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Thank you Laz & Helen
Not too long ago one of you started a thread or two about living with a colostomy bag. It was both funny and informative, and wonderful to be able to talk about the issues. Laz mentioned that he cleans himself out so he only has to deal with things every 4 days. That got me thinking since I was heading out for two weeks of…
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On the fence about my treatment choice.
Hi guys. I'll try to do my best to relay all the facts and where I'm at. I'm turning 60 in a couple weeks. One year ago, PSA 3.2, nodule felt during exam. Six weeks later, follow up PSA was 3.4. Saw urologist, he suggested biopsy. 3 of 12 random cores positive Gleason 3+3, left side of prostate. Perineurial invasion…
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8-year-old Chinese boy diagnosed with rare brain cancer, parents seek treatment experience
Hello everyone, I am the father of an 8-year-old boy from China. My son suffered an epileptic seizure in August this year and was diagnosed with a brain tumor. Puncture biopsy and craniotomy were performed, and the pathological diagnosis was polymorphic xanthoastrocytoma grade 2-3 (APXA), which is a high-grade glioma.…
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Ovarian cancer help for mom?
hello all! I am a breast cancer survivor, as is my mother. Now, at 94 and otherwise very healthy, she's just been diagnosed with probable ovarian cancer with two masses about 8 cm. Her gynecological oncologist at UCSD plans a laparoscopic attempt to remove the masses and her fallopian tubes, during which time he will…
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New
Just joined been battling with lung cancer for a bit just went and had one session of amino therapy and it really took me out ,just looking to find some support in getting through another day 🤕
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Re-occurring Prostate Cancer
I am new to the forum and have been reading. I am a 12 year prostate cancer survivor after surgery. I have incontinent and manage it with pads (3-4 a day) and a Cunningham clamp. But four years ago, my PSA went from non-detectable to 0.02, 0.03, 0.09, 0.17 and is now 0.36 after a 6 month ready of 0.26. (I replaced the…
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What specialist is in charge?
Hello all, I am a migrant from the Uterine Cancer board. Following a screening colonoscopy I was found to have an invasive moderately differentiated adenocarcinoma in my ascending colon. It is a new primary cancer, not a metastatis of UC. I will be having further diagnostic imaging done soon, and I know that surgery is…
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Radiation freakles
I have broken out in freakles (or something like freakles dark brown spots) on my chest area between clavical and neck. These were not there prior to starting radiation.. heck I didn't notice them last week. I am at #25 treatment out of 34. I was wondering if anyone else had this occur? The nurses at my oncologist office…
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It is now 12:08. As I begin my 54th year
I am reminded that I am grateful to be here. That there is a group of people who I miss dearly who once wrote their weekend plans every Friday on this very web page. A group of people who just wanted to keep living. I am now 11 years cancer free. I cried on this very web page at 42 years old, scared, confused and not able…
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My 54 years old today post
Is being scrutinized lol maybe I wrote something that flagged me. 54!!!! Woot. This setup is still terrible. I can't find everyone I'm looking to check on. Looks like a lot of ppl stopped coming on when it changed over=( but I did see quite a few names that brought me smiles. Hello all. Hopefully my post will reappear soon.
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A mass the size of a cinder block!! 4" x 8" Tumor
I was diagnosed in July of 2023 with a mass the size of a cinder block on my right kidney (it was cancer). On July 21st 2023 it was removed and I was found to be cancer-free. This all happened within a few weeks, which, in itself is life changing. I was immediately kicked off of my health insurance and I'm left with no way…
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I NEED HELP! and SUPPORT
Husband of 45 years to the most important part of my life. A beautiful Woman in and out that has stood by me every single day of our relationship. I am looking for help and support for i know i am not being patient enough even though i understand i react first and then feel like total crap after! WHY did you do that i ask…
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Pancreatic Cyst 1.2 cm - what next?
I’ve just been through Ct/MRI and found a lesion/ cyst 1.2 x 1.2 on the head of the pancreas, close to duct. The cyst is a IPMN. I’m reading much to get up to speed for my gastroenterologist appointment on next steps. Can anyone advise as to how to proceed from here for optimal health outcome? Do I get into a specialist…
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Vulvar cancer
I have just been diagnosed with vulvar cancer. Going for pet scan this week for more info. I am in pain and very difficult to sit. I’m sure surgery will be done & wondering if this pain or the pain after surgery will be worse. Urinating is torture right now. Lidocaine not much help, I use a squirt bottle and that is…
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Catheter Removal
Any of you that had RP do the catheter removal at home? If you did, any learnings you can share? My option, home or back at MDA. They taught my wife and me how to do it with both a video and hands on another catheter. Thought I see what others did before I schedule an appointment for this Friday,
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Maybe Cancer?
