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Wishing Everyone A Happy And Blessed New Year And Great Hope for The Future-Add Your Hopes & Helps
Hello everyone, we are about to turn over a new year and are looking to the positive as much as we can I am sure. I know we are all in different phases of treatment and recovery and or dealing with the after-effects of treatment to some degree. May we continue to work together on here for the good of each other to help and…
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Pain medication for Stage IV NCP SCC, HPV neg, mets/ lymph nodes & lungs
My husband was recently diagnosed with Stage IV Nasopharyngeal cancer with mets to the lymph nodes and lungs. He has his first chemo treatment two weeks ago and goes back on the 27th. Last week he asked me to call his oncologist to see if he could get any medication for pain. He has a tumor at the upper left back of his…
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Who has an Ostomy?
I've been thinking it might be useful to have a list of those with an ostomy. If you care to be part of the list, please note the following: Colostomy or Ileostomy? Permanent or temporary? If temporary, have you had the take down surgery? This would be helpful list to PM to any new member with ostomy questions, and I would…
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Strange symptoms after APR and Prostatectomy
Hi, everyone. My husband had his robotic APR surgery on Nov 9th and has been feeling OK overall, but he has been complaining mostly of numbness and leg pain. I’m assuming the numbness is to be expected, but we’re not sure where the leg pain is coming from (he never felt them before the surgery). He has also been feeling…
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problems after nephrectomy...anyone else have this?
Hi! I had a full nephrectomy 5 months ago and I am still severly swollen on that side. I am numb (feels like when your hand goes to sleep) from my hip to 1/2 way down my thigh all the way over to my groin area. This is all the time... I have not had feeling since my surgery. I have sharp stabbing pains all the time in this…
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10 years later...
Greetings, 10 years ago I went through a RP and a month later had 36 treatments of RT. The last 9 of those years after, my PSA was always 0.01 but now seems to be on the incline again, low but different at 0.07 then 0.05. The 0.02 drop 6 months later confused me, is that normal? Thanks in advance.
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My Four-Year Scans: NED!
Had my four-year scans this week. I've been so busy with work and family and upcoming holidays , I haven't had time to get nervous about them. No time for any scanxiety. Oh, but it eventually got me. Scanxiety is a clever monster, I'll give it that. Had my CT scan of my chest, quick and easy, no problem. Had to wait a…
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How do I read the PSA Levels after Prostatectomy & External Beam Radiation?
My PSA TEST Level read 0.1ng, 6 months post my last External Beam Radiation. My doctor says it should be <0.1ng or less. Is there somewhere I can get a guideline chart to better understand these results? In my case I understand that we are all looking for Undetected PSA. So where is the guideline with all of the different…
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Holiday Season
Happy Holidays to everyone! Wishing everyone a”Negative” 2023!
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Radical Nephrectomy
Hello, I'm scheduled to get a radical nephrectomy for a very small tumor (2.5cm) in my kidney. I'm a 31 year old female and do not fit the normal profile for RCC but they are very concerned about the tumor so my kidney will be removed. I had my pre-op appointment yesterday and asked as many questions as possible. I'm…
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3 time rcc champion
I just wanted you all to know that Lord forbid your kidney cancer to return, mine did 10 years after my 1st diagnosis. And then again just 4 months after my 2nd. I am proud to say I beat it for the 3rd time in June 2020. I hope everyone else is doing good. Thank you and God bless you all
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First three month scan
My three month scan is negative! The best Christmas present ever!
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Pancreatic Cancer
I have been searching the internet for a few months to find out about pancreatic cancer survivors and what is the longest a survivor has lived? I myself had surgery last year for pancreatic cancer and after my surgery was told by the surgeon to get follow ups every three or four months based on the posibility that my…
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HPV 16 18
Hi have high grade anal dysplasia .. AIN 3… due to HPV 16 19 I do t have anal cancer but thought I would join here to see if anyone can just give me insight if anyone has /was treated for these kinds of lesions and what was your treatment. I had 2 HRA for biopsy but surgeon didn’t really “treat “ the area just cut out the…
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Mantle Cell lymphoma survivors
I am a Mantle Cell Lymphona cancer survivor I! I was diagnosed in 2021 went thru chemo , was unable to do stem cell transplant due to two unsucessfull stem cell extractions and will be starting my maintenance plan soon. Is there anyone that has gone thru this recently?
