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Chemo-resistant cancer mutation
Hi folks, thanks for all the helpful info and support on this forum. I've been browsing occasionally since diagnosed with Stage IV endometrial cancer last year but this is my first time posting. I've been fortunate to have nothing observable since surgery, although it makes it weird fighting this invisible disease. Anyhow,…
AHNS: HPV Related Oropharyngeal Cancer: Epidemiology, Diagnosis & Staging, Treatment and Prevention
From the Cancer Prevention Service of the American Head & Neck Society, a 4-part webinar presentation examining Human Papilloma Virus (HPV) Related Oropharyngeal Cancer discussing 1) epidemiology, 2) diagnosis & staging, 3) treatment, and 4) Prevention. Take Care, God Bless Russ
anastrozole oral side effects
Stage 4 BC 2 years as go Had a double mastectomy and surgery seems to be successful. Am currently on anastrozole and after visiting the dentist he informed me that my jaw bone is deteriorated 8x the normal rate for my age. Since then I've had 2 crowns break and a bridge fall out. I've been trying to get medical to approve…
The American Head and Neck Society (AHNS)
For whom I may help I have encountered another website you may want to check out and maybe even bookmark, your choice. But I am posting this because I believe people from our H&N community can possibly find something of benefit on there. The American Head and Neck Society (AHNS) https://www.ahns.info/ Society Background On…
Personal Patient Interview And Review Of His Cancer Experience And Treatment
This is a personal interview with a patient who went through an operation to remove lymph nodes and cancer of the saliva gland with follow-up radiation and chemo. The one lymph node was not encapsulated and starting to spread which to me means it is good they caught it when they did. This all started though with Melanoma…
NavDX A Case-Based Discussion On The Utility Of NavDX AHNS H&N Conference
This is a discussion of the use of NavDX and covers real-life cases. 1 Hour Video Detection of HPV-Driven OPSCC: Clinical Evidence of an Innovative Blood Test - A Case-based Discussion of the Clinical Role of NavDx in Managing OPSCC Faculty: Dr. Chris Holsinger, Professor of Otolaryngology, Stanford University School of…
Loss of muscle mass
after the cisplatin chemo, I lost considerable muscle mass. Anyone experienced this? If so, will it ever come back?
Mike Linn Cancer Victory Story
This is a short video of Mike Linn and how he beat terminal stage 4 Melanoma and then had a recurrence which manifested itself in the lymph nodes in his neck and also in his tongue. Check out his other videos while you are there. Mike Linn says... I'm going to continue to keep making content to help myself and other cancer…
Looking for those treated with AEPA / CAPDac protocol
My 16 year old daughter was just diagnosed with Classical Hodgkin Lymphoma stage 2a. One of the treatment options offered by Stanford is AEPA/CAPDac. Stanford also refers to it as HLHR13. Consists of 2 cycles with Adcetris (brentuximab vedotin), Etoposide, Prednisone and Dozorubicin. Followed by one cycle of…
Anyone Had hair loss with Doxil?
Avastin giving me nose bleeds and headaches.
2024 list of Medicare PCa approved treatments.
I am getting my transperineally fusion targeted biopsy at the end of the month. I have been trying to prepare for treatment options from AS to surgery and all points in between. Keeping busy keeps my anxiety well-directed! 71 y.o. with an Advantage plan. My first option would be to remain fiscally efficient and start with…
Newbie stage 4 looking for support and guidance
Hi all - My name is Jill and this is my first post. I was just told I have stage 4 uterine CA (serous) with mets to the omentum and peritoneum. The biopsy of a retro abdominal mass came back came back as “poorly differentiated adenocarcinoma of muellerian origin”. Doc says surgery is not an option because the mets in my…
My 65 year old male neighbor has a positive "cologuard"
My 65 year old neighbor said he has had colonscopy every five years since age 50. On a website he read his insurance will pay for a cologuard test, but he doesn't know anyone who has had it done. A cousin who is a physician ordered it for him, and he sent away for a kit with has a tub abd brush and liquid and he sent his…
Ovarian cancer after breast cancer
Have any of you developed ovarian cancer after you already had breast cancer. And if so did it happen during chemo, after, long after? Thank u and God bless
Active Surveillance or Surgery?
