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ACS travel assistance (hope Lodge/hotel)
I am so disappointed in the ACS decision to stop assisting cancer patients who do not need a caregiver with lodging assistance. Now not only do I have to travel out of state alone for treatment (I'm an elder orphan) I have to find a way to pay full cost of lodging. I have no relatives or friends that can travel with me. I…
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Comparing CT Scans
I have breathing issues. I had a CT with the VA 10 weeks ago. They found a 5cm opacity, a 9.2mm nodule and several other sub 5mm nodules. I was concerned about the 5 cm opacity. And, assumed the worst, which is why I'm posting in Lung Cancer. Three weeks later I had another CT with a private pulmonologist. No mention of…
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Numbness after surgery
I had small nodule on right upper lung. Stage 1A. Just had a lobectomy 4 weeks ago. The incision on my back and the two chest tube incisions are doing well. I am experiencing numbness and burning sensations in my right breast and right side of abdomen (directly across from one of the chest tube sites). Has anyone…
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Side pain after ovarian transposition
Last year, when I was 18, I was diagnosed with Ewing's Sarcoma in my lower abdomen, and I received chemo and radiation treatment, which I finished in January of this year. Before starting radiation, in October 2022, I had my right ovary moved up out of the radiation field to try and preserve it, they didn't move my left…
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Pain with NSCL cancer… malignant pleural effusion
I’m wondering if there’s some tips how to care for someone with severe pain from malignant pleural effusions. My uncle is taking MS Contin 30mg bid, dilaudid 2-6mg PRN and Ativan PRN… nothing seems to take the pain away… we just added the Ativan and it helps but sedates…. Also he can only sleep upright… any pain or chair…
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New Diagnosis Multiple Organ Cancer
Good afternoon, My husband was just diagnosed with cancer in the liver, pancreas and lungs. This was a surprise diagnosis because we went in due to symptoms of a stroke. I am trying to navigate finding an oncologist. He was referred to one while in the hospital but though he seems quite nice my concern is the reviews on…
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survivor remorse
I'm not sure if anyone has this issue. I've looked for years for people treated in the 1970s. No luck so far. It gets difficult thinking I'm one of a very few number.
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A new battle
Hi everyone! We got my dads CT results from his oncologist Friday and he’s all clear on his colon cancer which would put him 2 years NED. The only thing is they found a 6mm nodule on his bladder. His doctor referred him to urology for a cystoscopy so now I have to hope and pray this isn’t a new cancer that wants to invade…
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Very confused
Ok, this may be a little long but I need to explain. I was diagnosed with Triple Negative however my oncologist could not find a definitive location that the lump nodes that were cancer came from the breast. I said that it is most likely. I went through chemo and the lumps swelling went down drastically. Oncologist wanted…
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Wishing A Happy And Blessed Thanksgiving To Everyone
For each new morning with its light, For rest and shelter of the night, For health and food, for love and friends, For everything Thy goodness sends. ~Ralph Waldo Emerson Wishing Everyone A Happy Thanksgiving 2023 Hello everyone on the CSN H&N discussion board. Wishing everyone a Happy Thanksgiving. Inviting everyone to…
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Head & Neck Radiation Recovery
I had 30 radiation treatments for a tumor in my neck, which ended 6 weeks ago. Since that time, my hearing has gotten worse and I had to have a tube inserted to drain that ear. Also, I still have ulcers in my mouth, which come and go. One doctors told me I would be fine by now - another tells me it is a rebound effect. Has…
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Reoccurrence of tongue surgery after surgery
Hi, I have had a total of 6 tongue surgeries. The first one was a glossectomy with a skin graft. The lesions that were removed were all severe dysplasia, but the 6th surgery was cancer. The Dr is going to keep a close eye on me, like he’s been doing. My question is: Have any of you had reoccurring tongue cancer after…
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50 mg Casodex and Tamoxifen taken together
Hello everyone I'm Michael, I hope you are all getting helpful responses to all of your inquiries. I was diagnosed with stage 3 inter ductal carcinoma and had a total radical prostatectomy and on followup at Perleman Cancer Center UPENN my PSA went back up I was prescribed Lupron (which I refused) and 35 days of radiation.…
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Survivors Who Have Been Abandoned By Spouses
How have you dealt? Mine left 4/5 weeks post surgery, before all the real treatments happened. I am not coping and I don’t know where to look for help or even what kind of help to ask for to cope. So many suggestions are medications from my doctors, but this isn’t a chemical imbalance. It is grief. I have Stsge 1 IDC ++-,…
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Nerve Damage
Has anyone experienced nerve damage after mastectomy? And if so, who did you see? What options were given? I had my bilateral mastectomy 2/1/23 and have had pain under my breast since after the surgery. At first my doctor thought it could be the expander causing the pain. However, once the expanders were swapped for…
