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lung cancer now in remission
after failing immunotherapy, then 2 kinds of chemo, switching oncologists, and finally having undergone imrt radiation, my stage IIIb non-small cell squamous lung cancer is (very surprisingly) in remission. even the current oncologist said it was atypical. i’m not even happy about it because now i’m living in poverty with…
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NSCLC LUNG SQUAMOUS CELL SURVIVORS NEEDED
Hello, I am writing this post to receive some guidance after my mothers recent diagnosis back in April of this year. When she was first examined, scans showed localized but large (about 9cm) mass on her right lower bronchio (squamous cell carcinoma). Started treatment with chemotherapy (Carbo & Taxol) however, received…
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Advice please. Colon cancer or something else?
i would really love some advice if anyone else has experienced anything like this. 2 years ago after a sinus surgery I got super constipated from all the pain meds. Nothing worked to get me back to being regular. Along side that recover my ENT put me on generic Prilosec for what she believed was silent reflux (even though…
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Topics for Next YouTube Episode
Hi everyone, I will be working on episode 8 of my UPSC YouTube channel and wanted to get your input as to what you would be interested in hearing about. I was considering 1)What causes cancer to recur 2)Medical marijuana 3)Keytruda....I asked this question in the Facebook group and got a few ideas and am leaning toward…
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Recurrence / double radiation
So it’s been a LONG time since I posted, but as a search for the NAVdx on Google brought me back and I thought I would update my story. BTW I am a huge proponent of the NAVdx and trust it more than a PET or CT scan for HPV cancer. I was originally diagnosed in October 2020 with tonsil cancer with one lymph node involved,…
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Nervous and looking for words of support
Hi Group, I am nervous and sad to have to reach out, but I'm really hoping for some comforting words from others that may be in similar boats. Last year, very suddenly my husband received a diagnosis of stage II testicular cancer. He is 35 and I am 31 so for seven months we were really in a spiral of, well what cancer does…
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Any diagnosed with endometrial cancer and then breast cancer?
I as dx with endometrial cx 5 years ago. In May I was diagnosed with triple positive breast cancer. Has anyone been diagnosed with these 2? If so, how far apart? Thank you
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Extra Sensitive to Mosquito Bites?
Wondering if anyone who is going through chemo or has finished with chemo has grown more highly sensitive to mosquito bites. I've always been sensitive and tend to get welts when I am bitten by mosquitos but since I finished chemo a year ago, the bites turn into HUGE welts. I had one on my cheek a couple of weeks ago that…
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Any survivors of Non-Hodgkin's lymphoma lymphoma out there??
Are any survivors of Non-Hodgkin's lymphoma out there? Anyone from India or Bangladesh?
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I’m new here
Hello. I’m 53 years old and newly diagnosed with Stage 3 rectal cancer found during my first colonoscopy. I will be seeing Oncology on Monday. I saw my surgeon earlier this week who said that rectal cancer is often treated successfully with chemo/radiation only. So surgery might not be in my future. My husband and I have…
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Diagnosed with endometrial cancer---18 years post hysterectomy
Would be helpful to hear from others who have experienced with type of cancer, and especially from those who have had a full hysterectomy years before the diagnosis.....
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Total shutdown after being pulled from steroids
Hi, my loved one was diagnosed with glioblastoma, they had surgery, went through the 6 weeks of radiation/chemo combo, and is now taking infusion once a month and chemo 5 days a month every month for six months (she is on month 2 now). This entire time she has been on steroids and recently we pulled her off, but she…
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TESTOSTERONE SUPPLEMENTATION AFTER RADIATION AND FIRMAGON
HAD RADIATION AND FIRMAGON 5YEARS AGO .CANCER IS GONE BUT SO IS MY TESTOSTERONE .IT NEVER CAME BACK .DR RECOMMENDED TESTOS TERONE SUPPLEMENTATION.HAS ANY BODY TRIED THIS?
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Highlights from SGO Meeting for Endometrial Cancer
Hello everyone! If you are interested, I am so hoping you can click on the link below and watch the eight, short videos from recent Society of Gynecologic Oncology meeting that just took place. They touch on the RUBY and GY018 studies that show some interesting promise on treating our cancer.…
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Chemo with kidney removal
I was prepared for the surgery to have a kidney with a tumor removed. Now the doctor says he just got new guidelines for my issue. That is to have weekly chemo for 3 months prior to the surgery instead of after. I wasn't aware of going to be having chemo after but he said that after surgery he would send me for an…
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New Thyroid Cancer Patient
Good evening, I am feeling tired, anxious, and not quite like myself after my recent thyroidectomy. I had papillary thyroid cancer. The cancerous portion of the tumor was 3.3cm. I am two weeks out from a total thyroid ectomy and feel out of sorts. I feel sad, anxious, tired, shaky, achy, and just not quite like myself. I…
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Fallopian tube recurrence in lung?
