-
Wake Forest or Atrium Health Levine in Charlotte
I am exploring my options for a 2nd opinion or treatment outside of my hometown. I know Duke is probably the most well regarded cancer center in NC, but Wake Forest (NCI) and Atrium Health Levine Cancer Center in Charlotte are closer to me. Does anyone know anything about these 2 places in regards to Anal Cancer? Thank you!
-
Freaking out over here.....CEA/L5 mets
Long story short...Stage IIB colon cancer April 2021. Everything good until METS on liver July 2023. Liver resection. One nodule less than smaller than 1 cm. CEA returned to normal Dec 2023 METS to lung (1 nodule smaller than 1cm) and 1 small tumor (actual size unknown). Surgery with nodule removed and lung resection…
-
HIFU
I'm just beginning this journey. I've posted in a couple of threads, but wanted to ask if anyone on here had or studied the HIFU (High Intensity Focused Ultasound) proceedure. My questions are, is it covered by Blueshield CA advantage medicare plan? Am I a good candidate? If the answer to the first question is no, then I…
-
Trying to make sense of this whole thing. Newbie here.
I was just diagnosed with PCa a little over one month ago. PSA rose to 4.9 at my annual physical, saw a Urologist who ordered an MRI which was Pirads1 nothing seen and biopsy. Biopsy-G. PROSTATE, RIGHT MEDIAL BASE, NEEDLE BIOPSY: PROSTATIC ADENOCARCINOMA, GLEASON SCORE 3+3=6 (GRADE GROUP 1). CARCINOMA INVOLVES 35% OF ONE…
-
Three different opinions need a recommendation for Telehealth consultation.
66 year old healthy male PSA 4.9, MRI Pirad 1, ExoDx 58, Biopsy 3/12 positive cores, 2 were 3+3, the other was 4+3 with 75% being a grade 4 and 25% a grade 3. Decipher score .44. Pet scan was normal except the two areas of concern mentioned above. Impression of PET "The prostate measures 4.4 x 3.3 x 3.5 cm. Focal increased…
-
Mom - Stage 4 Colon Cancer
Hello everyone! I just found this website today, and decided to join for my mom who was diagnosed with stage 4 colon cancer back in December of 2021. I have read a few posts and really appreciate everyone's openness and vulnerability of discussing their diagnoses and their stories. The story itself is quite wild. My mom…
-
Scans after Radiation and Chemo
Hi everyone I’m new here and I’m just looking for a bit of clarification my current experiences with Anal cancer treatment stage 2. I finished my last radiation treatment 4 months ago, had a scope done by the surgeon and he claimed tumour was gone “just a scar” this was excellent news. And he doesn’t want to see me for a…
-
How to show love and support
Hello My girlfriend's mother was diagnosed with stage two colon cancer back about five months ago. Since then it has spread to stage three and chemotherapy is likely needed. Her mom is 62 and my girlfriend has become deeply affected and worried that she won't be able to survive through the treatment. She has lost hope and…
-
When to Get Second Opinions
I started a thread last week about my situation having recently got the PRADS 5 score. My urologist moved up my follow-up appointment to late this afternoon. I'm trying my best to be calm and to get the most from the visit. I'm wondering at what point in the process it's recommended to get a second opinion. He'll almost…
-
Re: New Roll Call Team
Civil Matt and wbcgaruss (Russ), I wish to thank you both, first a Huge Thank you to you Matt for all the years of work you have put into this Roll Call. And a Huge Thank you to you Russ for volunteering to take on such a meaningful task to so many. I for one often look for any updates to the Roll Call to see new members…
-
Mucoepidermoid intermediate
Olá poderia me ajudar? Meu esposo está passando pelo tratamento de mucoepidermoide intermediário e gostaria de ter notícia sobre como é lidar com o tratamento, se existe cura
-
Husband just diagnosed with MCL
After 6 weeks of testing, my husband has been diagnosed with a rare cancer, mantle cell lymphoma. We are waiting for Mayo Clinic in Rochester to call us. We are in the small town of Ironwood in the upper peninsula of Michigan. Our oncologist is out of Chicago. He said he would start my husband on chemo here, while we wait.…
-
Avastin
Hello to my favorite ladies! I haven't updated lately, so thought I would check in. I just had another PET/CT to see if I qualify for avastin. I have been on doxil since September, and then doxil/carbo for 3 cycles, and it is holding the cancer at bay but not putting me into remission. Been doing a lot of processing about…
-
What effect does a dextrose IV solution have on a pre-chemo fasted state?
