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Any low grade endometrial cancer stage 4 survivors out there?
Hi, Just wondering if there is anyone with low grade stage 4 endometrial cancer and if so what treatment options were you given and how successful are the treatments for your low grade cancer? I'm needing some hope for a newly diagnosed friend. Any stories of hope would be really appreciated!
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R U just diagnosed and overwhelmed? Some info for you
Diagnosed about 5 months ago and I couldn't believe that I had to make the final decision about what option (surgery / radiation ) to choose. So I am going to list some info hopefully to make it easier to understand what questions you have to ask. My journey. High PSA 8.5, up from 4.0. Urologist orders MRI. MRI comes back…
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Did your anal cancer affect vaginal opening
This question is for females I was recently diagnosed with anal cancer when I met with 2nd group Dr for 2nd opinion I mention that the vaginal opening is itching as much as anus, is this common for anal cancer? He referred me to gynecologist to be checked.
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Stage 4b cancer
Hi. Anyone else diagnosed with stage 4b cancer? Last December had an 8 hour surgery to remove lady parts and the visible uterine cancer that spread and was wrapped around my bladder and other parts. 6 rounds Chemo ended in April. now in immunotherapy infusions for years. Having all kinds of side effects. Hoping others have…
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Esthesioneuroblastoma; Olfsctory Neuroblaatoma
Hello everyone. I saw that it has a long time that no one post about Esthesioneuroblastoma; Olfsctory Neuroblaatoma here. Does anyone have more experience to share? I was diagnosed in may 2024. Had endoscopic surgery (not clear about clear margins) + 30 RT sessions. Kadish B Hyamis 3 no metastasis. Waiting for 1st MRI next…
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Fatigue
I complete my 6 cycles of Carbo/Taxol on 15 May '02 and have been experiencing alot of body aches, weakness and this overwhelming fatigue. I can just be sitting at the computer at work, and all of a sudden I feel like I've been ran over by a Mack truck! While having my treatments I did have weakness and fatigue that would…
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were do i go for finacial help?
I have been waiting for my oral chemo medication (Xeloda)and called the place today and they said that are just waiting for my part of the copay before i can receive the medication but the problem is that they want almost $900 from me which i do not have. I have been trying to find some websites or finacial aid that can…
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Complex Renal Cyst
Hello All, I found this board a couple months ago when my dad was suddenly diagnosed with a mass on his kidney the size of a baseball. He had a nephrectomy and has been doing well since (pathology was RCC). I have been working to take care of my own body to ensure that if he ever needed a kidney, I would have one to spare.…
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Looking for LMS Stage IV long term survivors
Please share your story. What has worked best for you? Have you tried alternative treatment methods? I am hearing about things from Ivermectin & Fenben, certain vitamins and teas. What has worked best for metastatic in lungs? I personally don’t know anything about them and have not tried any of them. I’m told that I cannot…
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Looking for survivor stories for recurrent De-differentiated retroperitoneal liposarcoma
Hi there, I’m 29 and had several liposarcoma masses removed earlier this year. They were de-differentiated (though some were well-differentiated), and were surgically removed before we knew it was cancer. At my 6 month scan, I just found out I have a recurrence. I am heading towards chemo or radiation before another…
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Uterine Carcinosarcoma, any survivors out there?
Hi everyone, My mom was diagnosed with carcinosarcoma in Dec '08, she had a total hysterectomy and removal of pelvic lymph nodes (cancer was found there). Since then has done chemo and radiation, finishing in the summer of '09. She's doing ok now, but I was just wondering if there was anyone out there with a similar…
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Proton beam therapy for anal cancer
Does anyone have experience with proton beam therapy instead of conventional radiation treatment for anal margin squamous cell cancer? I have just been diagnosed and am very afraid of long term effects of conventional radiation.
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Oligodendroglioma Grade2 any 5years plus durvivors?
Hello Newly diagnosed grade 2Oligodendroglioma. Idh 1. Wait and watch approach. Idh1 mutation. Anyone on here that has had no progression for 5+ years?
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Prostate cancer with metastasis to nodes
Im 54 and recently diagnosed with prostate cancer and my PSMA shows 2 mesorectal lymph node involvement. I got next Wednesday for my first appointment with the medical oncologist. I've read a lot on treatments and very confusing. Some say I can't have a prostatectomy others say maybe with radiation. I'm just so confused…
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Triple +
Hi! I’m Trish and newly diagnosed with triple positive BC. The oncologist wants me to start with Docetaxel, Carboplatn, Trastuzumab and Pertuzumab all at once for 6 txs every 3 weeks. Has anyone had this regimen and what was it like? I also have been told this regimen often causes weight gain. Has that been your…
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Is esophageal cancer genetic?
