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Kidney Cancer
My journey started mid-March. In a visit with my PC doctor I mentioned having a tender area in the left kidney area of my back. The ultrasound showed a 1x1 area that was possibly an angiomyolipoma in the upper pole of the left kidney and CT was recommended. CT was done with and without contrast…it showed a small (5mm) area…
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Voice Problems
I finished 6 weeks of rads for a tumor that was almost totally confined to one vocal cord. On the last 3 days, the vocal cord got blasted, and my voice has become very weak and almost useless. My wife needs to stand right next to me in order to understand what I say. I am just one week, post treatment. All other effects of…
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How long after HBOT do you have to get your teeth extracted.
Hello, I have been dealing with head and neck cancer for over 20 years. I have had it come back three time. I first had a simple partial glossectomy...I tested negative. Then 2 years later it came back and I had to have a semi glossectomy, radiation, and chemo. Then 15 years later it came back and I had proton radiation…
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Pancreatic Cancer Survivors
Hello, I am wondering if there is a place to find out the longest surviving Pancreatic Cancer survivor. I am doing great myself since 1/2005 Whipple. I thank God for my blessing. I am looking forward to getting through five years, only 3 1/2 years to go, so I was wondering if anyone has contact or knows any Pancreatic…
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Brain fog/cognitive difficulty without chemo or radiation
My cancer support counselor is reading a book called, I think, your brain after chemo, and she commented in our last session that a lot of my issues with brain fog, difficulty concentrating, memory problems, etc. are similar to patients that had chemo. I didn’t have radiation or chemo but I have had three surgeries in less…
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Liver Lesion Growth Rate
Hi, I am currently undergoing diagnostics to determine whether or not a lesion in my liver is a distant metastasis from an as yet unknown primary cancer. The following is quoted directly from the C/T report performed on 1/18/23: "Hypodense lesion in the segment 6 of the RIGHT hepatic lobe measuring 2.4 cm (image 179/series…
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My cancer returned in July and may have metastasized to my liver.
Hi, everyone and Happy New Year! I’m a youthful 64, and a PNW baby from Oregon who lives in Virginia for way too long now! Six years ago, in April of 2017, following WAY too much bleeding for WAY too long, I was diagnosed with Stage 1A grade 1 Endometrial Adenocarcinoma. It was removed via DaVinci assisted Robot that May.…
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Chemo drugs & Mitomycin combined with RA drugs.
I have StageII Anal Cancer & would like to know if anyone also has Rheumatoid Arthritis, in addition to their cancer diagnosis. My treatment starts 1/8/2024 & I would appreciate any comments on what to expect. Thanks for your help.
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MSK - Literally Abandoning a Patient - When Are They Held Accountable?
I have breast cancer, a recurrence. Prior to surgery, my surgeon wanted me to go on medication (Aromatase Inhibitors) that block estrogen so the tumors can be reduced in size before surgery. Fine. WELL, you will need assistance in this as these estrogen blockers cause a host of incredibly unbearable side effects. The first…
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Enlarged Lymph Node Still Present After Treatment
Hi: I was diagnosed with stage 3 anal cancer that had spread to left inguinal lymph node. The enlarged lymph node seemed to go away while I was receiving my treatment but 1 month post treatment I felt what I believe is a lymph node just below. I had 33 radiation treatments with chemo. Obviously I will speak to my doctor…
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How Long do Hot Flashes last after Lupron?
I was on lupron for five months bracketing Prostrate RT. My last dose of lupron expired around a month ago. My hot flashes continue at the same rate, about 10 a day or more. When do they normally diminish?
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wife- looking for support and information
Hello everyone. Been looking through everyones posts. What an amazing resource this is! My husband (54 YO) was just confirmed through biopsy he has high grade adenocarcinoma of the prostate - Gleason score is 8. He had a MRI prior to the bx which showed the presence of abnormal tissue. PSA was only 4 when his PCP told us…
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does Eligard ever wear off
Can any body shed some light on how long the side effects of Eligard last. Its been 15months since partners last injection and he is still the person Eligard changed him into. Stll hot flushes fatigue apathy disengaged impotence and zero libido. His PSA and testosterone are both still negligable...I keep trying to find out…
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Port removal
I go in for my port removal iny dr office , he said its an easy procedure alot easier coming out then going in. Have any of you had it removed in the dr office?
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FISTULA - warning, it's gross
OK, I'm about to try and tackle the fact that the fistula is worsening, and I haven't even started treatment yet. I was only getting gas through the hole from the anus to the vagina, and now I'm getting poo. Really, unbelievably gross. And dangerous for infection both inside the fistula and also migrating into the bladder.…
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Night Anxiety - A first!
