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Head and Neck Cancer | Frequently Asked Questions
Head and neck cancer surgeon, Wayne Koch, answers frequently asked questions about head and neck cancers, including symptoms, risk factors, treatment and quality of life issues.. Learn more: http://www.hopkinsmedicine.org/otolar... Take Care, God Bless Russ
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Flowmax (Tamsulosin)
I'm currently taking 0.4 mg of Tamsulosin every 12 hours prescribed by my surgeon that performed a Focal IRE Nanoknife ablation 3 weeks ago. He wants me to do this for a month then cut back to once daily after that. I'm still peeing a bit of blood at onset of urine stream, but otherwise doing well during the day. At night…
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Here's my story
I'm 61. I was on active surveillance for two years. When my 3+4 turned to 4+3 and my PSA went to 10, they told me I was no longer a candidate for active surveillance. I had a prostatectomy in early March. I wore Depends for at least six weeks, most of the time with a pad inside the Depends and sometime even with toilet…
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Waiting on first PSA after salvage surgery
everybody knows my story. I just want to thank everybody here for the support… I will be finding out today. I got to admit him I’m a bit nervous… otherwise things have been going so so incontinence is pretty rough during the dayb... so I’m also been dealing with a month-long UTI looks like I got some type of restriction…
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Prostatectomy with an AUS (artificial urinary sphincter) in place
I have been diagnosed with prostate cancer. I will likely need radical prostatectomy surgery in the near future. I have an AUS (artificial urinary sphincter) already in place. Have any of you had this surgery with an AUS? Might such surgery result in damage to the AUS or its control reservoir, which is located in the…
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2024 --Is anyone currently treating for UPSC?
I'm starting chemotherapy January 8th, and not sure how many cycles -- perhaps only three. Since I just turned 82 and my hysterectomy showed no disease, it is questionable how much therapy I should get balanced against the toxicity of the chemotherapy. I had an exploratory hysteroscopy in October (as a result of spotting…
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Starting my own journey with Hodkin's Lymphoma
I'm a 56 year old male, diagnosed last month. I've had one chemo treatment so far, and (my first?) unexpected hospital stay as a result of dealing with the side effects. So much still for me to learn! Glad to meet everyone today!
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Hey Guys Remember One Of Our Alumni Who Graduated H&N University
I was going through some older bookmarks and sorting yesterday and came across one for Beagledad and the videos he made. Now almost 4 years ago. Head & Neck Cancer Hacks Take Care, God Bless Russ
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Diagnosed with grade 2 PC psa 2.7 Gleason 3+4
Hi updating and confirming PC, 7 out of 13 samples positive . Unfortunately looks like PC on both sides maybe ruling out any focal treatments. Today I start doctor visits for my treat options …My main concern are the LUTS that I am experiencing, LUTS similar to BPH.( tho my prostate is only 21cc and is small according to…
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New to group
I’m Nancy from Chicago. A 2cm solid mass was found on my kidney by CT scan, incidentally. During the past 6 months my creatine has increased to 1.3 and my GFR to 47 with trace protein in my urine. We were keeping an eye on it. I have a history of Hurtle Cell Carcinoma of the thyroid 5 years ago with my thyroid being…
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Lung Nodules after RCC
Hello - i had a 10 CM tumor removed in 2008 that was clear cell renal carcinoma, pathology put as grade 1. In 2021 i had a recurrence in my right solitary kidney of 2 tumors that were noted as grade 3. I have been doing my followup scans with NED but a recent CT for a pain i was having now shows a 6.5mm nodule in my lung…
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Prostate Cancer confirmed 2 years ago - is it normal to wait for cancer to spread?
