-
Dr Itzhak Brook Keynote Address. “ Back to Life” After Laryngectomy
This is a short video of Dr Itzhak Brook giving the keynote address. He is a Head and Neck cancer survivor who goes over the many aspects of H&N cancer including things like your diagnosis and thoughts that go through your mind like suddenly you are in a major crisis, it shatters your invincibility, and you are suddenly…
-
Tonsil cancer stage 4
Hi everyone just wanted to share today that my husband is cancer free for 13 years! Am not saying it’s not been hard but he is alive and with me. Keep the faith Linda
-
Hello!
🙋
-
What to eat to live longer
I have low fat diet food like Nutrisystem, weightwatchers and the list goes on and home made foods Use STEVIA Avoid high fructose corn syrup Keep sugar low Lower salt diet Use mid cough drops Keeps moving Here Seasoning salt sub recipe helps with tast of foods SEASON Salt Ingredients 1/4 teaspoons salt 2 packs Stevia ¾…
-
Stage 4 confusion about treatment/results
I am a little confused about treatment and what they can and can't do. Starting out it was made clear Stage 4 Prostate Cancer is not curable, but I could live for some number of years with it depending on how I respond to treatment. I accepted that but the more I learn the less I understand. My chemo if successful is…
-
Happy Birthday, if I may...
Today is my beloved husband's 61st birthday. After spending a "relaxing" 8 hours in chemo, our family went to dinner and celebrated him. As some of you on this board know, he is being treated for metastatic head and neck cancer...now in his lungs. His ct scan on the 3rd of July showed SO MUCH improvement. It was a…
-
Hot spots on follow up PET scan
My husband has been fighting cancer since January. Tumor on base of tongue and cancer spread to lymph nodes on both sides. After concurrent chemo/radiation treatments ending this past March, he had the follow up PET scan last Thursday. We were called into office for Friday and told that the cancer in his tongue and lymph…
-
The Juice
I'm sure most or all of you have learned of OJ Simpson's passing yesterday. What you may not know is that the cancer that took him was PCa.
-
O.J.
All personal opinions about the man aside, do we know his PSA at diagnosis? Is there any other relevant information?
-
Vaginal estrogen and its alternatives
Hello! This is my first post. I am in my 60's and had stage 1a, grade 1 endometriod adenocarcinoma, and am currently 8 weeks post op recovering from total hysterectomy. Nothing found in lymph nodes, so no further treatment. My doc told me that 95% of endometriod cancer has estrogen receptors, but unfortunately I don't know…
-
Incontinence, Pads & Underwear
Hi, I had a radical prostatectomy about 3 weeks ago. I'm leaking some urine when I cough, sneeze and sometimes with standing up. Not major. I'm currently using Depend Incontinence Guards (diapers) with a pad. What I'm wondering is if anyone has suggestions for regular underwear that works well with pads. I've always worn…
-
How to move on post head and neck cancer
Hi Everyone, Hoping for some advice for my husband. He had mouth and tonsil cancer the end of 2021, he was 43 at the time. He had surgery to remove 1/3 of his tongue, the tissue on floor of his mouth, all his teeth and 4 lymph nodes. This surgery included skin graphs from his arm and thigh to replace the tissue in the…
-
neck swelling after radiation
I had HPV-tonsil cancer in 2016 and had 35 rounds of radiation and 7 chemo treatments with cisplatin. I finished the radiation treatments in October of 2016. I have the lingering effects of no taste and no slaiva but deal with that. My neck started swelling in the past few weeks and I went to my ENT doctor and they…
-
Looking for success stories
Unfortunately, like most discussion boards, I find the majority of posts here are about the problems we are all having and about looking for answers to resolve those problems. It's perfectly natural. We are all looking for answers, myself included. Once people feel their problems have been solved, they stop coming to the…
-
Post surgery camisole
My BS has given me a prescription for 2 post surgery camisoles, She has said they will help with drain management and to hold dressings in place. I believe I have to take them to the shop at Dana Farber and they will bill my insurance for the cost. Has anyone used these camisoles? Did you find it useful or would you…
-
post liver resection treatment
Im 72 years old. On 12/2022 I has colonoscopy and CT scan was diagnosed with isolated colon cancer. A 9" section of my lower colon was removed on 1/23. After the surgery, my oncologist told me "I was cancer free" (no treatment) and come see him in a year. I noticed on the pathologist report I also had a small (1.2 cm) mark…
-
Custom Wigs that nobody can tell is a wig
So I searched high and low for this and seems the best I have found is from a company called High Definition Hair. They have some pretty unbelievable content where they show the quality of their wigs on their website along with their instagram (IG: high.definition.hair) and was curious if anyone has experience with them. I…
-
Masses on Liver?