I had such a bout of anxiety last night….it was frightening. I’ve had some fears in the early mornings on and off since my diagnosis journey started three weeks ago. But I couldn’t shake it…my chest was tightened and my body wouldn’t release the fear…I tried deep breathing…a meditation tool, watching a favorite series, and…
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APR Surgery
Had rectal cancer and underwent chemo, radiation, surgery (anal resection with ileostomy) and then ileostomy reversal. Cancer came back within a year and tried brachytherapy internal radiation, but unfortunately the cancer grew back on the areas not treated by brachytherapy. At this point all doctors unequivocally suggest…
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Relief from pain in the butt
I am caring for my husband who recently was pinned with stage 3 anul cancer. Haven't started chemo\rad yet and he already has a sore butt. One thing that has helped is a lidocaine hemorrhoid gel. I also picked up the Prep H lidocaine spray but haven't tried it yet. Pretty sure that sitz baths will be helpful? Any advice?…
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What to wear post-surgery
I am a female who expects to have a Right Hemicolectomy soon. It's possible the surgeon may have to convert from laparoscopic to an open incision because I previously had a total hysterectomy, also by open incision, and pelvic radiation, all of which may have altered my "innards" enough that the surgeon needs the open…
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Happy 2024 to all of you!
I know that people are often scared to approach Cancer patients, around times of joy and celebration. What do you say? Do you wish them a "Happy New Year?" Aren't they in for the ride of their life, literally, and isn't it going to be all pain and sorrow? As a survivor, who has 'been there and done that', I was glad when…
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Papillary Thyroid Cancer
Hello all, I have PTC with one or more Lymph nodes involved, left side. Having total thyroidectomy soon and probably RAI. I had SCC base of tongue in 2018, I went to the head and neck cancer forum in 2018 and joined and received so much helpful information and tips that helped me through that ordeal. Please check my bio if…
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Where do we start
My older brother is a mid-30's male who has never had any significant health issues until yesterday. He ended up having 2 grand mal seizures within 10 hours of each other, released from one hospital after the first one and threw the second one about 9 hours after the first. The located the mass, 7.5cm x 6cm on his left…
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Has anyone heard from CMB?
I haven’t seen any posts from her lately Has anyone heard from her I hope she’s ok
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If You Had A Glossectomy or Laryngectomy Or Both Find Help Here-Glossectomy Girl Website
I am not sure how I happened upon this woman's website but I have looked through it and I believe there are many helpful sections here for those on here who have had a Glossectomy or Laryngectomy Or Both. In fact this website is loaded with information and resources. This woman has had both and she goes on to live a full…
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TNBC radiation vs. chemo
Hello Everyone, I was diagnosed with TNBC a few months ago. It was caught early -- stage 1(b). I was told the best treatment would be 4 chemo sessions 3 weeks apart, then a break of a month, then four weeks (5X/week) of radiation. I've had two chemo treatments so far, and I'm having the WORST TIME. Oncology team told me…
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Vocal chord cancer
I had radiation for the cancer . It has been 8 weeks since last treatment and I’m still having burning in my throat - sore throat and horrible coughing and gagging (particularly at night). Anyone else have same experience and when do side effects stop!
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FASLODEX/KISQALI
Any success stories from anyone using Faslodex/Kisqali with Letrozole? My wife just started this combo for metastatic stage 4 breast cancer. Hers is HR+ HER2- variety metastasized to the skin. Need some encouragement.
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Verzenio medium to Long term prospects
Hello Folks, Question from a Caregiver. My wife was diagnosed with Stage IV cancer with mets to bone in Jan 2022 iBrance and Kisqali worked but had side effects. Since Oct 2022, my wife has been on Verzenio(Abemaciclib) and is tolerating it well with clear scans. Is there anyone who has been on Verzenio for many years and…
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Lidocaine cream for port doesn't numb.
Hi everyone. First time port placement last week. Had treatment yesterday and that lidocaine cream they prescribed didn't numb one bit. Site is still sore and bruised so the whole needle placement was not fun. Actually took about 30 minutes for it to stop hurting. My body also has that problem where local anesthetic…
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Surviving, and the long recovery
I'm sitting here tonight, 6 months after finishing my treatment for triple negative breast cancer, feeling gratitude for life and the cancer being gone. I'm looking for wisdom and encouragement about what it looks like to live as a cancer survivor. I need help managing expectations. The treatments saved my life, but they…