Over two years ago I was diagnosed with prostate cancer with samples being tested and coming back positive. Since then my doctor is monitoring my PSA levels which seem sporatic … one day I will have an 8 and then upon retesting it drops down to a 4 …. overall my PSA has been slowly increasing but ignoring the sporatic…
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30 year childhood Leukemia cancer survivor
Hi, my name is Rebecca. I was diagnosed with ALL November 15, 1988. I was 12 and in 7th grade. I was treated at the Valerie Center in Summit, NJ. This year will be 30 years since my diagnosis and I'm doing pretty well . I'm looking to chat with fellow childhood cancer survivor and see how everyone is doing in their…
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Treatment
My husband was recently diagnosed with Muscle Invasive Bladder Cancer. He just started a new job less than two months before he got sick so no health insurance. He is 60 years old and is not able to do his job anymore. We did self pay for everything up to the TURBT and now he needs chemo and surgery. We have applied for…
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Just diagnosed
Hello all, TI have just been diagnosed with kidney cancer. My chest CT is on Friday. The following is the MRI results. My doctor said that it is clear cell cancer. KIDNEYS: There is a partially exophytic mass arising from the medial aspect of the upper pole of the left kidney and is well-circumscribed. It measures 4.3 x…
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Mastectomy
Hello: I had Invasive Ducto Carsinoma in 2012, HER2 +. Did 2 months of chemo, lumpectomy then radiation, they also removed 36 nodes. Cancer is back, 2024, same breast only it's HER2 triple negative. They want me to do 3 months of chemo, I've refused. I'm getting a mastectomy and removal of sentenial node on June 10th at…
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Love, Medicine and Miracles
Hey gang... I am reading this incredibly inspiring book by Dr. Bernie Siegel. I know we had mentioned him earlier in a different topic and a lot of you have probably heard of him before. He has written a number of books... but this particular book I'm reading -- Love, Medicine and Miracles (published in 1986) -- is a must…
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Ampullary Cancer stage4
Hello, Still in a bit of shock over here. Hubby went in for Whipple for adenocarcinoma at ampule of cater. Found it in his liver. Did a gastro-jujenostomy so he can keep food down and close him up. Surgeon called our (am being treated for stage 3 RCC) oncologist from the OR and they discussed chemo for 3-6 months then…
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ATM gene
When I had my genetic testing done they told me that I had the ATM gene and I was just wondering if anyone else has heard of this?
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Need Advise
My mom was diagnosed of ovarian cancer , we need help. Doctors in Summerlin hospital keep saying she is dying- we feel like it’s not right and humane. Please help us she is fighting, she is in icu right now. Her CA 125 is 1400 . We only went there to drain her asceitis from then on she got weak. She does her chemo at ucla…
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Stage 4 Signet Ring cell adenocarcinoma
Hi good night, I know this is a late post but I am petrified for my mom. She has been diagnosed with stage 4 signet ring cell adenocarcinoma since April of this year. She was completely healthy until she complained about pain in her stomach and not being able to eat much. Is there anyone with this prognosis out there? I am…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 15-18
A fellow from Certitude Roofing says: I have throat cancer…once I was diagnosed I wanted to know more and found that YouTube didn’t have anyone documenting their journey. So I am going to do that in hopes it helps someone having to deal with this. WHAT TO EXPECT | Throat Cancer | Radiation Treatment to Cure My Cancer | My…
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Thyroid cancer & Rai Treatment
I was 33 when I got diagnosed with thyroid cancer, had a full thyroid removal (2 masses)and had rai treatment after. The recovery from surgery went well but Rai treatment was hell. I want to know was this hell for anyone else??I was on the no iodine diet for a full month, my hormone level had to drop and then I was able to…
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Pain in the Butock
Hi lovely people newbie here 😀 I have been 3 years out for Gynae cancer and last week suddenly started to get aching butt pain with tenderness in my pelvic area. The butt ache is the same side my tumour was on, GP thinks it’s Sciatica and I’m due to have bloods taken. My cancer nurse is aware and will come back to me once…
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any stage 4 signet ring cell survivors out there
Would love to talk to someone who has this type of cancer, I am pretty scared of what I am reading and what my Dr says about this cancer. Feeling pretty lonely right now Pat
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Dad has Pancreatic adenocarcinoma stage 1b, and MDS
My Dad, 79yo has had Myelodysplastic Syndrome del 5q for a little under 2 years now. 3 weeks ago, he was diagnosed with stage 1b Pancreatic Adenocarcinoma. He cannot have chemo, but they did approve him to still have a Whipple Surgery. I am very concerned with the risk of cell spread during surgery. Does anyone have any…
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Searching this Site (with Examples)
The site redesign in December, 2021, included a number of welcome improvements in searching. You can now search for a combination of words such as "carboplatin and leg pain" and get results that include all three key words, unlike in the past when the system would only find items that matched the exact phrase. And you can…
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Newly diagnosed with endometrial cancer….
Hello! So, here I am on the journey no one wants to take. I’ve recently been diagnosed at the end of February 2024 with Endometrial Cancer. I’m 57 and had some spotting and bleeding, which led to a biopsy and the cancer diagnosis. Saw my ONC/GYN at the beginning of April, and just had my radical hysterectomy robotically…
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ovarian cancer symptoms
I apprecciate if someone who had suffered ovarian cancer can tell me what symptoms had experienced. Ginelle
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A long wait
I was diagnosed with stage 3 colon cancer in March and was supposed to start chemo a couple of weeks later. Wrong. Covid put me in the hospital for 21 days and then to a rehab center to fight a staff infection until 2 weeks ago Wed I came home. I have been ok to start chemo with a nurse, pt and ot coming to visit and…