Translocation RCC

nammu177

Hi all,

My younger brother ( 33 yo) was recently diagnosed with a 20cm left kidney mass after having a cough for two months and then suddenly night sweats and weight loss in Sept 2024, underwent left open radical nephrectomy. The pathology report showed mixed cell types and spread to nearby lymph nodes. After 4 weeks another CT chest shows a new small growth in a supraclavicular lymph node and the biopsy was positive and last week they confirmed it was translocation RCC. He will be getting a combo immunotherapy treatment and I’m really hoping it responds.

I wanted to see if anyone out there with similar experiences and how you were treated if stage 4 cancer and recommendations for cancer centers for a second opinion especially this is a rare subtype . I tried to call MD Anderson and Memorial Sloan but they will not do telehealth for patients in CA. His current doctor seems to be great but because this is rare, I feel another opinion would help or if both docs can collaborate.

Thank you!

Deanie0916

Hi Nammu, sorry your brother and family are going through this. You can check out my profile, I had a large tumor and am now doing immunotherapy. I wanted to suggest a site called smartpatients, they might have more people who are going through stage 4 treatments and know a lot about the best cancer centers and specialists. Please feel free to ask me any questions that might help, I'll try my best to help.