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New Life, New Dad, New Cancer
Hi there. My Dad moved in with my Husband and I back in June. We knew he was sick and that he was moving out here to be with us towards the end of his life. It's been touch and go emotionally, but until recently it's been manageable. His lung cancer has doubled in size since September and he also has severe centrilobular…
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Pancreatic Cancer
I am 85 years old, have inoperable pancreatic cancer, and I just started my first chemo treatment of Fluorouracil (5-FU) on September 25th. It has been eight days and I have had absolutely no significant side effects. My second round of chemo will be on October 9th with the addition of oxaliplatin. I am scheduled for 11…
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22 years later still Cancer Free!
Good Morning CSN Family, Just wanted to share hope and inspiration to anyone just starting this journey. Brief History: Surgery March 20,2002. Stage3C Rectal Cancer, 10 out 14 positive lymph nodes. Treatment: Chemo & Radiation. At the time my young son was 10 years old, today he is a 32 year old school teacher. I have been…
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Chest Port and Exercise Concerns
has anyone had any concerns about exercising their upper body with the chest port in place? Are there any restrictions to activity?
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Decision time following decipher
I was Dx with high grade prostate cancer 01/05/24. I had one of twelve biopsied sections showing 2% with a 4+4, leading to a Gleason 8. I'm 53, single, 3 kids. My PSA started at 7.4 in November of 2023 and is now 10.4. My PMSA shows no spread, fully contained, as of February 2024. I just got my Decipher test back and it…
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Choosing where to get treatment
So it's getting real. Yesterday I met with the medical oncologist, today I meet the radiation oncologist. As I had thought, it is a stage 3 cancer. Yesterday I decided to get a second opinion next week. I am fortunate to have easy access to two academic medical centers. While the diagnosis won't change, and I doubt the…
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Whole Body PET CT scan vs. PSMA PET scan
I asked my urologist to write a script for a PSMA PET scan. Which he said he did. I went for the scan, but upon viewing the results it was listed as Whole Body PET CT scan using F-18 FDG radiotracer. After reading a bit, sounds like I should of had 68GA-PSMA-11 radiotracer? I'm trying to be absolutely certain of no…
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High TG 6 months post-op
I’m mid 40s, had severe hypothyroid symptoms for about a year, then a partially obstructed airway which led me to this diagnosis: papillary thyroid cancer (follicular variant) diagnosed post-op. Thyroidectomy in September 2023 and just got my TG results. It’s 5620 ng/dL, which is much higher than expected range. I don’t…
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Is this it or there is hope? Treatment resistant cancer and mutations CHECK2, ESR1 and more.
I am new here. Stage 4 MBC. HR+/ HER2-. Double mastectomy w reconstruction. Mutations CHECK2, ESR1 RNA fusion gene, PD-L1 =10, TP53. Mets in bones, liver, breast, lymph nodes. 11 month on Palbociclib + Fulvestrant and Zometa - progression, 5 month on Ribociclib + Letrozole - progression to liver, currently on Elacestrant.…
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Insurance
My sister was diagnosed with MM in June 2020. She has gone thru chemo and a car t cell transplant. She has to go on remvilid for maintenance. She has to go on medicare in May because she is turning 65. I am trying to find the best insurance plan I can because the treatment is so expensive. I was wondering if anyone knows…
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Introduction to Skin Cancer – For Patients - This Covers It All - Very Extensive Guide
Below is a very extensive guide on skin cancer from the "American Head & Neck Society". I believe it covers every kind of skin cancer with pictures for comparison and identification and printable handouts along the way you can print out. As we all know the sooner and smaller we get any cancer taken care of the better. I…
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Easter 2024-Easter Greetings and Blessings to Everyone
We have come to that Blessed time again called Easter. The whole week has been building up to it. “Christ is risen! He is risen indeed, alleluia!” Easter Week (also known as Holy Week or the Passion Week) commemorated each day of remembering Christ’s journey to the cross, His suffering, and His rising from the tomb. The…
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Throat Cancer From A Virus-Facts You Should Know
Below is a link to a small quick chart for information on the subject and is a PDF. you can download and print it out if desired. Take care, God Bless Russ
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Squamos Cell Carcinoma
Has anyone ever experienced squamos cell carcinoma? If so, where was it located. My boyfriend has just been diagonsed. Age 48.
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D day is coming ..
