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Living with an AUS- Bikes, etc
I have had my AUS in now just over a yr. I have not ridden a bike for years and bought one this summer. I can't help but notice, riding a bike- specificly using the bike seat- causes me to leak. Life with a AUS- how is it going for you?
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Enhertu and CA 15-3
my mother has breast cancer stage 4 which has metastasized to the bone and liver. She is currently on enhertu and she did the first cycle , however when they did blood testing for the tumor markers CA 15-3 was very high. Even higher than when she wasn't getting the treatment. Is this a cause of concern and indication that…
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Stage IV Cecum Cancer (ileocecal valve) with Mets to Lungs
Reading all these discussions, it shows everyone’s story is so different. For me, I am starting out the door with stage IV. BAM! A mucinous adenocarcinoma, 6.5 cm, 9/19 lymph nodes positive and probable 7 nodes in the right lungs. No symptoms before mid Nov. Still in shock. My oncologist is recommending FOLFIRI, but thinks…
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New to the website
Two weeks ago, I was diagnosed with colon cancer and had a tumor the size of a prune removed and a bag added It hasn't been easy with the pain and watching my bag My daughter-in-law changes it All this is new to me as far as colon cancer I am a stage 3 prostrate cancer survivor (2 years on March 9) and this caught myself…
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Third cancer found during surgery for metastasis of second
I swear, I am starting to wonder if my body is some kind of cancer generating anomaly. I had breast cancer in 2010. Then colorectal cancer in 2021. This year after tracking a growing lung nodule for months, a biopsy confirmed that I had a met of the colorectal cancer in my left lung. So, off to see the surgeon I went to…
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Can someone please
Respond to my earlier posts I’m really worried.
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Looking for transportation
Hi I am new here. Looking for transportation to get to an oncology specialist 3 hours away. any ideas? Thanks!
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wait time for targeted biopsy after initial MRI
Just got my MRI. PSA rising slowly for 3 years from 4.0 to 5.1. The MRI indicates a pi-Rad level 4 lesion 10 ml, well defined with no infiltration. Either base peripheral zone 11 to 12 o clock or transitional mid gland zone 11 to 12 o clock. Will get the location cleared up. I have an MRI fusion targeted biopsy scheduled…
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CLL Discussion Group
I just found this group, thank you. If you are looking for information on CLL and treatments, HealthUnlocked has an active, very informative group. Go to HealthUnlocked.com and select the CLL group. Also check out BloodCancerUncensored.com I am struggling through watch and wait, no treatment planned but lots of symptoms!
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Fluid edema after radiotherapy
Welcome I finished radiation therapy 5 months ago to the left part of the neck, and the result of the last MRI examination was negative, but it showed the presence of liquid edema near the esophagus and extending to the left part of the tongue. Doctors told me that it might disappear with time, but now it is pressing on…
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Cuestión
Good morning, does anyone know where they raise funds to help us with expenses, thank you
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Suspected CLL
Hello , I am looking to find out more information from people who has been diagnosed with Leukemia. My father had done some blood work and it showed abnormal WBC . 22.2 to be exact. Everything else is normal, as far as RBC. He was send to do ultrasound that showed all organs in great condition with no enlargements. He was…
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Anal Cancer & Multiple Sclerosis/Auto-Immune
Hi, I am a 52 year old woman who is in the middle of treatment at MSK. Typical protocol 27 Radiation treatments, 2 Mito and 5 Xeloda M-F. I am wondering if there is anyone else who also has MS? I take a monthly infusion drug Tysabri which is an immunomodulator. My Onc says AC is directly related to me taking this drug. I'm…
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Symptoms of brain mets
I would love to hear from anyone who has experience brain mets. I had stage 3 bc diagnosed in 2004. Over the last 4 weeks I have been having difficulty walking, kind of like feeling off balanced not vertigo. I have had problems with dizziness that started after chemo but it has never lasted this long so of course I worry…
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Ahead of Cancer | Advances in Head and Neck Cancer | AHN Informative Video
May 1, 2023, Warren Swegal, MD, head and neck surgeon for the AHN Cancer Institute, discusses the latest advancements, the importance of cancer prevention, the signs of head and neck cancer, and the latest treatment options. Wishing You All the Best Take care, God Bless Russ
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PET scan for thyroid cancer before surgery
Hi, Is there a recommended guideline for utilizing PET scans in identifying cancerous thyroid nodules and possible metastasis to the neck lymph nodes? I recognize that ultrasound (US), computed tomography (CT), and ultimately fine-needle aspiration (FNA) are preferred methods. However, if these techniques fail to provide a…
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My mother's doctor told me that she doesn't have much time, I'm not ready to lose her.
