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IS MULTIPLE MYELOMA HEREDIATARY?
I am not sure if anyone knows the answer to this question but I am hopeful someone will be able to help me out. My mom was diagnosed at age 50 and only lived 3 years with the disease. I am coming up on that age very soon and just wonder if this is hereditary? And if so what are some steps to take to see if you might be at…
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Getting ready for my first chemo session
Pardon my ignorance. i’m 34 years old. I was diagnosed with endometrial cancer stage 2 last year. Had a full hysterectomy and brachytherapy. About a month ago I found out the cancer is back and has spread. I will be starting chemo as well as immunotherapy. Honestly, I’m terrified. I have one sister who lives in Cali. I’m…
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chondrosarcoma
Has anyone suffered from the above? I was diagnosed in July, and the location of the tumour was in my shoulder blade. I would like to make contact with anyone with similar problem.
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Diarrhea with Votrient (Pazopanib)
In August, 2011, I bumped my elbow on the countertop, immediately causing intense pain and a lump to arise. After the lump and pain failed to subside with time, I sought medical treatment. The lump was initially diagnosed as bursitis and drainage was unsuccessfully attempted, due to the thick viscosity of the fluid. In…
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Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I was recently diagnosed with Nodular lymphocyte predominant Hodgkin's lymphoma. Stage 2a with a bilateral presentation of lymph nodes with disease above the diaphragm. I just started R-ABVD, will do 3-4 cycles followed by radiation. Was hoping to hear from others with this condition and who have done this chemo…
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Rectal cancer
Is there any person who has survived?
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Localized Stage 2 Gleason 8 (4+4) treatment options
Recently diagnosed with Stage 2 PC. My PSA hovered between 4 and 5 for about a year. Had MRI, biopsy and PET scan and results were Gleason 8 in 4/12 zones in my prostate. Mostly in the upper right 2 zones and small percentages in the mid right zones. There was a 1 cm spot in the mid left zone but it was Gleason 6 (3+3).…
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Should I be concerned?
I’m 67 and was diagnosed w/low grade prostate cancer (3+3 Gleason) early ‘23, had brachytherapy procedure first of June and now, have tested w/ultrasensitive PSA of 2.79. Don’t see my Doctor for more than a week now… what am I likely facing as next steps?
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Proton Therapy Insurance challenges
Has anyone in the group faced challenges with insurnace denying proton therapy? I am with Unitsd Healthcare and they have denied stating its efficacy is not proven. How do I overcome this challenge - my doctor at MD Anderson is appealing second time
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Pluvicto Round 2 coming
I have my 2nd Pluvicto treatment in a week. The first round went well as far as side effects. Other than the isolation from everyone it was good. My blood work results after 4 weeks were a surprise to me. My PSA went from 8.1 to 50. The oncologist didn't seemed concerned and the lady I meet with about treatment gave me an…
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PSADT
I finished EBRT/Relugolix in February 2023. My PSA was .01. I am now at .52 (in December). All the calculators I check seem to indicate my doubling time is really low...like 1.6 months. Is this cause for concern?
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New PC diagnosis
I was just diagnosed with PC- PSA 4.98, Gleason 3+4 with 11/15 cores positive on biopsy with maximal Gleason 3+4 in 4 cores (3 targeted), 5% overall pattern 4. MRI indicated DIL (dominant intraprostatic lesion) in left post lateral PZ with 1mm ECE (extracapsular extension). I’m just beginning my journey to get educated but…
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PSA and chemo
I’m a 73yo Started journey in 2005. Watch your PSA. Once it started doubling the * hit the fan , but chemo has reduced the level . At 741.5, I was in pain after the first treatment the pain subsided no pain meds except cannabis. So far I’ve had robotic prostatectomy radiation treatment hormone therapy Chemo. 7 scheduled 2…
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Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm
We have so many wonderful new people posting and I have been so busy with treatments and trying to keep my head above water at work. I am afraid I haven't really welcomed everyone (I APOLOGIZE; you can't possibly KNOW how glad I am that you all have found us!), and I am having trouble keeping everyone straight in my poor…
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Looking for childhood AML survivors
Hello, I survived AML when I was 6. I am 27 now and finding it hard to relate to most people given they don't understand the struggles I went through as a child and the impact those experiences had on me. Does anyone else feel this way?
