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radiation
I have to start radiation tomorrow after 12 year post prostectomy. Anyone have salvage radiation and if so what are the side effects like?? Do you need to run to the head like you drank water in Mexico if it irritates the bowel?? Does your urine control go ? TY
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Reconstruction
I’m experiencing a lot of delays with my care. I did not require chemotherapy or radiation so my reconstruction has been almost immediate. My first stall was having to wait too long for drain removal. As a result, I had an infection and needed to wait until the new stitches were removed. The second stall was having half…
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Node Testing for Prophylactic Contralateral Mastectomy?
Hello! I am so grateful this board exists! I was just diagnosed with high grade, hormone receptor positive DCIS in my left breast (by mammogram and biopsy.) In hopes of avoiding radiation and hormone therapy, and for symmetry, I am wanting to do a bilateral mastectomy with aesthetic flat closure. I was told my surgeon…
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femur replacement
I've had 17 surgeries trying to give or save my hip. I had two surg as a teen.june 2002 to feb 2003 a dr gave me 8 surgeries and my present dr 7. six were total hip replacements & 1 for reconstructure of the fractured femur after their 2nd attempt.My femur has crumbled about 3 inchines & the july surg did not take either.…
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First post
Hello, Sisters in Pink, This is my first post here and I just wanted to introduce myself. I was diagnosed with Breast Cancer earlier this year. Left breast, ER/PR+ HER-, no lymph nodes involved. Since the tumor was large (3.9 cm at its widest) and I didn't want to undergo a mastectomy, I opted to get neoadjuvant…
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Shocked, devastated, and need help with doctors in Atlanta, Georgia
Short: Is anyone here from Atlanta and can recommend a superstar gynecologic oncologist? And other doctors you'd recommend, including primary physician ? Or did you go out of state for your surgery/treatments? Long: A few days ago I got a devastating radiology report - CT/MRI showed ovarian malignancy on right kidney,…
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Second Opinion Question
Hello again. I went for my second opinion last week at Duke Medical in Durham North Carolina which, from what I understand is a top treatment center for prostate cancer and met with one of the teaching doctors/urology oncologists who has over 20 years experience and does 150 open radical prostectomies per year. I also met…
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Bowel frequency after reversal
My husband had stage three colorectal cancer. He had a resection and a temporary colostomy bag. He has since had his bag reversed but, ever since then he has been dealing with frequent bowl movements. He will need to use the bathroom up to 15 times a day and each time he will pass just a small amount of stool. Has anyone…
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Helpless
I'm posting on behalf of my mother, but we are both at a loss as to what to do. In March my 71yr old father had his bladder and prostate removed due to bladder cancer. He recovered quickly from the surgery and adjusted to his new stoma. In July he started experiencing back pain, he went to a chiropractor, physical…
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ACS travel assistance (hope Lodge/hotel)
I am so disappointed in the ACS decision to stop assisting cancer patients who do not need a caregiver with lodging assistance. Now not only do I have to travel out of state alone for treatment (I'm an elder orphan) I have to find a way to pay full cost of lodging. I have no relatives or friends that can travel with me. I…
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Comparing CT Scans
I have breathing issues. I had a CT with the VA 10 weeks ago. They found a 5cm opacity, a 9.2mm nodule and several other sub 5mm nodules. I was concerned about the 5 cm opacity. And, assumed the worst, which is why I'm posting in Lung Cancer. Three weeks later I had another CT with a private pulmonologist. No mention of…
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Numbness after surgery
I had small nodule on right upper lung. Stage 1A. Just had a lobectomy 4 weeks ago. The incision on my back and the two chest tube incisions are doing well. I am experiencing numbness and burning sensations in my right breast and right side of abdomen (directly across from one of the chest tube sites). Has anyone…
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Side pain after ovarian transposition
Last year, when I was 18, I was diagnosed with Ewing's Sarcoma in my lower abdomen, and I received chemo and radiation treatment, which I finished in January of this year. Before starting radiation, in October 2022, I had my right ovary moved up out of the radiation field to try and preserve it, they didn't move my left…
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Pain with NSCL cancer… malignant pleural effusion
I’m wondering if there’s some tips how to care for someone with severe pain from malignant pleural effusions. My uncle is taking MS Contin 30mg bid, dilaudid 2-6mg PRN and Ativan PRN… nothing seems to take the pain away… we just added the Ativan and it helps but sedates…. Also he can only sleep upright… any pain or chair…
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New Diagnosis Multiple Organ Cancer
Good afternoon, My husband was just diagnosed with cancer in the liver, pancreas and lungs. This was a surprise diagnosis because we went in due to symptoms of a stroke. I am trying to navigate finding an oncologist. He was referred to one while in the hospital but though he seems quite nice my concern is the reviews on…
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survivor remorse
I'm not sure if anyone has this issue. I've looked for years for people treated in the 1970s. No luck so far. It gets difficult thinking I'm one of a very few number.