Hi All, So backstory, in 2021 I was in the hospital for collapsed lung due to asthma and pneumonia. A CT scan showed a 1.3 cm thing on my kidney that may or may not be a cyst and I was recommended to follow up. My lungs were my first priority and actually I forgot all about it. At this point no one mentioned cancer and I…
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Terrified by PSA results
Greetings. I am a 51 year-old white male and I have been on testosterone replacement therapy weekly for about 7 years. My PSA levels have always hovered between .81 - 1.3 the past 4 years. Yesterday my latest lab results showed a sudden spike from .81 to 2.37 from my last test 16 months ago. My urologist stopped my weekly…
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Our Journey and Treatment for Base of Tongue (SCC) Cancer
Hello All, I promised my husband that when he finished his treatment for base of tongue cancer (left side) with 2 left side affected lymph nodes, that I would try to pay it forward to all those that helped us out. To my new friend MarieO, who I found on this board whose husband had a similar journey in 2022, many many…
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Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
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Thoughts on this.
I had a physical in March PSA was 9. Met with urologist in April. PSA 8.4 Over next few months, MRI, biopsy, (3+4) 5/15 positive. PSMA in July. (Clean) Met with several doctors, which took time. Scheduled and completed Cyberknife (SBRT) on 10/9. When I was getting opinions, I met with a MO who seemed very knowledgeable…
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Indecisive picking a prostate treatment
I am having trouble deciding on either surgery, or radiation therapy for my prostate cancer.
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Newly diagnosed melanoma on temple
I just had a mole biopsy from my left temple. Biopsy shows a 1b melanoma (.95mm not ulcerated). My oncology consult is two weeks away. Needless to say I’m freaking out. Trying to be positive but I’ve convinced myself I won’t make it a year. I should never use google probably…. My biggest fear is leaving my wife and kids…
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PC Symptoms Questiona
Hello My sister has been having pain under/below her left breast for about 4 weeks now and thinking it was the ribs. Feels tender to the touch. Pain when breathing. Going for a CT Scan next week. X-Rays showed no rib issues. Don't want to jump to conclusions but maybe someone can post pain symptoms of PC. Thank you.
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enhertu and nausea
I have been experiencing mild nausea for at least 10 days after each enhertu infusion. I have anti-nausea meds along with the enhertu and they seem to stop nausea for the first 3 days, then the 10 days of not feeling well start. My Dr prescribed Prilosec but it hasn't helped. My gastro Dr just told me that if it hasn't…
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Anyone had their ovaries removed as a precaution before age 40?
I am 37 yrs old and had stage 2 breast cancer. I had a bi-lateral mastectomy in Aug. BRACA1/2 negative. My oncologist is suggesting I remove my ovaries to "greatly reduce my risk" of breast cancer coming back. I am at a loss because after reading up on the procedure it appears after oophorectomy before age 45 you are at an…
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Medicine Lynparza
Hello my sister has ovarian cancer and has been cleared. So now she needs to take the med Lynparza which is very expensive. She needs to take this med twice a day for 2 years. Her insurance will not pay for this med because her company is less than 50 employees. We need resources. Has anyone gone through this? Any…
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Scared
my wife has been crying everyday and night because she is terrified she is going to be a widow. I have always been her rock! but I want to be scared also and still be her rock!
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Medullary and papillary thyroid cancer
I have read that this is extremely rare having both cancers at the same time. Has anyone else here dealt with this?
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Braf in genes in cancer cells
i had a total thyroidectomy may 2020, with 50plus nodules removed, i complained to my endo that i feel something rough behind my throat when swallowing he just brished it iff and told me thats not thenproper way to swallow, had RA131 after 3 months from surgery in hope to dissolve 2 nodules, i was so confused as to why…
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6 month breast MRI f/u
Hi! I am 46 with history of hysterectomy. I’m not on any hormone treatments. I have not been diagnosed with breast cancer, but I have had 2 left breast biopsies, both which came back Fibroadenoma. I go back at the end of December for my 6 month MRI f/u. The first MRI had allll the characteristics of cancer….washout,…