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Lift Chair - Fully Electric - Free
Hi, I have a fully electric mobility lift chair to donate to someone in need. I personally swear by it due to the comfort it provided for me immediately post surgery. I used the chair to relax and sleep in the initial stages of recovery. With the push of the button, the chair reclines or fully lifts upright enabling you to…
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Radiation vs. no Radiation
Well, I'm going to have a re-excision to get clear margins...Has anyone had this done and foregone the radiation or had the radiation "seeds" that only takes a week? I am having the surgery on 6/20 and then I need to decide whether to continue with radiation...with DCIS, the stats aren't that different for radiation vs. no…
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Uterine Serous Carcinoma
Elected not to have Chemo. is that the right decision? scared......Help... Atypical cells present, suspicious for malignancy Suspicious for carcinoma A. PERITONEAL NODULE, EXCISION: - Metastatic high grade serous carcinoma B. LEFT OVARY, BIOPSY: - Metastatic high grade serous carcinoma C. UTERUS AND CERVIX, BILATERAL TUBES…
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Leaning cryotherapy
Well, if you dont know my story, I had reoccurrence after five years. I chose radiation with a breakytherapy booster. It seems like it is the same tumor and that the radiation and a breakytherapy unfortunately didn’t kill it all. The doctor I talked to has been at UCSF for over 30 years, and he has been doing the…
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do i need to prepare mysef for bad news?
hi, i'm new to this site and i hope someone can shed some light on my scan results and symptoms. I'm 37, have not been able to have children and got a long gyny history relating to that. I have been bleeding and/or spotting between my periods for 8 months non stop now and also had midcycle spotting more than a year ago. My…
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MPNST (Malignant pheriphial Nerve sheath tumor
Looking for people who have MPNST due to NF1(Neurofibromatosis type 1) I’m 23 and my cancerous tumor is back after surgery radiation and chemo. Had surgery before we knew it was cancerous in 2021 and dr had gotten it all. Did radiation and 5 weeks of chemo 5days a week 8-9hrs a day in2022. It’s 2023 and it’s back and was…
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Experience/Guidance Welcomed: To Radiate or Not with Tissue Expanders, Given Oncotype/Known Risks
Hi there! I apologize this has lengthy backstory - I'm grateful for anyone's breast cancer experience whose prognosis may be similar and who've had similar decisions to make: I'm an otherwise pretty healthy premenopausal woman (runner - 30 years with a generally healthy diet) recently diagnosed with invasive ductal cancer…
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Please Advise, I'm Overwhelmed
Hello, friends. I am really hoping some of you might be able to chime in on my situation as I am overwhelmed and don't know what to do. I went from never having a period (years) to having one 50% of the time, and they were painful, long and heavy. Had an ultrasound which revealed a thick lining and some polyps. Had a…
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Biopsy Scheduled
So I’m just on edge.. I had an ultrasound done a month ago and the doctors were concerned about a cyst. Had a follow up appointment this week to have another ultrasound and the cyst was gone, but the doctor is still concerned My endometrium measured at over 13mm in October when I was a week from getting my period and at…
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Good News
I had a robotic prostatectomy in 2008 at age 59. PSA was 6.0 and Gleason Factor 6. In May 2023, my PSA elevated to 0.20. I went through 38 sessions of radiation at age 74 and completed the treatments in early October. One month later my PSA was 0.01 and I hope it continues to fall. Good luck to all.
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Anyone had experience with post op treatment for Laser surgery for vocal cord cancer
I had laser surgery for vocal cord cancer three ago. I am doing well and the doctor feels the cancer has been eradicated. I was teated in Boston by a doctor who is using a new kind of laser that goes after the blood supply. All that aside, I am wondering what kind of post op instructions others have been given for laser…
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Faslodex
Just wondering if anyone has tried Faslodex and how long it took to start working. Also same question on Kisqali. Thanks for any input.
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new diagnosis BCC
I just received diagnosis via phone yesterday. In denial. I went to derm to remove a wart and he? How long I had that blemish on the side of my nose near my eye. It has been there approx 2 years. It is smaller than a pencil eraser and is light almost white looks like a mosquito bite. I have been covering it with makeup not…
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Larangectomy
Hi there im a newbie on here previous left larynx vocal chord cancer treated with radiotherapy and laser surgery diagnosed 2017 finshed treatment 2018 Was doing ok now five years later back on right side also they will see if lymph nodes are affected during surgery will remove and also right vocal cord paralysed since last…
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High PSA
New to the group. 66 y/o male. Having bleeding problems with blood and clots in urine. PSA result. Last year 9.6. New reading 16.0 flagged critical. See urologist in 2 weeks. What do you all think I can expect. 16.0 seems very high.