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start treatment
Getting ready to start radiation and chemo . Got fitted for the mask yesterday. My how things have changed since 2014. Back then they did not cover your face but left eyes ,nose and mouth out. I am worried I will have a panic attack. My neice says that is what Zanex is for. I will talk to the Dr.about it. I thought I read…
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Gemcitabine Complications
I am trying to process some complications that my 83 year old father is having with his PC treatments. He's stage 4 and was given 6 months, diagnosed about 2 weeks ago. He has been administered Gemcitabine via injection the past two Wednesdays. This past Wednesday about 4 to 6 hours following his injection, he woke from a…
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Panic attack during change in radiation machine rotation
I was given no information on how the radiation machine rotated and how many devices it entailed. After 5 days of the same rotation, I had gotten to the point of feeling like I knew how it worked, and felt like I could cope. Bam, the next day , the treatment was done in a reverse order with extra xrays taken, and it scared…
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Chemo cold caps
Suggestions, comments, thoughts? My hair stylist said to get this since many of her clients used them and it saved a great deal of their hair? Interested in what you have to say. Thanks
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thelazyaranch4
I can not find your previous post and would really like to know the path you have traveled. Marla Keeth
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Seeking advice and support (husband - colon/liver cancer)
Hello. My husband was diagnosed with Stage IV colon cancer this week, spread to the liver. He had a sigmoid colectomy and now has an ostomy. Once he heals from that, we will meet with the oncology team to find out what the plan for attacking the cancer is. We have 2 boys, 21 and 11, who don't know yet that he has cancer. I…
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Ibrance--Pfizer patient assistance
Hi everyone, I'm writing to share our experience with the Pfizer patient assistance/oncology together program. My mom was prescribed Ibrance for her recurrent MMMT based on the genomic testing results (CCND1 amplification, which may be targeted by Ibrance). Ibrance is not FDA approved for uterine cancer (just breast cancer…
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Ibrance and Aromitase Inhibitor
Hi there, After two recurrences, I was put on Ibrance and an aromatase inhibitor. I am in remission for now. I've been on this regimen since December, 2017. Is anyone else on this combo? If so, for how long? Thanks.
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Dysphasia after TORS and Neck Dissection
It’s been a month after TORS and neck dissection and I have a sore jaw, mucus, feels like there is a string in my throat constantly, food gets stuck in throat, etc. Anyone else have these symptoms? Does it get better or is this my new norm? I haven’t started radiation yet and can’t eat a hot dog. My jaw gets too sore and…
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Sore muscle opposite side of kidney with tumor removed.
So I had my left kidney removed on july 5th, I’m just about 6 weeks post surgery and the right side of my back is sore and has been sore since the surgery. Has anyone else experienced this? I did mention it to my oncologist, but he didn’t say anything about it. I have told my surgeon too and I am waiting a response. I’m…
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What Are The Symptoms?
Hello everyone. I am a 12 year prostate cancer survivor. Recently, I've been having stomach issues...colicky...not feeling empty after a bowel movement...occasional blood in the toilet. I have a colonoscopy scheduled next week. My last colonoscopy was four years ago and it was clean and they said don't come back for 10…
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HIPEC Ovarian Cancer Recurrence
Hello, Looking for any experience that survivors had with HIPEC for abdominal OC recurrence?
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Neutropenia with Chemotherapy
I was about to begin my 8th (final) cycle of chemotherapy. However, on what should have been Cycle 8, Day 1, my white blood cell count and, specifically, my neutrophil count were too low to proceed. The protocol is to wait a week to give the bone marrow a chance to recover. However, one week later, the numbers were still…
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Burn Relief?