My mother's mom died of esophageal cancer, and now my mother also has esophageal cancer. Is esophageal cancer genetic? What do you think? Do you have relative also has EC?
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My Mom had lung cancer for over a year…
Hi! My Mom had lung cancer (it metastasized to her brain) for over a year. She did so well with chemo & immunotherapy when she was 1st diagnosed. She also had radiation on her entire brain. The chemo/immunotherapy stopped working (the mass grew a tad) then we tried a clinical trial (waste of time) & while being on the…
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Squamous cell Carcinoma Recurrency Nasal cancer
I would like to meet p[eople having recurrence of SCC
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Basal cell carcinoma on face
So I 3 weeks ago did biopsy and last Saturday I had emergency surgery to remove the cancer I had a Mhos done . It was nerve wrecking . What precautions do I need do for prevention
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Basal cell carcinoma newly diagnosed
Hi I've recently been diagnosed with basal on my nose close to eye. My mohs surgeon asked for biopsy but I couldn't at the time "to scared" wanted to take half of it but i need time. Anyway he said it was fine as he was sure it was a Basal. He then went on to tell me after he does the mohs I will need flap from either my…
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Ketagenic diet
My oncologist was talking to me yesterday about a "ketogenic" diet -- which (as I understand it) is high fat/protein, low carbs. It's a very old idea for fighting cancer -- and similar to Atkins or South Beach for weight loss, I believe. But apparently there is some new research coming out now, especially from some German…
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No diagnosis yet--
It is a long story but 10 months ago I had a chest ct scan, it showed enlarged mediastinal and hilar nodes 1.5cm on the short axis. I was not able to do the post f/u due to an injury and surgery that had me non weight bearing, my PC received the results but never followed up until I had my check up in Oct and I mentioned…
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Abnormal path report-skin biopsy
hello I am wondering if anyone has any insight… my son had a skin biopsy from his arm (non itchy bumpy area under skin). Initial report says “ebv positive with t/nk cell proliferation”. They are sending it for further testing. He has no other symptoms but I’m just very very worried about this. Thank you
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Kidney scan
Hi All, It has been a while since i have been on the site, I am going for my 1 year scan/check up at the end of the month. I know it will be fine. I have healed welled no problems since my surgery.. Amazing how i haven't thought or had any fear until now the thought just eats at me was wondering if anyone goes through this…
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1st post Prostatectomy PSA after sixty days
I just received my first PSA 2 months after my prostatectomy. It was .04. Is it normal so soon after the prostatectomy for it to be at that level and will it continue to fall more. What were others 1st PSA and subsequent one. Thanks Wheel
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Recently Diagnosed Husband
Hello, My husband was diagnosed with stomach cancer on July 10th. This diagnosis started with back pain in early June which progressively got worse over 12 days, when he went to the doctor the pain was initially diagnosed as kidney stones and he was to await a CT scan. The next day 6/16 he was in such extreme pain he could…
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Incontinence question
Four weeks post RARP today. I know there is no identical timeline, but just wondering at what point those of you who have been through this started noticing significant improvement in incontinence. I'm to the point now I'm good sitting down, even if I cough or sneeze most of the time. However when I stand it's pretty non…
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Wishing A Happy And Blessed Thanksgiving 2024 To Everyone-Please Add Your Greetings & Comments
Well, here we are, and another Thanksgiving has snuck up on us. Where did all the days go since the last one? They went so fast; it seems like only yesterday. Blessing to everyone. Wishing Everyone A Happy Thanksgiving 2024 For each new morning with its light, For rest and shelter of the night, For health and food, for…
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Recently Diagnosed and Adjusting
I was diagnosed with endometrial cancer on July 2nd. Had radical hysterectomy on July 18th. They thought it was going to be a simple day procedure but discovered that cancer had spread to a lymph node which they couldn’t removed because it was too close to a major blood vessel. I ended up staying a night in the hospital.…
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Agent Orange esophageal cancer
My husband had stage 4 esophageal cancer. He was a Vietnam veteran confirmed to be in agent orange spray zones. He also was VA disabled 70%. When he claimed the esophageal cancer he was turned down by the VA. I feel they let our Vietnam veterans down by denying this as an agent orange disability. He was physically sprayed…