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Artificial sphincter
Hi. I had a prostatectomy in 2020. Earlier this year I had the Proact balloons for incontinence put in and it was a disaster. It took 4 months of poor Healthcare and pain before I got them removed. I'm currently going through 6 pads a day and use a clamp at times. Now I'm looking at getting the artificial sphincter. I…
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Helping my mom find a wig
Hi all! My mom has stage 4 lung cancer and had her first chemo treatment yesterday. I’m going down to see her in FL for her next treatment in March. She said she will probably lose her hair by then and wants to go wig shopping. I’ve heard there are places to go for free or discounted wigs. Does anyone know anything about…
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From the American Head & Neck Society - May is Skin Cancer Awareness Month
Hello, friends and fellow H&N folks. I have come across this reminder video that May is skin cancer month. Skin cancer mostly affects the head and neck because of the common exposure. Also recently I found something I had not known before and that is melanoma, a skin cancer that can invade the underlying body. I read a…
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Intamal Sarcoma
My husband was diagnosed with Intamal Sarcoma - which is a soft tissue sarcoma of the blood vessels surrounding the lungs, 2 years ago. This is a very rare form of sarcoma and I was wondering if there is anyone who knows about this kind of sarcoma or who unfortunaely is going through it. Plus, due to the radition and…
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Going to SGO in San Diego tomorrow, will I see any of you?
Hi This is my first time going. I will go to anything that has endometrial or uterine cancer in the title. I will be wearing a pin that has four women in black swimsuits and white swim caps. Probably will be wearing a pink or black mask. Corby
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Avastin
Any of you ladies taking Avastin for maintenance therapy??? My Dr wants me to start using it and im scared. Im tired of the IV's.
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Bilateral Metastatic Intimal Sarcoma of Pulmonary Vessels (Lungs)
Good Day - seeking anyone's experience in dealing with the above condition which my husband was newly diagnosed with in South Africa - Very rare - currently undergoing AIM chem but has not slowed the growth
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Three Weeks Behind Us
Hi everyone, My husband and I just returned home from his radiation #15 out of 35 so almost halfway there. It's been a bit of a roller coaster, but overall, tolerable so far. As a reminder, he has cancer at the base of his tongue, p16+, T1N2bM0, and began a protocol of 7 weeks with cisplatin chemo each Monday and radiation…
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CDK 4/6 inhibitors and either an aromatase inhibitor or fulvestrant & Metastatic Endometrial Cancer
Hi, Okay, I'm trying to reach out another way. I have metastatic endometrial cancer er+ pr+ her2-, mutations: pten, pik3ca, ctnnb1, SPOP, mss stable, and tmb low. I have been on Ibrance and anastrozole for 6 years. I know that there are possibly some doctors prescribing one of the other two CDK 4/6 inhibitors to…
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Advice and Help
My mom (75 Years old) went for a colonoscopy in March, 2023. During her colonoscopy, the surgeon indicated that he had a hard time with the colonoscopy because of a blockage. He deemed it suspicious and informed my mom that his first thought was Anal Cancer. He indicated that it was treatable and curable. My mom prior to…
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Revision surgery after double mastectomy
I live near Tucson, AZ. Looking for local recommendations for plastic surgery to smooth out lumps and extra tissue at surgical site.
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Am I a candidate for SBRT?
Hello. I am 68 with a recent biopsy detecting 5 samples (out of 12 total) showing Gleason of 6 and 1 sample showing 7 (3+4). My Urologist's referral was to a specialist within the same system that performs IBRT and that treatment is scheduled to start next month. However, on line researching suggests to me that I might be…
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Am I wrong in my wishful thinking.
Hello everyone. I’am 70 from Southern Ca. For years my PSA was stable at 1.9, then in Nov 21, it jumped to 3.0 (had Covid in Sept and studies indicated could cause increase). Retested Jan 22, fell to 2.7, retested July 22, fell to 2.4 (thought out of the woods) then when my regular Nov 22 test it rose to 4.0, then down to…
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Advice for just starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information as I get it. My…
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Orgovyx stomach pain side effect
For those of you taking ADT med ORGOVYX.. I began taking Orgovyx about 2 1/2 weeks ago as a replacement for FIRMAGON which I initially took for 2 months with only minor side effects. Now on Orgovyx I have developed upper stomach cramping in upper abdomen just under rib cage. I have some history with diverticulitis but it…
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Doxil & Stomach Cramps - Anyone?
