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Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm
We have so many wonderful new people posting and I have been so busy with treatments and trying to keep my head above water at work. I am afraid I haven't really welcomed everyone (I APOLOGIZE; you can't possibly KNOW how glad I am that you all have found us!), and I am having trouble keeping everyone straight in my poor…
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Looking for childhood AML survivors
Hello, I survived AML when I was 6. I am 27 now and finding it hard to relate to most people given they don't understand the struggles I went through as a child and the impact those experiences had on me. Does anyone else feel this way?
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Lung Biopsy
I was wondering if anyone has had a lung biopsy? If so, can you explain your experience, and how you felt after? My husband had his post treatment PET, his cancer in his throat is NED, but they found a nodule on his upper right lung. His oncologist feels it is most likely inflammation(hoping so), she wanted to have him…
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looking for in person groups
I was diagnosed with stage 4 head neck cancer and have gone through radiation and chemotherapy, 2nd pet scan good, just looking and asking if there is any in person support groups I can join. I live in the Albany, Troy, Schenectady area in New York. Thank you for your time, Peace
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Many MRIs (with Cysts) over the years - now incidental suspected kidney cancer after CT
Hello guys, I'm from Germany and I'm so happy that I found this community. I'm a researcher (non-medical) myself and I was reading through hundreds of scientific papers regarding kidney cancer (tumor size, subtype, recurrence, CT sensitivity ...) which made me highly depressed as the papers are often written very…
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Insurance and surgery
Hey ladies, I was wondering if anyone can help me with an insurance question. I had a double mastectomy a few months ago and had expanders placed and I will be going in for my reconstruction surgery in 3-5 months. This year I have a PPO plan but am considering switching to HMO for next year before I go bankrupt. I know…
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Ron50?
Hi all, I haven't been on in quite a while. I'm at a point where my emotions run very high coming on the board. I had to stop taking anti anxieties, they were ruining my brain. That meant avoiding triggers. I wouldn't say what I am now is "back to normal" but I don't think about cancer night and day like I used to. I've…
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another anniversary
G'day all, been a while since I have been on. This month I finish year 22 ex stage 3c colon cancer, still cancer free. The past year has not been fun. Australia continues in severe drought and in september it caught fire. Over twenty people have died and an estimated billion native animals have perished. The fires are…
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Fluoride Trays
Just found out yesterday that my Medical Insurance Company has approved 80% of my fluoride tray cost. I was initially told that insurance would not pay for them and my dental insurance did deny them but I tried again and it worked. My dentist had recommended these to be used twice daily to protect my teeth. He said he has…
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Tingling and numbness (still) 2 years after surgery
Hello, I was diagnosed with small squimish cell carcinoma on the left side of my tongue. I had surgery to remove it and a graft was taken from my wrist to reconstruct my tongue. My question would be, if you had the graft taken from your wrist did you still have some tingling/numbness in your hand or arm or did it go away…
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BelongIA - New App to Consider
Hello All. I somehow stumbled upon and downloaded a new app called BelongAI. It has to do strictly with cancer and is based on artificial intelligence answers to any cancer related question you might have. I tested it by asking a number of questions related to my diagnosis and the answers it gave, which came back in real…
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Losing voice
Hi, My husband is six years out from treatment for throat cancer. For the past few months, he has been losing his voice toward the end of the day. He is in sales so he talks all day. Is/has anyone else experienced this?
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assistance for aa friends mom
hi, i am a 58 yr old gay man living with my 2 year seperated husband of 20 years battling hiv and all that goes along with getting older with no money (savings of anykind), and not seeing any possiblity of ever being able to retire. having said all that i have been put into a caregiver position, not oficially, of a friends…
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How to get rid of the worry and dread
Hi. I'm new. I've been struggling with opening up since Nov 2020. I was hit with lung cancer nov 2020, had a lobotomy. Thought I was in the clear, then in March 2021, was hit with ovarian cancer. I went from stage 1 to stage 4 in three weeks. Doctors were blown away I had 9 rounds of chemo, then put on rubraca . My hair…
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3 vs 6 chemo?