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chemo and blood thinner
Im new here 78 year old newly diagnosed with prostate cancer. stage 4+ Gleason 9 5-4. Im starting radiation tomorrow for 9 weeks then chemo. Im currently on blood thinner for blood clots in both legs DVT and have heard chemo will cause blood clots. Has anyone else heard this? I haven't seen any posts addressing this.…
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Need encouragement from Chemical Castration
Age 63 January 2021 prostrate removed sex 4-5 times per week prior. Got erections and orgasms within a week. Good news. bad news, it spread to lymph nodes July 2021 started radiation and Hormone Deprivation (chemically castrated) 6 month shot December 2021 and with 10-20 mg of Tadalafil, occasionally can get a marginally…
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New here parent with MM
My name is Kylee. About a month ago we found out my mother has MM. It's been extremely hard on me,I'm the only family in town,I try my hardest to help her as much as I can even though I have two small children and work part time and don't know how to drive. It's starting to take a toll on me and my job. She's very stubborn…
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I need some Radiation Mask advice--Please Help
I went for the trial run today, and they put that mask on me, and I lost it. I told them there was no way that is the mask they fitted me with. When they snapped it down around the back of the neck, I just freaked out, and could not handle it. It was so tight around my cheeks. My Doctor is new, and he was so great, he…
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Need advice: Does anyone have COPD and throat cancer?
m y 65yo boyfriend has had COPD for several years and it was managed well. Two months ago after some suspicious symptoms, he was diagnosed with stage 3 throat cancer. Last week, he began chemo 1x/week of cisplatin for 6-7 weeks, and radiation 5x/week for 6 weeks. Two weeks ago he had his port put in. About 4 days later his…
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When could I resume outrigger paddling after radical double mastectomy ? I am afraid to ask...
Hi everyone, I just had a radical double mastectomy 5 days ago, the pain is awful, nothing compared the firs time I had breast cancer 8 years ago, back then the lumpectomy was much easier compared to this :( I m afraid that I won't be able to do the sports I used to, anyone here is a dragon boat paddlers, or a outrigger…
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Merry Christmas
Merry Christmas to all on here. This was a gift from my wife. She had an incredibly talented artist paint it as a Phoenix. She said the quote, "In order to rise from it's own ashes, a Phoenix first must burn" really spoke to her in relation to my experience. I hope each of you have found some peace and rest during the…
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appendix cancer
being treated with folfox for cancer o the appendix...anyone know anything...
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Post Lumpectomy Question
Hi ALL again! :) I had a lumpectomy done back on Jan. 28th. Had to go back for a re-excision Feb. 23. All clear margins - THANK GOD. But I had a question for you who have been through this before. My breast doesn't feel the same - not that I expect it to either - but it looks like there is a lot of scar tissue. When the…
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Newbie seeking support
First of all, Merry Christmas! I just joined this site and I am a complete neophyte on social media. My wife was recently diagnosed with stage 2 breast cancer. Her prognosis is very positive - pending a few more test results - but I am struggling with how it has already impacted our relationship and our family. I'm scared…
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Leaks due to leg bag tube dislodging from urostomy bag
My significant other is having trouble with the Hollister 18423 urostomy pouch coming apart at the connection to the tube of a Hollister 5174 urinary leg bag. She prefers wearing the leg bag all the time to reduce trips to bathroom. The connectors can separate at night while turning in bed or during the day just doing…
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Small area of T2 hyperintensity within the left kidney
Hello My 70+ YO bride of many years had a spine MRI recently. The MRI says in part: "Small area of T2 hyperintensity within the left kidney is incompletely characterized on lumbar spine MRI." Question: What does this mean? The F/U with the doctors is scheduled for early next year. Thank you and take care
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No one in family cares
I'm 53, new to all of this , my grown children do not care , my mother does not believe me nor does she care and she's a MEDICIAL SOCIAL WORKER . It's hard .
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Breast Tissue Expander
Hello BEEpositive here! hello Crew! has anyone had any experience with breast reconstruction starting during breast cancer surgery? I had it started about a month ago now same time as my left breast mastectomy was done. just started having filler done( to expand the breast tissue to prepare for the final breast implant…
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Any others feel like they are learning a lot about nutrition?
I don't always eat as I should, but I do feel like I spend a lot of time looking up the nutrition facts of various fruits and vegetables I like. My latest interest is the antioxidant found in high levels in blue, purple, and some red produce- Anthocyanins I am now trying to get at least one serving of these a day. It…