Hello, my father has completed 19 of 33 rad treatments. He started getting some burns earlier this week that have progressively gotten worse. The doctor prescribed a burn cream but, unfortunately, that made things worse likely due to a sulfa allergy. He was prescribed another cream to try and will be doing some Domeboro…
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Radiation damage to bones of jaw
Hi all, I was diagnosed and treated for right tonsil SCC p16 positive in 2016. Now my jaw bones started dying which is called osteonecrosis. As a result my two teeth became loose and my bone and whole cheek get infected. Now I am on antibiotics, and also precribed with Vitamin E, pentoxiphyline, clondronate and…
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Pulmonary Carcinoid Tumors
Hi! I'm looking for anyone else who has been diagnosed with Lung Carcinoid Tumors. I was just diagnosed about a month ago, Stage IV, and I'm really struggling to face this thing head on. Because it is so rare, my oncologist doesn't have experience with this cancer and can only look up ideas on how to treat it. I want to at…
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With or without treatment
My husband has Stage 4a Squamous cell carcinoma in the left lymph node and base of the tongue with no distant metastatic disease. We are meeting with the surgeon next week. My husband is not known for going to the doctor and I wonder what course this will take if he refuses surgery and treatment and what to expect with…
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The Other Space - An Animated Short Film for Pediatric Cancer Patients
Hello! I was diagnosed with stage 4 osteosarcoma in 2012. My tumor was in my tibia and had already spread to my lungs at the time I got diagnosed. Now as of July 16th I have been in remission for 10 years! Just before I was diagnosed, I toured CalArts for the first time as I was aspiring to go into the animation industry.…
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Surgery
Not sure when it is Just wondering what to expect.. Painful? Can I get in and out of bed by myself? Etc.. please share details
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49yo Husband Recently Diagnosed with Stage 2/3 Colorectal Cancer
We are in week 3 of Neo-adjuvant Chemo Radiation. So far we are doing well with labs, nutrition etc. He is still going to work and exercising daily. Anyone else out there have success with CRT with Xeloda? Did it shrink your tumor and how long was it before you had surgery? They are telling us at this point he may need…
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Waiting for biopsy
Hi all, I am a breast cancer survivor, stage 1 in 2018, cancer-free after bilateral mastectomy. I went to the ER last week with severe abdominal pain and had an abnormal vaginal ultrasound. Post-menopausal, 16mm endo thickening, small cysts throughout, and hyper vascular. I thought I was still perimenopausal so I didn’t…
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A few (bizzare) questions for anyone treated
Backstory: My dad's PSA has been increasing steadily since 2018. (from 2.5ish in 2019 to 4.5 now). He's scheduled for MRI. The urologist said given the steady increase he think it's likely to be it's cancer. He's turning 69 and is pretty fragile even for his age- already been through intense chemo/radiation for head and…
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TORS and Neck Dissection without any Radiation and/or Chemo
T2N1M0 - still waiting on pathology but my surgeon told me one of the reasons he was recommending TORS and neck dissection versus chemo and radiation was there may be a chance if just completing this with the surgery. I have been scouring this discussion board and haven’t seen anyone that has done this tratent alone.…
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Mskcc 30gy then 40gy
Anyone gone through the lower dose radiation at MSKCC? 30gy first over both sides of neck + 40gy to tumors. So the tumors still get 70gy, but the side effects on other side is greatly reduced as they say. Anyone gone through this along with chemo? If so, what’s the success rate?
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Tumor size differs between MRI, CT and PET
My p16 scc tonsil tumor shows in different sizes in different scans. CT showed its 3.7cm. PET showed its 3cm and the recent MRI shows it’s 2.7cm. Anyone experienced this? Which one of these is more accurate?
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Cancer in my left ureter
I was diagnosed with a tumor in my left ureter down by my bladder and according to my uroligist they have to remove the kidney and ureter. My question is should there be any tests or scans done to see if the cancer has spread and if it has spread what kind of treatment is there. I don't understand what all this means but…
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Standard therapy vs de-escalated therapy vs Clinical trial
Friends, I have been recently diagnosed with SCC tonsil (right) with p16 positive. There are multiple enlarged lymph nodes on the same side with largest being 3.7cm seems to be a conglomerate of 2 nodes. Recent CT also showed enlargement in left tonsil and few lymph nodes on left as well. They lit up in Pet too, but my…
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new here was diagnosed with very aggressive pc Dec. 2022
My biopsy showed 12 of 12 positive 5x4's and 4x3's a very high 9. I'm 78 and went with radiation 44 treatments with hormone injection every 3 months plus hormone tablet everyday. I know y'all are in the same boat but I guess my question is when will I start to feel the effects of the cancer? Im a born again christian with…
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I am so angry
My mama was dx w/ stage 1 preliminary last week, pending this H2R and genetics as her half sibling passed from metastasized ca. Options at hand are lumpectomy w/ radiation vs unilateral mastectomy. Also 5yrs of estrogen blocker. Doesn’t sound so bad but I can get over this dx. My emotions are all over the place. I wish…
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TNBC Reoccurance
Hi all, I have just found out that my biopsy results are positive. I have a lymph node deep in my pectoral muscle by the chest wall. I had 18 nodes removed and two were positive durning my lumpectomy. I just finished chemo (taxol, carbo and ac) and keytruda the end of January and finished radiation the end of march. I…