-
"First bite syndrome" - oh it hurts!
Hey All, I had head/neck cancer diagnosis in June 2018, finished treatment in Sept 2018 (2 rounds of chemo + 42 days IMRT radiation). The treatment was pretty rough but now I'm 7 months post-treatment and each day is a little different, mostly in the positive direction. Before treatment, occasionally I'd experience "first…
-
ISO Surgical Oncologist recommendations
I'm looking for recommendations for a surgeon (or team of surgeons) for a friend of mine who has stage 4c CRC. He was expecting liver resection along with peritoneum surgery next month but they found new lymph node mets and just informed him they won't proceed with the surgery now. Can anyone recommend anywhere we should…
-
Definition of biochemical recurrence
Hello all, first post. Brief history: Diagnosed in 2015 and underwent RP that year. Surgical report stated "Gleason 3+4, Stage T3a, negative resection margin." The last part indicated to me that surgery was successful. Unfortunately, my first PSA test 3 months after surgery was 0.53 and a follow-up 3 months later was 0.75.…
-
Over-concerned wife or Not?
I hope someone can help me clarify my concerns. Husband is 54yrs old with high blood pressure (medicated) & on testosterone for (Low T.). He is not a smoker, but drinks alcohol nightly. Because of his testosterone injections, he regularly has bloodwork done. 12 days ago he had a bloody ejaculation and it has been bloody…
-
Thyroid cancer in lungs and spine
My daughter was diagnosed this past August with Thyroid cancer. Her full thyroid was removed, and 2 weeks ago when they did the scan during RAI treatment they found cancer in her lungs and a spot on her spine. They said it is from her thyroid and the RAI is the correct treatment. We have been working with an…
-
I Am Wishing Everyone A Blessed And Joyous Christmas And Hope For Tomorrow-Add Yours
Christmas is Upon Us Once Again It is once again Christmas and time for family gatherings, food, gifting others and extending goodwill to all. This is certainly a wonderful time of the year that can fill us with hope. Because Christmas is the story of hope and hopes eternal. Christmas is a time of great joy and celebration…
-
1 month post-op, & I just don't feel well.... Insight, anyone?
Hey, everyone -- This is Terri. I'm 46, and am one month (tomorrow) post-op after my open radical nephrectomy to remove my left kidney. I am taking Advil for some minor discomfort (mainly where my 10" abdominal incision crosses my c-section scar). For the past week or so, I have just not felt 'well'. I feel very tired &…
-
Cryoablation for kidney cancer
A couple of weeks ago I had a 2cm malignant tumor removed by percutaneous cryoablation. For now, the scans show that the tumor was completely frozen and the outlook is good. My concern is that I have had a consistent swelling (the size of an eggplant) starting at my waist and going almost to the navel. I am also completely…
-
Hello
New here. My Dad died 2 weeks ago. Aged 94. Took 8 weeks off of work to care for him. Beautiful and hard times. I found him passed and got my Mom when he died. Dysfunctional family. I gave his care my heart and soul and still can’t find time to grieve. How do I settle down. I only just got home after being on the east…
-
Hormone treatment
I am 80 and diagnosed with advanced prostate cancer. I am being treated at the Bay Pines VA. Radiation and removal have been ruled out. I have had three Firmagon injections (2 initially then a follow up). This past week I had my first 90-day injection of Eligard. I have the symptoms I read about...hot flashes, night sweats…
-
Had Radical Neck Dissection May 26.22, BUT now a small Fistula had opened
Any of you experienced vets encountered this? It started out early Dec as a pus-filled abscess that eventually erupted voluntarily. Took one antibiotic for a week. Drainage reduced 95% but not completely. Then surgeon put me on AUGMENTIN 875, 2/day for 14 days, now on DAY 4. THEN, to complicate matters, here in the last…
-
Radiation Necrosis in the throat and neck
TORS tonsilar cancer surgery in May, 2022, 30 IMRT's completed Aug, 2022. Had SCC in left tonsil/lymph nodes in 2007. Minor surgery, 35 IMRT's, 7 weekly Cisplatin treatments. LEFT SIDE IS STILL NED. However, there are parts of my neck and throat that received parts of all 65 IMRT's from both events. First post-treatment…
-
Throat cancer
I have had throat cancer twice leaving my epiglottis nit working and me on a Gtube for life,so they say. I am hoping there is someone out there that can tell me that the epiglottis can be replaced and eating real food will again be a joy in my life.
-
Octriotide for a snowbird??
My dad gets octriotide injections every 2 months. When he is in Florida for the winter, he actually spends about $600 to travel back to Ohio to get the injections insisting that "my personal doctor needs to do them because they freeze and thaw and mix and...it's tricky". My girlfriend has been through breast cancer…
-
Anyone get sick from drinking Boost?