My oncologist says 3 to 6 chemo are needed and I am thinking to just end it at 3. I will be going on letrozole afterwards though for a long time. My cancer is highly hormonal, and I am hoping that the letrozole keeps it away (ca 125 is down since surgery 12 then 11 after 1 round of chemo). Has anyone here with endometroid…
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Active Surveillance continues
Results are back Total 19 cores taken Positive Prostate Biopsy Cores in Target Biopsies: (these cores were prior positives in systematic biopsies) Gleason 3+4=7 4mm (5 % Gleason pattern 4) occupying 30% of biopsy tissue Gleason Grade 3+3=6 involving 1 of 2 cores, measuring 1 mm, occupying 5% of biopsy tissue Gleason Grade…
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Opinion on second treatment
so after five years, I have a reoccurrence. I chose radiation with one round of breaking therapy as a booster. Biopsy is showing very small tumor, but it looks like it is gleason 8 cribiform nature .. Doctor Who does cryotherapy suggested I’m a good candidate for that. He says the success rate is about 85% or better the…
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How was your Liver biopsy?
My dad ubderwent CT and PET scabs that show 90% chance of cancer activities in liver, lungs, and stomach. Doctors recommend liver biopsy but daddy is undecided due to fears of cancer seeding. Anyone have any insights on personal or loved ones experiences?
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Persistent SCC on my ear
I've had BCC and SCC appearing on my face, head and neck for over 10 years. Depending upon the frequency of its recurrence I visit my dermatologist every three months or every six months. Treatment regimen has included cutting, burning, freezing the sites or applying the 5fu ointment. Three years ago a BCC became invasive…
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My story
Hi . I was diagnosed with colorectal cancer stage 4 that metastasized to my lungs, and liver in 2018. Actually, I didn't know it metastasized to my lungs until after surgery. I thought I was in the clear after removing the tumor . I definitely was not by far in the "clear" . My story is similar to a lot of patients. I have…
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Treatments
Hi all, I was just wondering if anyone had any experience on treatments after progression on panitumumab/ folfiri combo? My dad has inoperable locally advanced rectal ca and was on it for about two years but just experienced progression. I’m heading avastin is the next line? Anyone with any experience on this? Thanks!
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CEAs
I know everyone is different, but as I read previous posts (I was looking up liver mets), I see an occassional mention of a CEA in the low double digits and that was considered a problem. I would rejoice to have a CEA that low. Is my doctor not telling me something? What kind of CEA's has anyone else had.
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Pain management
My husband had stage 4 scc lower right jaw bone. They removed that side of his jaw, replaced the bone with left leg fibula-free flap. 10/19/2022 cancer came back in cheek prior to radiation 35 radiation therapy- 7 weeks chemo - finished up first week of April has had 2 pet scans since - NED post treatment has been rough -…
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AITL T-Cell Lymphoma & Returning Rash
Husband had a bad rash all over his body last November with swelling in his hands and ankles. His rash lasted 2 months. He didn't get an official diagnosis until September of this year. He's had 2 rounds of CHOEP and the rash is starting to return. Has anyone had the rash return while on chemo?
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Prostate Cancer Research Institute
Hi everybody- I just found this amazing resource on YouTube- Search for " Prostate Cancer Research Institute" - I have gained so much information today just after watching a couple of the videos- If you haven't heard of it, check it out! - It's a MUST! I tried to post the link, but apparently, I'm too new here! So, just…
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Anyone have a cervical cancer recurrence 9 years later?
Hello all! I used to be on the older CSC network discussion group when I was diagnosed with Stage 1B Cervical adenocarcinoma in 2014, had a radical hysterectomy and that was all that was needed. Then I got breast cancer (2021), early stage, with bilateral mastectomy and that was all that was needed. THEN I started having…
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Zinc a possible therapeutic to Cancer?
I've read messages here about people with tongue cancer using Zinc to restore taste disorders and I wanted to share my own personal study consisting of over a thousand studies proving mostly in in vitro and in vivo models that zinc is extremely anti cancerous. Also it shows that Cancer correlates with having low zinc…
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Nerve Damage from Nephrectomy
Hi there: 13 weeks after my Nephrectomy, I am still experiencing significant pain. I was referred to a pain specialist and was diagnosed with extensive nerve damage. I have been on a nerve blocker for a few weeks, which has helped, but I am certain the dosage has to be increased. The pain is debilitating and keeps me…
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High d dimer.. lung nodule..
I just seem to be having a not great time..sorry.. just a vent with a bit of an I'm scared pity party... I had chest pain so bad .. I can't think of another time I've had pain that bad.. To ER.. labs, xray etc.. ok but ddimer was over 1000.. so ct to check for blood clot.. No clot but 7mm nodule in left lower lobe.. and…
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Immunotherapy
After 90 days PET scan shows cancer gone but I need Immunotherapy probably for life. Can I get some feedback on what to expect with this type of therapy.