy. I would have just started chemo…
Labs Resources
While doing some research on blood labs I found a couple of resources about I found helpful. I posted them below. Lab Tests: https://training.seer.cancer.gov/diagnostic/lab.html Tumor Markers: https://training.seer.cancer.gov/diagnostic/markers.html Dan
lar syndrome immodium/fiber supplement routine
hello, I had a LAR surgery in July 2021 for rectal cancer st g 3 with lymph nodes. I was given an ileostomy, post ileostomy takedown in October , I have little to no control of my bowels. I take otc immodum as my insurance will not cover it, 3-5 times a day. I am working with a nutritionist who told me to take benefiber 2…
Weakness and pain in limbs post treatment.
Hi, My father was diagnosed with stage-3 Colo Rectal CA. He went through Radiation->Surgery->Chemotherapy and all these treatments completed in March 2021. He physically looks better after gaining muscles and strength but complains about weakness and pain in limbs and shoulder muscles. We dont have a reason for this pain…
Sepsis how much is to much ?
Hello all , Well we had to rush my dad to the hospital and we are still waiting for blood cultures but they are pretty sure he has sepsis his cancer is causing a blockage on his urethra . They put in a nephrostomy tube in his kidney thankfully has his feeling better so that makes three bags now my dad has why is the world…
Acne like rash
Hello, My dad has Folfiri with Avastin now. As with Folfox at one time he developed an acne like rash. In autumn it was on his back, he got a skin desinfectant and a cream. Now it is back on his head, it hurts when he is sleeping on his back cause it presses on the acnr. For now that is only side effect and I wanted to…
Treating rectal tumor with Cipro antibiotic!
Don't know if anyone else has an experience with this. Prior to being diagnosed recently with my rectal tumor via colonoscopy there was a couple of surgeons and a physician who with a couple of CT scans decided I had a rectal abscess. They gave me Cipro for 2 weeks to try to see if it would have an effect, and it did.…
PhillieG has passed
It is sad to note that one of our long time stage 4 survivors has passed. He was a fighter as well as someone who was determined to enjoy every minute he had. He dealt with cancer for 17 years. Phil loved life. Please say a prayer or send good thoughts to his family as they deal with this sad time. Marie who loves kitties
Happy Birthday Kim - Annalbelle
Have a wonderful Birthday on Monday 14th, with all the great things in life - family, food, friends, fun and allot more. We will all be thinking of you.
Sandiabuddy -car?
Did you get a new car?! Youve mentioned wanting but then holding off. If you did, it’s a beauty!
Happy Father's Day to the board dads
For those of us in the US it's Father's Day. Son woke me up at 7AM to take him to his soccer game, which I guess is a father's day after all. There are some sons and daughters on the board, you guys are great showing your support for us dads (and moms) we appreciate it. Sorry for those who might be having it a little tough…
Hair? Where?
So the anticipated alopecia has begun. That's nearly 20 yrs as a dread down the (shower) drain. I actually made it to the end of FOLFOX before they started falling out, but I still had hair on my head. While I'm rapidly losing the skull cap, the hair elsewhere remains. I mean, I could really stand to lose some ear hair,…
Hospice care
My husband allowed the hospice nurse to come. I didn't think he would, and I didn't think he understood it means no more treatment at all. In all honesty he cant have any so there is no point. So he has an infection from his drain, it has caused small undrainable abscesses to form. Basically they gave him antibiotics to…
Just Found Out Lonsurf Stopped Working and Cancer Growing
And to think I was bummed about the Knicks getting knocked out early or the Yankees playing horribly. Time to move on to a trial. I know the next move if the trial does not work, but want to get ready for the next move when/if the move after the trial move. Yup. I plan ahead. My doctors still have no idea how I can be…
Hey PhillieG Let's Talk Guitar
Something that I want to ask you. Saw how you are going through things. And keep on kicking it man. On your profile caught a couple of things. Photography (one of my big things, and shooting for a baseball team this year kept me going through chemo) and guitar. Have neuropathy in hands and feet. Finally tried playing again…

Colorectal Cancer

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