Got to admit, starting to get nervous if I come out of this with having no detectable cancer it’ll be a miracle. I don’t think I’ve heard anybody on this board have a reoccurrence that is Gleason eight crib form and get treated nine months later like I said it’ll be a miracle, but Monday, April 1 I will be having salvage…
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Second Biopsy results
Last November at 67 after an MRI my first fusion biopsy was done transrectally at local hospital. It indicated (as far as I could figure) a single tumor residing in the right side of my prostate. I had a NM bone scan in January which did not show any bony metastases. Also a Prolaris test which indicated for single modal…
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Advisable prostate cancer treatment for 87 year old?
I am 87 years old with with high grade organ confined prostate adenocarcinoma . T2b Gleason 4+5 PSA 11.63 Biopsy results 12 cores 7 with Gleason 4+5 ranging from 50 to 100% of the respective core involved with malignancy, 1 core Gleason 4+4, 3 cores with Gleason 4+3, and 1 core with Gleason 3+4 CT and Bone scan both do not…
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Krukenberg tumor
Hi all - Last year, I (57) was dx'd with a Krukenberg tumor in my colon that had metastasized to an ovary, omentum and lymph nodes. Had hysterectomy, appendectomy and removal of 90 lymph nodes (only two were malignant). Three months later had CRS/HIPEC bowel resection. Did three months of natural methods which worked until…
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49 and on active surveillance
Ok so last February I went for a physical and had low T. I was recommended to go to a urologist for TRT. While there my urologist was concerned about my 2.09 PSA. He did a DRE and felt a small spot. Subsequent MRI was inconclusive so I had a biopsy in June . The results came back with slow growing Gleason 6 and my doctor…
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Zometa Infusions
Going for my first zometa infusion and would appreciate any feedback on experiences.
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Any Pancreatic Neuroendocrine Cancer Patients in active surveillance?
If this is not the right forum, please excuse my post. For Pancreatic NC people: How long have you been scanned and how often? Do you worry about the radiation needed to scan or the dyes needed? This is my third cancer, but it is so different from my rcc. It is a subset of pancreatic cancer and a subset of neuroendocrine…
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High grade brain tumor treatment side effects
Hello. My husband had a partial resection of his brain tumor and radiation 10 years ago. It was a low grade Glioma at that time. For the past 10 years we have just monitored with MRI's. Minor growth until recently. Now it is growing fast and presents as either anaplastic astrocytoma or a glioblastoma. The doctor said it…
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Port removal
So I think I’m gonna have to get my port removed but not because the cancer has ended…(it’s just stable for now) I had to have portagram this morning and when they tried to flush with saline, I got hit with a pocket of air in my neck it felt like a horse kicked me! And they were only able to get 1ml in! So I go in for the…
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Brachytherapy
I have recently been diagnosed with locally advanced prostate cancer. Gleason 9 stage 4a. My cancer has spread outside my prostate to a very enlarged lymph node in my pelvic region. I’m currently taking Orgovyx +Abiraterone and my Radiologist is recommending IMRT. Ive been doing research that suggests brachytherapy…
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Gerald White
Has anyone hear of Gerald White? He has a book called 3 months to live. Apparently he had a 20lb Kidney tumor and went go to live a good life for many years. Well I ordered the book. Terri
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Colon cancer
Hello my new here and recently diagnosed with colon cancer have surgery on the 3rd of this month any advice on what's to come pretty nervous about everything
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newbie here--still in shock
my mom just diagnosed with advanced abdominal fat pad cancer, ovarian primary. saw oncology first time yesterday. had undergone paracentesis 2 weeks ago good result and is feeling pretty good, eating good, but extreme fatigue. she is a diabetic and has had some fluctuations in blood sugar but now seems to have normalized.…
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Anastrozole Joint Pain
I was diagnosed with stage 2 invasive ductal cell carcinoma in June 2022. I received 4 cycles of chemo, last cycle was in December 2022. I have been on Anastrozole for almost a year and have started to experience fairly severe joint pain, primarily in my knees. I have also been experiencing carpal tunnel symptoms. I…
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Early in my journey, question
So I’m 53. A year and a half ago my PSA was 1.91 and a few weeks ago it was 2.74 and my PSA percentage was 30%. My urologist has me scheduled to get another PSA next week. And if concerning he will order an MRI. in your opinion, aren’t my numbers encouraging with having 30%?? I’m still scared to death.
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Robotic Prostatectomy - How Long Afterwards to Resume Activities?
I'm almost certainly going to be having the procedure soon (see my recent thread) but wanted to ask specifically about how long it generally takes to resume various activities. I work from home so I would think that would be ideal for getting back to work as quickly as possible. For those with sedentary jobs, how long was…