The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
1 Year Update
Good morning everyone,
I wanted to post a status update as I hit my 1-year post diagnosis for stage IV rectal cancer. I just finished my 23rd treatment with Folfiri and Cetuximab. A couple weeks ago I had a PET scan and consults for liver resection and even liver transplant. Unfortunately, the pet shows some spots still in my lungs, so surgeries are off the table for now, but I am still in a very stable disease state currently.
It's been a long hard year, but my mental/emotional health has made a decent improvement in the past couple weeks after being in a big slump for a while. I think I am finally accepting that I will be on chemo for a long time or for the rest of my life and that is sad, but it is the reality, and I can learn to adapt. At the end of the day the side effects from chemo are rough, but I still feel much better than I did a year ago with the disease running rampant through my body. Thank you everyone for your support and stories about getting through this terrible disease your stories have really helped me in so many ways.
Much Love,
Ben
Comments
-
-
Thank you for the update. I love your optimistic outlook and hope the road ahead is something you can cope with. Keep posting new updates as were always interested in everyone’s journey.
This site has been so helpful in many ways that I also would have been lost without it. Take care Ben.
-
-
-
-
I had 4 potential lung mets on scans. Not definitive but I knew they were based on bloodwork. No reasonable options here in the states. One met was sitting on a bronchial tube, another one was also in a hard to get location based on techniques used here in the states. So, basicly I was screwed with what is available here. Reached out to The lung hospital in Coswig Germany and they said YES they could do surgery. I went, surgery was a success. Best decision I ever made!
-
-
IIIC rectal, 1/20 + lymph nodes. kRAS. CEA was 82.6 at dx. I was really a IV from the get go just not definitive on scans.
Folfox was a fail so stopped at 7th infusion and went my seperate ways with SOC.
Mets showed up in lungs. Back and forth with surgeons and scans. I did not agree with any options laid on the table of all 4 consults. Went to Germany instead.
-
-
-
-
Discussion Boards
- All Discussion Boards
- 6 Cancer Survivors Network Information
- 6 Welcome to CSN
- 122.5K Cancer specific
- 2.8K Anal Cancer
- 455 Bladder Cancer
- 311 Bone Cancers
- 1.6K Brain Cancer
- 28.6K Breast Cancer
- 407 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 681 Leukemia
- 802 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 242 Multiple Myeloma
- 7.2K Ovarian Cancer
- 69 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 743 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.4K Lifestyle Discussion Boards