-
CA 125
I was concerned because of my CA 125 went from 7 to 44. It had been over 7000 before 3 rounds of chemo and debunking. After 3 more rounds of chemo it went to 7. Then with the blood work following all of that the marker was going up. The doctor explained that the marker will fluctuate for any number of reasons and stress…
-
Radiation treatment choice
My wife has some hot spots on her PET scan. She has to decide between having a few pin point high dose treatments,(which is promised to have less side effects)or to go with a 5 week combination treatment of hitting those spots with high radiation and using low radiation in the surroundings. Has anyone dealt with this?…
-
Post treatment PET scan turns up new cancer cells in my lungs
I went in today for my 90 day Post treatment PET scan and it tured up new cancer cells in my lungs. I’m 64 years old and prior to this episode had never spent the night in the hospital. My original diagnosis was likely tonsil cancer, HPV related, that spread to the lymph nodes on the right side of my neck. I completed the…
-
diagnosed 6 months ago with small cell lung cancer
Hello, I was diagnosed in Oct with sclc which was contained to my right lung. I had the chemo and radiation and in Jan scans showed it had shrunk considerably in the lung but I had some mets in my brain. Was put on Imfinzi and had gamma knife for the brain mets. The gamma knife took care of the brain mets but I now have 3…
-
Lupron - living with the side effects
I am 76 and underwent 28 radiation treatments last summer - after starting on Lupron androgen deprivation therapy. I have had two (6 month) Lupron shots with the third (and last) scheduled for early April this year. My urologist and radiation oncologist both felt I was too old for surgery and that the radiation/ADT was the…
-
psa 4 months after radiation and 6 months into Orgovyx
Had PSA last Thursday to see progress of treatment and appears to have went well. PSA <.006. I finish my 6 months of HT via Orgovyx on Friday and then wait and see if anything comes back. HT was not horrible . Some side effects but nothing life altering. Thanking God for my progress.
-
Ned
Well I had my four year scans yesterday and was Ned went to yearly scans and I thought I would be done after five years but since I was stage three I won’t be done untill my tenth year oh well it’s only once a year now
-
Salvage update
well, they said surgery went extremely well a little under three hours. They actually were able to spare the nerves. Will go home tomorrow. I already did some walking and now dinner is coming. Thanks for all the support. I will be in touch.
-
Psa test freq following RT
I just finished post-RP salvage RT in January. My first PSA was about 3 weeks ago at 0.13 vs. 0.20 when RT was started. Post RP pathology rated me at a 3+4 Gleason with a few mm of positive margin and some perineural invasion. They have me scheduled for next psa in 6 months on basis that post RT the PSA should move real…
-
"Total Metabolic Response to Treatment" :: but questions about recurrence
I'm a guy who likes to know the numbers, although I do completely understand the opposite mindset. 9 months ago I was diagnosed with a late stage SCC (P16+) advanced to local lymph nodes. They gave me 6 months to live. Last week I was given the all clear, completely clear PET scan with a report indicating "total metabolic…
-
Cancer Survivor Interview: Oropharyngeal Cancer, Treated With Robotic Surgery
Direct interview with a cancer survivor and his story of treatment and recovery… Cancer Survivor Interview: Oropharyngeal Cancer, treated with Robotic Surgery Take Care God Bless Russ
-
Dr Itzhak Brook Keynote Address. “ Back to Life” After Laryngectomy
This is a short video of Dr Itzhak Brook giving the keynote address. He is a Head and Neck cancer survivor who goes over the many aspects of H&N cancer including things like your diagnosis and thoughts that go through your mind like suddenly you are in a major crisis, it shatters your invincibility, and you are suddenly…
-
Tonsil cancer stage 4
Hi everyone just wanted to share today that my husband is cancer free for 13 years! Am not saying it’s not been hard but he is alive and with me. Keep the faith Linda
-
Hello!
🙋
-
What to eat to live longer
I have low fat diet food like Nutrisystem, weightwatchers and the list goes on and home made foods Use STEVIA Avoid high fructose corn syrup Keep sugar low Lower salt diet Use mid cough drops Keeps moving Here Seasoning salt sub recipe helps with tast of foods SEASON Salt Ingredients 1/4 teaspoons salt 2 packs Stevia ¾…
-
Stage 4 confusion about treatment/results
I am a little confused about treatment and what they can and can't do. Starting out it was made clear Stage 4 Prostate Cancer is not curable, but I could live for some number of years with it depending on how I respond to treatment. I accepted that but the more I learn the less I understand. My chemo if successful is…
-
Happy Birthday, if I may...
