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Vulvar cancer
I have just been diagnosed with vulvar cancer. Going for pet scan this week for more info. I am in pain and very difficult to sit. I’m sure surgery will be done & wondering if this pain or the pain after surgery will be worse. Urinating is torture right now. Lidocaine not much help, I use a squirt bottle and that is…
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Catheter Removal
Any of you that had RP do the catheter removal at home? If you did, any learnings you can share? My option, home or back at MDA. They taught my wife and me how to do it with both a video and hands on another catheter. Thought I see what others did before I schedule an appointment for this Friday,
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Maybe Cancer?
Hi All, So backstory, in 2021 I was in the hospital for collapsed lung due to asthma and pneumonia. A CT scan showed a 1.3 cm thing on my kidney that may or may not be a cyst and I was recommended to follow up. My lungs were my first priority and actually I forgot all about it. At this point no one mentioned cancer and I…
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Terrified by PSA results
Greetings. I am a 51 year-old white male and I have been on testosterone replacement therapy weekly for about 7 years. My PSA levels have always hovered between .81 - 1.3 the past 4 years. Yesterday my latest lab results showed a sudden spike from .81 to 2.37 from my last test 16 months ago. My urologist stopped my weekly…
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Our Journey and Treatment for Base of Tongue (SCC) Cancer
Hello All, I promised my husband that when he finished his treatment for base of tongue cancer (left side) with 2 left side affected lymph nodes, that I would try to pay it forward to all those that helped us out. To my new friend MarieO, who I found on this board whose husband had a similar journey in 2022, many many…
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Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
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Thoughts on this.
I had a physical in March PSA was 9. Met with urologist in April. PSA 8.4 Over next few months, MRI, biopsy, (3+4) 5/15 positive. PSMA in July. (Clean) Met with several doctors, which took time. Scheduled and completed Cyberknife (SBRT) on 10/9. When I was getting opinions, I met with a MO who seemed very knowledgeable…
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Indecisive picking a prostate treatment
I am having trouble deciding on either surgery, or radiation therapy for my prostate cancer.
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Newly diagnosed melanoma on temple
I just had a mole biopsy from my left temple. Biopsy shows a 1b melanoma (.95mm not ulcerated). My oncology consult is two weeks away. Needless to say I’m freaking out. Trying to be positive but I’ve convinced myself I won’t make it a year. I should never use google probably…. My biggest fear is leaving my wife and kids…
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PC Symptoms Questiona
Hello My sister has been having pain under/below her left breast for about 4 weeks now and thinking it was the ribs. Feels tender to the touch. Pain when breathing. Going for a CT Scan next week. X-Rays showed no rib issues. Don't want to jump to conclusions but maybe someone can post pain symptoms of PC. Thank you.
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enhertu and nausea
I have been experiencing mild nausea for at least 10 days after each enhertu infusion. I have anti-nausea meds along with the enhertu and they seem to stop nausea for the first 3 days, then the 10 days of not feeling well start. My Dr prescribed Prilosec but it hasn't helped. My gastro Dr just told me that if it hasn't…
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Anyone had their ovaries removed as a precaution before age 40?
I am 37 yrs old and had stage 2 breast cancer. I had a bi-lateral mastectomy in Aug. BRACA1/2 negative. My oncologist is suggesting I remove my ovaries to "greatly reduce my risk" of breast cancer coming back. I am at a loss because after reading up on the procedure it appears after oophorectomy before age 45 you are at an…
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Medicine Lynparza
Hello my sister has ovarian cancer and has been cleared. So now she needs to take the med Lynparza which is very expensive. She needs to take this med twice a day for 2 years. Her insurance will not pay for this med because her company is less than 50 employees. We need resources. Has anyone gone through this? Any…
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Scared
my wife has been crying everyday and night because she is terrified she is going to be a widow. I have always been her rock! but I want to be scared also and still be her rock!
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Medullary and papillary thyroid cancer
I have read that this is extremely rare having both cancers at the same time. Has anyone else here dealt with this?