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A new battle
Hi everyone! We got my dads CT results from his oncologist Friday and he’s all clear on his colon cancer which would put him 2 years NED. The only thing is they found a 6mm nodule on his bladder. His doctor referred him to urology for a cystoscopy so now I have to hope and pray this isn’t a new cancer that wants to invade…
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Very confused
Ok, this may be a little long but I need to explain. I was diagnosed with Triple Negative however my oncologist could not find a definitive location that the lump nodes that were cancer came from the breast. I said that it is most likely. I went through chemo and the lumps swelling went down drastically. Oncologist wanted…
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Wishing A Happy And Blessed Thanksgiving To Everyone
For each new morning with its light, For rest and shelter of the night, For health and food, for love and friends, For everything Thy goodness sends. ~Ralph Waldo Emerson Wishing Everyone A Happy Thanksgiving 2023 Hello everyone on the CSN H&N discussion board. Wishing everyone a Happy Thanksgiving. Inviting everyone to…
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Head & Neck Radiation Recovery
I had 30 radiation treatments for a tumor in my neck, which ended 6 weeks ago. Since that time, my hearing has gotten worse and I had to have a tube inserted to drain that ear. Also, I still have ulcers in my mouth, which come and go. One doctors told me I would be fine by now - another tells me it is a rebound effect. Has…
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Reoccurrence of tongue surgery after surgery
Hi, I have had a total of 6 tongue surgeries. The first one was a glossectomy with a skin graft. The lesions that were removed were all severe dysplasia, but the 6th surgery was cancer. The Dr is going to keep a close eye on me, like he’s been doing. My question is: Have any of you had reoccurring tongue cancer after…
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50 mg Casodex and Tamoxifen taken together
Hello everyone I'm Michael, I hope you are all getting helpful responses to all of your inquiries. I was diagnosed with stage 3 inter ductal carcinoma and had a total radical prostatectomy and on followup at Perleman Cancer Center UPENN my PSA went back up I was prescribed Lupron (which I refused) and 35 days of radiation.…
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Survivors Who Have Been Abandoned By Spouses
How have you dealt? Mine left 4/5 weeks post surgery, before all the real treatments happened. I am not coping and I don’t know where to look for help or even what kind of help to ask for to cope. So many suggestions are medications from my doctors, but this isn’t a chemical imbalance. It is grief. I have Stsge 1 IDC ++-,…
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Nerve Damage
Has anyone experienced nerve damage after mastectomy? And if so, who did you see? What options were given? I had my bilateral mastectomy 2/1/23 and have had pain under my breast since after the surgery. At first my doctor thought it could be the expander causing the pain. However, once the expanders were swapped for…
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Radiation vs. no Radiation
Well, I'm going to have a re-excision to get clear margins...Has anyone had this done and foregone the radiation or had the radiation "seeds" that only takes a week? I am having the surgery on 6/20 and then I need to decide whether to continue with radiation...with DCIS, the stats aren't that different for radiation vs. no…
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Uterine Serous Carcinoma
Elected not to have Chemo. is that the right decision? scared......Help... Atypical cells present, suspicious for malignancy Suspicious for carcinoma A. PERITONEAL NODULE, EXCISION: - Metastatic high grade serous carcinoma B. LEFT OVARY, BIOPSY: - Metastatic high grade serous carcinoma C. UTERUS AND CERVIX, BILATERAL TUBES…
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Leaning cryotherapy
Well, if you dont know my story, I had reoccurrence after five years. I chose radiation with a breakytherapy booster. It seems like it is the same tumor and that the radiation and a breakytherapy unfortunately didn’t kill it all. The doctor I talked to has been at UCSF for over 30 years, and he has been doing the…
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do i need to prepare mysef for bad news?
hi, i'm new to this site and i hope someone can shed some light on my scan results and symptoms. I'm 37, have not been able to have children and got a long gyny history relating to that. I have been bleeding and/or spotting between my periods for 8 months non stop now and also had midcycle spotting more than a year ago. My…
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MPNST (Malignant pheriphial Nerve sheath tumor
Looking for people who have MPNST due to NF1(Neurofibromatosis type 1) I’m 23 and my cancerous tumor is back after surgery radiation and chemo. Had surgery before we knew it was cancerous in 2021 and dr had gotten it all. Did radiation and 5 weeks of chemo 5days a week 8-9hrs a day in2022. It’s 2023 and it’s back and was…
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Experience/Guidance Welcomed: To Radiate or Not with Tissue Expanders, Given Oncotype/Known Risks
Hi there! I apologize this has lengthy backstory - I'm grateful for anyone's breast cancer experience whose prognosis may be similar and who've had similar decisions to make: I'm an otherwise pretty healthy premenopausal woman (runner - 30 years with a generally healthy diet) recently diagnosed with invasive ductal cancer…