I'm fasting to help with my chemo therapy (XELOX/CAPOX). My chemo drug is oxaliplatin, which is delivered in a dextrose (glucose) solution. What effect does intravenous delivery of glucose have on my fasted cellular state (eg. autophagy, etc.), as opposed to an oral intake of glucose? Does it wreck it just the same, or…
-
Endometrial cancer
I had endometrial cancer that metastasized to my lung. I just started Everolimus and Letrozole. What is the longevity for me?
-
Endometrial metastic to both lungs
I have just been diagnosed with endometrial metastic to both lungs. It is inoperable and I have just started chemo treatments. I was never given a chest xray since my first cancer in 2012. Can anyone explain this to me? I was the one who asked for a chest xray even though I had no symptoms. The xray showed spots so CT scan…
-
PI-RADS Score of 5 - Next Steps
Hi all, Just to give a bit of background - my father died of prostate cancer as did my maternal grandfather. Both my mother and her sister died of breast cancer. My PSA has been followed since my early 40s. At age 50 which was 2 years ago, it tested at 5.1. I had an MRI that indicated only a benign condition. My PSA…
-
Choosing Hospice
As some of you know I wave worked hospice for many years and even owned one. I'm hearing many telling people not to give up the fight. Dont give up hope. This is what I have told many people over the years to help them to understand what hospice is. People who choose hospice are not giving up hope, they are in fact…
-
Arms and legs feel like rubber
Hi all I had Chemo 5 days ago (TCH ). My third day was the worst ( weak sick exhausted ) but I am feeling pretty good now except my arms and legs feel like rubber, when I do anything. I was wondering if any of you have had this feeling and how did you get rid of it? I feel OK when I am just sitting but when I get up to do…
-
And Jumping Into Another Study ... 7 Years To The Day I Got The Call
Last week I was told the study I was in was not working. Two days ago I spoke with my oncologist and we decided to go go back to FOLFOX to start, while keeping Stivarga in the wings if needed. Appointment scheduled for FOLFOX, but was told they would double check on studies. Got an email later on that a study was open.…
-
Frozen shoulder.....
Hey rizzo, how long have you had a frozen shoulder? Anybody else have this? hummer
-
XELODA
My wife's metastatic breast cancer did not respond to the Faslodex and Kisqali treatments so her doctor is going to put her on the oral chemo XELODA. She says it's her "go to" drug for skin metastasis and tumor reduction. I have read positive clinical studies on it. Just wondering if anyone has any experience with this…
-
Squamous Cell Carcinoma of Esophagus
63 male former drunk and sober since July 23, 1998, since smoking went hand in hand with drinking I also smoke ciggs, you know the little warning that says it causes cancer? they ain't lying, says right there on the box. now I will say that life has been the experience of a life time, learned tons and will never stop…
-
esophageal pain after radiation
My husband has severe esophageal pain after radiation therapy for small cell lung cancer. He finished radiation and chemotherapy last week. he is still in severe pain both when eating and also at times when not eating. Any suggestions for relief for him?
-
MITF gene mutation and Cutaneous Malignant Melanoma and Renal Cancer Questions
Hello my fellow survivors! I am officially as of today... 6 years remission from clear cell Renal Cell Carcinoma! Of course, stage 1, 3CM tumor on lower right kidney diagnosed November 2017 thinking I had a gallstone. I had an open partial nephrectomy because my mass was close to the renal vein. I just did genetic testing…
-
room 2 colon chat
Dont forget colon chat room 2 wed march 19 at 7 pm est. see u there Bev04 and chewbacca
-
Lung issues 10 years after Ivor Lewis surgery
My husband is a 10 year survivor, with minimal negative quality of life issues. He had the Ivor Lewis full removal of his esophagus. However, apparently after intermittent reflux through the years, last year he developed a lung absess (infection) which made him very sick. (They thought it could be lung cancer at first view…
-
Fast acting Cancer
My Dad was diagnosed with lung cancer in Sep, 2000. Was treated with Chemo to try and stop the tumour growing in his lung and lymph nodes in his neck. Within two weeks of chemo treatment, they found 5 more tumours through out his upper body. So chemo didn't work that time. Again with chemo and now radiation. Tumours…
-
Eligard vs Orgovyx
Heys guys, I am currently undergoing ADT therapy for Gleason 4+3 with one lymph node metastisis. My therapy is currently 2 months of Firmagon then to switch to Eligard for 3 months. I do know of the newest drug on the market taken daily called Orgovyx. I do know one is an Agonist and the other is an Antagonist. The Orgovyx…
-
Rare reaction to taxol
73 yo recenty diagnosed with peritoneal cancer. Was taking Ozempic and the side effects I was having I believe masked my cancer symptoms. Underwent 1st chemo with carbo and taxol on august 8. 2 days later had some trouble breathing. Went to the er and admitted on 16 liters of oxygen. Rare reaction to taxol. In hospital for…