There have been a few different conversations on here about doxil and side effects - most recently the rash which I do have. However my main problem now seems to be with severe stomach cramps. The kind where you curl up in a ball and hold your breath until the pain subsides. Ugh! I have had four rounds of Doxil. I first…
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Advice to Newly Diagnosed Head and Neck Cancer Patients
Christy, Bill, and Terry, who are all survivors living with head and neck cancer, and caregiver Jean share helpful advice to the newly diagnosed. For more information on head and neck cancer, visit https://www.cancersupportcommunity.or.... Take care, God Bless Russ
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LAG3-PD-1 Combo melanoma treatment
Any lovely souls out there have experience with this comb checkpoint inhibitors for immunotherapy ? Recently diagnose with melanoma stage IIIb. Had a incision on my arm where a 3.1mm tumor was taken out. Also lymph removale of 2 nodes, 1 showed no traces, other had .12mm cancer cell/growth in it. Lots of decisions to make…
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Lenvima??
Hi everyone, does anyone have experience with Lenvima? I am interested in learning more about the side effects and how soon you might have started to see results on this med? This is for idione refractory metastatic thyroid cancer ... w lesions on the brain. Thank you.
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Chemo-resistant cancer mutation
Hi folks, thanks for all the helpful info and support on this forum. I've been browsing occasionally since diagnosed with Stage IV endometrial cancer last year but this is my first time posting. I've been fortunate to have nothing observable since surgery, although it makes it weird fighting this invisible disease. Anyhow,…
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AHNS: HPV Related Oropharyngeal Cancer: Epidemiology, Diagnosis & Staging, Treatment and Prevention
From the Cancer Prevention Service of the American Head & Neck Society, a 4-part webinar presentation examining Human Papilloma Virus (HPV) Related Oropharyngeal Cancer discussing 1) epidemiology, 2) diagnosis & staging, 3) treatment, and 4) Prevention. Take Care, God Bless Russ
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anastrozole oral side effects
Stage 4 BC 2 years as go Had a double mastectomy and surgery seems to be successful. Am currently on anastrozole and after visiting the dentist he informed me that my jaw bone is deteriorated 8x the normal rate for my age. Since then I've had 2 crowns break and a bridge fall out. I've been trying to get medical to approve…
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The American Head and Neck Society (AHNS)
For whom I may help I have encountered another website you may want to check out and maybe even bookmark, your choice. But I am posting this because I believe people from our H&N community can possibly find something of benefit on there. The American Head and Neck Society (AHNS) https://www.ahns.info/ Society Background On…
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Personal Patient Interview And Review Of His Cancer Experience And Treatment
This is a personal interview with a patient who went through an operation to remove lymph nodes and cancer of the saliva gland with follow-up radiation and chemo. The one lymph node was not encapsulated and starting to spread which to me means it is good they caught it when they did. This all started though with Melanoma…
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NavDX A Case-Based Discussion On The Utility Of NavDX AHNS H&N Conference
This is a discussion of the use of NavDX and covers real-life cases. 1 Hour Video Detection of HPV-Driven OPSCC: Clinical Evidence of an Innovative Blood Test - A Case-based Discussion of the Clinical Role of NavDx in Managing OPSCC Faculty: Dr. Chris Holsinger, Professor of Otolaryngology, Stanford University School of…
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Loss of muscle mass
after the cisplatin chemo, I lost considerable muscle mass. Anyone experienced this? If so, will it ever come back?
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Mike Linn Cancer Victory Story
This is a short video of Mike Linn and how he beat terminal stage 4 Melanoma and then had a recurrence which manifested itself in the lymph nodes in his neck and also in his tongue. Check out his other videos while you are there. Mike Linn says... I'm going to continue to keep making content to help myself and other cancer…
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Looking for those treated with AEPA / CAPDac protocol
My 16 year old daughter was just diagnosed with Classical Hodgkin Lymphoma stage 2a. One of the treatment options offered by Stanford is AEPA/CAPDac. Stanford also refers to it as HLHR13. Consists of 2 cycles with Adcetris (brentuximab vedotin), Etoposide, Prednisone and Dozorubicin. Followed by one cycle of…
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Anyone Had hair loss with Doxil?
Avastin giving me nose bleeds and headaches.
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2024 list of Medicare PCa approved treatments.
I am getting my transperineally fusion targeted biopsy at the end of the month. I have been trying to prepare for treatment options from AS to surgery and all points in between. Keeping busy keeps my anxiety well-directed! 71 y.o. with an Advantage plan. My first option would be to remain fiscally efficient and start with…