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Lung Biopsy
I was wondering if anyone has had a lung biopsy? If so, can you explain your experience, and how you felt after? My husband had his post treatment PET, his cancer in his throat is NED, but they found a nodule on his upper right lung. His oncologist feels it is most likely inflammation(hoping so), she wanted to have him…
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looking for in person groups
I was diagnosed with stage 4 head neck cancer and have gone through radiation and chemotherapy, 2nd pet scan good, just looking and asking if there is any in person support groups I can join. I live in the Albany, Troy, Schenectady area in New York. Thank you for your time, Peace
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Many MRIs (with Cysts) over the years - now incidental suspected kidney cancer after CT
Hello guys, I'm from Germany and I'm so happy that I found this community. I'm a researcher (non-medical) myself and I was reading through hundreds of scientific papers regarding kidney cancer (tumor size, subtype, recurrence, CT sensitivity ...) which made me highly depressed as the papers are often written very…
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Insurance and surgery
Hey ladies, I was wondering if anyone can help me with an insurance question. I had a double mastectomy a few months ago and had expanders placed and I will be going in for my reconstruction surgery in 3-5 months. This year I have a PPO plan but am considering switching to HMO for next year before I go bankrupt. I know…
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Ron50?
Hi all, I haven't been on in quite a while. I'm at a point where my emotions run very high coming on the board. I had to stop taking anti anxieties, they were ruining my brain. That meant avoiding triggers. I wouldn't say what I am now is "back to normal" but I don't think about cancer night and day like I used to. I've…
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another anniversary
G'day all, been a while since I have been on. This month I finish year 22 ex stage 3c colon cancer, still cancer free. The past year has not been fun. Australia continues in severe drought and in september it caught fire. Over twenty people have died and an estimated billion native animals have perished. The fires are…
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Fluoride Trays
Just found out yesterday that my Medical Insurance Company has approved 80% of my fluoride tray cost. I was initially told that insurance would not pay for them and my dental insurance did deny them but I tried again and it worked. My dentist had recommended these to be used twice daily to protect my teeth. He said he has…
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Tingling and numbness (still) 2 years after surgery
Hello, I was diagnosed with small squimish cell carcinoma on the left side of my tongue. I had surgery to remove it and a graft was taken from my wrist to reconstruct my tongue. My question would be, if you had the graft taken from your wrist did you still have some tingling/numbness in your hand or arm or did it go away…
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BelongIA - New App to Consider
Hello All. I somehow stumbled upon and downloaded a new app called BelongAI. It has to do strictly with cancer and is based on artificial intelligence answers to any cancer related question you might have. I tested it by asking a number of questions related to my diagnosis and the answers it gave, which came back in real…
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Losing voice
Hi, My husband is six years out from treatment for throat cancer. For the past few months, he has been losing his voice toward the end of the day. He is in sales so he talks all day. Is/has anyone else experienced this?
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assistance for aa friends mom
hi, i am a 58 yr old gay man living with my 2 year seperated husband of 20 years battling hiv and all that goes along with getting older with no money (savings of anykind), and not seeing any possiblity of ever being able to retire. having said all that i have been put into a caregiver position, not oficially, of a friends…
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How to get rid of the worry and dread
Hi. I'm new. I've been struggling with opening up since Nov 2020. I was hit with lung cancer nov 2020, had a lobotomy. Thought I was in the clear, then in March 2021, was hit with ovarian cancer. I went from stage 1 to stage 4 in three weeks. Doctors were blown away I had 9 rounds of chemo, then put on rubraca . My hair…
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3 vs 6 chemo?
My oncologist says 3 to 6 chemo are needed and I am thinking to just end it at 3. I will be going on letrozole afterwards though for a long time. My cancer is highly hormonal, and I am hoping that the letrozole keeps it away (ca 125 is down since surgery 12 then 11 after 1 round of chemo). Has anyone here with endometroid…
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Active Surveillance continues
Results are back Total 19 cores taken Positive Prostate Biopsy Cores in Target Biopsies: (these cores were prior positives in systematic biopsies) Gleason 3+4=7 4mm (5 % Gleason pattern 4) occupying 30% of biopsy tissue Gleason Grade 3+3=6 involving 1 of 2 cores, measuring 1 mm, occupying 5% of biopsy tissue Gleason Grade…
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Opinion on second treatment
so after five years, I have a reoccurrence. I chose radiation with one round of breaking therapy as a booster. Biopsy is showing very small tumor, but it looks like it is gleason 8 cribiform nature .. Doctor Who does cryotherapy suggested I’m a good candidate for that. He says the success rate is about 85% or better the…