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Essiac Tea
Has anyone heard about Essiac Tea and how it’s cured NHL …I was diagnosed in February for the third time with NHL …..well if you haven’t I’m cancer Free from taking it for the last couple months without chemotherapy
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HELP
Good morning, someone knows where you can help me with this month's rent, we haven't asked for help anywhere, during the process, but our savings have already been exhausted 🙈thank you
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American Head & Neck Society - Self-Examination of Neck Lymph Nodes
Short Video and explanation of Lymph Node self-exam. If you feel anything unusual get to your ENT or doctor right away. American Head & Neck Society - Self-Examination of Neck Lymph Nodes Take care, God Bless Russ
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Caregiver-question about husband 8 weeks post radiation for tongue cancer
My husband is 8 weeks post radiation after having 37 treatments and 5 chemo treatments for a tumor on his tongue. He seems to be in more pain now than weeks ago. He is on a Fent. patch, gabapentin, and 30 ml of oxy every 4 hours. He has lost 65 pounds and currently does not have a feeding tube. He is very nauseated and…
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Small Renal Lesion - Very Nervous
49M. Had abdominal issues (likely unrelated) in October 2023. Abdominal/Pelvic CT w&w/o contrast showed 11mm (1.1cm) indeterminate renal lesion on right kidney. Follow up with Renal Ultrasound in December 2023 revealed no renal lesion (though US report stated it was limited study due to bowel gas). Going for MRI…
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ovarian cancer - overwhelmed
hi, my wife is presumably to have ovarian cancer. big belly, bloating and loss of appetite started about one month ago. Went to primary doc, then did an Ultrasound about 3 weeks ago, it showed 3cm pancreatic tumor and ascites. Scheduled for a CT scan the following week. Then her bloating/cough got much worse so we checked…
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Palliative care, Advance Directive, End of Life Options, Hospice
Warm hello to all, I'm new to this website. I was diagnosed with uterine papillary serous carcinoma (UPSC) stage 4B in 2017 (age 58). At the time, the statistics gave it 15% survival after 5 years. This statistic prompted me to almost immediately start to figure out what/how should I address things to start "wrapping up my…
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Encouraging words for you with peritoneal cancer
Hello, My name is Cindy Baker. In May of this year 2017 I was diaganosed with primary peritoneal cancer. Talk about being numb. You see, three years ago, I found out I was diaginosed with the BRAC II mutation. I had another relitive, cousin, and then his daughter die of cancer. In 1979 I had lost my oldest sister who was…
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Thoughts on Muse or Penile Injection
I was diagnosed with prostate cancer in the summer of 2022 at the age of 62 not because of symptoms but a doubling in PSA over a year. At the time of diagnosis I had a PSA of 3.8. Biopsy results came back with Gleason scores of 4+4 on both sides and scans showed a slightly enlarged prostate and a lesion with a PIRAD of 5…
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Incontinence fix – ATOMS, AUS or AdVance?
After my RP in 2015 and follow-up salvage RT in early 2016, I gradually became dry and life was sweet. A few years ago, due to complacency I began to slacken off with Kegels and became used to the idea of wearing a shield during the day while still being dry overnight. A little over a year ago, I hurt my back and it is if…
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High Suspicion of Malignancy
Hello, I am a young(er) survivor of childhood cancer (now 25 went into remission at 13). I previously had Ewing's Sarcoma in my right hip socket. For years I've had a high WBC count, and just recently am having it checked out. Via a CT an enlarged lymph node was found and via an ultrasound the results said there is a "high…
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Artificial sphincter
Hi. I had a prostatectomy in 2020. Earlier this year I had the Proact balloons for incontinence put in and it was a disaster. It took 4 months of poor Healthcare and pain before I got them removed. I'm currently going through 6 pads a day and use a clamp at times. Now I'm looking at getting the artificial sphincter. I…
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Helping my mom find a wig
Hi all! My mom has stage 4 lung cancer and had her first chemo treatment yesterday. I’m going down to see her in FL for her next treatment in March. She said she will probably lose her hair by then and wants to go wig shopping. I’ve heard there are places to go for free or discounted wigs. Does anyone know anything about…
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From the American Head & Neck Society - May is Skin Cancer Awareness Month
Hello, friends and fellow H&N folks. I have come across this reminder video that May is skin cancer month. Skin cancer mostly affects the head and neck because of the common exposure. Also recently I found something I had not known before and that is melanoma, a skin cancer that can invade the underlying body. I read a…
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Intamal Sarcoma
My husband was diagnosed with Intamal Sarcoma - which is a soft tissue sarcoma of the blood vessels surrounding the lungs, 2 years ago. This is a very rare form of sarcoma and I was wondering if there is anyone who knows about this kind of sarcoma or who unfortunaely is going through it. Plus, due to the radition and…
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Going to SGO in San Diego tomorrow, will I see any of you?