I am nearly 15 months out of radiation for bot cancer. While I expected to lose some taste and saliva glands, I thought that I’d be able to eat much better by now. I still have problems swallowing many foods, some surprising to me. (mashed potatoes!?! Feels like I’m trying to swallow wet sand).. So I’ve been living mostly…
-
Tomorrow will be 1 month since my cancer diagnosis....
Hello all, my name is Jeff. I just joined this network to maybe gain some insight into what to expect coming up. I was diagnosed with esophageal cancer on 9/6/2022 and found out that it was Stage IV on 9/15/2022. My first round of chemotherapy started on 9/20/2022 and I am currently going through my 2nd round (of 12…
-
Looking for any kind of help
I am helping my mother, I'm her caregiver. We cohabit a home together, we have for years. Her journey started this time last year with non small cell carcinoma in her right lung. She underwent radiation for 6 weeks 5 times a week, she also has had chemo and immunotherapy. Then they found uretal cancer and had to remove it…
-
Nyquil for neuropathy?
It's been almost three years since I was first diagnosed with Stage II, Grade 3 UPSC. After three chemos, I stopped. I had many, many bad side effects but the one that has lingered is very painful neuropathy in my feet. There have been nights I have walked the floor for hours in tears. I have tried all kinds of painkillers…
-
Lung Nodules Confirmed to be RCC METs
Diagnosed with kidney cancer in October 2018. Woke up one morning with blood in urine and severe back pain. Left kidney was involved only with 6.5cm mass. Entire left kidney removed was considered stage 1, grade 1 with no lymph node involvement so confidence was high I was completely cured. Pathology was Clear Cell…
-
Possible ovarian cancer, prior endometrial cancer
I had endometrial cancer last year, low grade and stage, only hysterectomy needed, and my ovaries looked great, so they left those in and took the tubes (pre menopause). Since then, I have had a lot of discomfort and even tried PPT which didn't help all that much, but overall, I felt pretty good by early fall except for…
-
A new battle
We all know what going thru H&N tx is like- a 2-month battle that drags on as long afterwards. A thought occurred to me with where I'm at now, almost 13-1/2 years since my last Rad session: first there was the battle of going thru treatment, and now there's the battle of dealing with the long term side-effects of C…
-
Vats lobectomy recovery
I am fortunate to not have had an open thoractomy. I almost hate to ask when others have had more painful open procedures. Almost 2 weeks ago, I had the VATS removal of my RLL. Has anyone experienced abdominal pain almost constantly a few inches from their incision? Bending over hurts and I try to avoid it but there's…
-
Renal mass right side
I was recently diagnosed with RCC, I have a rather large mass like 18x13x13 cm on my right side, It may be connected into may large intestine can barely see my kidney, all my other organs are fine for now according to doctor and my ct scan, Doctor wants to try shrink and remove, but this is in early stages of…
-
NED - Year One
Hi all, Ringing the one year bell! CTs ordered by the MO and scope and poke by ENT show all clear - NED! Most report various long term side effects and about a year out declare their new "normal". A handful declare a new normal as good as or efven beetter than the old normal. For some unknown reason, I'm extremely…
-
And The Drug Trial Keeps on Working - CEA plummets, Cancer Activity Drops, Tumors Shrink
The tumors being tracked have now shrunk a total of 14% since I started the drug trial in July. Had some bad reactions a couple of sessions, but since then it has been easy. PET scan showed that some lymph nodes that had activity/uptake are resolved - no sign of cancer activity in some locations. My CEA (which is always a…
-
Votrient and bilirubin
Hi ive been on votrient close to 2 years and it had kept my metastic LMS cancer stable. My liver enzymes all increased each quarter as they scanned me and did blood work. A month ago out of the blue I’m yellow and itchy. My bilirubin was a 5 and had stayed within standard range for 2 years with 400mg of V. They had me stop…
-
Surprise extreme exhaustion
I've entered my 4th week post-radiation, and have made a trip with my wife and two pups to the Oregon Coast to celebrate and start to recover from the losses I've endured over the past year. The first thing I noticed glancing out at the ocean was true relaxation in my body, and tearful gratitude at seeing my little family…
-
tongue cancer
I was recently diagnosed with tongue cancer. I had part of my tongue removed and a neck dissection. I would like to connect with others who have been diagnosed tongue cancer.
-
Urothelial Carcinoma Newly Diagnosed/Post-op Reccurence???
Hello, I am new to the site and was hoping if anyone had a history of urotelial carcinoma that can shine some light on the my problems. Initially beginning of Jan 2021, I have been experiencing intermittent gross hematuria (brown/pink blood in urine) which alerted me to go see the doctor. However when they took urine…
-
Dual primaries within 5 months
Diag with breast invasive duct carcinoma in June and uterine cancer Nov 16 th treatment and staging for the later not known as it is very recent. If anyone has experienced this I’d be interested in hearing about your approach with two oncologists treatment and the process. I’m still pretty gobsmacked about this. If you…