-
Using Zinc for Return of Taste?
Hi All Again, I forgot to add in my last post of several days ago that at some point near the end of my husband’s base of tongue SCC treatment (ended 10/24/23) that I was searching on this Board about taste returning. Someone mentioned they took Zinc supplements and it helped them. Scientific I don’t know but we asked his…
-
Merkel Cell Carcanoma
I have Mekel Cell cancer; this was found in the lymph nodes last November. I have found four other Viet Nam Vets with the same cancer. How many other Viet Nam Vets exposed to agent orange are out there have this cancer? The VA is saying it is not on thier list so no compensation is allowed. Merkel cell is a rare cancer and…
-
Questions for first meeting with oncologist
For all you fighters out there. I am new to this network and to this board and I have my initial meeting on Dec 20th with my oncologist and urologist together. I have plenty of my own questions and have been working hard to educate myself but my question for all of you is looking back, what are the 3 best questions to ask…
-
Space oar
Any experience on space oar i have an option to get it or not before radiation treatments start
-
After 5 year relapse post external beam radiation i decided
To do cryotherapy…i am very upset though..here me out … as you all may know in 2018 i diagnosed with stage two prostate cancer confined to the prostrate Gleason 3+4. I went and saw a lot of doctors. A lot of test werevdone was confused about treatments and I was told by the surgeon and the radiologist that I have a 80%…
-
Radiologist report says bone marrow uptake and metastasis.
So the radiologist report for my wife's Pet/ct scan says the following: "Mild focal FDG uptake within the proximal left humerus SUV 2.0 Differential includes physiologic marrow uptake and metastasis." Our doctor says don't worry about that. He says it's nothing. We'll we are worried! Should we be? Can anyone give us some…
-
Lumakras (sotorasib)
Has anyone used this drug yet? I know the FDA approval is fairly new but wondering about the side effects and efficacy?
-
I want to share with you my emotions
Hello everyone! I want to share with you my story from getting diagnosed to living with liver cancer. My name is Jill Garcia I'm 38 yo. Mom of a boy and we are from Nevada. I am diagnosed with liver cancer in the beginning of 2022. It’s very hard to describe my emotions and loved ones when I was diagnosed… Of course we…
-
psa
Hi i had radiation for a Gleason 7 cancer in 2013 , my psa nadir was .02 it has gone to 0. 3 and .0.4 and back down to .3 as i age , is this normal? Also i just recently had a PSA and it was 0.48 when 7 mos ago it was 0.3 ,i just remembered i had a cortisone shot in my hip 3 days before the PSA test, and i worked out 2…
-
Cancer screening /biopsy process inquiry
Hi, My father suffered from heart issues whereby he was rushed to er/hospital and was diagnosed w AFIB. During his stay at ER , the hospital ordered a CT Scan (without contrast as he has kidney issue ) The ct scan revealed 1.4 cm subpleural pulmonary nodule in his right lung and 5.3 cm mass formation on his elect adrenal…
-
And just like that...I am different person.
I am, 55. My diagnosis for PC, was on November 28, 2022. PSA, a 7..My MRI, was a Pirad 5, My Gleason a 7. The Urologist recommend surgery, He said, because of my age. I had surgery on March 6, 2023..Three days after my Birthday. The leaks began after the catheter removal on March 13, 2023. I recently discovered My C, was…
-
Radiology second opinion
What is the process to initiate a second opinion on radiology. Want to get a second interpretation on the psma pet scan.
-
Stage 1 with some risky attributes
Hi gang after experiencing symptoms and having a colonoscopy at 51 , I discovered that I had one polyp in the sigmoid colon which was too large for the GI doc to remove. After an amazingly easy resection a month ago, I recently saw an oncologist. She indicated that even though I am stage one, I have at least one risky…
-
Ann Barshinger Cancer Center Patient Support Groups Night & Proton Machine Tour
It was recently the cancer center near where I live had an evening event combining all the support groups into a get-together evening of survivorship and fellowship. Penn Medicine, Ann B. Barshinger Cancer Institute. Pizza of many varieties was provided with a variety of drinks and people mingled, ate, and drank their…
-
Papillary carcinoma in left breast
It’s very rare and from what I read I found it early and will have a lumpectomy and radiation soon and a pretty good prognosis. I’m 62 and I’ve never had any problems with my breasts before. Has anyone else gotten this? Did it spread to another form of cancer in a year or 2? I read that happened to someone. Thank you!