Hi This is my first time going. I will go to anything that has endometrial or uterine cancer in the title. I will be wearing a pin that has four women in black swimsuits and white swim caps. Probably will be wearing a pink or black mask. Corby
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Avastin
Any of you ladies taking Avastin for maintenance therapy??? My Dr wants me to start using it and im scared. Im tired of the IV's.
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Bilateral Metastatic Intimal Sarcoma of Pulmonary Vessels (Lungs)
Good Day - seeking anyone's experience in dealing with the above condition which my husband was newly diagnosed with in South Africa - Very rare - currently undergoing AIM chem but has not slowed the growth
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Three Weeks Behind Us
Hi everyone, My husband and I just returned home from his radiation #15 out of 35 so almost halfway there. It's been a bit of a roller coaster, but overall, tolerable so far. As a reminder, he has cancer at the base of his tongue, p16+, T1N2bM0, and began a protocol of 7 weeks with cisplatin chemo each Monday and radiation…
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CDK 4/6 inhibitors and either an aromatase inhibitor or fulvestrant & Metastatic Endometrial Cancer
Hi, Okay, I'm trying to reach out another way. I have metastatic endometrial cancer er+ pr+ her2-, mutations: pten, pik3ca, ctnnb1, SPOP, mss stable, and tmb low. I have been on Ibrance and anastrozole for 6 years. I know that there are possibly some doctors prescribing one of the other two CDK 4/6 inhibitors to…
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Advice and Help
My mom (75 Years old) went for a colonoscopy in March, 2023. During her colonoscopy, the surgeon indicated that he had a hard time with the colonoscopy because of a blockage. He deemed it suspicious and informed my mom that his first thought was Anal Cancer. He indicated that it was treatable and curable. My mom prior to…
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Revision surgery after double mastectomy
I live near Tucson, AZ. Looking for local recommendations for plastic surgery to smooth out lumps and extra tissue at surgical site.
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Am I a candidate for SBRT?
Hello. I am 68 with a recent biopsy detecting 5 samples (out of 12 total) showing Gleason of 6 and 1 sample showing 7 (3+4). My Urologist's referral was to a specialist within the same system that performs IBRT and that treatment is scheduled to start next month. However, on line researching suggests to me that I might be…
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Am I wrong in my wishful thinking.
Hello everyone. I’am 70 from Southern Ca. For years my PSA was stable at 1.9, then in Nov 21, it jumped to 3.0 (had Covid in Sept and studies indicated could cause increase). Retested Jan 22, fell to 2.7, retested July 22, fell to 2.4 (thought out of the woods) then when my regular Nov 22 test it rose to 4.0, then down to…
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Advice for just starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information as I get it. My…
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Orgovyx stomach pain side effect
For those of you taking ADT med ORGOVYX.. I began taking Orgovyx about 2 1/2 weeks ago as a replacement for FIRMAGON which I initially took for 2 months with only minor side effects. Now on Orgovyx I have developed upper stomach cramping in upper abdomen just under rib cage. I have some history with diverticulitis but it…
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Doxil & Stomach Cramps - Anyone?
There have been a few different conversations on here about doxil and side effects - most recently the rash which I do have. However my main problem now seems to be with severe stomach cramps. The kind where you curl up in a ball and hold your breath until the pain subsides. Ugh! I have had four rounds of Doxil. I first…
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Advice to Newly Diagnosed Head and Neck Cancer Patients
Christy, Bill, and Terry, who are all survivors living with head and neck cancer, and caregiver Jean share helpful advice to the newly diagnosed. For more information on head and neck cancer, visit https://www.cancersupportcommunity.or.... Take care, God Bless Russ
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LAG3-PD-1 Combo melanoma treatment
Any lovely souls out there have experience with this comb checkpoint inhibitors for immunotherapy ? Recently diagnose with melanoma stage IIIb. Had a incision on my arm where a 3.1mm tumor was taken out. Also lymph removale of 2 nodes, 1 showed no traces, other had .12mm cancer cell/growth in it. Lots of decisions to make…
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Lenvima??
Hi everyone, does anyone have experience with Lenvima? I am interested in learning more about the side effects and how soon you might have started to see results on this med? This is for idione refractory metastatic thyroid cancer ... w lesions on the brain. Thank you.