Today is my beloved husband's 61st birthday. After spending a "relaxing" 8 hours in chemo, our family went to dinner and celebrated him. As some of you on this board know, he is being treated for metastatic head and neck cancer...now in his lungs. His ct scan on the 3rd of July showed SO MUCH improvement. It was a…
-
Hot spots on follow up PET scan
My husband has been fighting cancer since January. Tumor on base of tongue and cancer spread to lymph nodes on both sides. After concurrent chemo/radiation treatments ending this past March, he had the follow up PET scan last Thursday. We were called into office for Friday and told that the cancer in his tongue and lymph…
-
The Juice
I'm sure most or all of you have learned of OJ Simpson's passing yesterday. What you may not know is that the cancer that took him was PCa.
-
O.J.
All personal opinions about the man aside, do we know his PSA at diagnosis? Is there any other relevant information?
-
Vaginal estrogen and its alternatives
Hello! This is my first post. I am in my 60's and had stage 1a, grade 1 endometriod adenocarcinoma, and am currently 8 weeks post op recovering from total hysterectomy. Nothing found in lymph nodes, so no further treatment. My doc told me that 95% of endometriod cancer has estrogen receptors, but unfortunately I don't know…
-
Incontinence, Pads & Underwear
Hi, I had a radical prostatectomy about 3 weeks ago. I'm leaking some urine when I cough, sneeze and sometimes with standing up. Not major. I'm currently using Depend Incontinence Guards (diapers) with a pad. What I'm wondering is if anyone has suggestions for regular underwear that works well with pads. I've always worn…
-
How to move on post head and neck cancer
Hi Everyone, Hoping for some advice for my husband. He had mouth and tonsil cancer the end of 2021, he was 43 at the time. He had surgery to remove 1/3 of his tongue, the tissue on floor of his mouth, all his teeth and 4 lymph nodes. This surgery included skin graphs from his arm and thigh to replace the tissue in the…
-
neck swelling after radiation
I had HPV-tonsil cancer in 2016 and had 35 rounds of radiation and 7 chemo treatments with cisplatin. I finished the radiation treatments in October of 2016. I have the lingering effects of no taste and no slaiva but deal with that. My neck started swelling in the past few weeks and I went to my ENT doctor and they…
-
Looking for success stories
Unfortunately, like most discussion boards, I find the majority of posts here are about the problems we are all having and about looking for answers to resolve those problems. It's perfectly natural. We are all looking for answers, myself included. Once people feel their problems have been solved, they stop coming to the…
-
Post surgery camisole
My BS has given me a prescription for 2 post surgery camisoles, She has said they will help with drain management and to hold dressings in place. I believe I have to take them to the shop at Dana Farber and they will bill my insurance for the cost. Has anyone used these camisoles? Did you find it useful or would you…
-
post liver resection treatment
Im 72 years old. On 12/2022 I has colonoscopy and CT scan was diagnosed with isolated colon cancer. A 9" section of my lower colon was removed on 1/23. After the surgery, my oncologist told me "I was cancer free" (no treatment) and come see him in a year. I noticed on the pathologist report I also had a small (1.2 cm) mark…
-
Custom Wigs that nobody can tell is a wig
So I searched high and low for this and seems the best I have found is from a company called High Definition Hair. They have some pretty unbelievable content where they show the quality of their wigs on their website along with their instagram (IG: high.definition.hair) and was curious if anyone has experience with them. I…
-
Masses on Liver?
Hello, I am 40 years old. I had a routine Ultrasound about 3 weeks ago just because my workplace gives us free annual medical checkups. anyway, the lady doing the US told me she could see a 3cm mass on my left lobe, but that she thought was an hemangioma. I asked a friend (doctor) what did he thought about this and he went…
-
This April marks Oral, Head, and Neck Cancer Awareness Month
There are many support groups and some are having special activities. Check out some of the groups you may find something helpful in one of them. Support for People with Oral and Head and Neck Cancer (SPOHNC) pronounced "Spunk" is a nonprofit organization involved in the development of programs of support. As such it can…