Hi, I'm 53 years old and was diagnosed with Stage 1 prostate cancer a few weeks ago. My Gleason score is 6 (3+3) in 3 cores from the left lobe with no perineural invasion seen. My PSA was 3.58 on finasteride. My Urologist recommend Active Surveillance at this point, opposed to surgery or radiation. I'm having a hard time…
Looking for help
My daughter and 4-year-old grandson are in Utah's Children's Hospital and I am trying to find some help for her. My 4-year-old grandson named Zane has Pinoblastoma. (sorry if I spelled it wrong.) He has just gone for his 3 surgery already. He was supposed to come home to Reno, NV. But needed another surgery. I am grandma…
How Long Do Chemotherapy Side Effects Last? All You Need to Know
I think this video is noteworthy enough to post. Although it is from a breast cancer presenter I believe it applies generally to chemotherapy effects which are much the same as H&N people get. It is well presented. How Long Do Chemotherapy Side Effects Last? Take Care, God Bless Russ
42yr old sister diagnosed with Glioma
My sister was diagnosed with a glioma a few weeks ago. She had brain surgery within 2 days and all was removed. Her prognosis, as you know, is 12-18 months. I am up and I am down. Life is more precious than it even was before. I can’t fix this for her. I am so sad I burst out crying without even knowing I was going to…. I…
Getting harder every day
I can barely continue to watch my husband suffer. He is in constant pain, doesn't eat and rarely sleeps. I am sleep deprived because he doesn't sleep. I've been doing this every day for about 5 months with no support. I feel guilty for complaining. I feel like I'm being very selfish. Do any care givers on this forum feel…
Pancreatic Cancer
I am 85 years old, have inoperable pancreatic cancer that has spread to other areas, and I just started my first chemo treatment of Fluorouracil (5-FU) on September 25th. It has been eight days and I have had absolutely no significant side effects. My second round of chemo will be on October 9th with the addition of…
Ureter Stent Kidney To Bladder -anyone else?
So my story began last year about this time. I was diagnosed with uterine/endometrial cancer which was in my cervix so at first they weren't sure if it was cervical or what. I had external beam radiation and six rounds of low dose carbo. I switched to Sloan Kettering and it was the best decision I could have made. I had…
port and chemo questions -starting thursday
I had my port put in on thursday. It is quite uncomfortable and I am hoping it is because it needs to heal. Its on my left side and I slept on it so I am in pain this morning. I thought the port would be smaller and I thought there was little or no recovery time involved. How long til it feels ok? Dr said some start chemo…
Recommendations for Dentists with Head & Neck Cancer experience
Hi, I’m looking for a good Dentist with Head & Neck Cancer experience in the Houston, TX area. I was diagnosed with Squamous Cell Carcinoma of the oral tongue in 2012. I received a left partial glossectomy and bilateral neck dissections with left forearm free flap reconstruction and Radiation therapy. I was doing well…
Reconstructive surgery after partial nephrectomy
I am currently 9 months post-op from an open partial nephrectomy. I began having really bad pain and swelling approximately 6 months after the procedure. After multiple emergency room visits, and absolutely no answers from my urologist/surgeon , I finally got a second opinion with a new urologist. He referred me to a…
Colon Cancer with Lung Mets
I have stage IV with Mets in lungs (7 small nodules in the right lung in Dec 2023). I’m only on 2nd round of FolFox with Avastin and will have CT in April to see what’s going on and will meet with a thoracic surgeon to discuss options. new to all this, I wonder how fast Mets progress in the lungs, symptoms of Mets growing,…
rhabdomyosarcoma
I NEED SOME HELP HAS ANY ONE HAD A CHILD THAT HAD RHABDOMYOSARCOMA IN THE PELVIS. MY SON HAD CHEMO, RADIATION AND SURGERY. HE HAS EXPIERNCE MANY LONG TERM SIDE EFFECTS. IS THERE ANY ONE THAT HAS HAD THIS SAME PROBLEM AND HOW DUE THEY FIGURE IT OUT
Creatine while on Lupron to help with muscle loss?
Anybody try it? My doc says he thinks it’s okay, but I’m wondering if it helps along with resistance training. Thanks.
Breast cancer and how to explain it for kids
Hey, at the end of February my wife Alice was diagnosed with stage two breast cancer, our lives changed immediately. We trying to keep it positive for our daughters Joana and Rachel, It seems that they don't quite understand what's happening, and why mom isn't at home. We tell them that mom is sick, and it weighs heavily…
Different Types of Prostate Biopsies
I know of the perineal versus the rectal ones but I'm confused about the length and involvement of the procedure. As I mentioned in the other thread, I'm due to have a transperineal one this coming Monday. I will be on full anesthesia and it could be several days before I'm recovered. I don't know if all require an enema…
Lung cancer support groups
Are there any lung cancer support groups in New Hampshire?

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