Hi, Ladies. I haven’t created a new post here in a very long time. And I’m just sick (and furious) that I have a reason to do so now. In late 2020 diagnosed Stage II FTC with secondary peritoneal. Remission 2021. Last fall my CA125 rose very slightly and so GYN/ONC was insistent I have CT. I was so devastated and so ill…
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Not sure where to go from here
I'm a 35 year old male, married, with two daughters (9 and 3). Last month I started having heavy rectal bleeding, including black tar like stools. I went to the ER and they recommended I go for a colonoscopy. After fighting to find somewhere that could get to me before November, I was able to get in this Wednesday, August…
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Taking Supplements DURING chemoradiation?
Hi All, This is the first thread that I have started on this very helpful and inspiring web site. Before I get to the subject of this posting, I guess I should introduce myself and provide some background information. I am a 58 year old male who has recently been diagnosed with a fairly early (T2N0M0) stage of rectal…
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Nauseous
I am a 3 time cancer survivor. 16 years ago I had stage 3 breast cancer and then early 2021 (I believe) I was diagnosed with stage 3 anal cancer. Two weeks into my treatment for anal cancer I was diagnosed with breast cancer again. I was so overwhelmed I made a radical decision to have a bi lateral mastectomy. I have been…
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Treatment Centers/Anal Cancer
Hi, all - admittedly, never did I think I’d be doing a Google search for anal cancer…of course, I don’t think anyone has that as a bucket list item. Since this cancer has nowhere near the the “press” as other cancers, I know it’s important to be treated at places where they see more than one of these cases a year. Can…
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26yr female peritoneal ca
My name is shannon and I'm from kalamazoo, MI. I was diagnosed in June with stage 3c primary peritoneal ca, had a full hysterectomy and had 6 rounds of carbo/taxol.. just married and was hoping for children. I am considering adoption but should I wait a few years to make sure I've beat this? My last CT and PET scans were…
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Pancreatic cancer
Is there anyone on here for stage IV pancreatic cancer? In my case, my husband is the patient. He has pancreatic cancer which has spread to his liver. He is undergoing chemotherapy.
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Photodynamic Laser Treatment for Osteoradionecrosis?
Please members make note of this, it may be helpful someday to you. Although not the frontline treatment on this a fellow CSN'er, Mavish, recently posted this as an add-on and update into another posting. I think this subject and this option is important enough to share as a posting to the group and the public at large.…
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Mom with Stage 4 NSCLC
Hello, My mom has been receiving treatment for NSCLC for about 6 months now and she has been so resilient but it has pushed her to her breaking point. She says she is traumitized and can't imagine going back to get another chemotherapy session, the tasteless food, vomiting, constipation, mouth/ throat sores and now skin…
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Mom newly diagnosed
Good Afternoon Hello Everyone Hope all is well! Thank you in advance for your support. My mom will be undergoing a surgical biopsy for ADH bordering DCIS and will need radiation afterwards. We received the news a week ago and we are trying to process it all. I am reading, researching and feeling overwhelmed. When the…
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Small Lung Cancer
My mom was diagnosed in December with stage 4 small lung cancer. It is the type of lung cancer that is aggressive and is neoendocrine. I am really struggling because I do not live in the same state as her and my sister. My sister is on the front line. I also have PTSD, General Anxiety Disorder, and Depression. On top of…
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Devastated and confused
I'm a 62 yr old female and was recently diagnosed with tongue cancer. I will be having a total glossectomy Sept 5, followed by radiation. My drs have said it's likely I will have a trach and feeding tube the rest of my life. I'm devastated because at this point in our lives my husband and I thought we would be selecting an…
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Primary small cell carcinoma of the breast
Hi everyone, I wanted to reach out to see if anyone else has had, or has known someone with, primary small cell cancer of the breast. What has your experience been so far? I was diagnosed in March 2023 with both invasive ductal carcinoma and primary small cell cancer of the breast with a neuroendocrine component, with the…
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Update: Husband’s NavDx Test Result Pre-Treatment
Hi Again, I posted a few weeks ago we went down to NW-Chicago for a second opinion on my husband’s Stage I base of tongue (left side 1.2 cm on PET 7/19) and 2 involved left lymph nodes so all on left. HPV+ 16 from biopsy. The only reason we made the 2 hr one way drive down was to find out more about their Proton radiation…