Hello, I am 40 years old. I had a routine Ultrasound about 3 weeks ago just because my workplace gives us free annual medical checkups. anyway, the lady doing the US told me she could see a 3cm mass on my left lobe, but that she thought was an hemangioma. I asked a friend (doctor) what did he thought about this and he went…
-
This April marks Oral, Head, and Neck Cancer Awareness Month
There are many support groups and some are having special activities. Check out some of the groups you may find something helpful in one of them. Support for People with Oral and Head and Neck Cancer (SPOHNC) pronounced "Spunk" is a nonprofit organization involved in the development of programs of support. As such it can…
-
New PET scan
I had lung cancer in 2020. I had a lobe removed and have been cancer free since. I have never looked at my PET scan results before but just waited to discuss with oncologist. Had a scan on Thursday and did look online it does recommend a biopsy on left lung now but talked about blood pooling and suv max. Never heard of…
-
Treatment Complete - Let the Healing Begin
Hi everyone. My husband completed his last of 7 chemos last Monday and his last of 35 radiation treatments on Friday. It was a very emotional week as it was as taxing as everyone describes. know that this first week after treatment can be the worst and it is shaping up to be so. We were lucky in that he did not have any…
-
Two year Hormone treatment
Do most high risk stage 3, Gleason 9 prostate cancer patients start long term hormone theropy right after radiation treatments?
-
robotic surgery for prostate cancer
I had the robotic laparoscopic removal of my prostate in 2010 and it went fantastic. I was 58 years old and some doctors had recommended radiation but on a second opinion, they said I was too young for radiation when I was done everything worked. No ED no incontinence. No bowel problems 10 years later, it has come back a…
-
Bladder Cancer
Having a hard time excepting the fact that I have stage 4 bladder cancer!!
-
Testimonial on how phototherapy helped this patient with Follicular Lymphoma
I was diagnosed with Follicular Lymphoma in 2015 and after chemo and Rituxan treatments I went into remission. This past year my PET scan showed that the disease had returned. My doctor put me on a two year plan of Rituxan every three months of which I am half way through. I'm thankful that these treatments continue to…
-
35 year old husband just received diagnosis
I'm beyond devastated. It was only 2 weeks ago we were living the most full, happy, loving life. We've been married for only 9 months now and never anticipated he'd be diagnosed with Stage IV stomach cancer. The horrific prognosis we've seen all over the internet are making our worst fears feel more realistic. I feel like…
-
Cancer Survivorship – Patient Education on Post-Treatment Care
Hello everyone. Survivorship is not always easy but we persevere. There is help out there in many places these days. Here is something I found on the American Head and Neck Society (AHNS). It is a long list of post-treatment issues you can click on and it takes you to a page covering that subject, explaining how to…
-
Loss of swallowing after radiation therapy
Welcome, I hope you are fine, Ask about the veterans who lost swallowing after IMRT, and how long did the problem last? What are the solutions before us? My father, after 5 months of IMRT, completely lost his ability to swallow and fluids began to come out of his nose. And now we are very disappointed Loss of swallowing…
-
Update on throat cancer journey.
I posted some info about my throat cancer journey and the potential for neuropathy in my hands. I play several instruments and I was very worried. Luck was with me and I had no neuropathy at all. I did use cold therapy every time I had chemo. I don't know if that is what helped but it's how I dealt with it. I did have an…
-
prostate cancer recurrence
10 years after prostatectomy the psa has gone from 0 to 0.4 (from 0.2 to 0.4 in last 6 months). The pet/ct test was negative. To be safe my urologist feels I should get radiation in the area where prostate was removed. He does caution about quality of life issues after the treatment. I am athletically active at 75. I am…