My mother has been dealing with head and neck SCC cancer for a year and a half, she was treated in the first series, and the disease returned after three months (recurrence), and now she has not responded to chemotherapy, immunotherapy, and re-irradiation therapy. (Due to the problem of kidney failure, she could not try…
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Survival of rectal cancer w Perineural invasion
Hello my last post was kind of hard to read I’ll try again I was diagnosed with stage 3 rectal cancer in April of 2023 I started long course radiation at duke in May finished that and started chemo in August I had my low anterior resection surgery on 12-5. I’m currently dealing w an abscess that has been terrible. My…
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4 years…NED!
Yesterday was my annual CT scan 4 years after my partial nephrectomy on Feb. 20, 2020, and there was no evidence of recurrence or metastatic disease! I am beyond thankful to God. Posting this as an encouragement for those who are new to their kidney cancer journey...there is always hope!
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Stage vs Grade?
Hello everyone, I just came across this message board, what an awesome resource. My story, like most, begins with an incidental finding during an MRI for an issue with a pinched nerve in my lower back. I was soon referred to a urologist and a CT scan confirmed the MRI....a suspected 3.5 cm RCC tumor on my left kidney. 4…
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Uterine papillary serous carcinoma (UPSC), Brain metastasis
Hello all, I'm new to this forum. Dx'd 2017 with UPSC stage 4B. Metastasized to lung, brain, adrenal gland over the course of 2019-2021. I've been NED since Sept 2021 (after adrenal gland removed). More details on my profile. I'm curious to know of others who had USPC metastasized to brain - symptoms, treatment, status…
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Waiting Phase of Diagnosis- Bosniak 3
Hello Warriors A typical case of going to hospital for an infection and by chance a Bosniak III renal cyst was discovered. At the stage where no doctors or urologist wanted to commit and state their diagnosis and prognosis.So waiting patiently and hoping that it is not kidney cancer.Although all the symptoms are pointing…
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My endometrial cancer surgery
As promised I am updating here on the next step. I have been called in to; to attend a Pre Admission Clinic ( PAC) on the 2nd of January The surgery is scheduled for the 8th of January. I was wondering what exactly happens at a pre-admission clinic? Do they do more tests and answer our questions? I have been given 4 hours…
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CLL & an Enlarged Spleen - Treatment and What to expect??
My husband has CLL and has been on "Watch and Wait" for about 10 years. His Lymph nodes go up and down in size but now he has an enlarged spleen and the doctor wants to start treatment. He is worried if that is a drastic step or necessary or what to expect? Does anyone have any advice or suggestions or what to expect? She…
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How would I know what is the best option for me? Total- or hemi-thyroidectomy or RFA?
Hi, Just diagnosed with PTC. A 1.4cm malignant nodule on the left lobe, and one 1.5cm indeterminate on the right lobe. There is a suspicious lymph node on the left side as well but came back non-cancerous after 2 separate FNAs. I do not want to let the fear of cancer lead me to a decision or procedure that is more…
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Question on post D&C operative report
Hello all, 39, premenopausal. After more than a year with increasingly heavy (but regular) menstrual bleeding and anemia, in late 2023 I found an OBGYN clinic that could see me several months earlier than my regular OBGYN. On my first visit, I had a pelvic exam and PAP smear, which found a slightly enlarged uterus and good…
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Cost of Orgovyx
I am 61 years old and have been told I need to go on hormone therapy. I was considering trying to convince my urologist to get me on Orgovyx, but he explained (and I found out after doing some research) that it is pretty expensive, and also said that my insurance (I am still working at 62 with insurance through Blue Cross…
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Perineural invasion
my be pathology after lar surgery stated perineural invasion positive otherwise no other risk factors nonlymph node involvement I’m 42 w two small kids last yr has been a total nightmare. Looking for anyone in similar situation that survived rectal cancer
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Unexpected D&C results for CAEH - Likelihood of cancer?
I am 48 and haven't had my period in a couple of years. I had unexpected bleeding in September 2023, finally got an appt in October 2023 with my gynecologist who used ultrasound to diagnose 1cm thickness of my endometrius and a polyp. I had my D&C on Jan 2, 2024 and thought it would be like a previous polyp. Benign and no…
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Experience with Keytruda/Lenvima?
I am trying to decide which regimen, among three of four choices, to try. The first best would be another carbo/taxol, but I am unwilling to lose my hair again. The second best choice -- medically best, I mean -- would be Keytruda/Lenvima. It seems like most posts about that combination have been pretty dire in terms of…