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Braf in genes in cancer cells
i had a total thyroidectomy may 2020, with 50plus nodules removed, i complained to my endo that i feel something rough behind my throat when swallowing he just brished it iff and told me thats not thenproper way to swallow, had RA131 after 3 months from surgery in hope to dissolve 2 nodules, i was so confused as to why…
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6 month breast MRI f/u
Hi! I am 46 with history of hysterectomy. I’m not on any hormone treatments. I have not been diagnosed with breast cancer, but I have had 2 left breast biopsies, both which came back Fibroadenoma. I go back at the end of December for my 6 month MRI f/u. The first MRI had allll the characteristics of cancer….washout,…
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IS MULTIPLE MYELOMA HEREDIATARY?
I am not sure if anyone knows the answer to this question but I am hopeful someone will be able to help me out. My mom was diagnosed at age 50 and only lived 3 years with the disease. I am coming up on that age very soon and just wonder if this is hereditary? And if so what are some steps to take to see if you might be at…
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Getting ready for my first chemo session
Pardon my ignorance. i’m 34 years old. I was diagnosed with endometrial cancer stage 2 last year. Had a full hysterectomy and brachytherapy. About a month ago I found out the cancer is back and has spread. I will be starting chemo as well as immunotherapy. Honestly, I’m terrified. I have one sister who lives in Cali. I’m…
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chondrosarcoma
Has anyone suffered from the above? I was diagnosed in July, and the location of the tumour was in my shoulder blade. I would like to make contact with anyone with similar problem.
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Diarrhea with Votrient (Pazopanib)
In August, 2011, I bumped my elbow on the countertop, immediately causing intense pain and a lump to arise. After the lump and pain failed to subside with time, I sought medical treatment. The lump was initially diagnosed as bursitis and drainage was unsuccessfully attempted, due to the thick viscosity of the fluid. In…
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Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I was recently diagnosed with Nodular lymphocyte predominant Hodgkin's lymphoma. Stage 2a with a bilateral presentation of lymph nodes with disease above the diaphragm. I just started R-ABVD, will do 3-4 cycles followed by radiation. Was hoping to hear from others with this condition and who have done this chemo…
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Rectal cancer
Is there any person who has survived?
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Localized Stage 2 Gleason 8 (4+4) treatment options
Recently diagnosed with Stage 2 PC. My PSA hovered between 4 and 5 for about a year. Had MRI, biopsy and PET scan and results were Gleason 8 in 4/12 zones in my prostate. Mostly in the upper right 2 zones and small percentages in the mid right zones. There was a 1 cm spot in the mid left zone but it was Gleason 6 (3+3).…
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Should I be concerned?
I’m 67 and was diagnosed w/low grade prostate cancer (3+3 Gleason) early ‘23, had brachytherapy procedure first of June and now, have tested w/ultrasensitive PSA of 2.79. Don’t see my Doctor for more than a week now… what am I likely facing as next steps?
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Proton Therapy Insurance challenges
Has anyone in the group faced challenges with insurnace denying proton therapy? I am with Unitsd Healthcare and they have denied stating its efficacy is not proven. How do I overcome this challenge - my doctor at MD Anderson is appealing second time
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Pluvicto Round 2 coming
I have my 2nd Pluvicto treatment in a week. The first round went well as far as side effects. Other than the isolation from everyone it was good. My blood work results after 4 weeks were a surprise to me. My PSA went from 8.1 to 50. The oncologist didn't seemed concerned and the lady I meet with about treatment gave me an…
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PSADT
I finished EBRT/Relugolix in February 2023. My PSA was .01. I am now at .52 (in December). All the calculators I check seem to indicate my doubling time is really low...like 1.6 months. Is this cause for concern?
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New PC diagnosis
I was just diagnosed with PC- PSA 4.98, Gleason 3+4 with 11/15 cores positive on biopsy with maximal Gleason 3+4 in 4 cores (3 targeted), 5% overall pattern 4. MRI indicated DIL (dominant intraprostatic lesion) in left post lateral PZ with 1mm ECE (extracapsular extension). I’m just beginning my journey to get educated but…
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PSA and chemo
I’m a 73yo Started journey in 2005. Watch your PSA. Once it started doubling the * hit the fan , but chemo has reduced the level . At 741.5, I was in pain after the first treatment the pain subsided no pain meds except cannabis. So far I’ve had robotic prostatectomy radiation treatment hormone therapy Chemo. 7 scheduled 2…