-
Lymph nodes with micro metastasis
Hi there, I’m new to the group and am excited to chat with others in the same boat I am in. I’ve been diagnosed with ER/PR positive, HER2 negative invasive lobular breast ca with micro metastasis to 2/3 lymph nodes which is freaking me out. I’ve had a bilateral mastectomy. My provider says radiation or chemotherapy is not…
-
Scared of lung surgery🥺
Hey guy I’m 22 years old and have been battling cancer from 2 years now.It was at my back but now it moved to my lungs.I recently just finished 6 rounds of chemo and unfortunately the biggest tumor increased in size so I have to undergo surgery.The doctors have assured me that everything will be fine and the my lungs will…
-
hello! I'm new to your forum
best friend diagnosed with lung cancer 4 weeks ago got pet scan results back a couple days ago and stated that there was nothing they could do for her other than possibly radiation to the 10 cm Mass on her upper right lung. cancer has gone to her own in her arm, spleen, L5 vertebrae, and various nodes throughout her chest.…
-
Blood in urine after biopsy
Urine after tranpernial biopsy is color of red wine even after a few days. Anyone with similar experience.How long does this last? Concerned about blood loss over time.
-
Thank you Laz & Helen
Not too long ago one of you started a thread or two about living with a colostomy bag. It was both funny and informative, and wonderful to be able to talk about the issues. Laz mentioned that he cleans himself out so he only has to deal with things every 4 days. That got me thinking since I was heading out for two weeks of…
-
On the fence about my treatment choice.
Hi guys. I'll try to do my best to relay all the facts and where I'm at. I'm turning 60 in a couple weeks. One year ago, PSA 3.2, nodule felt during exam. Six weeks later, follow up PSA was 3.4. Saw urologist, he suggested biopsy. 3 of 12 random cores positive Gleason 3+3, left side of prostate. Perineurial invasion…
-
8-year-old Chinese boy diagnosed with rare brain cancer, parents seek treatment experience
Hello everyone, I am the father of an 8-year-old boy from China. My son suffered an epileptic seizure in August this year and was diagnosed with a brain tumor. Puncture biopsy and craniotomy were performed, and the pathological diagnosis was polymorphic xanthoastrocytoma grade 2-3 (APXA), which is a high-grade glioma.…
-
Ovarian cancer help for mom?
hello all! I am a breast cancer survivor, as is my mother. Now, at 94 and otherwise very healthy, she's just been diagnosed with probable ovarian cancer with two masses about 8 cm. Her gynecological oncologist at UCSD plans a laparoscopic attempt to remove the masses and her fallopian tubes, during which time he will…
-
New
Just joined been battling with lung cancer for a bit just went and had one session of amino therapy and it really took me out ,just looking to find some support in getting through another day 🤕
-
Re-occurring Prostate Cancer
I am new to the forum and have been reading. I am a 12 year prostate cancer survivor after surgery. I have incontinent and manage it with pads (3-4 a day) and a Cunningham clamp. But four years ago, my PSA went from non-detectable to 0.02, 0.03, 0.09, 0.17 and is now 0.36 after a 6 month ready of 0.26. (I replaced the…
-
What specialist is in charge?
Hello all, I am a migrant from the Uterine Cancer board. Following a screening colonoscopy I was found to have an invasive moderately differentiated adenocarcinoma in my ascending colon. It is a new primary cancer, not a metastatis of UC. I will be having further diagnostic imaging done soon, and I know that surgery is…
-
Radiation freakles
I have broken out in freakles (or something like freakles dark brown spots) on my chest area between clavical and neck. These were not there prior to starting radiation.. heck I didn't notice them last week. I am at #25 treatment out of 34. I was wondering if anyone else had this occur? The nurses at my oncologist office…
-
It is now 12:08. As I begin my 54th year
I am reminded that I am grateful to be here. That there is a group of people who I miss dearly who once wrote their weekend plans every Friday on this very web page. A group of people who just wanted to keep living. I am now 11 years cancer free. I cried on this very web page at 42 years old, scared, confused and not able…
-
My 54 years old today post
Is being scrutinized lol maybe I wrote something that flagged me. 54!!!! Woot. This setup is still terrible. I can't find everyone I'm looking to check on. Looks like a lot of ppl stopped coming on when it changed over=( but I did see quite a few names that brought me smiles. Hello all. Hopefully my post will reappear soon.
-
A mass the size of a cinder block!! 4" x 8" Tumor
I was diagnosed in July of 2023 with a mass the size of a cinder block on my right kidney (it was cancer). On July 21st 2023 it was removed and I was found to be cancer-free. This all happened within a few weeks, which, in itself is life changing. I was immediately kicked off of my health insurance and I'm left with no way…